It may seem a silly question but I would like to get fitter - take up running - in my fifties and just wondered does exercise help with DD or make it worse? Anyone out there exercises avidly? I feel so depressed since my diagnosis - like my life is over! I suppose this is a bit dramatic but anyone got advise on exercise?
I was diagnosed at age 9 and had surgeries at ages 9,11, and 15. I quit running because i would get to about a mile and it would catch with pain. I love running though and am trying to lose weight so i am curious if running would worsen my condition?
View 2 RepliesI've had this condition for many years. Recent tests/scan show it's now extensive throughout the bowel. I've been given conflicting advice on appropriate diet and wondered whether anyone can provide more help? I've been taking fibre gel every other day for many years. Consultant insists this should continue.
I found out 6 months ago I had diverticular disease after a flair up of diverticulitis. I have recently had another flair up - a few days ago. Although it seems mild it is still fairly debilitating but doesn't seem as bad as first time. I don't know if I am experiencing day to day diverticular disease symptoms or diverticulitis? First attack had fever with it and feeling sick but this one is just pain and diarrhea and feeling really down. Can't eat except for liquids. Is this diverticulitis or diverticular disease and how do you know the difference? Is it to do with the fever being present or not? I am so worried as no real information has been given to me and I feel scared I won't be able to live a normal life with this. Can someone tell me the difference and should I be heading to the doctors as soon as i get a flair up or just put up with it until it gets worse? I have read so many scary things about it I don't know if I can cope.
View 13 RepliesI was diagnosed with Diverticular Disease in Dec 2013 after 4 days in hospital and the Drs having no clue what was wrong. After having a CT scan they found the problem. I was 30yrs old and if I'm honest I was shocked. I felt this was an 'elderly' thing.
Since my diagnosis I have had 4 bouts of diverticulitis that I have dealt with myself. I take paracetamol and go on a liquid only diet for 4 days and until the symptoms go away. I had a sigmoid colonoscopy in April to see how much of my colon has these diverticula and the Dr said it was of medium severity at this point.
The only way I can describe the pain of a flare up is like having contractions, I've had 3 children and would take childbirth over this any day.
The point I'm trying to make is that I have found there is little or no support for people with this digestive disease. I read conflicting reports on what I should be eating to help live with this and its starting to take over my life. I run a business and have 3 children so I need to be able to manage this.
I think that i have just had the shortest appointment time with a doctor.ever
Four minutes max. Told I had severe Diverticular Disease, to eat a high fibre diet, ,and to look on the internet if I wanted any more information, then he was out of the door, and that was it ,,except for a parting shot delivered in the corridor ""to come back if I had it again"
Theres a few posts so I thought id share what ive learnt from gym instructors and PT sessions
if you consistently do cardio at the same pace you just burn carbs and sugar leaving you drained and not burning fat.
you need to burn fat - take,your heart rate up and down. If you cant manage jogging and sprinting then slow walk 3 mph, fast walk 5/6mph. This is commonly known as HIIT or interval training.
for 10x more fat burning there is metabolic training using weights. Im now just moving on to this.
There's loads you can do at home if confidence or finances don't allow you to go to a gym. Last june I was so unfit I struggled to walk my dogs. Im now jogging with them. I did forgo a holiday to pay for PT though but best thing I did. I know go to gym a good 5/6 times a wk and love it.
and remember muscle doesn't weigh more than fat. 1lb of muscle is the same as 1lb of fat.
My grandfather is taking one and he is becoming way worse and just lays in bed all day and doesn't eat anything at all. And looks like he''s going to die soon. Only reason why I'm asking this question here too is because he has Alzheimer's too.
View 1 RepliesThe other day (Sunday) I did something stupid and had a few beers (about 2 pints). Yesterday and today I noticed my symptoms have gotten a bit worse. Does alcohol make anemia symptoms worse?
View 1 RepliesI have been off work since the end of May and Cervical Spondylosis was diagnosed by the Occupational Health doctor via the Local Authority for whom I work. This discomfort and pain started and deteriorated whilst working on the computer at work. The OH doctor says it is age related and will not attribute this problem to the fact that I spend most of my working life in front of a computer. I have had physio and acupuncture and they say it is to do with posture. This treatment has not resolved the problem and I have now been referred to the Orthopedic Service. I am fighting this with the help of Unison. Has anyone out there had a similar experience.
View 16 RepliesI'm so used to having a couple of cups of coffee a day but since i started withdrawing it seems to make my symptoms worse...especially the buzzing in my brain. Has anyone else found this? Any tips?
View 24 RepliesMy GP gave me cerazette, and after taking it for a while I broke out in acne so stopped. But the pain then got miles worse. Last night I had an ultrasound which showed my left ovary has moved to the back of my uterus, causing me awful pain.
I am wondering now was it the Cerazette that caused this, or was it going to happen anyway and should I have persevered with the pill.
I have read so much conflicting information so I wondered if anyone knows?
Also, I have been told by 2 doctors that laparoscopy makes the problem worse, but one told me it doesn't. I am so confused.
Lastly, has anyone tried the estrogen metabolism tablet DIM Plus? I read the reviews and it sounds good but I am so nervous to try any other tablets.
i had my last period at the beginning of the year and although I'm happy to see the back of them I have since had numerous flare ups and the itching has been ridiculous, it has me demented through the night. Has anyone else had the same experience.
View 8 RepliesI had a colonoscopy with sedation (midazolam and fentanyl) in Chorley Hospital a few days ago and I still feel as if I had a PTSD. I read the information sheet and expected to be relaxed after sedation, with maybe some discomfort. When I was injected with the drugs (midazolam and fentanyl), I suddenly felt very anxious. I tried to seek reassurance, but the physician was talking to somebody else, busy preparing for gastroscopy. I think it could have helped if somebody asked me how I was at that point. I also had some trouble speaking – I think I was able to speak, but I could not hear myself so it made me feel very strange. Later on I read that difficulty speaking is a side-effect of midazolam. I felt quite intense pain during colonoscopy and the kind student nurse was talking me through it. I recovered well, I think, but I remember the whole procedure (so the amnesia that the leaflet talks about obviously doesn’t happen in every case). Next day I was very irritable and anxious and sick later on.
My main grievance is about lack of information beforehand concerning pain and the nasty side effects of the sedation. The leaflet mentions that you might feel ‘discomfort’. Of course you will feel discomfort – you will have a camera up your bum, what are supposed to feel? There is no ‘may’ about it. However, there is a difference between ‘discomfort’ and ‘pain’ and these words should not be used interchangeably. The leaflet and what you are told by the medical staff makes you believe that you will be drowsy and relaxed while medication works, and then back to normal after. I got quite a shock when I had the anxiety attack after the drug was injected and realized how vulnerable and helpless I was. I was also very unpleasantly surprised at how awful I felt the next day. Had I known this could happen I would have opted for entonox. Unless something changes dramatically in the way they perform colonoscopies, there is no way I’m having another one any time soon.
I would not like to discourage those for whom colonoscopy could be beneficial from having it. However traumatic it is, it is preferable to dying from cancer. However, I think that medical staff are not well trained in empathy (only student nurses seem to have it) and you have to be very assertive with them in order to receive honest information. If you are unlucky enough not to experience post-colonoscopy amnesia, the feeling of being at the mercy of medical people who are inflicting pain on you can be disturbing. It might be preferable to experience the pain whilst being alert and able to speak, and thus having some degree of control.
I know this sounds weird but my chronic sinusitis has me completely bedridden and has been for almost 2 years now and I haven't been able to work etc. anyway, my last CT scan showed massive inflammation and infection on the left side of my head primarily in the maxillary sinus.
It seems since I've been using the Neti bottle every day that I've gotten so much worse and consequentially my fatigue and weakness has been absolutely debilitating. My question is, has anybody ever heard of the Neti bottle or Neti pot making their sinus infection worse?? Thanks for reading.
When i drink..sometimes urethra burns..irritation vulva etc..anyone else?
View 4 RepliesI've never ever had heartburn, or throat irritations (that weren't from a cold) in my life, and suddenly in January I started getting a lump in my throat feeling, that felt better as I ate, but came back when I was done. I was also noticing a dull chest pain on my left, but i figured it could had been from working out. It wasn't a big deal at the time, and I saw my GP about it. She couldn't really help me, other than refer me to an ENT.
A day after I saw the GP, I ate some instant ramen and got my first episode of heartburn/acid reflux. I went back to the GP shortly after, letting her know about the heartburn and she put me on 150mg of Zantac. Over the next few weeks, it didn't help much (neither did the constant Tums), and I had several more episodes of heartburn/reflux. It was always the same, I'd have the episode, the next few days I'd feel sore in my esophagus, and I'd almost get to the point of feeling better, then I'd eat/do something that would make me flare up again. It snowballed to last weekend, when I woke up on Sunday, drank some water, and just had the most acrid backwash. I panicked and went to the ER, where they put me on 20mg of Prilosec.
First few days were terrible nausea, migraine, chest pain and tense/twitchy muscles. Those went away, but now I always have the acrid backwash at night (I did get a wedge to keep my upper body slanted up), lots of throat gurgling/burps when I eat, and little-moderate acrid/stingy taste afterwards. It also feels as if my throat tenses on and off, and sometimes "clicks" when I dry swallow.
I'm having some other weird little side effects too, but I'm bothered that this reflux seems so constant now. I've already worked on cleaning up my diet, quit coffee, don't smoke, no fatty/greasy/sugary foods in the past week since starting Prilosec. Both parents have acid reflux, and my mother has GERD (a side effect of migraine meds). I'm not sure if this is made worse by Prilosec, or if I just suddenly have severe acid reflux no matter what I eat, and this is life now.
I'm seeing a gastroenterologist next week, but I'm afraid she's just going to up my dose and send me off. I want to get off all medication, and deal with this by diet change. I guess I'm asking if anyone has gone through something similar. In retrospect, I wonder if all the bad foods I was eating over the holidays set things off. In retrospect I was having a lot of "solid burps" through december, but no irritation till January.
My son had a colonoscopy and told may have Colitis..he was prescribed a month's supply of Salofalk enemas and took first one last night...but today he has had to poop about 7 times with some blood ...the frequency of the pooping is now more than it was before using the Salofalk and I'm wondering has anyone else experienced this...he is only 18 and afraid to leave the house..It is not diarrhea but it's just he needs to go so often...I am afraid he will loose a lot of weight...If this is normal using this product I can relax...can someone please reassure me
View 9 RepliesI have been diagnosed for about 3 years now , but in truth i think iv had this for much much longer , i have had every arthritis test done about 3 times and been in hospital for a long period , which come up with fibromyalgia , i have 5 girls , my youngest are twins of 11, i lost my lovely dad 18 months ago through cancer , he was a hard working lovely man who everyone loved and he was only with us 6 week after being diagnosed with stomach cancer , i felt like my whole world was going to crumble , i was left looking after my mum who is disabled, my husband and 3 of my dependant girls , things have gotten really bad since dad died , it just seems to have divided the whole family , i have been trying my best to keep thing afloat and now my 2 eldest daughters have fell out with me (over care of my mother) (they are down as her carer and driver of her car) yet they were not doing the jobs was left on her own by them and my mother fell badly and i found her on the floor of her sheltered flat and she had been there from day before she is now in hospital (6 week)i am left to all the visits cleaning her clothes and she is very demanding gets quite aggressive at times , but i just don't think i can do much anymore ,my pain is excruciating,and i just want to stay in bed all the time , thing is , is she is about to get out of hospital soon , and i find myself worrying more and more about having to try and look after her when she's home , i just know i can't do it no more , i don't think i have ever felt pain like this in my life it is all over my leg muscles like cow bites ,my neck has got so painful and stiff , now my arms and elbows are starting to go the same , i just want to block the whole world out and stay in bed , my husband and children are understanding and do what they can ,but i know i cannot continue with looking after my mother the 2 eldest daughters have just stopped going in to see her or doing anything for her , i am at my wits end don't want it to come across like i don't care for my mum , but i just can't do it no more , it seems to bring out the worse in my condition, i dont cook much no more i have to try and run my own home my mother's and my business has nearly come to its end because i have nothing left in me , any advice would be grately appreciated thank you for listening x
View 17 RepliesI'm now one week into my first taper from 15 down to 14 preds, for the last 3 days I felt really well, in fact began to think my diagnosis was wrong.
Silly me, woke up a 3 am feeling sore, by 6 am I was at 7 out of 10 on my own pain scale, so depressed but now certain I do have a problem.
Just wondering if cold could spark a flare? before the diagnosis I suffered aches and pains when the weather changed, this week I've enjoyed pottering in the greenhouse with the lovely sunny weather making it a joy to be outside, yesterday back to really cold weather and I got very chilled. Is there a relationship with temperature and PMR?
Does taking this drug actually help cure your nerve disease, or is it strictly for pain relief?
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