Cold Urticaria Or Raynauds


Oct 19, 2014

In august i noticed my hand went very red, and became itchy and swollen then burned after holding a container of ice cream, long story short, my ears, feet and lips are affected after testing. my fingers don't go white or blue, just red. now yesterday it was 9 celsius or 48.2 F and windy , my chest,neck and face was red and itchy on the bus when i started to warm up. when i got home the back of my legs started. is this raynaud's or cold urticaria or something else? i am 50 years old and have had allergies all my life, animals,nature, but nothing like this. up until yesterday, i was thinking raynauds, i went for a blood test last week for lupus cause a lot online said you could have something else.

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Does anyone here in this group suffer with Raynauds, whether it be raynaud's phenomena or 2nd being caused by an autoimmune illness? to me it winds up being the same thing, VERY numb, tingly, painful fingers and feet.

Mine started in 1998 when I was just going through my divorce. So you can imagine the years I've gone through trying different gloves and doubling up on pairs of socks. which means I can't dress with nice dress boots with 2 to 3 pairs of socks on. can't fit them in.. lol

I just did a search to see if they make special gloves and socks for people with this problem.

well was I surprised when multiple sites came up.

I don't know who to believe or trust for this matter. greedy companies will take advantage of people who need a special product and you wind up paying way too much for a product that winds up not working.

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I have very limited income and therefore want to make sure I don't get ripped off.

The heater in my car has been broken for years now. The car was given to us by my mother in law. she had it fixed once but broke soon after. I can't afford to get it fixed, so I just layer on my clothing, put a crocheted blanket on my lap, and look ridiculous. So far, no gloves, mittens or socks work!

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I took 3 antihistamine pills a day for a year and a half and still had full body hives. My allergist told me to add Pepcid AC to the prescribed antihistamines. Out of desperation, I called a licensed acupuncturist. After 4 weeks of weekly acupuncture and drinking her tea blends, I am down to one claritin a day and only trace hives occasionally. I am working toward weaning off of the Claritin and then the tea completely. Probably follow up with occasional acupuncture and tea. As you can imagine I am elated and wishing to offer my fellow sufferers the suggestion of checking into Chinese Medicine. Best Wishes!

 

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I'm 24 years old and male. I have urticaria with Seborrhea dermatitis. My vitamin D level is 12. Can vitamin d deficiency linked urticaria and Seborrhea dermatitis?

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Cholinergic Urticaria - Itch, Extreme Pain And Passing Out

I am a 28 year old male living in the UK with my parents. I weigh 70kg and am 186 cm tall. I have been suffering with Cholinergic Urticaria for 9 months. Previous to developing this condition, I had no health issues whatsoever. I have been a competitive middle distance runner for the past 7 years, training every day. I have been heavily active all my life.

This condition materialised in the space of approximately 2 weeks. In that time I became entirely incapacitated in my ability to run.

As a result I visited my GP. A blood test revealed a slightly underactive Thyroid. This became the focus for my Doctor and my skin condition was ignored. Avoiding the immediate prescription of hormone replacement therapy, a repeat blood test was scheduled 2 months later to assess any change in the function of my Thyroid. Sure enough, and without any intervention, my TSH had come down significantly. Although not yet back in the 'normal range', I am schedule to have yet another blood test next month.

My doctor failed to acknowledge any relationship between an underactive Thyroid and Urticaria, and whenever the question was asked he became evasive.

My Urticaria worsened, it's affects no longer confined to when I ran but also when I walk, take a warm shower, lift something, feel stressed, anxious, if I'm in a warm building, when I sleep, when I'm in a car, if I trip. Almost everything I do is now affected, rendering whatever I am trying to do physically impossible. My outbreaks are not just itchy, they are excruciatingly painful. I often feel light headed and nauseous during an outbreak and have nearly passed out on occasion. I have to withdraw myself from whatever situation I may be in, in order to cool my body.

I worked for 6 years as an Account Executive, but last year decided to try something new. I have since lost my job as a Postman, having fallen short of the attendance standards required during probation. I started in January, and was fit work due to cooler weather conditions. In May, whilst on delivery, I was unable to continue. I was unable to work and after 15 days of sick I was dismissed.

Because of the warm summer weather I am extremely unlikely to find alternative work. The thought of sitting in an interview wearing a suit in this temperature causes me to itch. Driving my car is often not possible, nor safe, and I cannot wear anything more than running shorts and a loose fitting t-shirt. My aforementioned symptoms of Urticaria are simply not conducive with job searching/working. Despite having been in full time work since graduating, I cannot apply for Disability Benefit because I have too much money accrued in savings, most of which I had intended to use as a deposit on a house. I cannot apply for Job Seekers Allowance because I am unfit for work.

I was prescribed some Cetirizine, it did nothing. I was prescribed Cetrizine in conjunction with Montelukast, it did nothing. I was referred to the Dermatology unit at my local hospital. I provided a physical demonstration of my Urticaria and was prescribed Fexofenadine, it did nothing. I have since been placed on Fexofenadine 180 mg, twice a day, and Propranolol 40mg, twice a day. Despite saying he has never seen such a severe case of Urticaria, the specialist doesn't want to see me again saying he has very little more to offer in the form of treatment options. 4 weeks on and despite feeling ill most of the time, these tablets are doing nothing.

I have scheduled an appointment in September with a separate Dermatologist in order to get a third opinion.

I am depressed. My life has stopped. I am now, as I am everyday, sat on my bed. Confined to living a solemn and sedentary existence. I feel lazy. I feel worthless. I cannot socialize for fear of suffering an outbreak in public. My fear is only further compounded by the thought of suffering an outbreak and being unable to affect it. The pain is shocking. I cannot imagine the toll this has already had on my health both mentally and physically; the physical pain of an outbreak seems an entirely unnatural and extreme stressor for my body to have to deal with on a daily basis. As is my transition from running 75+ miles per week, to doing nothing at all, alongside my rapidly deteriorating mindset. 

It's formally documented that this debilitating condition has a greater impact on ones quality of life than that of skin cancer, yet because it's not life threatening in itself it seems no one wants to know. Why is so little known about a disease with such devastating consequences?

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