Eating Gluten Makes Fibromyalgia Worse?
Dec 7, 2015
Does anyone find eating gluten makes their Fibromyalgia worse?
View 1 RepliesDoes anyone find eating gluten makes their Fibromyalgia worse?
View 1 RepliesFrom reading many other threads, it seems to me that one frustrating thing about this condition is that there's no one-size-fits-all description or solution. Is there anything outside of heavy prescriptions that soothes your pain, and are there any triggers that make it worse?
Here are things that usually provide some relief:
1.Epsom salts compresses - help calm down the skin sensations
2. Rose geranium oil - helps with the skin pain and stabbing, and the scent is calming to me
3. Heating pad - helps when the pain is deeper, or maybe it just relaxes my tense muscles
4. Ibuprofen - helps with the aches
5. Acetaminophen - I don't think this works as well as ibuprofen, but I haven't given up on it.
6. Sleeping. I usually wake up at a level 0 or 1, and it builds up as I go about my day.
7. Sitting quietly. No friction when I'm not moving.
8. Exercise. Maybe it's true what they say about endorphins.
9. Sometimes stretching or scratching provides relief.
Things that make it worse
1. Coffee
2. Lack of sleep
3. Possibly my hormone cycle; I'm not certain about this one
4. Sometimes, it's worse if I stretch, scratch, exercise, or sit still. Yup, these are also on my list of things that sometimes help. [eek]
5. Random triggers I may never be able to identify.
Do any of these things sound familiar to anyone else? Or is there a good possibility this isn't PHN but something else? Like, losing my mind?
I have regular blood tests and have been given Metformin for Type 2 for the past six months. I often feel the need for a nap mid-afternoon but I put that down to the after effects of lunch! I have been morbidly obese for years and considering that, my energy levels are good. I am 65 this month and still work full-time and intend to continue. I also take Tamsulosin for an enlarged Prostate. Recently I was summoned by the doctor after routine blood tests and told I had mild Hypothyroidism for which I was prescribed 50g per day of Thyroxin. They made me feel terrible - every day for two weeks so I've stopped taking them and feel fine again. Seems like the Thyroxin gives me the symptoms of Hypothyroidism - loss of sex drive, tiredness, headaches. What's the likely outcome of not taking these awful pills? Any advice gratefully received.
View 5 RepliesI have been on omeprazole for 2 months for acid reflux and I have got worse in that time - I'm sure it must be the tablets that are making it worse. My doctor's advice was to increase the dose from 20mg to 40mg.
Has anyone else had this happen to them? I'm waiting for an endoscopy so I might find out what's going on eventually!
I have ulcerative colitis and found that you need to avoid alcohol this makes it 10 times worse, it took 9 months to find what meds worked for me changing meds after three months when no improvement I now take x2 oral 1200 mg x1 800 mg = 3000 mg mezaline and 1mg suposit this has calmed it down to manageable with toilet trips around 8 times a day going from 18 to 24 times a day.
View 2 RepliesJust wondering if people with depression find talking about it makes you feel worse. On Saturday my boyfriend had his worst ever day with depression. We spent most of it in hospital waiting for him to be seen. He lost his wife last year which set it off but til Saturday he had seemed fine. I told him to think about what he wants from us as in would he rather just be friends for now. This is looking more and more likely the more I think of it and the changes in what he's saying to me. This Saturday we plan to meet and talk about what he wants. I've said its going to be down to him what happens. I am going to listen to what he says but then I feel I do need to tell him how I feel. I think we probably will agree on everything like he needs to sort his depression out then think about a relationship when he's ready. I would like to talk about Saturday and be honest about how it was for me as he has said if I feel it's getting too much just tell him. I don't feel that it's getting too much at all right now but based on Saturday alone if that happened more often I honestly have no idea how I would cope. I do want to be there for him but with how he was on Saturday I don't know how much of him being like that I could deal with. That may sound selfish and I know he couldn't help it but I felt nothing I could do or say could help and after trying to cuddle him a few hours for him to blank me I was starting to give in trying.
View 5 RepliesSo I'm really not sure why I've been having this issue but I've been having a lot of problems eating lately. Basically unless I'm really really hungry like, completely empty stomach, growling stomach, hours on end without eating, I simply can't eat. The mere smell of food makes my stomach twirl and feel repugnant/disgust towards eating. If I so much as eat one spoon, my stomach instantly feels like I'm about to throw up and in many occasions where I did force more to try and eat, I ended up actually vomiting, and after that not feeling hungry for another few hours again. So unless I'm actually hungry hungry (which happens twice a day, sometimes only once) I can't eat, or I'll throw it all up, and continue not being able to eat for another few hours. I'm 178cm tall and in the past few months I lost weight, going from 61 kg down to 53kg because of this and I really need help.
View 1 RepliesWill try to make this brief, first I do take 1mg Xanax er daily for anxiety and panic attacks. 2 months ago I had a vaginal ultrasound done that showed some change in one of my ovaries. Was rescheduled for second ultrasound in 2 months. My older sister passed away 10 years ago from ovarian cancer, so of course waiting 2 months really stressed me out. I woke up one morning and felt horrible chest pain and thought I was having a heart attack. My husband rushed me to the hospital where they ran a stress test, CT Scan, and chest X Ray and everything came back fine. They decided it was acid reflux brought on by worrying about the Ultra Sound and prescribed pantoprazole, took for 2 weeks and felt awful, could not eat because I was so nauseated all the time and made anxiety worse. Switched me to omeprazole and still feeling bad, I have quit taking both and am trying to wean myself off of everything but taking OTC Zantac once a day. Now the acid reflux is back but mainly in my chest and shoulders, if that is possible. Not sure what to do. Am going to see a GI doctor. Never had acid reflux before this and medicine seems to have made it worse. Is this Possible.
View 6 RepliesI got to see my RA again this Friday , he decided that I am in pain because tramadol is not enough during the day. So he wants me to take Lyrica during the day. I have been and it might be helping 10 percent but makes me want sleep and makes it hard to think. I have even stuttered a few times. My husband is sick of it , I am suppose to be ready to intern this Wednesday ,everyday til December 12th . I barely can walk for a few minutes, before I do the 90 year old walk. My husband is taking me to a pain management clinic, to help me out of pain. I would love to be out of pain and normal, but lets face it I am not too excited on treating the pain and not the problem. I don't take medicine, until now and everything I try I have the low percent chance of the side effects. I DON'T want a pain clinic, but I want to be done with this misery.
Update from yesterday , I woke up and my rear felt as if I had fallen . It felt bruised , it's not. Then I noticed my underarms are sore too. My hubby says that I didn't fall. However, I have been found to up in the middle of the night cleaning, my husband putting me back to sleep. I don't recall any of it in the morning. What can I DO ?
since my son was born a couple of years ago, I have been to several doctors appointments with depression, lethargy and several other symptoms, that had gotten to a point that I felt I couldn't cope anymore. At first the doctor thought it was postnatal depression and then thyroid, but on my second blood test, when she tested for almost everything she could, my blood test came back strongly for coeliac, and as always very low iron levels. That was back in February, four weeks ago at my endoscopy, on leaving, the nurse said the procedure had shown suggestions of coeliac and disease, they had taken biopsies, and not to start on a gluten free diet as other tests would need to be taken. As I was a bit out of it at the time due to the sedation, I forgot to ask what other tests they would be doing? could anyone let me know what they went through after the biopsy in regards to further tests. I am feeling so low and desperate to start the diet, and wait eagerly for the post everyday. I have to go in for surgery for another problem possibly at the end of June, and I am wondering if just to start now, as I really want to feel stronger for that. Thank you for listening in advance.
View 4 RepliesI have had two positive blood tests for celiac disease but a negative biopsy. However, my doctor and I decided it was best to go gluten free as a trial. I am on Day 4 and I have increased fibro pain. Has anyone else experienced this?
View 2 RepliesThis morning at my rheumatologist's office we made the decision to not do any further fibro meds. I can't stand the side effects and eventually quit taking them all anyway. She went more in depth with me about helping myself with healthy diet and exercise and recommended low gluten.
I was doing research on how to limit gluten in my diet and started reading about celiac disease. Like a lot of other health issues, the s/s are very close to fibro. I'm not sure if I've ever been tested and am waiting on my family doc to call me back to tell me.
My question is, have you tried gluten free? Did it help any symptoms? Were you diagnosed with celiac or just experimented on your own?
This is a pretty big difference in diet and a big commitment. I also kind of feel that gluten free has become a bit commercialized and a bit of a fad thing. I would just like more information before jumping into something I don't understand.
I am wondering if anyone has tried taking gluten out of their diet. Has this made any improvement to them?
View 3 RepliesI have just got worse throughout the day I had a seizure early this afternoon and the pain has just got worse. I have to stay strong for my husband and kids but inside I am crying right now . I am completely fecked off with it. I confess I am due on and the pain all over seems to be stronger. I am 42 and I am sitting in a chair propped up by cushions a blanket and a hot water bottle for my arms watching emmerdale , tried knitting a bloody scarf but my hands/ arms hurt.
View 44 RepliesI have been diagnosed for about 3 years now , but in truth i think iv had this for much much longer , i have had every arthritis test done about 3 times and been in hospital for a long period , which come up with fibromyalgia , i have 5 girls , my youngest are twins of 11, i lost my lovely dad 18 months ago through cancer , he was a hard working lovely man who everyone loved and he was only with us 6 week after being diagnosed with stomach cancer , i felt like my whole world was going to crumble , i was left looking after my mum who is disabled, my husband and 3 of my dependant girls , things have gotten really bad since dad died , it just seems to have divided the whole family , i have been trying my best to keep thing afloat and now my 2 eldest daughters have fell out with me (over care of my mother) (they are down as her carer and driver of her car) yet they were not doing the jobs was left on her own by them and my mother fell badly and i found her on the floor of her sheltered flat and she had been there from day before she is now in hospital (6 week)i am left to all the visits cleaning her clothes and she is very demanding gets quite aggressive at times , but i just don't think i can do much anymore ,my pain is excruciating,and i just want to stay in bed all the time , thing is , is she is about to get out of hospital soon , and i find myself worrying more and more about having to try and look after her when she's home , i just know i can't do it no more , i don't think i have ever felt pain like this in my life it is all over my leg muscles like cow bites ,my neck has got so painful and stiff , now my arms and elbows are starting to go the same , i just want to block the whole world out and stay in bed , my husband and children are understanding and do what they can ,but i know i cannot continue with looking after my mother the 2 eldest daughters have just stopped going in to see her or doing anything for her , i am at my wits end don't want it to come across like i don't care for my mum , but i just can't do it no more , it seems to bring out the worse in my condition, i dont cook much no more i have to try and run my own home my mother's and my business has nearly come to its end because i have nothing left in me , any advice would be grately appreciated thank you for listening x
View 17 RepliesI am what my doctor describes as a perfectly healthy 32 year female. I have a hiatal hernia but that may be beside the point. I had been on Paxil 20 up until September. At the end of October, I began feeling nauseous after eating and vomiting after eating supper. I do not feel better after vomiting and find it almost impossible the eat for 24 hours following. I feel incredibly exhausted after 3pm, and when I feel ill it's at or around 5pm. My blood tests are perfect, not pregnant, and up to this point generally healthy. I am looking for ideas, other experiences, and general info to find out and 'fix' what is all of a sudden wrong with me!
View 1 RepliesI am having issues with starving myself for days at a time then eating a little bit and having this overpowering need to puke. I dont know what to do anymore. I have been dealing with these thoughts and behaviors along with self injurious behaviors for a little over 13 years, could somone please help me before I go overboard.
View 4 RepliesI am a 21 year old female, I am 5'3 and weigh around 103-104lb (7 stone 5-6lb).
I used to be just under 10 stone a few years ago and crash dieted to lose the weight. I wanted to be 9 stone, then 8 and a half, then 8, then I was happy bouncing between 7.10-7.12 for a few months. But recently it has dropped, I was fine at 7 and a half, but as it's gone down I've wanted it to stay down. I weigh myself everyday before eating/drinking. If my weight is at 7.5 I'm not too bad, but jf it js at 7.6 I panic that I'm getting fat and will keep gaining. I try not to eat until my evening meal, which I always make sure I have, though sometimes end up snacking before if I start to feel too hungry. I have 2 cups of tea a day with 2 sugars in each to try and suppress my hunger. I also worry that when I start eating, I won't stop. Sometimes I will have a big takeaway, medium pizza all to myself, continue eating it even if it hurts, and then half an hour after, continue eating. I never make myself sick/take laxatives and wouldn't, but I sometimes try not to eat all day in case I lose control and keep eating and eating. I have anxiety/depression/ocd issues anyway and I'm worried I may have some sort of eating disorder too.
I don't like eating breakfast. I don't like anything at all. What should I do?
View 2 RepliesI'm a 16 year old girl, 5ft tall and slightly overweight. I get sudden pain in my right hip, my wrists swell and become painful and I also get ankle pain. All of this happens at the same time. I sometimes get finger and back pain too. I have no allergies and the pain in my hip becomes so bad that it actually makes me cry in agony. Does anyone have any idea why this sudden pain happens?
View 2 RepliesI am 13 years old and have been mastrubating since about 9 (a year after my dad died). At first it was just in the bathtub with water, then i found out how to use my fingers. I have been mastrubating almost daily every year since. My period has not come yet, but most of my friends' have. I am starting to wonder if it has been affecting my period in any way.
View 2 Replies