I have been diagnosed with Perthes when I was 15 and have had pain since then. I had limited mobility but was able to live my life till now. 2 weeks back there was a severe pain in my right hip and i have been given strong painkillers and steroid. It helps but the pain is still there. I have been told to look at total hip replacement as an option.
View 3 RepliesI am ten years post a Perthes-related total hip replacement! It really has been a godsend for me.
Briefly- I had Perthes diagnosed aged 8, but they caught it late so hip ball was pretty badly misshapen- cue osteotomy, hip spica etc- followed by 2 more osteotomies before the age of 13. By 15 I'd developed secondary osteoarthritis and the joint deteriorated rapidly (v v painful) and pretty much as soon as I stopped growing my consultant opted for a full hip replacement (I was 19). I had a custom made joint designed after a number of scans, partly due to thickening of the femur from my previous ops, and it is a ceramic plastic composite (ceramic ball onto plastic cup I think).
The initial 3 months post op were fairly hard going, you are not able to move beyond 90 degrees abduction so can only sit of high seats- and need a special raised loo seat! I was in a student house at the time so it was a bit embarrassing but I was kitted out by the Red Cross who lent me all the stuff needed for those 3 months- my housemates got so used to the special loo they said they missed it once it was gone! :oops: But after lots of physio I can honestly say that it made the world of difference...within days of the op my pain levels were far below what they'd been, I was off crutches within 6 weeks, and cycling a bike again at 3 months (after not being able to cycle since 13!!)- and 6 months later I spent 3 months SCUBA diving in Malaysia!
At first I had yearly check-ups (x-rays), then every 2 years, until 2 years ago when I was discharged (at least temporarily) from my consultants care! The hip is still not showing any sign of wear- and I am active- walk a lot, have had 2 children with the new hip etc.- so although the initial prospect had been of it lasting only 10-15 years we're now hoping for 20. Anyway crossing each bridge as we come to it. The pain in my hip is 99% gone, but I do suffer a touch with my back and my "good" leg's knee- but both have had to bear the brunt of a lot as I grew up so it's inevitable really... And I see a good (private admittedly) physio fairly regularly to keep on to of things, and try to swim whenever possible...(but not breast-stroke- that's a big no-no for those with hip replacements!). I do still have a leg length discrepancy (2cm) which is partly what causes my back/knee issues.
I've had a thr April 2015 and was recovering well then both knees went and I was back in Crutches again. I had an arthroscopy and it was found I need the knee caps have to be repaired as i'm bone on bone. Has anyone had this procedure? Im also lined up for the other hip to be replaced as well. Im 53 and a bit worried.
View 8 RepliesAfter recent x-rays for chronic hip pain, (as well as frequent knee and lower back pain),, my GP diagnosed me today with Perthes' Disease. Several years ago, after a fall in a martial arts class that hurt my back. My chiropractor had x-rays performed, which showed that I had, indeed, bent my tail bone at a right angle... as well as revealing my malformed hip joint for the first time.
I am a 50 y.o. female. For a variety of reasons, my GP is opting for the physiotherapy route for treatment/management, rather than hip replacement surgery. My femoral head is flattened (the X-ray Technician even exclaimed, "Oh! I've never seen one shaped like THAT before!", and even showed me the x-ray film.
I have been doing some further research about the disease, which mentioned a link with hypothyroidism, delayed bone growth - I was diagnosed with hypothyroidism when I was about 11/12 y.o., at which time the specialist told my mum that I had the bone structure of a 9 y.o.
I used to be quite active, and used to run, practised martial arts, bicycling... Since the pain worsened and is now pretty much a daily thing, I have eliminated those activities. I do walk fairly frequently now; but, I often wind up in pain that keeps me awake at night. Now, I am curious to know how successful and helpful physiotherapy is likely to be at my age, and what I can, reasonably expect. At what stage, will hip replacement be the "best" option?
I had total jaw joint replacement a year ago. This was a last resort that resulted from trauma that happened 40 years ago. I am not doing as well as I hoped and suffer from chronic pain. Is there anyone who has had this surgery who could share their post surgery results?
View 1 Repliesi am a 74 year old male and had my THR one week ago. There is no pain, a little discomfort, and I am walking with two sticks. The only problem is having to get up 5 or 6 times in the night to go to the bathroom. I never had this before. I am OK during the day. Could it be because of the catheter I had for 2 days, or medication? Has anyone had anything similar?
View 13 RepliesI got my surgery on the 19th and since yesterday im experiencing bloating and has but I can't go. I'm on a Okinawan hospital and language barrier is huge and completely frustrating, plus pain management meds here are completely different. This happened to any of you? Should I take something natural?
View 12 RepliesI'm preparing my home for post op recovery, and wondering if I need to buy a recliner?
Some of the hippies on this site seem to swear by them, others don't mention them.
a recliner is pretty expensive, and I don't want to go OTT unless it's likely to be a good help in recovery.
I just wondered if anyone else just feels so tired.. I am 6 weeks today post op .the op went well and I am progressing well. But I am just so tired. How is everyone else feeling ?
View 45 RepliesI had both hips replaced in Feb and Sept 2011. Prior to this I had many years of pain and a great deal of difficulty with medical fields trying to determine what was causing my pain. Anyway once it was decided to replace both hips I was happy they had at last found a cause and what I thought was a solution. My first his replaced was my right and this seemed to go okay, it was a total different story with my left. I have been in excruciating back and leg pain since, I cannot walk any distance or stand for any more than five minutes. I need to use a wheelchair if I go out and crutches also, I am stuck at home all day while my family go out to work - I am frustrated and feel useless.
My pain is across my lower back and generates down my legs, my last three toes on my right foot go numb constantly. The pain is tingling, numbness, sharp, deep pulsating pain and electric shock type pain. The more I try to do the worse the pain gets. I spend most of my time with my legs raised as this helps, the pain never goes away but does ease when resting. I have painkillers and muscle relaxants but they do not really help. My hip surgeon like most of the forums I have read told me my hips are fine according to the MRI scan. He then referred me to the Spinal consultant, after nearly a year of seeing the spinal people they have now turned round and said the pain is not coming from my back and there is nothing they can do to help. I asked them what I was supposed to do and they said they had no answers!! I have attended all the physio appointments and even did a three week intensive course along with hydrotherapy - nothing has made a difference.
I lost my job due to all this pain and I am now registered disabled. I had more mobility (although painful) prior to my surgery than I do now. It was nice to read that other people are going through what I am experiencing (although I would not wish this on anyone) it somehow makes me feel better.
I have had numerous cortisone injections in the hips, nerve block of the L4/5 nothing has worked for me post surgery. I had cortisone injection prior to my surgery and guess what it helped - work that one out. I am now being referred to the Pain Clinic (again) and Rheumatology as it was noticed on one visit to the hospital that I had a butterfly like redness on my face and they queried Lupus (still waiting for those appointments - surprise, surprise).
I wonder if anyone out there has experienced anything like this. Briefly I started off almost 2 years ago with what the Docs thought was Vaginal Atrophy but after taking HRT for a year or so and no change, I came off the HRT. Some months later I self diagnosed with Interstitial Cystitis. Most irritating whatever the collection of symptoms are known as. Thankfully though I don't get all the symptoms at once, although there is no set pattern to them. One of the worst symptoms is urgency to wee. In ordinary circumstances, I would get this strong urge and easily get to the bathroom in time.
However last Sunday I came home from hospital following a total hip replacement! In the early hours of Monday morning I got that severe urge to wee and struggled to get out of bed. I half fell at the side of the bed in sheer panic and ended up with my right leg with the new hip holding me up as my other leg had gone out behind me. Such pain and to make it worse I was wetting myself! So shocked. Anyway I managed to sort myself out but since then I've not been able to wee properly during the day, almost like I am retaining urine. Then I have to get up twice in the night to empty my bladder. I get no normal urge to wee during the day either.
I read up about Fowler's Syndrome the other day and it pretty much describes me. It's about your sphincter not being able to relax properly. I'm wondering if the shock in the early morning last Monday has resulted in my sphincter tightening or something and it relaxes at night when I'm in bed, so I'm able to wee normally again? Anyone else experienced anything like this? I just want my waterworks to come back to normal. At least I can get out of bed easier and quicker now so that's better if nothing else.
Had partial knee replacement which was not successful. 19mths later had total knee replacement. 6 years later still suffering severe pain and lack of function e.g. taking 10mg Amitriptyline every night to get some sleep. Have had 2nd opinions but told nothing can be done which I feel is because no one (inc. surgeon who did both) wants to touch it. Gp agrees.
Now need other knee replaced and for obvious reasons reluctant in case same thing happens again. Know lots of people whose replacements have been successful.
Would love to hear if anyone else has/had similar problem.
TKR 1 and 3 months ago. No work now for a year. Therapy going well but right knee or 3 month knee hurts more on inner aspect. I pray its not a problem. F/U on 6-18 trying to not stress.
View 5 RepliesI'm having TKR on September 1st and I have asked my doctor and my Rheumy when to start Enbrel after the surgery and she wasn't too sure , she responded with a vague Maybe 2 weeks after? I didn't feel too comfortable with that I will ask my OS
View 3 RepliesWondering if anyone has had a THR with a spinal and REGRETTED it. Trying to decide.
View 21 RepliesI am 6 months post TKR and going on holiday in 10 days time. We will be flying to Dubrovnik before embarking on our cruise. The flight itself will be just short of 3 hrs and not being a seasoned traveller, I am wondering if for this journey, I will need to wear those travel socks, if so I am wondering if the socks you have to wear for six weeks after your op will suffice. Unlike many I have seen, mine given to me by the private hospital I was in are quite smart and comfortable and comfortable to wear.
Doric
I've had a lot of very useful info from this forum since I joined not so long ago - thank you all very much! I have a couple of questions:
1) Post LTHR op to exercise must I walk outside, or can I walk just inside the house (difficult terrains outside the house)? Has anyone in this situation just walked inside the house and got better?
2) Will I need to move the bed downstairs, or will I be able
to use the stairs? Does the PT practice stairs while still in hospital?
I would like to ask a question re Physio. Some of you seem to think your PT has been superb. Can I ask what he/she does with you. I feel that mine has been a total waste of space and I'm not sure what to do yo try to improve the angle of the bend in my knee.
I go back on Thursday to see my surgeon, it will be 7.5 weeks since the op. I want to be able to speak honestly to him about my experience.
Today I went into town with my daughter and 5 year old granddaughter. Hitchin is an old market town with cobble streets and lots of steps up and down on and off pavements. I went without a stick, big big regret. I am almost 7 weeks post-TKR. My leg was in agony and I couldn't wait to get home. That was really depressing as I thought I was doing so much better.
It has been nearly ten months now since my first TKR, and the left side of my calf remains NUMB. I am not experiencing this on my right leg on which I had my TKR about five months ago.
Will the numbness always be there?
Why such a difference between legs/numbness?
I have no difficulty MOVING either leg/knee, but the NUMB feeling just feels so weird!
Anyone out there having anterior or medial impingement issues following a total ankle replacement?
I'm a 50 year old female, 5 months out from a Salto TAR, with past scar tissue issues now finding increasing pain in the front and middle of the ankle. The surgeon has MRI'd CT'd and xrayed, found that all looks good and says he does not know what is going on.
A year and a half ago I had distraction with osteotomy, which failed and left me with a massive scar ball in the front of the ankle, which was removed before the TAR.
As I still have sometime before my specialist appt.
I am anxious to know whether I am looking at a total knee replacement.
My results are tricompartmental oa with advanced changes in the patellofemoral compartment with loss of joint space.subchondral sclerosis, subchondral cyst formation,and osteophyte formation, loose bodies projected at the intercondylar notch.degenerative bone spurring at the tibial spine,meniscal chondrocalcinosis,bony ossicles adjacent to the superior pole of the patella.