Wegener's Granulomatosis :: Nervous System Attacked - Feet Swollen Feet, Dead Fingers
Jun 13, 2012
I have been diagnosed with WG and am on the usual medication.
WG attacked my nervous system. My feet are swollen and movement is painful. At night the swellings subsided but the moment I get up and move around the swelling flares up.
My hands have also been affected. The fingers are dead, no feeling and no muscle movement possible - cannot use the left hand at all. The right hand I can still use but the skin feels numb.
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I do not know what is happening with my feet. I have this tingling sensation all the time. It is starting to go on my nerves. I should probably, go to see my doctor, I know that. For now, I would like if someone can tell me what that could be.
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For the past half year I am feeling tingling feet. And now “electrical” pain is occurring. I am obese and my husband says it is because of that... could be...
Any other suggestions?
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I just wanted to ask was anyone a smoker Before getting WG?
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I'm 24 and just been diagnosed with W.G started with unexplained illnesses , constantly tired repeated sinus infections , facial pain which in turn I had a constant blocked nose unusual discharge. Finally got referees to ENT who suspected it was this from my first app. He done tests , which all came back positive. From being diagnosed on Thursday I have my first app on Tuesday for my treatment and a biopsy on Wednesday.
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does anybody else get swollen ankles and feet when taking lansoprazole, is this a side effect of this medication. i would like to see some answers to this. and do you get such a dry mouth.
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My friend is staying with me and is feeling really ill and dizzy, his hands and feet are swollen, his neck is swollen and so is his face. His glands and lymph nodes are really swollen. He is really fatigued and has a sore throat. mostly it sounds like Flu symptoms apart from the swelling so can anyone help with an accurate diagnosis, he had his tonsils removed so it isn't tonsillitis.
I gave him co-codamol 30mg/500mg and ibuprofen 600mg tabs, he feels a little better but the swelling hasn't gone down much at all.
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My cousin started to complain about head tingling. I do not know what it means at all, so I cannot help there. I would like to know what caused this, and is that serious. I really want to help him but I cannot since I have never heard someone has so many problems with tingling of head. Is there anyone with the same symptoms who might give me short explanation of possible causes?
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I have suffered from migraines ever since I can remember. But lately, sometimes when I get a migraine and it hurts on the left side of my head, then my right arm, more specifically my fingers, will start to tingle and sometimes go numb. Is this anything at all or am I just over thinking it?
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For couple of days I have been feeling very strange. I am not that old and that is why my state frightens me a bit. I have this tingling reaction on my face whenever I tap it. Also, I have a pain in my neck. I can not remember having any serious health problems in my past. Since I have no idea what is wrong with me, I was wondering if you can help me with some kind of explanation for this face tingling symptoms.
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During the summer of 2007 I had a couple of days where I had a tingling feeling in my lower arms and hands during urination. Later in 2008 I had another 2-3 day spell. Now in March 2009 I have experienced the same feeling. Just wondering what could be causing this and whether there should be any concern.
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For the past month i've noticed a tingling in my right foot. Its not painful but it causes discomfort. Also, if i rub a certain part of my skin and the tingling increases. The tingling isn't always there or if it is i don't notice it. Its as if it comes & goes. I was wonder if anyone knows what could be causing my problem.
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I seek your help and advices for I have been experiencing headaches EVERYDAY for the past 7 months. It seemed to have started with a bad cold or sinusitis at the beginning of February.
The pain level can go from 2-3, (usual daily headache), to about 6-7 where it’s close to a migraine and I can’t concentrate or do anything.
- I have had a MRI in
2009, due to a swimming accident where I hit my head on the side of the pool, but nothing showed up.
- I have had a CT in
April 2011 and nothing showed up either.
- I’ve
seen a Sinus (ORL Specialist) and said that my headaches didn’t come from a sinus infection. I was prescribed various Antibiotics for sinus infection and
didn’t seem to help either.
- I’ve seen a Neurologist and she prescribe me Elavils, which I took for a month and then stopped because it didn’t help the headaches, only made me sleepy all day and even more depressed.
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I’ve experience dizzy spells for the last 15 years; perhaps less than 10 attacks from 1997-2011. I’ve had noise in the ear and plugged ear always the same one ear. I had multiple ear infections in childhood and have had a few head traumas. Sometimes my hearing can improve. I'm not sure if this has anything to do with cat allergies?
In 2004, I had a MRI show 5 bulging discs in my low back. L1-5, SI. I’ve had 2 car accidents hit on the right and left, no whiplash though.Recently, Dec – Jan 2012 severe Vertigo 5 attacks in the last 10 weeks, the vertigo went away after the 6th week, the loss of balance has continued intermittently with an impending threat of vertigo(PTS) I've have severe neck pain, jaw pain, cranial pain, headaches.
The ENT doc(s) have determined that I have Meniere’s (hearing loss, tinnitus, and dizziness) this is based on symptoms and hearing test. They have prescribed diuretics to remove fluids. The first time I took the diuretic I had adverse effects.Not satisfied, I pushed for an MRI. Good thing; it showed 5mm cerebellar tonsillar ectopia on horizontal MRI, vertical MRI can show much worse. The neurologist working with the ENT, said it was mild and unremarkable (typical response). CTE can considered dangerous in most of the online information that I’ve found especially if it becomes a Chiari malformation with the development of syrinx - a buildup of cerebral spinal fluid (CSF). The symptoms of CTE can be as follows: dizziness, nausea, hearing problems, ear problems, and loss of balance, head and neck pain, pressure in head (cranial). Now I have been reading about Occipital Neuralgia and the symptoms, which include dizziness. I’m getting confused, and frustrated. I’m losing hope in this effort to find the answer to my problem. I immediately improve with chiropractic adjustments; the problem is I cannot afford to go to the DC every other day. I’m requesting a second MRI (vertical) and a second opinion to rule out (hopefully) CTE or Chiari Malformation. At this point I would choose to have a surgery in hopes of a restored heath and vigor as opposed to taking medications that are supposed to address symptoms because they can’t find the solution.I used to be a person who went to exercise daily, I have a healthy diet, and drink plenty of water. I’ve never used recreational drugs. Drink very little alcohol. It’s really hard to feel like I’ve had a stroke or I’m debilitating. On a good day I am nausea free and almost feel normal, I feel my heartbeat in my ear,it feels like my brain and eyes are delayed not tracking when I move or like I’m moving inside my head, sometimes I feel pulled to the left, like I might fall over, last night I felt like I was going have another attack of vertigo. When I start to move with some momentum I all of the sudden feel uneasy and begin to feel a vestige of nausea Can anyone on here make some suggestions?
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Terribly concerned about my daughter, now age 53 who was a nutrition counselor and took excellent care of her health. She was transported to emergency 4 June 2013 after having seizure on left side. The CT/MRI results were brain abscess 8.45x5.71mm with edema 48x48mm in left parietal lobe. The SCAN with brain biopsy was on 6/6 removing as much of abscess as possible. Culture shows abundant growth of peptostreptococcus asaccharolyticus NOT group D. Subsequent CTs are showing abscess gone but still has some edema. After many rounds of high powered antibiotics, she is still with incision site pain, the extreme tongue/ mouth burning sensations as well as weakness in right arm. We were told it would be a long recovery but now wondering how long. She has had a lot of anxiety with this illness also but this has calmed somewhat. She takes Keppra to prevent seizures and Paxil..We also learned from brain CT in 7/16 that she had encephalomalacia which is cerebral softening which the brain does not repair.
Just wondering since this is a rather rare ailment if there were any others that have knowledge of recovery with this illness.
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For the past 2 years i have had so many different things happen to me, the main issue now is my head. i have been having constant headaches in the back of my head for about 7 months. i've been to the doctor and has been on all different types of tablets. one lot of tablets that were described to me was migran, which made my headaches WORSE! atm i'm on sandomigran. they don't seem to do anything.
i see a chiropractor so the cure isn't that. i have to see a specialist soon, but i want to know if you have any idea what could be wrong with me.
i'm sick and tired of not getting an answer.
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It's been a rough two months. It started with possibly anxiety and then panic attacks. Fast heart rate, tingling feeling in hands, tight chest and as time goes by. Others symptoms. I was diagnosed with hyperthyroid. I been on medication for a month already but still been feeling weird. I have good and bad days. Like yesterday, I was fine for the most part. Felt normal, then the feeling of being nauseous and thought of something is wrong with me came on. Lasted for about 40mins till I got home. This morning same thing, just a weird feeling. Discomfort in the chest area. Nauseous and the feeling something is wrong with me. I had an MRI of the heart, CAT scan of the brain and everything seemed fine. I do have to get an ultrasound for my thyroids and ct scan of the brain again to rule out MS. Other symptoms throughout the day (it varies) shooting pain in my right hand. Headache, dry mouth, chest discomfort, tired, anxious. Please, can someone help? I want to be my normal self again.
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After drinking night before woke up with numbness in lower lip. I'm presently on my menstrual cycle
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I have an undiagnosed condition which started three years ago, in December 2009. My family doctor doesn't take me seriously, so I am switching to another doctor soon. I'm male, 26 years old, non-smoker & non-drinker. Blood pressure on average 130/80, pulse rate around 70. I am 6 foot 1 tall, and weigh around 214 pounds (97 kg).
My symptoms:-
- Head pressure (especially around the temples)
- Feeling my heartbeat pounding in my head (i don't hear it, but i definitely feel it)
- Massive eye floaters in both eyes (always present)
- Light sensitivity (always present)
- Slight blurry vision from time to time (depending on the severity of the "head pressure")
- Eye pain (also depending on the severity of the "head pressure")
What makes it worse:-
- When I eat something very salty
- When I am very nervous, or very angry
What makes it better:-
- When I press on my temples
- When I tie a piece of cloth around my head
- Diazepam 5mg
Worth mentioning:-
- No fatigue (i have a lot of strength & energy)
- No appetite loss
- No sleep problems
A detailed history of my condition:My problem began in December 2009 as just a strange feeling in my head. I started to literally feel my pulse pounding inside my head. This was accompanied by a feeling of pressure in the head, especially around the temples and around the eyes. It felt like extremely high blood pressure, but only in the head. I ignored all of this, thinking it's something that will go away quickly, but I was wrong.
After a couple of months, in the spring of 2010, the head pressure decreased somewhat, but then I began to have eye problems. There was a dull tension-type pain, first in my right eye, then in my left eye. This type of eye pain is very difficult to describe: A strong tension/pressure type of pain, which feels exactly like the pressure in the entire head. This lasted for several days, and then comes the worst part: massive eye floaters in both eyes, accompanied with light sensitivity. The eye pain went away, but the floaters & light sensitivity remained, as well as the head pressure. The floaters & light sensitivity are always present, 24/7, so it's definitely not a migraine.
The problem "stabilized" in the summer of 2010, and remained very stable or "tolerable" I should say. Head pressure reduced by more than 50%, no eye pain, and only 5 or 6 floaters. Then in October 2012, for unexplained reasons, the whole thing came back with a punch. The pulse pounding in the head, the head pressure, and the eye pain all increased about threefold. Then a few days later, new eye floaters came along (more than 10 new floaters!). Now the whole thing is somewhat stable, but definitely not as good as it was before.
Why was it "ok" for more than two years, and then came back like this? The only thing I can think of is bodybuilding. In October 2012 I began to lift weights, mostly benchpress, and about a week after that, the problems began to intensify. This is the only thing I can think of that might have played a role.
Here are the exams I have had done in the past few months:-
- Extensive blood work, including TSH test (thyroid function): all clear, except for somewhat high cholesterol (255)
- Abdominal ultrasound: completely normal
- Ophthalmoscopy with dilated pupils: no retinal tears, no holes, no damaged blood vessels
- VEP (Visual Evoked Potential) test: completely normal
- Carotid doppler ultrasound: completely normal (I really insisted on the carotid doppler ultrasound, because of the feeling of high blood pressure in the head.)
I didn't have health insurance for a long time, which is why I started to see doctors only a few months ago. Now, I have learned to control this condition by avoiding salty foods, avoiding stress, and avoiding weightlifting. By "controlling" the condition I mean preventing it from getting worse. But nonetheless I want to know, and absolutely have to know, what is causing this problem, and how to treat it.My family doctor does not want to do an MRI or a CT scan. He thinks this is all stress related without any physiological causes whatsoever, which I think is completely absurd, and this is the reason why I'm switching to another doctor very soon. In any case, my questions are as follows:
1.) Is it possible that these symptoms could be caused by a deformity of the neck and/or the spine? I have had a really terrible posture since I was a little kid, but my family doctor (as well as my neurologist) dismisses this idea, saying there's no chance it could cause these problems.
2.) Is it worth doing a contrast-enhanced thyroid ultrasound?
3.) Should I do an electrocardiogram & treadmill stress test?
4.) What medical exams would you recommend me? MRI? CT? If so, exactly what kind of MRI? Cervical? Head only? Whole body? I really don't know much about this subject.
5.) Is it possible for the eyes to really be healthy, but for a person still to experience floaters & light sensitivity, for example because of something neurological?
If there is anything at all you could say about this topic, I would really appreciate it. To this day I am not able to find on the internet one disease that has all of these symptoms. The whole thing really feels as if the blood pressure in my head is extremely high, but obviously that's not it. I would very much like to know if you were in my shoes, what exams you would like to have done.
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I'm 20 and im coming closer and closer to getting neurosurgery to remove a cavernoma, its at the left just sitting on the top of my brain, the side effect from it is epilepsy (my left cheek goes tingly..that's all)and that's stopping me from being able to drive, which costs me jobs and frustrates me a lot since my neurologist found out what it was weeks before my driving test so i never even got to pass!the other problem is it could burst and then id be dead...Yay.So were looking at the neurosurgery, i was just wondering if anyone knew the answers to the following questions:
how long will general recovery take? i.e. how long will i be in hospital for? and how long before i will feel normal again?
how long before you can drive after brain surgery? as my aunt got a tumor removed and she has to wait a year.
what are most common side effects after that kind of surgery?
how big a dent will i have in my head after? the thing there taking out is like insanely small, like quarter of your thumb nail size.
obviously its dangerous but is there much chance of anything going bad or are these ops a pretty standard thing nowadays ?
and can it come back? i don't know if that would depend on what they're removing?
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I've had cfs for 25yrs at the moment I'm having a very bad relapse i would like to no if anyone has the weakness in your head my brain stem has been weakened so my nerves system is all over the place my. Body shakes inside pain deep in the back of my head been told that is coming from my brain stem have poor concentration and cry a lot.
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