Diagnosed With Endometriosis Of Lung
Jul 27, 2005
I have been diagnosed with Endometriosis in the lung. I was wondering if any one else out their had this condition? It's such a rare condition doctors don't know what to do...
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Jul 27, 2005
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Endometriosis :: Endometriosis After Myomectomy
I just left my post-op appointment for fibroid removal via abdominal myomectomy only to find out I have severe endometriosis. My OB/GYN says I have blocked fallopian tubes. I'm completely distraught. I'm 32, single, no children (would like all that sooner than later) and had the fibroids removed so that my uterus would have the "all clear" for babies someday. My doc says there was no way to know this prior to surgery and that the most severe cases are asymptomatic. As he spoke, I zoned out. I recall him saying he tried to remove the scarring and tried to see if the tubes would open bla bla bla. I don't know why I didn't ask for a pathology report or pictures, sizes weights.
Looking back, when he visited my hospital room the third day after surgery, I was told 4 fibroids were removed, but was initially told I had 7. I was in an anesthesia induced haze, so I didn't really hear much else. Today I asked about the 4 vs 7 fibroids and he said he removed all the fibroids that he could see. What the heck does that mean? Does that mean I still have 3 in there somewhere or did they shrink from the 5 months of hellish Lupron injections? I've noticed when I'm in shock, I forget to ask important follow up questions such as "Soooooo are there still some in there?"
At this point, I'm not sure what to do, with so many issues going on. In addition to dealing with this, I have other issues such as intense muscle spasms that can't be diagnosed, thinning hair and a balding crown. I'm not ready for children, but I'm extremely worried. I don't want to go through complicated pregnancies (if I can even get pregnant), miscarriages, IVF. It's just too much. According to the doc, I'll be reproductively old in 3 years (thanks for the added pressure)! I'd appreciate any advice anyone can give. I was only prepared to deal with the fibroids as endometriosis does not run in my family and I have no idea where it came from.
COPD :: Two Nodules Measuring 4mm In Each Lung
I went for a CAT scan for my heart and it was discovered that I have two nodules measuring 4mm in each lung. I haven't seen the doctor as yet. Has anyone experienced this and what was done for it? I am quite anxious.
View 1 RepliesCOPD :: Stage 2 With 61 Percent Lung Function
I was told way back in August of 2013 I had copd. Smoked for 33 years. Started when I was 13. Did stop smoking in October. Now on 12 meds daily and get out of breath doing just about anything. I own a lawn mowing biz but getting harder and harder to do my job and getting ticked off clients because I cant keep up. Have been getting real depressed about everything. Someone told me to keep a daily blog about my life with copd. Started that about a month ago. Its somewhat therapeutic, it at least lets me get stuff off my chest so to speak. And maybe someone will read it and go hey i'm going through the same crap. In my case its hard to find folks going through it or those that do who even want to talk about it. So if your getting depressed i would recommend doing a blog. No one may ever read it, but you will be able to get out all the stuff you want to say. Thanks for listening and i hope you find what you're looking for.
View 3 RepliesRespiratory Disorders :: Medication To Remove Lung Scar
Is there a medication to remove the scar on my right lung?
View 1 RepliesCOPD :: Noncalcified Nodule In The Middle Lobe Of My Right Lung
I am a 49 year old woman and I have a 8mm noncalcified nodule in the middle lobe of my right lung. For some reason, it does NOT show up on an X-ray but it was found on a CT. Shouldn't it show on an x-ray also?? The ER found it by accident...they thought I had a blood clot that had travelled to my lung...nope! It's a nodule. It was found 51 weeks ago and I did have another scan 2 months after it was found and there was no change in the size. But, since I don't have health insurance, I have been unable to have another CT scan as recommended (every 3 months). My husband makes too much money for us to qualify for any financial assistance but we can't afford a pulmonologist or scan. I have been a smoker for 30 years and I do get backaches and I can't do much without getting short of breath but that doesn't mean it's cancer. My main question is why is it not showing on an X-ray...I've had 2 since they found it on a CT scan so unless it mysteriously disappeared, I don't understand. I have been checked for histoplasmosis and other things like that and they were all negative. Can anyone tell me why it's not apparent on a chest x-ray???? Thanks!!
View 1 RepliesSarcoidosis :: Mri Scan - Found 2 Small Nodules In Lung
I had a Mri scan for back pain, result found 2 small nodules in lung. Seeing specialist in July, I get a little short of breath and a little wheezy at times nothing to alarm myself, but I have terrible fatigue also have red lumps on forehead chin and buttocks. Worried this could be sarcoidosis my father had this sadly died 26 years, I have read different views on this being hereditary, so worried seems ages till July I am female age 55 & a smoker, any thoughts ?
View 32 RepliesPneumothorax :: Collapsed Lungs X4, Two Lung Operations, One Sealed, One Stapled - 20 Years On
I had all my lung drama in the 1980s, two collapses on each side, then followed by each a major lung op, one side using a blebectomy (I think it was called) which was a partial lobectomy that was then stapled back together. The other was a filler where they used some seal to fill the space between the lung and the pleura. So many years later, I survived without needing other operations but heres what happened to my lungs...!
Not sure exactly, but my chest cage, lung cage, shrank relatively suddenly - the doctor noticed the xrays looked as if they belonged to different people. Then I experienced permanent shortness of breath, I have now lived with this for six years. It was accompanied by permanent elevated adrenaline and heart pounding, none of which has been diagnosed by the doctor who always say 'everything is within normal range'. I exercise as much as I can to keep my breathing in as good a shape as possible but I feel like if they opened me up they would find an awful mess in their. I cycle a lot and swim as much as possible - I was always super active - but my breathing capacity in exercise is so much less than it was. I am 50 now and know that damage is also due to binge smoking throughout my life but I haven't smoked for a long time. I'd love to know if other people have had this or varied reactions from their lung op history and what they did about it, especially what their solutions have been. MY SOLUTIONS HAVE BEEN variously holding my breath under water for as long as possible to try and expand my lung capacity - not for the pre-op pneumo people!, Yoga, Stretching, breathing in a spine stretching folded position, meditation, cycle till you are out of breath, Buteko methods of CP and green juicing for best method of getting positive amount of super nutrients to the brain and blood stream oxygene. This might have helped someone, it helped me but it took me years to discover all the different methods I now incorporate. My condition puts me in a state of constant panic that I need to daily manage.
Endometriosis :: Could Be Genetic?
I been having all the symptoms of endo. The lower back pain, pelvic, stomach pain, bloating. I also have leg pain which im not sure is linked to endo but my pain is constant as i've had it non stop for a month now but feel worse when im on my period.
I have been to the doctors as he said it could be a possible ovarian cyst but he didn't really know so he is referring me for a ultrasound which wont be for a couple of weeks!! He did no other tests apart from a urine test (still waiting on results)
My mum has told me both my cousins have endo and im just wondering if its genetic?
Laparoscopy For Endometriosis? Need Advice
Long story short, I've been suffering from excruciatingly debilitating cramps every single cycle,this started three ish years ago I spend hours in the ER I've been admitted few times as well and it's the same bloody routine every single time
I'm in immobilizing pain, cold and hot flashes, nausea, vomiting fainting poor appetite dehydration low blood sugar levels heart palpitations weakness fatigue exhaustion crankiness moody insomnia etc etc
All these symptoms I experience up to two weeks before my period then during the first 3-4 days of my period then total exhaustion few days after my period and I'm symptom free a week before my period give and take. I should also mention that I've had several x-rays, ultrasounds and all kinds of blood tests and everything comes out good healthy and no problems yet I have these symptoms that just don't seem to go away, last stop for me was a visit to an endocrinologist and he's taking care of my thyroid problem given a new doze a little over a month ago and things are looking fine on that end I had a referral from him to see a gynecologist in mid September but having been bed bound with all the symptoms and persistent pain on my right abdomen I spent the night in the hospital and everything came out good both the blood and the urine tests and the ultrasound and regardless of how many drugs were given to me via an IV I was still experiencing bad persistent tedious excruciatingly painful pain on the right side of my abdomen so the gynecologist today discussed laparoscopy with me and I felt so comfortable around her and being as fed up as I am with all this pain I said I'll go for it
It will be a Diagnostic Laparoscopy for Endometriosis she put it as urgent and she'll be the one performing the procedure I'm happy things will finally start to clear out and hopefully I'll be in my way to some kind of cure hopefully but I'm so nervous please help any words of comfort or advice will be greatly appreciated. I did half the paper work already and I'll have some more to do the day of I have a really good doctor guiding me thru this call me weak or crazy but I'm incredibly nervous.
It would be nice to hear from anyone who's done this kind of procedure please BTW I'm 23 years old, healthy no health complications non smoker or drinker
Endometriosis And The Bowel Symptoms?
I'm wondering what the symptoms are when endo attaches to the bowel?
View 4 RepliesCataflam For Severe Endometriosis?
If I use Cataflam for severe endometriosis, should this drug prevent new outcome of my disease. I understood that Cataflam is NSAIDs and that it is usually is used to treat pain. However, Cataflam should have some anti-inflammatory potential, so I hope that it would help. How am I supposed to deal with this disease?
View 1 RepliesEndometriosis :: Uterus Is Really Bulky With 10.2mm?
I am 18 years girl with height of 5.2' and 115 lbs. my ultrasound report says my endometrial thickness is 10.2mm and the doctor said its bulky. Does my uterus is really bulky? if so what should i have to do? what are the possible risks and treatments?
View 2 RepliesEndometriosis :: With Recurring Cyst - Possible Pregnancy?
I am a 17 y/o girl. I am looking for some insight regarding possible endometriosis. I am sexually active, but last time anything happened was in September, and we used protection. I have since had 2 relatively normal menstrual periods. But, I have since had some weird symptoms, including irregular spotting in September between periods, (about a week after the last time we had sex), painful, noticeable veins (in chest, right side of abdomen, etc) some that radiate down from my pelvic area to my right leg (same side cyst is typically on), cramping, slight constipation/gas, and nipples slightly bigger than usual. About 5 years ago, I began having pretty localized right sided pelvic pain. Thinking this pain was possible appendicitis, I went to the ER. They did both a CT and ultrasound, and determined I had an ovarian cyst on my right ovary. Over the past few years, I've had relatively heavy, painful periods, sometimes irregular depending on the month. In Between periods I am generally in some type of pain, typically menstrual type cramps on my right side, radiating to the left. I had regularly experienced nausea alongside these cramps, pressure in pelvic area, and back pain. Every single time I have gone to the ER & gyn in the past 5 years, I have had a cyst on my right ovary. This last time I had an ultrasound done in August, a cyst was found again, but slightly bigger this time. My gyno also informed me that she was slightly confused by the cyst, since it was located slightly to the left of the cyst, and did not appear to be directly attached to it. I am curious if I possible have endometriosis, or a pregnancy is possible? I know I've had two periods on time since having sex, and we were protected. But, I am curious if endometriosis seems possible regarding the recurring cysts and symptoms, or if I am possibly pregnant, since I have never really experienced the radiating pain from the right side down my leg before.
View 1 RepliesEndometriosis? Primarily GI And Bowel Symptoms
I saw my GYN today, and he thinks I may have endo.
Basically, at the same time of the month, every month (the week before my period), I experience severe nausea, and sometimes vomiting and stomach cramps. I've actually thought it was food poisoning, except that it literally occurs a week before my period starts. The first episode I remember was last April (the nausea was so bad, that my husband had to come pick me up from work), and again with really bad episodes in November and January (in January, the stomach cramps were so painful, I ended up in urgent care). With the last episode, the nausea persisted through the duration of my period.
But that being said, I don't feel like I have typical period endo symptoms. Cramps hurt, but are manageable. I tend to spot a few days before I start full flow, and I have heavy flow for 3-4 days, but then my period's gone after 7-8 days. Sex isn't painful. I feel random lower abdominal discomforts here and there (some twinges, or crampy feeling mid-cycle), but nothing that I feel is remarkable.
My GYN did an ultrasound today, and everything looked normal (no cysts or anything). He said, though, that given the timing and cyclical nature of my symptoms, endo is a possibility. My question is, has anyone else experienced purely GI symptoms? If so, what did you do to alleviate them? Did you have any other type of diagnostic test (lap, colonoscopy, endoscopy)?
Endometriosis :: Cerazette - Emotional And Depressed
I was diagnosed with endometriosis behind uterus Dec 15 had diathermy and put on cerazette Feb 15 however the tablets seem to have been making. Me upset extremely emotional and depressed, the GP has taken me off them for a month. What other options. Are there apart from pill? I'm really worried all the pain will come back as cerazette has kept it all at bay!
View 3 RepliesCataflam Usage With Endometriosis Pain?
My daughter has very big problem. She is 23 years old and she has Endometriosis. This is very painful for her, but her gynecologist told her that is early stadium and that this problem is not yet in faze for surgery. He told her to take Aspirin and Ibuprofen if she has big pains. She has terrible pains since yesterday and I am wondering should she, maybe, take Cataflam.
View 3 RepliesEndometriosis :: Symptoms Returned After 2 Years
After years of pain, heavy periods, aches and really bad PMT I was finally diagnosed with endo about five years ago after scans and internal examinations. I was operated on and was ok for a couple of years. Then the symptoms returned and only after breaking down in the GPs room did they do the same again.
Just less than two years ago I started a new job but have had time off sick as my symptoms haven't improved. I'm tired, run down, back ache, stomach ache, pick up every could/bug going etc etc. Now I don't know what to do. My boss has called me in for a meeting about my sickness next week.
The Dr hasn't prescribed me anything but I feel all these symptoms are linked to endo and to the cyst I also had removed during my first op. I struggle almost daily. I'm sick of going to the doctor and begging, telling them I feel like rubbish.
Endometriosis :: Sudden SHARP Pain?
I have been presumptively diagnosed with endometriosis for the past 8 months, meaning I haven't had a laparoscopy to confirm. My pain is usually a gnawing/aching pelvic pain concentrated around my inner right hip bone. It can make it cumbersome to eat and move, and will eventually build up to create anxiety and fatigue.
Suddenly, I've been having very strong pain on my right side (again near my hip bone, but also higher and more general). This pain is sharp, sudden, and paralyzing. It will leave me shaking, gasping, and frightened to move again (as if moving might make it worse).
I am concerned about taking the endometriosis NSAIDs I have, in case this pain is from something else. (?)
LADIES WITH ENDOMETRIOSIS, have you ever had pain that feels like this? What does your pain feel like?
[The pain I'm having makes me imagine a small blade is sitting just inside my hip bone, and, when I move, it cuts into the tissue around it (miserable right?)]
Endometriosis :: Lupron Then Depo Provera?
After my lap diagnosis, I've had a couple of shots of Depo Provera, which have only made my periods worse. My doctor suggested lupron with oral progesterone for 6 months followed by Depo Provera. Has anyone in a similar situation tried this? Lupron seems to have many side effects.
View 1 RepliesEndometriosis :: Experiences With Depo Provera?
So I'm only new on here but I want to know what your experiences with depo provera are?
I'm 19 I've been experiencing lower pelvic pain and lower back pain for coming up to 10 years, I started my period when I was 10. I was told I had appendicitis and that got removed, though I was still in agony from that (don't know when that was but roughly around 2007) the doctors kept telling me I should have no pain and it was all in my head, a few days later mum was told my appendix was white and there was nothing wrong with it, I had cysts on my ovaries and Fallopian tubes and water in my pelvic cavity. The doctors brushed it off and told me I had IBS and sent me to the bowel specialist (can't think of the name right now)who said its nothing to do with them and sent me to the Gyni, this went on for a few years of bouncing back and forth from one to the other, I finally got a referral from my GP to go to another Gyni who at first wasn't too interested but agreed to a lap and was then finally diagnosed with Endo in roughly early 2010. Since then I had been on almost all of the contraceptive pills and on the marina, I've had 6 months of Zoladex, I've also tried naturopath and diets, Nothing had worked with exception of Zoladex which I got relief for five months.
My Gyni is now wanting me to go to a pain clinic and wanted me to go to my Gp for a referral which we did and he doesn't agree, he said because I've got my period every day we need to get that to stop and then the pain will stop (He's the only one that understands) So he wrote a letter explaining that and also asking if I could go back on the Zoladex, in the meantime I'm on a antidepressant in ways to help mask the pain.
My Gyni who I saw the other day didn't agree and didn't care that I was loosing every day, she doesn't want to see me anymore and to shut myself and my mum up has put me on Depo Provera.
Now I'm wanting to know what your experiences are with it, she reckons it won't work since I've not got any relief from anything else and said for me to go on Zoladex again won't be good since I will have more chance of menopause (right now I don't care as I already get hot flashes)
I've got no life at all, I stopped school in grade 9 and tried studying in TAFE (College) but now I'm unable to since the pain is unbearable and I have no energy. Government is trying to push me into work and I've been seeing a job seeker that is also trying to get me into work and keeps saying to take pain relief to stop the pain.
Does Depo provera work for you? I've heard some bad things about Depo...