Hypocalcemia Due To Surgery For Hyperparathyroidism
Sep 9, 2014
I had surgery for Hyperparathyroidism a year ago. I had 4 gland hyperplasia, which meant they removed 3 plus a part of the 4th gland. Immediately after surgery, I of course developed hypocalcemia. Since then, my Calcium numbers have fluctuated and I have had better and worse readings. However, my PTH has never gone above 19, and my last reading was 14. My Vitamin D is at 43 and my "active" D is apparently doing what it should be doing so I do not require Calcitriol to get things working. But, I still have issues with keeping my calcium up, and of course the attendant tingling, and etc.
My real concern is two-fold. One, is it safe to keep taking supplements given the conflicting data on males taking calcium, and Two, is there any harm in long term chronic hypocalcemia? I have read about heart issues and hypocalcemia, but I am assuming this is with respects very low and long term calcium issues. Also, anyone know of any ways to raise PTH at all? Funny how high PTH was an issue before surgery and now low PTH is...
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I would just like to ask anyone's opinion of my latest blood tests, as I have no idea if they're good or bad.
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Does anyone know anything about secondary hyperparathyroidism at all?
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I was diagnosed with this some years ago after suffering for years with kidney stones, they did try and remove my parathyroid glands but couldn't find them, mine aren't where they should be and further tests have come up blank as to where they might be in my body (looking for a needle in a haystack was the term used!) I take Bendroflumethiazide (sp) alternate days to alter the acid in my urine. I'm constantly tired and fed up being told i need to watch my weight and i should exercise more, i'd love to exercise more but some days it's all i can do to get my head off the pillow. I could go on and on here just wanted to know if there was any sufferers out there and wondered how they cope with this condition?
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I was originally diagnosed in 2010. I have recently been told I have a urinary infection, but apart from the fact that two lots of antibiotics don't seem to be working, all my symptoms relate to this, especially an irregular heartbeat and confusion.
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My husband as i look back on some of his Calcium levels the last 18-24 mo they are slightly above normal. He also had a kidney stone a few weeks ago. His Vitamin D level is low, and his PTH is low normal. He has been feeling really exhausted and wants to just sleep. His 24hr urine calcium is elevated.
Also his BUN and Creatinine levels have gone up rather rapidly and a little too much for comfort as far as i am concerned.
His creatinine in his blood has doubled from 1.1mg/dl to 2.4mg/dl
His BUN has gone from 25mg/dl in june to 41mg/dl when the test was taken the day he had the 2.4 creatinine .
He passed the stone and it showed on CT not to have been really large, but after about 2 weeks, his urine dipstick test for blood still says he has a large amount. I found site where there are doctors in Tampa, Fla that only do hyperparathyroid cases and surgeries.
The problem is that our family doctor knows little about this disease and the Tampa Docs say a lot of Endocrinologist don't really know a lot about it. So now an endocrinologist that has not seen my husband yet is telling us to see a nephrologist.
I think that he needs at least 3 PTH results to at least see where he is falling in the range. Naturally nobody moves very fast on this kind of thing, Doctors just don't want to talk to you, as if you can't understand the tests...well i can and can carry on a conversation about it, but i think because of their lack of really knowing a lot about this disease, its easier to avoid me and to send to this doctor and that. I don't want a bunch of different viewpoints i want the doctors to come together and at least discuss what the other has to say about his case. I am trying to save him as much "wild goose chase" as possible. Any advice on what I should do, ask or insist on from the doctors, while my husband is probably getting worse.
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Recently his symptoms have got drastically worse but hospital keep sending him home saying very little. His fatigue is becoming an issue and causing him to miss school and yesterday I couldn't actually wake him! Anyone else had similar symptoms?
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I have Hashimoto's disease. Over the last year or so I have really started to experience some of the symptoms of hyperparathyroidism such as super bad fatigue, LOTS of pain in my bones, etc. Are the two connected?
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So I just got blood tests back and my vitamin d was 26 which is low and my calcium was 10.3 which is a tad high. I am 25 year old female. Should I be concerned about hyperparathyroidism?? I didn't get my PTH checked but my thyroid is normal. I don't know if they have anything to do.
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I just wondered if anyone has any idea how common it is to have primary hyperparathyroidism?
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Can anyone relate to having muscle and bone pain with being deficient in vitamin D ? I get severe pains in muscles down my back and this has spread into my shoulders and up my neck into my head at the back. The pains come and go but i always feel tender and stiff in these area's. I get sharp shooting pains, burning pains and the feeling that my muscles are sore to touch. I also have felt like the muscle is tearing when i turn to reach something, the tearing sensation is really painful. I get shooting pains in my right leg in the hip/buttock joint which makes walking difficult at times and causes my left knee to give as i try to keep weight off right leg. The bone pain is usually in my lower back. When the pains in my neck muscles started it seemed to be triggered after i heard a cracking sound and got sharp pains in the back of my neck.
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I've been diagnosed with hyperparathyroidism on Thursday 5th of November, I was wondering if anybody has had natural treatment for this please?
In the meantime I'm going ahead with being put on the waiting list for an operation, I have my ultrasound scan tomorrow, Tuesday the 24th of November .
It would be good to hear from those members who have used natural treatment for primary hyperparathyroidism and to find out how you are getting on now please ?
I have had "M.E. " for 19 years , I'm being treated naturally, this helps with my weight and also some of the other symptoms , however I'm still not well enough to work and need help at home etc
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After a very painful kidney stone problem and thus being told I have Bilateral kidney stones; I have just been diagnosed with Primary hyperparathyroidism. The docs want to operate to remove the faulty gland(s) but I am very concerned about the procedure in the UK which does not seem to include the mini op or MIRP operation. Has anyone had this type of surgery in UK(either mini or other) and what were your experiences? I am wondering if I should travel to Florida for it?? I also have low vit D and they want me to take vit d supplements. I think this is dangerous to elevate my calcium level even more?
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I am 32 years old and was recently diagnosed with mild hyperparathyroidism (HPT), because I have borderline high levels of calcium and parathyroid hormone. I feel that I have some symptoms - increased thirst and urination; needing 9+ hours sleep; fatigue; anxiety. However I am not sure these can all be attributed to HPT. I was planning to become pregnant for the first time this summer, and I wanted to hear if anyone has HPT and became pregnant. I am debating whether it would be better to have surgery to remove inflamed glands prior to conceiving.
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I noticed before I had surgery I would have red, irritated and swollen bumps that would turn into nothing short of a raised mass on my inner thighs. It really hurt! After the surgery they all left. Well it's been since October 26th 2015 that I hadn't seen them until today. I have them again which leads me to believe that the hyperparathyroidism was not completely cured. They took one adenoma but left a complex nodule. I ask the surgeon to look at all of my parathyroid hormones and he flat out told me no. I'm concerned that when I go back to the doctor that my levels will be back up. If not then there is another issue I don't know about. However, I still believe my skin irritations are from nodule he refused to look at. I'm no doctor though. But if anybody is having this issue and still feels really weak in their muscles I could use some advise as to how I can help myself feel better. I still ache.
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I have posted on this forum for about 7 years. For a long time I got decent control on a 50/12.5 combo of cozaar and HCTZ. A few years ago, my BP stopped cooperating and I had a series of BP spikes that were quite high. Lets fast forward to today. At my constant nagging and ignoring my various physician's insistence that my assorted symptoms were "depression and anxiety" caused, I finally received a diagnosis of hyperparathyroidism. I am scheduled to have surgery in July, and am hoping that this surgery will provide at least some relief from my myriad of symptoms.
Now, my question. lisinopril used to be a very effective drug for me, but I couldn't tolerate it. 10 mg would tank my BP by 30 points. So, when I started having the spikes, I figured, I'll tough out the side effects to keep my BP down, and go ahead and take the lisinopril However, now even 40 mg. of lisinopril doesn't do anything for me, and neither, it seems, does the cozaar. I am currently on 240 mg of diltiazem and that seems to at least keep the pressure around 140/80, most of the time.
I am hypercalciuric, which means my kidneys are excreting the excess calcium caused by the HPT that I supposedly have. I was wondering if anyone here has heard of any medical situation in which lisinopril or cozaar might actually exacerbate BP issues? It seems really odd to me that a formerly very (almost too) effective a drug, now does nothing, and even seems to make it worse. Any thoughts?
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I have recently been diagnosed as having hyperparathyroidism and I am currently on the waiting list to have two nodules removed. On reading up on the condition sickness is a symptom but for some reason my consultant wouldn't say that my continued sickness for the last 18 months is being caused by my overactive glands. I am getting desperate now so is there anyone on the Forum who is suffering / suffered the same problem and after having the op felt human again ?.
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I am seven weeks post surgery for an Achilles' tendon rupture and still have intense pain from the blood pooling when I stand for even a minute to brush my teeth. After one minute I immediately have to lie down and elevate my leg otherwise it feels like it will explode. Has anyone else felt this 7 weeks post surgery?
I also can only bear minimum weight on the leg at this stage. At seven weeks does that sound normal? I had my tear at the connection to the heel and had haglund's deformity where part of my heel broke off. Anyone else have that and is minimal weight bearing at seven weeks normal for this type of tear.
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Has anyone found anything to help neuropathy after ALIF surgery? It has been 19 months and the pain is increasing. I cannot bear to wear anything except the loosest of clothing, I cannot walk without a cane or walker, I have new bowel and bladder function problems within the last 3 months. Is there anything that would even work temporarily to allow an airport ride? I buy even groceries online. I am in pain management with a respected doctor. I have have PT, water PT, massage, acupuncture, and narcotic medication. The fusion on L4/L5 and L5/S1 is fine; my life is not worth living.
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Anyone out there had this surgery? I'm in week 3 and wondering what to expect going forward.
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To cut a long story short - mid August 2014 I did a sinus rinse for chronically blocked sinuses. It went very wrong and I ended up with water trapped in my left middle ear. It didn't come out by itself and the pain and pressure was getting too much. I saw a GP and we agreed on using a nasal balloon to equalise the ears and try to get the water out. I also tried a few valsalva actions.
One day (first week of September), I was using the balloon when I felt a painful loud click in my right ear. This is where my real problems started.
I now deal with: constant tinnitus in right ear, dizziness, vertigo, some nausea, really bad head pressure, auras, vibrations and buzzy feelings throughout body, deep pain in ear - can almost feel blood or fluid in right ear.
Saw GP and it is a suspected Perilymph Fistula of the round window in the inner ear. I am seeing an ENT privately, hopefully in the next 2 weeks. Thing is, I am in England, UK and I am worried that they don't really deal with PLFs. Then I will be stuffed!
I am currently doing as much bed rest as I can as I read online this is best at this stage. I am however very very worried about what has happened. I am worried about leaking CSF fluid too. I certainly have enough head pressure.
Can this really heal with bed rest or do I need surgery? Also, I am scared about my tinnitus getting worse with surgery. Anyone who has had PLF repair surgery, what was the outcome? Did your tinnitus get worse or better in the end? Did the head pressure go? Has anyone recovered just with bed rest?
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