Any Information On Central Pontine Myelinolysis?
Feb 5, 2014
Anyone out there have any information on central pontine myelinolysis , my 26yr old son has been diagnosed with this condition. He has been in hospital for 6 weeks and spent the last 4 weeks in intensive care, he went into hospital on Christmas eve after having seizures to do with alcohol withdrawal the first couple of days he was doing fine then things started to go wrong. He started to loose his balance he started slurring his speech and was getting very confused. He then lost his ability to swallow then started to slip into a coma at which point intensive care induced him into a coma and we were told not to expect him to survive. A week later he started to come round and could breath for himself but could only use his eyes,3 weeks later and he can communicate by blinking his eyes can squeeze my hand with both hands can wiggle his toes and can understand everything we say to him. We know we have a long way to go and don't know what the long term recovery is but would be grateful for any info from anyone who has come through this condition.
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After 2 weeks from the surgery I developed Central Macular Edema, it manifested itself as a round gray spot on my field of vision and could not read also with the glasses because everything was blurred also because my right eye has still the cataract. The ophthalmologist prescribed me Acular to take together with M for another 2 months and asked me to go back for check up at the beginning of April. I was forgetting: last year I was found to have a slight macular degeneration, the dry type and she said not to worry. I would like to know from other people who had the same problem as mine. Is it likely that after 2 months I could be clear of it? Also anyone can tell me how long they have to wait before taking a flight abroad?
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it's been awhile since I came on this board but I know there is many helpful people here. I asked for an MRI of my cervical but neurologist ordered MRI of my Thoracic region.
There is a small hemangioma arising from the right aspect of the body of T6.
A small right of midline disc herniation at T7/T8. It mildly effaces the ventral surface of the cord.
There is a central disc herniation present at L1/L2. This herniated disc measures 11 by 7 mm. There is compression of the anterior sac.
Impression:
1. Small right of midline disc herniation T7-T8.
2. Prominent central disc herniation L1-L2.
My symptoms are pulsing pain around my bra line. Weird deep pains that is hard to explain. Either the inside of thighs or from buttocks to ankles. Feet feel heavy.
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what this means! C5-C6: Posterior central disc osteophyte complex formation results in mild anterior effacement of the thecal sac. Endplate spurring and facet arthropathy results in mild narrowing of the right exit foramen.
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I had am mri w/o contrast and the findings were:
C2-3, the central canal and neuralformina are patent.
C3-4, a diffuse disc bulge effaces the thecal sac. There is minimal narrowing of the neural formina.
C4-5, a diffuse disc bulge effaces the thecal sac. There is mild narrowing of the neural formina.
C5-6, there is a disc/osteophytic ridge with moderate narrowing of the central canal and neural formina.
C6-7, there is a diffuse disc bulge asymmetric to the left. There is mild narrowing of the central canal. The right neural foramen is patent. There is moderate narrowing of the left neural foramen.
C7-T1, the central canal is patent. There is mild narrowing of the right neutral foramen and moderate narrowing of the left foramen.
Conclusion:
diffuse disc bulges narrowing the central canal and neural formina as described, most pronounced from C5-6 through C7-T1.
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I have had blood tests to investigate the central retinal vein occlusion I had in September. Apparently the tests were okay - slightly raised in one area but not bad enough for the haematologist to get back to me, when my eye consultant asked for advice. I commented that I. Bruise easily but my consultant said the raised level would indicate the opposite. The CRVO was caused by haemorrhaging in the eye. I quite often get bruising/broken blood vessels in my fingers - got one today on the middle section of my ring finger, by applying my handbrake! Does this make sense to anybody? I'm fed up of explaining this to the various medics I see, who just look at me with a bemused expression! Am I going mad here??
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I and other volunteers see a lot of posts regarding symptoms after an exposure. Some are minor such as a rash or a swollen node to "HIV like" such as a cluster of fever, sore throat, sores and body aches. Keep this in mind that as humans we are covered or exposed to germs, common viruses, and fungus which we all carry. This is called the "the biome" which is the invisible part of our environment. When we have sexual contact with somebody or their body fluids we expose each other to these organisms and our body reacts accordingly to fend off these invaders sometimes making us feel ill or display manifestations of symptoms. Stress and anxiety post exposure contribute to this since chronic stress decreases the immune system and makes us more susceptible to common infections. But what about the rashes? One may ask. Stress and anxiety causes the "fight or flight" response in our bodies causing release of cortisol which causes itchy rashes on the skin. Cortisol rashes are also called "hives" can be be similar to rashes found in STDs and can be frightening when they occur, (Ive been there). Allergic reactions also play a part. Also, sometimes the timing of exposure and illness is purely coincedental. Finally, if you have had a high risk exposure- when in doubt, test out.
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I was on Nortriptyline for a year for migraine prevention. I found it was making me extremely tired and my heart race. I unfortunately stopped it two weeks ago abruptly. Does anyone know how long withdrawal symptoms last for. Still feel jumpy, brain zaps, insomnia and headache.
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I had a doctor appointment today and I tested over so I might have gestational diabetes I have to go into another clinic to get a 3 hour test for it..it makes me nervous but my mom is a nurse and says you mainly just have to maintain your sugar levels...does anyone have information on gestational diabetes?
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I am in a bit of a quandary is there anyone out there that has had their prostrate removed with the use of a robotic arm,I need to find out as much information as possible as I am thinking this may be the lesser of the two evils that they say I need. I would like to find out everything about the op and how it impacts on your life after, how long does it take to heal, how long do you wear a bag, how long before you can have sex or is that part of your life just a memory
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Just wondered if anyone has had these injections, can't seem to find out any information about them. Already had tvt surgery which was unsuccessful so really want more information before I have another procedure.
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I’m trying to find any information about Hedge apple use for treating cancer patients. So far it's really hard to decide whether to try this or not mainly because most information I found were more focused on discussing if you can eat the plant or not, then on the issue of it being used for treating cancer. Basically it seems like it wouldn't do any harm to try this, but I don't know how long or even how should Hedge apple be used for cancer treatment. Some people say they just eat it, but also, I didn't see any rel info on how effective this plant be in either preventing remissions (which I hope), or cancer.
Please, if anyone has any info on Hedge apple use for cancer treatment, especially breast cancer treatment, share.
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I am looking to have a left flat foot reconstruction in The Fall of 2014 at HSS.
I am trying to get as much information as I can in regards to making the right decision. Currently I can still exercise but have pain when walking a distance or being on my feet all day. Also my foot is starting to turn in and affecting my knee.
I want to hear how did you know when it was time for you to get this surgery done. How bad was your foot before you considered this surgery. Could you walk at in orthotics without pain or were you in constant pain all the time.
From what I hear this is a horrible surgery and I don't want to be worse off than I am now. I have already had 4 opinions with different OS and they all recommend close to the same thing just different ways of doing it.
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I had my bladder repair just under 3 weeks ago and found these weeks to be a lot worse than when I had a repair 5 years ago. That was done with stitches,this has been a mesh repair. I think the shock of the op and being discharged too early,I think, has added to worry. I still feel smelly due to discharge or blood and worry when I open my bowels ( never been constipated before!) Felt really low and tearful this time as well. BUT...I have felt much better for the last 2 days and feel more positive...I feel for everyone on here. We really should be given more info when we leave hospital...
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24 year old and yesterday my hysterectomy has been agreed by two gynecology professionals one of them being the surgeon
And I have also had my pre-op assessment and am now just waiting for a date however the surgeon has said he will perform the surgery by robotic assisted key hole surgery.
And I was wondering if anyone else has had this type of hysterectomy and any I formation....
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I work for a Software company since last 15 years. I suffer from Computer RSI which makes it very painful to use mouse/keyboard, hold a pen and such things. Nothing has been revealed in my MRI or nerve conduction studies which is making it very challenging to convince people at work, who are not very aware of RSI.
Can you point out to any resources at Internet to show that RSI can be a severe problem even when nothing shows up in your investigations?
Has Computer RSI been formally accepted by medical science as a diseases?
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I had a colonoscopy with sedation (midazolam and fentanyl) in Chorley Hospital a few days ago and I still feel as if I had a PTSD. I read the information sheet and expected to be relaxed after sedation, with maybe some discomfort. When I was injected with the drugs (midazolam and fentanyl), I suddenly felt very anxious. I tried to seek reassurance, but the physician was talking to somebody else, busy preparing for gastroscopy. I think it could have helped if somebody asked me how I was at that point. I also had some trouble speaking – I think I was able to speak, but I could not hear myself so it made me feel very strange. Later on I read that difficulty speaking is a side-effect of midazolam. I felt quite intense pain during colonoscopy and the kind student nurse was talking me through it. I recovered well, I think, but I remember the whole procedure (so the amnesia that the leaflet talks about obviously doesn’t happen in every case). Next day I was very irritable and anxious and sick later on.
My main grievance is about lack of information beforehand concerning pain and the nasty side effects of the sedation. The leaflet mentions that you might feel ‘discomfort’. Of course you will feel discomfort – you will have a camera up your bum, what are supposed to feel? There is no ‘may’ about it. However, there is a difference between ‘discomfort’ and ‘pain’ and these words should not be used interchangeably. The leaflet and what you are told by the medical staff makes you believe that you will be drowsy and relaxed while medication works, and then back to normal after. I got quite a shock when I had the anxiety attack after the drug was injected and realized how vulnerable and helpless I was. I was also very unpleasantly surprised at how awful I felt the next day. Had I known this could happen I would have opted for entonox. Unless something changes dramatically in the way they perform colonoscopies, there is no way I’m having another one any time soon.
I would not like to discourage those for whom colonoscopy could be beneficial from having it. However traumatic it is, it is preferable to dying from cancer. However, I think that medical staff are not well trained in empathy (only student nurses seem to have it) and you have to be very assertive with them in order to receive honest information. If you are unlucky enough not to experience post-colonoscopy amnesia, the feeling of being at the mercy of medical people who are inflicting pain on you can be disturbing. It might be preferable to experience the pain whilst being alert and able to speak, and thus having some degree of control.
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As far as I know, there is not ETD cure, yet. I am interested in finding one. I am a Caucasian 34 year old man living in Santa Clara, CA. I have a BA in Psychology and work in a Neuroscience Lab. I was diagnosed with ETD a year ago. I have been suffering from it for 17 years. 13 years ago I had a bought of Bulimia that lasted for about a year. I had Anorexia Nervosa as an adolescent. I was given the maximum dose of testosterone to boost me through puberty since Anorexia was preventing it. Soon after I abused alcohol, marijuana, tobacco, and various other drugs until 2005. I believe all these factors have contributed to my ETD. I was diagnosed with OCD and Generalized Anxiety Disorder two years ago and have been taking Effexor (Venlafaxine) to cope. An Ear, Nose, Throat doctor (currently called Head and Neck surgeon in US) prescribed me Flunisolide (corticosteroid) to reduce ETD inflammation. It seems to help a little, but it is certainly not a cure, even when used for a significant period of time (i.e. 3 weeks).
My ETD has been recently aggravated by my attempts to remove pimples and skin tags, which may be a symptom of OCD. Has anyone else experienced this situation? Numerous doctors say there is no connection between the skin abrasions and ETD, but they obviously don't have ETD.
Primarily, I am asking for information regarding ETD. I need to know the statistics of ETD so that I can develop a valid research proposal. Health organizations neglect to respond to my questions. It seems that most biological research is involved in diseases such as cancer and heart disease, which is great. But, as I am sure that anyone reading this knows, Eustachian Tube Dysfunction is a debilitating disease that hinders one's ability to live to their fullest potential. As I have recently graduated with a Bachelors degree. I am researching what my next step will be. I am strongly leaning towards statistics and data mining, since that is a much needed position in all research fields.
I am looking for information on the number of people with ETD worldwide and specific to certain regions. A timeline of ETD cases in these regions. Research groups, Academic and Professional, that are researching ETD. Research groups that are investigating ETD from the Neuroscience and/or Ear, Nose, Throat (Head and Neck surgery) perspective. Any other information is helpful as well, especially your own personal accounts of ETD. Please share your history, as much as you care to disclose, so that I can begin to develop an etiology of ETD.
I have read many of the other discussions on ETD and recognize that many of you are suffering and I certainly empathize with you all. I am still trying to decide if my anxiety disorders are the result of ETD, my ETD the result of my anxiety disorders, if they are mutually intertwined, and/or if something else is going on. I very much hope to hear from you so that we may begin to develop a cure for ETD so that we may not be hindered by this ruthless malfunction.
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I have been experiencing the lower back pain which is local from last 5 years. My MRI reports says that there is a central disc bulge at l5/s1. Where outer annular tear is intact.
I have seen a chiropractor who has recommended spinal disc decompression sessions on Hill DT.
As per the doctor, it will relocate the disc back to its normal position and make the disc healthier as before.
Just would like to know if someone has gone for the similar treatment for the similar problem. If yes kindly share your experience.
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