Botox Injections For Sphincter Of Oddi Dysfunction?
Jun 30, 2015
My wife has been diagnosed with SOD and has been offered botox injections for it. Has anyone had experience of this or got an information on it.
View 1 RepliesMy wife has been diagnosed with SOD and has been offered botox injections for it. Has anyone had experience of this or got an information on it.
View 1 RepliesI had botox injection into my ampulla yesterday for the treatment of SOD 3. I am in so much pain today. please does anyone have similar symptoms. if pains could kill I would be dead by now.
View 8 RepliesI had my gallbladder out about 9 years ago now, and have found every time I have opiates like codeine Etc it brings on a SOD attack. Has anyone else experienced this? So I have to avoid anything with opiates in it. Which is awful as I can't have any pain relief during labour and I am due in sept, I'm just wondering if anyone here knows of any of pain relief one can have if they can't have opiates?
View 2 RepliesI was struggling with Sphincter of Oddi Dysfunction but feeling it was not worth the risk of pancreatitis to go ahead with the endoscopic sphincterotomy and would like to share my success using self-administered acupuncture.
My SOD had two pain styles. My daily pain is very successfully managed (99% pain free days) using 30 mg amitriptyline each night and 10mg Buscopan 3xdaily. Before drugs my daily pain was so bad that I was hardly eating - not a long term strategy.
I also get (used to get) episodic severe night time pain attacks. The upper gastric / chest area pain is extreme (as you'll know if you have SOD) and I used to take 20mg oxycodone. Each morning after an attack I woke with migraine, vomiting and general weakness, needed a day in bed. These night time attacks became worse and more frequent until I started acupuncture.
A GP friend taught me to do acupuncture to myself, the most useful points are GB34 and LR3. I do electroacupuncture weekly as a preventative measure, since March 2012. My night time attacks are now infrequent, very mild indeed, and I can stop them by using manual needling in GB34 only. I don't even have to get out of bed, go straight back to sleep and can get up and go to work as usual in the morning.
This has transformed my experience of this horrible condition.
Happy to discuss further with fellow sufferers or medics. Planning to present a paper at an acupuncture conference soon
I was wondering if anyone has had a metal stent placement to treat SOD level one at all. I have posted here in the past as I have gone through 5 ERCP since my gallbladder removal summer of 2013. 3 of the 5 had a single plastic stent placement which all worked until the stent either passed on its own, or was removed by my GI doc. The other 2 times I had multiple stents placed intended to stretch the duct open in hopes of staying that way when these were removed. Obviously it didn't stay open as I relapse into the same set of symptoms that I hope to alleviate......stinging pain where the GB was, bloated all the time, the feeling of a softball lodged into the R abdomen, and pain in the back and R shoulder blade. GI doc (who is well respected here at the Univ. of MN) says that the only options left for me are a botox injection, or metal stent. Any opinions out there? Status quo being stent-less right now is not how I want to live the rest of my life. I am 52 and feel way too young to concede this whole thing.
View 7 RepliesI had my gallbladder removed laparascopically 2.5 years ago. Have had some issues with diarrhea but nothing else. About 3 weeks ago I was diagnosed by my PCP based on my symptoms with gastritis due to Nsaid overuse. Have been on a PPI and Carafate. Not improving at all, in fact getting worse. My ALT liver enzyme was slightly high but otherwise the rest of the blood work was normal.
Went back to see my PCP today and she brought up the subject, based on my symptoms, of possible Sphincter of Oddi malfunction. My symptoms are RUQ pain that comes and goes, yellow stool, stomach bloating and nagging upper back pain between shoulder blades. I have an ultrasound on Friday. After reading about SOD (shudder) I think this might be just the beginning of the saga if I do indeed have it.
Do any of you dear readers have any experience or knowledge in this area?
It is a good thing I am retired because I have been basically sacked out on the couch. I think it would be impossible to work with the degree of discomfort I am having.
I Have been hospitalized the last two weeks for severe pain caused by SOD. It is mind boggling to me that people in the medical profession can be so ignorant and expect for pain to be textbook. I was reaching out to see if anyone had any good ideas on treatment options. With that being said I have had a sphincterotomy performed several years ago and now I am starting to have more pain and nausea (obvious by my hospital admissions). The only analgesic that is able to help the pain at all is Dilaudid, can't be morphine as this causes more spasms. I had an MRCP tonight, will talk to doctor in the AM and find out results. Please let me know what's worked/not worked for you and any treatments/tests that you have had done.
View 4 RepliesDoes anyone out here have any experience with using progesterone to help regulate the function of the Sphincter of Oddi?
My history: I am a healthy and active 132lb, 42 year old female, but I have been having pain in my upper right shoulder, neck and collarbone for three years now that has really curtailed my life and work. I have tried massage, acupuncture, physical therapy, drugs, strength training, chiro, all with no results. Recently a chiro noticed that my gallbladder area was tender and mentioned that gallbladder problems can refer pain up to the right shoulder area through the phrenic nerve. When I started tracking my pain and food I did notice a connection with pain in my shoulder and my right lower ribs as well (which I had been hiding with lots of ibuprofen). An ultrasound, blood work, and HIDA came back normal (at least that's how the doc reads it), but I'm still having pains when I eat oily foods. So now I am thinking I might have problems with the sphincter and with bile backing up creating pressure on the phrenic nerve. Another symptom is that I am now also having pains on my left side which could be the pancreas being impacted, which shares the common duct and sphincter.
So my question stems from the fact that I had a hysterectomy several years back and have only been on estrogen replacement. I've recently found out that progesterone is important for relaxing the Sphincter of Oddi muscles as well as gallbladder function (as well as many other things). When my nutritionist suggested a few months back to use Progonol, a progesterone cream, it did have a positive effect on the pain within two weeks, but it also caused acid reflux (it also loosens the valve between the esophagus and the stomach), so I had to stop taking it and now we are trying to figure out the best way to introduce it back into my body.
If u also have horrible Random pains from sphincter of oddi please just give mineral water a try.. Any brand is fine just make sure it's mineral not seltzer water .. Perrier or any other brand ..
View 1 RepliesAfter 15 years with Achalasia and difficulty with food passing into my stomach I finally had Botox injections yesterday. During the endoscopy the dr said the valve at the bottom of my oesophagus was really tight and he's hoping the Botox will help me.
View 8 RepliesI have had this condition for almost ten years and although not painful it has altered my life by reducing my confidence.
i recently enquirer when at one of my Botox appointments if there were any new treatments and was told that surgery was now more successful.I have been offered an operation on the N.H.S. And am going through the decision .As I am quite a fit 66 year old I really don't want to be having Botox for possibly another 20 years!
Basically in april 2015 i went to consultant for pile treatment, he advised me to have them treated by injection, i went ahead with this procedure, for a week i was fine then i noticed the itching and pile/pain had returned went back to my consultant he told me he thinks it was a fissure and to take creams and come back to him in 3 weeks time for further consultation.
alas 2 weeks later i was in severe pain and discomfort and phoned the consultants office that i was in bad pain and was told the consultant was on holidays and would not be back for a further week!
at this stage i was told by my doctor to attend hospital a+e for emergency
treatment ,this i did and was told to present myself at the hospital fasting from night before to see a new consultant---Phew it gets worse!
arrived at the hospital new consultant in fairness said he would put me under a full GA and see what is going on there
the following morning he told me yes indeed the piles were back there was one internal and one external and that i was better off going for the laser treatment called THD, which i booked in for the following week this was at this stage mid may had the procedure and for 2 weeks felt great
however on the third week i was in severe pain in the anal area and knew something was wrong (bearing in mind i was told the THD procedure has a 90%success rate..presented myself back to the consultant in hospital had to go under a full ga again he told me afterwards that the procedure had not worked for me for fu..s sake i was one of the 10% that it did not work for so i was booked in for the following week to have the piles which i was now told one of them was thrombosed removed by surgery so have had this done in mid june and have been in terrible pain since, especially after bm to the point where all i could do is sit/lie in the house all day taking pain killers stool softeners and baths every day. every time i phoned the consultant i was told it takes time to heal so after 7 weeks of severe pain id had enough, i went to my doctor got a letter of him to see the consultant urgently as i was in severe pain meet with the consultant am now booked in again for early next week this is what he said the wound is healing however it is a time thing, he will have a further look at me to see if there is something else causing this awful pain he said there is no fissure but wants to give me a botox injection in the anal area to help with the healing, can anyone please advise with this as i do not want to get any worse pain than i am in presently sorry for the long rant but this is actually what happened to me it has changed my life whereby in the last 6 months being in terrible pain and discomfort and am now wary about this botox injection
I am 25 female and have been suffering with hemorrhoids for years, 8 I think now, they resulted in a nasty skin tag and when I thought it couldn't get worse, I have now had a fissure for over a year.
Anyway, after many GP visits etc, and fainting from pain, I finally got put on the NHS waiting list for botox and skin tag removal. I thought to myself this is great to get this done and will solve all my problems, as I can't continue life as it is now, right? I got a date sent to me last week for the surgery, meant to be today, much quicker than I thought (Surely they would have wanted to review before, the Surgeon hasn't seen me in over 6 months?!) but after reading so many horrible posts about Botox I postponed it, so they will be sending a new date. But before I go ahead I really hope lots of you can advise me on your experience and give me information.
It is painful for me every day, I almost faint sometimes from the pain. And for some reason for the past 2 weeks, I have lots of blood during EVERY SINGLE BM - why now?? And is this something I should be worried about if it is every single time?
I am tip top about diet and exercise, I only weigh 54kg, I am healthy and active all the time!
The advice that I really want from you all - should I do this botox? Or should I accept life as it is now?? [sad] could things get a lot worse if I go for Botox?
Also I don't know if I get 'spasms', what are spasms? I am in pain for a long while after a BM is that what they are?
I have suffered from migraines since I was 9. These are the drugs I have tried:
-Metoprolol which did nothing just lowered my already low blood pressure
-Topamax, it worked amazingly until my hair started falling out
-Amitriptyline which worked but all I wanted to do was sleep and eat
-Nortriptyline which gave me a headache
-Wellbutrin, worked until I had a Steven-Johnson reaction and am still waiting 4 weeks later for my taste buds to grow back.
-Botox, total waste of my $280, except that I had couldn't move my forehead muscles, lol.
Then my doc wanted me to try depakote, which I drew the line at! All of these toxic medications and I was back at square 1. My hubby did research and out of 300 reviews of BUTTERBUR (all natural), they were almost all positive. It did say might take a month to work also. I was having migraines daily. The first day I took it, no migraine. I was shocked and relieved. I am now on day 8 and yesterday I had the teensiest migraine ever so I also took a feverfew, which according to Dr Oz and internet research, helps with migraines. It went away. I hope this is the solution. So tired of medications with horrible side effects. Butterbur is also used as an antispasmodic/muscle relaxer and I have noticed since taking it i have had no back pain, and I sleep so sound at night (used to wake up 4-5 times a night).
I've had a squint all my life (30 years) had two previous surgeries that did not work. My right eye turns inward.
Recently I was referred to hospital for Botox treatment. This was carried out 9 days ago.
My eye is now straight. (Yay) I am however suffering from double vision when I look to the left and what I can only describe as slight 'ghost' double images (not constant) that seems to appear randomly and when looking in any direction,
Has anyone had Botox and experienced something similar? I'm just looking for reassurance that the double vision will pass and I can continue with the Botox treatment?
The botox kicked in 3 days after it was administered so I've only had double vision for about 6 days.
In 2003 I had really painful headaches so bad I could hardly put my head on a pillow, pretty scary as I do not suffer from headaches. Then as I was eating bowl of cereal I kept missing my mouth and realised I couldn't feel my lips or tongue as though I had been given dentist injection. My sister took me to hospital thinking I was having a stroke, this was the first time I had heard of Bell's palsy and I was given steroids, i was very tired and it was an effort to do anything like eat, speech, it did take three months to go.
february 2014 I got a rash on my stomach which spread to my neck, to my back, to my feet, then to my scalp and then my ears, I was in agony, it was urticaria. Whilst trying to cope with this I then got Bell's palsy again, possibly due to an immune system at a low. However it has taken a lot longer to recover this time. Eighteen months later and I still have a twitchy eye and lopsided smile. I am now considering Botox, has anyone here used Botox to correct any of the nerve damage left after palsy and if so what are your thoughts?
About 3 Months ago i experienced some discomfort after going to the toilet (#2's), and noticed i had a small lump just outside my anus. It seemed like it went away, but everytime i go #2's it comes back out. Recently it's gotten a fair bit larger, and i believe there's a second one there too. Today, it seems like the larger one doesn't go back in, so it's constantly outside my anus and constantly hurts because it's chaffing between my bottom.. I haven't noticed any bleeding, and it is usually pain free because it goes back into my anus.
The lumps aren't overly hard, i can put a bit of pressure on them by squeezing, but i haven't tried to pop them or anything like that, afraid what may happen.
Anyone out there have problems w/ the sphincter? Like "leakage"?
View 1 RepliesYesterday, I had an encounter with a guy I don't know very well. He told me he was HIV- and he didn't have any STD. We kissed a lot and engaged in protected anal sex. He ejaculated and removed the condom. It was intact and seemed perfect. 30 minutes later, we began to frottage. He rubbed his penis around my anus and then pushed in against my anal sphincter like he was trying to put it in without condom. I felt the pressure and told him to stop immediately so he did. I'm not sure but 1/3 of his penis glans might get in between my sphincter but definitely not get through it. It was like 2 or 3 seconds. He might have some Pre-ejaculation too. Am I at risk? Should I go for PEP?
View 4 RepliesI had a bump on my sphincter and it was slightly painful. It showed up Thursday night after I went to the gym and yesterday it seemed to have popped. The size of the bump has gone down but now there is some blood and clear liquid coming out. I can't see it since it is near the hole (sorry for the image). What could it be?
View 1 RepliesI was told yesterday I have a 180 tear in my internal sphincter ,I am going back next week for a meeting with the Dr. & to make plans for repair,has anyone else had this done. How was the recovery?
View 2 Replies