Training Of Cerebral Palsy - Books And Equipment?
Nov 1, 2013
When the heel of both feet cannot reach at the ground in cerebral palsy, what kind of training is considered?
In what kind of training is standing training of cerebral palsy carried out with this institution?
Please let me know the books which can be recommended by home training of cerebral palsy?
Although purchase is considered for the training equipment for functional exercise of cerebral palsy at home, what kind of training equipment is proposed
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My 12 (almost 13) year old daughter is about to get a baclofen pump. She is a foot user as her arms are severely spastic and have a mind of their own. The doctors all say that it will help with her hip pain (she has a dysplastic hip, it is on the leg that she uses) as well as the spasticity and tightness and pain that she has. they also say that it may help with her speech (she speaks very slowly and sometime cannot speak so well as her tightness makes her mouth all wonky).
She has botox about a year ago and it worked wonderfully... for about a week. so the doc does not want to do it anymore. I am totally ok with the pump and she really wants it, but i wanted to speak with others who have CP and have experience with the pump to know what your experience is.
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Day 1
I woke up after having a cold/bad throat for about a week and noticed it was a little difficult to speak. I had a look in the mirror and thought it was because of the cold. By lunch time I could not grip a straw with my lips and one side of my mouth and my cheek would not move properly. I tried to wink or blink and could only do it with one eye and when I tried to screw my face up it only did it on one side. I did think that had a stroke and booked an appointment at the Doctors. She gave me a course of steroids and gave me a leaflet that explains about BP.
Day 2
My eye is a little worse today, I had a little control over my blinking yesterday and today it is almost impossible. It just continually streams that is quite a nuisance. I went and bought some surgical tape to tape it closed with tonight. It is far harder to get food in my mouth today as well as it does not seem to open as well as it did yesterday. On the plus side I do think I still have my taste on the left side. I get pins and needles and twitching around the area of my jaw and my forehead ATM.
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I just want to know how the rest of you are dealing with the fatigue of a work day and fighting the fatigue. I'm 38 but most days I feel 108!
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I have a few problems I would like to ask about as I'm unsure if it's just me or not? The first one being my short term memory isn't very good at all, for example if I get asked to do something if I don't write it down I forget very quickly,another problem I have is my sense of direction it's bad. I can go somewhere (through to town) but I can't seem to memorise my way around. I'm now 29 and used to go with my friend every other weekend, no matter how many times we went I couldn't and still can't remember my way around. I hope what I've written makes sense and like I said I'd like to find out if it's a related problem to cerebral palsy or not.
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My daughter was born at 32 1/2 weeks and has very mild cerebral palsy, she is now 17 and experiencing days when she can't get out of bed. She is just exhausted and gets pins and needles. The doctor suggested it could be ME but I wondered if its a result of her Cerebral Palsy. Every time she does something that requires more mental or physical input than normal she is then wiped out for 2 days. Her CP has never really affected her, she wore Piedro boots as a child but recent years has had a "normal" life. Would really appreciate some input, she is due to have an MRI next week.
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2 days ago I woke up and hopped onto my computer like I do every morning (I'm 16/male and on summer vacation). I noticed that it felt awkward when I tried to blink my left eye. I didn't think anything of it and just continued on with my day.
The next day I woke up to the sound of my phone. I picked it up and it was one of my friends. He told me something that had happened the day before and made me laugh. I noticed that when I laughed only the right side of my face would move. I thought this was very strange and I got a bit scared.
I got off the phone and went to the bathroom and this is where I really freaked out. I couldn't move the left side of my face properly. Everything on the left side seemed a lot weaker than my right.
I tried looking it up for a few hours to see if anyone else has ever had this. I couldn't find anything except for a few forums with people saying it happened to them, but I still couldn't find out if it had a name. I was really scared and was having suicidal thoughts if this turned out to be permanent.
Anyways, I'm very very happy I found this site and that it heals itself. I told my mom and she's going to take me to the doctor so maybe he can give me steroids or something.
Summer vacation ends in about 3 1/2 weeks. I hope I recover by then because I'm not going to school like this, I don't care what my parents say.
I'll keep everyone updated. This is my second day so far with this dumb BP crap.
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Yesterday, while working on my computer, I noticed my left eye would not close. Within an hour my lip was drooping and eating was difficult. This morning, my Dr. diagnosed Bell's Palsy and has prescribed a course of steroids. My eye is taped shut to prevent dryness and I feel like I am falling apart,--a a thought that occurs frequently as the my 65th birthday approaches. I have chronic kidney disease and want to know if there is any alternative remedy for this hell known as Bell's Palsy.
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I have heard a lot about lengthening the Achilles muscle to ease tightness in order to help kids who have cerebral palsy. My grand daughter finds her physiotherapy sessions so stressful and painful that she's not getting the benefit she needs and I am wondering if anyone has tried this surgery and can tell me has it helped? Any information will be greatly appreciated as it is heartbreaking to see a little one in so much pain and not able to do things a normal child can.
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In 2003 I had really painful headaches so bad I could hardly put my head on a pillow, pretty scary as I do not suffer from headaches. Then as I was eating bowl of cereal I kept missing my mouth and realised I couldn't feel my lips or tongue as though I had been given dentist injection. My sister took me to hospital thinking I was having a stroke, this was the first time I had heard of Bell's palsy and I was given steroids, i was very tired and it was an effort to do anything like eat, speech, it did take three months to go.
february 2014 I got a rash on my stomach which spread to my neck, to my back, to my feet, then to my scalp and then my ears, I was in agony, it was urticaria. Whilst trying to cope with this I then got Bell's palsy again, possibly due to an immune system at a low. However it has taken a lot longer to recover this time. Eighteen months later and I still have a twitchy eye and lopsided smile. I am now considering Botox, has anyone here used Botox to correct any of the nerve damage left after palsy and if so what are your thoughts?
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I play the French horn and got the Bell's palsy after an exceptionally day playing 3 weeks ago. It seems to be fading already. I was sent to the stroke unit and found to be A1 in all other respects. My treatment was 7 days x 60mg steroids. If I return to playing, will it happen again?
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A person i know has suffered a stroke 8 years ago. He says he woke up at night wanting to go to the bathroom, but found unable to get up. He had his mouth drawn to the right side. His wife has taken him to the hospital. He was diagnosed to have suffered a stroke and had hypertension and hyperlipidemia.
The patient suffers dysarthria without improvement ever-since. Has drooling, fasciculations in the tongue. A small dent in the tongue which (i'm not sure) may be attributed to wasting. Jaw jerk is normal (I think so). No weakness in arms and legs.
What is this condition. IS it Pseudobulbar palsy? (Or a bulbar palsy?)
P.S: There is not pseudobulbar affect in this patient. Can a patient have pseudobulbar palsy without having emotional instability?
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Does anyone know if it is possible to over do the vestibular rehabilitation training for vestibular neuritis recovery?
I have mild vestibular neuritis and was prescribed, by a balance physiotherapist, a vestibular rehabilitation training program. This developed 13 months ago, and with the VRT, it did clear up. The symptoms came back recently and I've started VRT again. This time I'm having trouble recovering.
I do an intense program of 6-7 different exercises, 5 times per day, plus 40 minutes of walking or running per day. I do this everyday of the week without days off. Could I be over training and not allowing the brain to compensate?
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My Mother is 60 years old and recently she is diagnosed with cerebral atrophy. We have consulted neurologists for the same and all gave same opinion that physiotherapy is the only way to minimize the effects.
Then we heard that stem cell therapy is the solution, which will not cure this disease but one can live normal life with this. Please suggest is stem cell therapy really works that ways?
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A $60 eye exam revealed swelling in the optic nerves that got me a referral an eye specialist, the eye specialist then told me I most likely have high pressure cerebral fluid that is causing the swelling and need a CAT scan to look for brain tumors, no brain tumors were found ....... but the cerebral fluid must be drained to prevent continuous swelling of the optic nerves that will cause separation & blindness.
The CAT scan cost me $1,000
The cerebral fluid draining cost me $1,700
The cerebral fluid draining required a large needle to puncture through the lumbar area into my lower spinal cords, as the lumbar area does not have 1 solid nerve as the upper portion, it is basically like spaghetti so there is NO risk of paralysis when done by professionals with a live X-ray machine to line up the needle between vertebra for safe insertion.
I don't know what measurement scale they used, but the pressure reading was above 40+. They told me normal pressure should be between 8 and 12.
They then drained the pressure to about 18
As I was walking out of the hospital, I had never in my life had such extreme mental clarity and excellent vision.
Shortly afterwards, I noticed that my normal clumsiness was gone that I had dealt with all my life.
Reading
Math
Memory
Physical agility
Strength
Desire
Aggressiveness
too many to list
As I know all my life I was mentally slower than average until that procedure. It has been 1 1/2 years since then, and starting 2 months ago I noticed diminished capacity slowly creeping up as before, as I probably need the procedure done again and don't have the money to do it.I realized that if this high cerebral pressure would have been detected as a child, I could have gotten a better education if it had been corrected.
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I'm 32. It was only detected after suffering 2 weeks of intense headaches which eventually affected my optic nerves in my eyes. I wear glasses and after 2 weeks of intense headaches my eyesight actually became much better which baffled me. I was sent away from GP with the diagnosis of a tension headache (which I don't hold any blame for) but luckily I pursued further and booked an immediate appt with an Optician who found that my visual field was affected in my left eye. I was advised to go to the Emergency Eye Casualty who continued with further tests on my eyes. They discovered the damage to my optic nerves but at this point were unable to find the source and I was seen immediately by a Neurologist who at first thought it was benign cranial hypertension. He arranged a CT scan and said that he did not expect to find anything but was very surprised to see the clot on the CT. I was admitted immediately and underwent a lumber puncture. I spent 5 days in hospital and was discharged on Warfarin medication for 3 months. I have since undergone a repeat CT scan. I believe I was very lucky as any longer I could have had a stroke. I was advised to stop the oral contraceptive pill immediately as they said this may have been the cause but also that I have recently underwent a breast reduction 3 months before.
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I have had Bells Palsy just over a week now, I have just finished my steroids and now I am starting to get bad pains in my jaw and behind the ear! Not constant but coming and going! Is this normal?
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My mother was diagnosed with Bell's Palsy on Sept 2nd, 1 week ago. She has left sided facial paralysis, but she also has COMPLETE left sided weakness. The left sided weakness started about 2 days after her face. The doctors have done CTs and MRIs with contrast and ruled out a stroke, but they do not know why she has left sided weakness. Has anyone else had complete left/right weakness with Bell's Palsy? Also since the diagnosis of Bell's Palsy my mother has been confused at times, her memory is horrible (can't remember her SSN now), has trouble saying what she is thinking at times, and is just NOT the same. Anyone with similar symptoms please help! The doctors are saying possible early onset of dementia??? My mother is 49. I have just never heard of all these symptoms with Bell's Palsy
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what is the best treatment for bell's palsy.
herpes zoster and bell's palsy illnesses
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I had the bell's palsy on the right side of my face a year ago and got recovered in two weeks time..now it's been three days since i started feeling numbness on the same side with little bit of pain on the top of the eye, cheek and under the ear, could it be BP side effect? or is it coming back?
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I recently was diagnosed with BP about 10 days ago, I have all the normal symptoms, but the last two days I have had serious pain from my neck up to my ear and onto the left side of my head! Is this normal or should I contact my doctor ASAP. Thanks nick
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