Prolonged Vision Loss After Ocular Migraine
Jan 18, 2014
This is just a post to ease some peoples worries as i was very worried when this happened to me. I'm male 23 and i've been having ocular migraine on and off since i was about 15. normally i just got the usual aura in my right eye which went after about an hour and then i just got a long dull headache, not that painful, just making me feel run down and tired. But my most recent migraine was different: had the aura, then the headache, but i was left with a small shimmer across my right eye which would not got away! waited a few days, then went the optician who said there was nothing visibly wrong with my eye. i then went to my gp who told be to go to eye casualty as soon as poss, which scared me a lot! went to eye casualty and was again told there was nothing wrong with my eye and they did not know what it could be but it was too early for a brain scan and they hoped it would go away or i may have to live with it! basically i was fobbed off. this was now a week in and my eye still had this annoying shimmer across it. so i decided to wait another week. after two weeks in it eventually began to fade and now after 3 weeks in my site is back to normal. So if this happens to you, don't worry, it can happen and although it is not the norm for ocular migraines it is obviously some sort of side effect. hope this helps others to ease their worries and not to think the worst all the time like me!
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Last week I had my first ocular migraine. I was sitting on my phone and noticed a small flashing dot in the center of my vision. It was like when you look at something bright then look away. I thought it was from starring at my phone to long. So I got up, and tried calming down. I tried texting my husband and noticed there were missing letters that I could not see. I also had these blurry lines running across my vision. I called 911 and had a massive panic attack thinking I was having a stroke or going blind. By the time they got to my house they had gone away. I also went outside to get air, and came back inside and that made it 100x worse. My entire peripheral vision was flashing. Anyways they ran blood work, ekg and monitored my heart for two hours. Diagnosed ocular migraine and he told me the first one is always scary and nothing to worry about. ( I see my regular dr tomorrow) Now I am having insane anxiety thinking something is really wrong like I am gonna go blind, have another attack or I have a brain tumor. I am terrified of getting another one of these. I don't even want to leave my house in case it happens and I am alone. Can anyone help alleviate some of this fear for me? I am going mad concentrating on my vision 24.7
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I'm wondering if anyone has this condition if they have found vit b12 injections have helped their symptoms of ocular migraine
I was getting shimmering most mornings when I woke and sometimes going from light to dark or dark to light and occasionally zigzags and even blank bits! Dr said it was probably ocular migraines.
I have just finished my loading dose and they have improved significantly.
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In my jaw, it can sometimes be painful which seems to trigger neck pain and a headache that covers specifically the right side of my neck, the upper right-middle part of my head, and pressure on the right side of my face behind and under my right eye. My vision then goes blurry/hazy. On a side note, sometimes my jaw on the ride side makes a crackling noise when I open it slowly and focus on the area.
My symptoms started about 4 years ago when I woke up one morning to find that the vision in my right eye was blurred. The symptom would occur at random, day and night. I've seen multiple optometrists, an ophthalmologist, a general physician and a neurologist and no would has found anything wrong as of yet. I have found a few things though. (posting more below as i've run out of characters)
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Each day for the past three days I experienced a little disturbance in the middle of my vision which developed into a jagged zig-zaggy circle that eventually extended outwards and within 30 minutes it had disappeared.
I had something like this a couple of times in the past and the optometrist said "ocular migraine" and there was nothing to do for it but to let it pass and if I was driving just pull over.
So, for the past three days in a row I have gotten one of these all of a sudden. The visual disturbance goes away with 30 minutes, but now I get a headache afterwards. It is not a nauseating, leave work, drop everything type of headache, but it still thumps and on each time it was thumping in a different location on my head. It lasts about 3-4 hours, although last night it was longer. I still have a "heavy head" today but no flashes of light so far.
I have been researching and do you think I may have (rather than a ocular migraine), a classic migraine with aura? That may be stretching it. I am at a loss.
I can't get in to see a doctor for 5 weeks and my ophthalmologist is not available either. My only choice is the ER to hope they have an eye doctor on call. A general doctor won't even touch this here.
Please, I'm getting desperate and scared. What do you think it could be? By the way I forgot to mention , the lights I see are in both eyes, not just one.
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Is anyone else experiencing ocular migraines and how frequently do they occur? My eye doctor wants me to have an MRI and my medical doctor prescribed propranolol.
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I am 46 and have just started having these strange migraines, the first time I had one a couple of weeks ago , I thought I was having a stroke, saw flashing lights and zigzags and things were distorted like looking through broken glass but only one eye, that lasted about 15 mins then I felt sick and then I had a bad head which lasted a few hours , I went to the opticians who checked my eyes and said they were fine and then went to the GP who didn't even examine me just said these are ocular migraines, I have had two more this week, has anyone else had these or similar.
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I have had silent migraines 24 years.. and recently had the first ocular one. With no warning, went blind for a few seconds, twice in ten minutes. The doctor confirmed it was not a stroke, ''just ocular migraine''. For most people, if the temporary blindness recurs, does the the time of the blindness usually last longer than a few seconds or for most people, does it stay at a few seconds? I am in my seventies.
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I've had migraines throughout my life. Mine really peeked in my early 40s going through peri menopause they would be 3 days long. Now the painful migraines have gotten so much better and shorter. I also use Imitrex as needed.
I would also get an Ocular Migraine (visual disturbances such a bright zig zag lines, vibrating bright lines in vision) about every 4-5 years. They were checked out the first time and the doc said they were not harmful.
Recently my dog decided to put me on Atenolol to prevent migraines. After 3 days of being on them I started to have the Ocular Migraines every single day now! I've never had that happen. The Atenolol has stopped the painful migraines completely but I don't think I can handle something like an LSD trip every single day. This doesn't seem right. My doc doesn't think it's causing it but suggested I go off of it to see.
Anyone else with Ocular migraines?
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This has happened a few times and usually it comes and goes. I can have a few in the matter of a couple weeks and then not have it happen for a couple of months and then it rarely appear again. The first time it happened was after a big exam and I started having trouble focusing in class and then gradually a blind spot appeared in my central vision. It then became bright a multi-colored zig zag half circle in my peripheral vision and lasted about twenty minutes before floating out of my peripheral. There was no pain and no other symptoms rather than the visual distortion and I was completely panicked by the whole thing. I have noticed that it comes on during stressful times..and sometimes it will be just random. Because there is no pain I'm wondering if this is possibly an ocular migraine?... as opposed to a migraine aura. The weird thing is, is that I've never had an actual migraine with pain but my mom gets them so maybe family history could come into play. I've seen a NP about this but she was confused by it and just referred me to a neuro and said I would probably need a CT or MRI. She told me that ocular migraines always occur with pain but from what I have researched this isn't true. I currently don't have insurance so I probably won't be going to the neuro. I also take birth control so now I'm freaked out about the whole stroke thing but she assured me that I should continue (young age no other health issues). I was just wondering if anyone else has ever experienced this without the pain? and from experience is it dangerous or something to seriously be worried about?
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I'm a 42 year old female and up to about August this year 2014 I only had single vision lens to read, watch TV, and work at a computer with. In August my eyes became very dry and felt like they were being tugged or pulled. I saw my regular eye doctor which told me I had dry eyes and put me on prescription eye drops. Soon I could tell I was getting some vision loss ex specially in my left eye. I also began to notice a "pinwheel" or something like a reflection of a ceiling fan in a droplet of water in both eyes in the outer upper corners of my eyes. I've seen my regular eye doctor about four times, a retina specialist twice and another eye specialist once. I also had a MRI but nothing has been found. I also had bifocal glass made by my regular eye doctor. Wear them for three week and I felt things were worse so I went back to my old single vision glasses. Has anyone had or heard anything like this? I am a mother of a special needs little girl that takes a lot of care and I'm scared I'm going to loose my eye sight.
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About a year ago or so I started to notice a change in my Peripheral vision. I found myself having to completely look to my right while driving because of a blind spot and I also noticed when I shaved my underarms I could no longer see them (very blurry) if that makes any sense. I didn't have and insurance so I had to wait. Fast forward to last month. I saw an Ophthalmologist thinking it was vision problems of some sort. Well, I miserably failed the test that checks for peripheral vision. He then looked at the optic nerve and didn't see anything that would suggest normal vision loss. He said I have lost almost all Peripheral vision in my right eye and a good amount on my left. He referred me to a neurologist that I will see this Monday. I was glad because I had also been having some issues with what seems like pinched nerves in the neck and shoulders, I thought it could be related to some nerve issues. So my other issue which I didn't correlate as being possibly related until today is that I have been having some major digestive problems that have flared up on and off since February. I am having a lot of indigestion, gas and constipation.. The constipation is pretty bad, sometimes I can't go and I resort to taking laxatives for relief. And I have this really annoying muscle twitching in my lower abdomen! It feels like a vibration, I have been having that for a couple of weeks now. I have been so miserable that I made an appt for next week to see a gastro doctor. But then tonight I Googled the vibrating issue and was noticing that there were many people on MS boards with similar problems. And then it hit me that there seems to be a lot of coincidences between my issues and MS. Now I am worried. Did any of you experience similarities before a diagnosis? And how are people diagnosed?
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I haven't been diagnosed with MS, but I posted here awhile back about an abnormal result of an MRI after seeing a neuro for loss of field vision. When the results came back the MRI stated that I had "Small focal white matter lesions scattered throughout the supratentorial region". From what I understand, unless I am 70+ years old (i'm 39) a migraine suffer (have never had one) or other brain injury, I should not have these. When I followed up with the neuro he brushed it off as "there is nothing wrong with you" and sent me on my way. I had planned to get a second opinion anyway but now I think I need to do it faster. Monday morning I woke up with the worst pain in the right side of my next. Paracetamol did NOTHING. I thought I slept wrong but the pain didn't subside and actually moved later in the day into the base of my skull, behind my eyes and on the right side of my head. When I tilt my head back it shoots a pain into my shoulder blade and up into my right eye. This has been going on since Monday. I had hoped it would subside to no avail, only to now feel pain in my extreme lower back when I sit, bend or sneeze! I get minimal relief from Naproxen and tonight before bed I have resorted to taking a muscle relaxer to get some relief. Can this be related to MS?
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I'm 47. Have had PCOS since I was 13. No kids due to infertility, most likely caused by PCOS. OK, now onto the joy of being me part.
Been sick for over 20 years with various and sundry health issues, i.e, Lyme, Epstein-Barr, adrenal fatigue, MTHFR, etc. to name a few, but the last year or so I'm feeling sooooo much worse. Never had PMS, and now I get cramps a few days before the witch shows up. When she does show up, before when she would show up, she would last 5 or so days. Now she hits hard and fast, heavy for a days or so and then stops on day 2 or 3. Digestion has been horrible. I have so much gas and bloating in my upper stomach that I could power a small city and it's very uncomfortable. Total carb and sugar intolerance. My doc thinks it could be a bacterial infection called SIBO, but after reading everyone's symptoms here, it makes me wonder if it is Peri related. The worst anxiety and panic attacks of my life that hit out of nowhere, even when I am not worrying about stuff. Heart palps galore and according to numerous docs and tests, my heart is fine. Reflux. Overweight and can't lose weight. Emotional instability of a newborn. My mom died a few months ago and while I know grief can be at play, I can cry just watching a commercial. Dizziness, bouts of vertigo, vision getting worse, hair loss more than usual, chapped lips and back of hands, 0 and I mean ZERO sex drive. I almost feel repulsed by the idea. Luckily I have an incredibly understanding husband. Muscle and joint pain. Zero motivation to do anything. I am an incredibly creative person and have lost all my passions in and for life. Bone crushing fatigue. Sometimes wake up feeling like I'm trembling inside. Frequent waking up in the middle of the night.
These are the primary symptoms, though there are others. It's hard for me to tell which of these are Peri related and which are due to the other issues. I had a bunch of labs done in May and all my hormones were normal, including extensive thyroid testing. Can you be Peri and have normal labs? Very confused and ******. This crap is ruining my life. I can't even drive anymore due to the anxiety and dizziness and thus feel trapped in my house. I need to get this fixed as soon as possible. My doc thinks I am Peri and says we will work on it, but is trying to detox some of my other issues first.
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I am pregnant with my second child and 20 weeks into the pregnancy. I have had some really bad headaches this entire pregnancy so far but the dr told me that's typical as I had some severe headaches before pregnancy. Now the headaches have gotten worse, about a week ago I started suffering from blind spots in my right eye and every time I would close my eyes I would see this bright ring flash in both eyes. After about two days of this I went to my eye dr who said my actual eye is fine but it may be a neuro issue. Well it has continued but I don't have insurance nor a lot of money so I have been to another dr yet and last night and today I am also suffering from temporary hearing loss when my headaches get bad and my vision starts leaving me (now in both eyes) . I am scared out of my mind and just trying to figure out some type of explanation as to what might be going on.
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I'm not particularly worried about this but I'd rather know what it is. I quite commonly will get, after stretching or getting up suddenly, flying black dots in my peripheral vision. These tiny black dots just appear, fly in a direction, then disappear. A bit like a swarm of flies in the corner of my eye except they keep appearing and disappearing individually. It might last up to five seconds or so. Then it's gone and I feel fine. I'm pretty sure I've had this for years.
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I never suffered from migraine attacks until I was in my mid-40's.
They seemed to be linked to the beginning of hormonal changes related to the start of menopause. I would get a pain over my left eye (usually, though right occasionally), with a feeling of nausea and sometimes slight numb feeling on the side of my face. I would turn quite a pale white colour, and also feel very tired, yawning a lot. I would take medication, migraleve tablets and lay down in a darkened room. Usually, I would recover within 24 hours, though I would feel 'worn out' for a few days after the attack.
Since I have discovered by self analysis, that citrus fruits, especially orange juice (which I no longer drink), chocolate and strong coffee all seem to be triggers, which I try to avoid.
For the last five years, I have been clear of migraines, but have now started to get them again. I have passed the menopause but have had a lot of stress in my life recently, so I wonder if this is the cause of the recurrence? My last attack was quite different from the others I have experienced, in that I was feeling fine (though had been really tired the day before for no apparent reason) when I suddenly developed black zigzag lines across my left eye (very frightening at first). These went on for about 10 minutes and then slowly I developed a severe migraine, though this was not over one particular eye, but both. I had feelings of nausea and also felt cold at times. I took Migraleve pink and yellow but the headache is still persisting the next day. I wonder why I developed these other symptoms of visual disturbance. Can stress really do this to your body?!
PS I know there is a family history of migraine.
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I had classic migraines through my teenage years which stopped for a couple of years before continuing at on average one every couple of months with the odd instance of a back to back cluster of 3-10 at once. They were always the same 20 minute aura then axe in the head pain and repeated vomiting for 6 hours followed by a 24hr hangover. Over the years I have tried all preventers with only Epilim and Topiramate working for 18 months. I built up tolerance to Epilim and Topiramate gave me side effects that ended in a blood disorder so cannot take either any more. Beta blockers and antidepressants never worked and Lisinopril was also a short lived waste of time. The only triptan that ever worked was Maxalt rizatriptan but again it lost its effect after 6 months. Something weird has now happened and I wonder if others have had this? I am now 36 and in the last 6 months my migraines have totally changed. I still get the aura but if I take Express Nurofen and an anti sickness tablet straight away or use a heat pack on the back of the neck no pain or sickness comes just 6 hours of extreme tiredness. I always used to throw up any tablets so this is a miracle however the frequency has stepped up to between 5 and 20 a month so it is really impacting on my life. I have had an MRI and all is normal. I have also tried supplements and alternative therapies with no success. Botox and nerve blockers are the next suggestion but will they treat this scenario if there is no pain? Will it stop the aura too and prevent the whole episode? Help!
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I just recently got the Depo Provera shot last month and I got my period 1 week later than it suppose to be. It's been almost 2 weeks now and it seems not to be stopping! Is it normal? My boyfriend and I want to be intimate with each other but I keep on bleeding.
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After having both prostatitis and epididymitis for over a year, i am now convinced this was induced by stress and prolonged by anxiety.
I think both stress and anxiety tighten up the pelvic are leading to urination issues.
My prostate was inflamed but no real infection. The infection that was found in my semen is very common and probably would of been there had i not had prostatitis.
This all started with a very stressful event and then some more stress. After getting the initial symptoms anxiety set in. I knew it wasn't cancer but for some reason i was scared to death of an enlarged prostate. Being in my 40's i thought, " oh my god, if my prostate is a little enlarged now, it will be the size of a watermelon in my 50's. that will mean big time urination issues and sexual issues.
Crazy but it scared me. My prostate was a tad enlarged because it was inflamed.
All the anxiety and hyper focus on my prostate made my problem worse and appear worse than it was. Because of where the prostate is located, any little sensation will be exaggerated.
I remember reading an article that said those with large prostates wake up 3 or 4 times a night and have a weak stream. Wouldn't you know, that very night i woke up 4 times with a weak stream....the power of suggestion!
Anyway, my stream is sometimes weak and splits but that is irritation. I am feeling better and never had real pain, just soreness in my prostate area. That soreness gives the sensation of urination..hope i get totally back to normal soon.
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After exhausting all other possibilities I am now wondering if my 15 month bout with hair shedding is simply sudden onset Perimenopause?
I haven't had any other symptoms at 48 besides fibroids which I plan on removing.
Anyone experience sudden onset of prolonged hair shedding where your hair is popping out all day long and your hair volume drastically diminished?
I had a bout with anemia but my ferritin has been over 90 for 8 months and my hair shedding has not changed at all. I do have regrowth but it cannot keep up with the rate of shedding.
I lose about 250 on wash days (2x per week) and about 100 - 130 on now wash days. I know they "say" that is normal but it was never normal for me.
I would guess I lost 25 a day previously and maybe 70 on wash days.
I would love to hear about your perimenopausal experiences with hair loss and other.
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