total thyroidectomy 2 months ago due to Graves disease, 3x since, I have experienced, edema of both eyelids, itching and redness, I am on Synthroid 0.1mg po/daily. The symptoms dissipate after about 2 days.Anyone post Thyroid removal ever have this happen?
View 2 RepliesI now have a 4.1 ascending aortic aneurysm. Begin taking synthroid in 2007 after stage 4. Total thyroidectomy. Could there be a connection? My endo thinks I am loco.
View 3 RepliesI am a 62-year-old white male who works a 50-hour-a-week job in public relations, and I have Ocular Myasthenia Gravis. It was diagnosed about 5 months ago when my wife said, whats going on with your eyelids closing? I thought it was sunscreen reaction, but the neurologist did tests and said MG.
I have been taking Mestonin since, and have varied the dosage to find out what works. However, nothing works. The MG comes and goes, and moves from the left eyelid to the right eyelid at a moment's notice. And, I have an ileostomy due to Ulcerative Colitis. I received this lifesaving surgery in 1991, and have never had problems. However, Mestonin causes endless diarrhea, which is bad (really bad!) for a person who wears a pouch of poop on their tummy.
When others face a similar situation wherein Mestonin is not working, what do you do? Do you go straight to Prednisone? I cannot tell any difference in taking Mestonin or not taking it, regardless of the dosage. There are good days, but mostly bad ones.
I do not have double vision or any other weakness symptoms.
Had a thyroidectomy in the middle 90s, and was put on synthroid. Due to insurance changes I haven't been able to get meds for almost 2yrs now. Is my health in danger ?
My 10 year old daughter is in puberty, her pimples and clogged pores on her face is the evidence, lol! My concern is her eyelids have clogged pores or glands few times this year. One time leads to little irritation (itchiness), but warm compress and cold compress get it over in a couple of day. In 2014, she woke up with a swollen eyelid (eye infection on eyelid)! Is the hormone at puberty a factor as she is producing more oil? How to prevent that from happening? Should I have her use diluted baby soap to wash her eyelids daily? Or some OTC eyelid wipes? Or warm compress twice a day? She has been taking a potent omega-3 capsules the past half year, is this increasing the oil production as well? She is moderately myopic, too.
View 2 RepliesI have just been diagnosed with graves disease (and overactive thyroid as a result) and prescribed 3 5mg carbimazole pills a day whilst i wait to see a specialist and have an ECG so i can also be prescribed beta blockers.
My doctor said to take all 3 pills at once but i have read that the effects don't last 24 hours and its better to spread them through the day. Does anyone else take 15mg and do you take them all at once or spread out? In your experience when is the best time(s) of day to take them?
Say you have been treated for Graves Disease with RAI and that deals with the hyperthyroidism (not so much with the eyes though!), what happens to the antibodies that were attacking you thyroid with such vigour and verve? Do they just go home because there's nothing left to attack? Are they always in your system waiting to attack public enemy number 2? And why do these things decide to attack the very thing they are meant to be protecting? Is it genetics? Childhood illness (whooping cough, measles and mumps in my case.) Environmental factors? Stress? Diet?
I am sure there are many schools of thought and theories to all of these questions but I am curious still about where these wee anti-bodies go after the illness (or symptom of your illness) has been irradiated in my case.
I Am wondering if someone can help me out with what my blood results mean . ok so i went to a walk in clinic because i was having a laundry list of stuff going on with my health . asked doc to do some blood work and see if he could find what might be wrong .
blood work came back showing some thyroid issues . my TSH was .16 my T4 free was 18 free T3 was 6.1 and my TPO was 102
the doc said i have Hashimoto's thyroiditis and referred me to endocrinologist which im waiting for appointment .
so my question is after doing some googling im wondering if the doc might have meant to say graves disease rather than hashimoto's . it was very busy in the office and maybe he just mixed the two up ? the reason im thinking this is because when i look at what my blood work results are they point to hyperthyroid rather than hypo . can anybody tell from my numbers i really would like to know and its a bit of a wait till my appointment with the specialist.
I am very new to this site and extremely grateful that I found it. I was diagnosed with inappropriate sinus tachycardia almost three years ago. I am taking 350 milligrams of metoprolol. My primary doctor ordered new labs since my cardiologist has not requested any in the last 2.5 years. My results are as follows:
TSH - 0.01
Vitamin D - 26
Carbon Dioxide - 18
Free T4 - 1.3
Thyroglobulin Antibodies <1
Thyroid Peroxidase Ab 421
Primary doc originally thought I graves or Hashimoto's, but now wants me to follow up with an endocrinologist. Of course that appointment is 2 months away.
I do not have many symptoms. I do have the feeling of warmth in my shins, but that comes and goes. I have a little muscle weakness. I have been having trouble sleeping through the night, but 2 glasses of wine have been helping.
If I do have either Graves or Hashimoto's is waiting 2 months for a doctor appointment ok? I would think that I need some type of medicine.
Is there anyone out there that eats gluten free and any evidence to say that it will help with Graves or Hyperthyroidism?
Just exploring my diet as I'm on 30mg of Carbimazole daily and have put on weight. I normally have low fat, high protein, low carb, veggies, fruit and lots of water, but still putting on weight.
Weight gain is this because I'm going back to being hypothyroid or the Carbimazole? Back at the doctors next week for a blood test.
Just wondered whether to try gluten free, although at the most I only eat 2 slices of bread a week and my diet is quite healthy apart from the occasional glass of wine.
I've been taking carbimazole 20 for 2 months now as i have graves i had a uptake scan which shows its my whole thyroid gland is playing up .up and down so my specialist had gave me carbimazole to block my thyroid hormones and replacing them back with thyroxine 50 i feel so terrible sickley cant eat well also headace i believe the carbimazole is causing all the trouble.with side effects.
View 6 RepliesI have posted to this Board before about what has made a difference to my recovery from Graves. In addition to the medication Methimazole, I started on Regular L-Carnitine and then later Acetyl-L-Carnitine and vitamin D supplementation. Others on the Board have posted about the addition of selenium as well as other natural herbs such as Melissa and Bugleweed. I saw this posting on another Hyperthyroid Board and the author has given me permission to copy it to this Board as follows:
I am shocked that our doctor's don't know more about the thyroid, autoimmune disease and its connection to the gut. I went to a naturopath when I was first diagnosed in 2012 because my husband and I didn't like what the endo suggested. After seeing the naturopath we made a connection between my occasional IBS type symptoms, bloating and my thyroid. We started a probiotic and immune support vitamin called Moducare. Then she ran food sensitivity testing through All Tests labs (some MDs are skeptical about this but it worked for my stomach). I had all four antibodies for graves and Hashimoto's and I had symptoms from both and almost undetectable TSH levels. She removed gluten and dairy from my diet and pulled out foods I tested sensitive to like yeast. Then added Lycopus Virginicus and lemon balm tincture to my routine along with vitamin D, B complex and CoQ10. I finally figured out though that the real cure for me was going gluten free and dairy free. No more bloating, no stomach cramps, gas or the big D. Then I found out there is a link between Celiac disease, gluten sensitivity, leaky gut and Thyroid disease. There is a natural graves treatment FB page I am on and a lot of us have cured ourselves of Graves using dietary modifications. I went into remission within 3 months of this diet. I have been normal for over a year now. You really need to be tested for celiac before you start the diet. If you don't have it (it can lead to thyroid disease and then other autoimmune disease when left untreated) then you are sensitive to something you are eating and are most likely dealing with leaky gut. Someday the MDs will catch up with what is really going on here. Our pediatrician is so progressive and knows all this stuff but warned us that a lot of her colleagues are not there yet when it comes to medicine."
I've just been diagnosed with Graves disease. I am taking Carbimazole 40mg daily now, for 8 days. I have the dreaded 24hr sweats - aching leg muscles - sleeplessness - no energy and lie on bed for most of each day!
View 1 RepliesIs it possible to contract diseases, other than cold and flu viruses, from smoking after someone? I recently hung out with a friend who has a slightly questionable lifestyle, and now my boyfriend is freaked out and wont see me till I get tested, and i want to be sure its actually possible before I spend the money for the test.
View 1 RepliesI have recently completed 2 stool sample tests that have rendered the same outcome, positive for parasitic organisms but unable to identify. Now I have to complete the exam a third time. I have still not received any treatment and have experienced some serious health problems over the past few years, including an idiopathic cardiomyopathy a little over 2 years ago. Two years before this I was hospitalized for a serious virus that could not be identified. This involved a very high fever, diarrhea, vomiting, and the start of kidney failure, however I went to the emergency room at the right time. One month later, I had mono, then 4 months later, had a palsy in my left foot, then less than one year after, started experiencing chest pain, serious headaches, and extreme fatigue. The emergency room kept sending me home telling me it was a virus. Finally several months had passed after numerous visits to this ER, I went to a different hospital where they found a cardiomyopathy. My ejection fraction was 35%. I am only 37! Just after this, I noticed one day that I had experienced severe itching in the rectal area with several days of white discharge that had an odor of infection. I waited for a couple of months to see if things would get better, and they didn't, so I went to the ER. I told the doctor about the cardiomyopathy and previous mysterious illnesses, he completed a brief rectal exam, and said it was probably internal hemorrhoids. I asked if a parasitic infection was possible, and he said it was very unlikely because I hadn't been out of the country in several years. So he never tested my stool. Two years have passed, and I have had the same/similar problems since, and have reported this to the doctors over and over. For the past year and a half, I have developed new symptoms. Extreme fatigue, weakness, joint aches, headaches, constipation and diarrhea, greasy, yellowish stools, sweat that smells like ammonia, skin peeling out of my mouth, gas, burping, bad breath, weight loss and loss of appetite. In addition, I have mysterious skin rashes with hives on a daily basis, and started taking pictures of them to document this. In December of 2012, I tested positive for lupus with a positive ANA, and my doctor ordered the test because my eosinophil percentage had consistently been flagged on my blood reports as high. I still was not getting any answers, so I switched all of my doctors and have been going to the city. This is a world renowned hospital. Upon meeting my new doctors, they ordered a repeat of blood tests. This time the lupus was negative. The doctors quickly dismissed the lupus results prior, and said that sometimes people just test false positive, with no further explanation. Back in April of this year, my doctor informed me that my vitamin d level was very low, 12, should be between 30-40 he said, so I have been taking prescription vitamin d. I met with an infectious disease specialist a month ago, and she said she didn't think that I had parasites, but she would test because of my eosinophils. Bingo, I do have them, and now the doctors are trying to say they are parasitic but may not be causing my symptoms. For several months I have noticed that there is strange looking debris after blowing my nose into a tissue. Last night, I am about 99% certain that it was a small worm, certainly looked like one, and I was a teacher, so I am fairly well educated. I saved it in the tissue and put it in a ziplock bag. I don't know whether to call my doctor or not on Monday morning, as I don't trust him, and think he will once again be dismissive. I already went through the HIV phase with him, and told him I didn't have it, as I've only had 4 partners my entire life, have never had unprotected sex, I don't rim, and had an HIV test. I haven't been sexually active in about three years, so I knew I couldn't have it. I retested a couple of months ago to satisfy him, and it was negative once again. I have asked him if any of my past symptoms are connected, and he didn't think so. I disagree. The only diagnosis I have is another one of idiopathic nature, urticaria, (spelling) and says my blood work is fine, which it isn't, because my vitamin d was very low, and my eosinophils are still high. Any advice on what I should do? Prior to all of this stuff over the past 5 years, I was very rarely I'll. now I can no longer do many of the things that I used to, as I don't feel well enough, and I would really like to get some normalcy back in my life. Is there a doctor who can answer this without telling me that I am imagining things? The test results obviously indicate that I am not.
View 52 RepliesHi I just had a friend pass away from what they believe was Sepsis. But they aren't sure just yet. His organs and fluids came back great. There doing blood tests and we won't know exactly what it was until mid March. I was just wondering if his family and friends should be concerned about getting it?
View 1 RepliesSo last friday night, my cat bit me on my lower leg. I washed it coz my mom got mad at me with water and soap. Yesterday I feel fatigued (probably due to my brother's birthday and I cooked half the day ugh) and just this morning when I woke up my throat feels itchy and I have had chills. I don't have fever but feels like about to have a flu. I had myself vaccinated after waking up but still feels chilly. Is it rabies? My cat looks well anyway so I don't think she has rabies but I want to be sure. Everyone in my family has had flu last week so I'm not really sure.
View 1 RepliesWhat can I do while I wait to see what medication is going to help me. Predisone and hydroxychloroquine 200 mg
View 1 RepliesI got back from a 2 month trip across Eastern, Central and Southern Africa about 6 weeks ago. A few days after I got home I felt quite unwell, fever, headache etc and I was concerned I may have contracted malaria as I wasn't brilliant at remembering to take my pills. So I got referred to infectious disease department who tested me for lots of travel related illnesses. I was negative for malaria but came back positive for tick borne encephalitis and also Rickettsia (related to African tick fever) I think.
I am actually feeling fine now but they called me in for the results ... I'm just a little confused as from what I've seen on travel health websites is that you can't get tick borne encephalitis in africa! I didn't know this at the time so I didn't say anything to the doctor. You get it in Asia and Europe..I did go to Asia about a year and a half ago but would it be possible for this to still show up in my blood?
I'm just a bit worried as I know this disease can be potentially deadly or cause lasting neurological problems and there's no treatment. I'd feel a bit better knowing I definitely caught it from the earlier trip to Asia as then I know it would have made me much sicker by now if it was going to.
What causes Immune systems to become useless and non functional ? Is it drugs too many, to strong ,killing off what is good stuff in our blood, ?
taking yet more drugs to compensate for blood disorders,to give the system chance to revive to fight back, but seemingly never does.
What happens when the immune system can't take any more drugs,
does it shut down totally, and then what?
I have been dealing with undifferentiated connective tissue diseases for a few years. I am now being treated for Fibromyalgia and Rheumatoid Arthritis.
These are very painful at times.