Vitamin D Deficiency :: Pain, Numbness, Paralysis, Loss Of Mobility, Fatigue, Bladder And Collapse
May 23, 2016
I've been ill for over 12 months, with chronic pain, numbness, paralysis, loss of mobility, fatigue, bladder, bowel problems, Total collapse falling to floor, shaking, tremors, head nodding, slurring, drooling, speech problems sleep problems
Had ct, Mri, evoked potentials, numerous blood tests, all clear , now it appears according to neurologist that this is all down to vit d deficiency? It's 12 have got 40000 iu to take once a week and been told to go to gp as he no longer needs to see me ?
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Had a letter from the rheumatologist to say that I have vitamin D deficiency which I can't understand because I get plenty of sunlight and I have a good diet.Going to GP today to discuss supplements.Rheumatologist also suggests that my GP checks my PTH which I assume is parathyroid hormone.Does anyone have any experience of this.My pain and fatigue are becoming unbearable and if vitamin D supplements could alleviate some of it this would be wonderful,but I Don't want to get my hopes up only to be let down again.
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I have recently been diagnosed with Vit D deficiency...the level in my blood was under 10 (it was actually at 3) when it should have been at least over 50. I think it has been this low for at least a year. I didn't get any sunshine at all last year (severe hot flushes so avoided sunshine) without realising the consequences. My diet has not been ideal either. After several blood tests to test thyroid, and lots of other things, the locum GP came up with a severe Vitamin D deficiency.
Over the last 6 to 8 months my health has noticeably deteriorated with severe tiredness, no energy, really bad aches and pains, with severe pain in my joints, disturbed sleep, very depressed, etc. Plus I am pre menopausal and have depression, all of which are being treated separately and fairly successfully.
Anyway a locum GP put me on 20000iu of Vit D daily for two weeks which I finished this week...and now my usual GP has put me on a long term daily maintenance dose of 800iu Vit D (and didn't seem sure why I was on a daily dose of the 20000).
Anyway I had a business trip yesterday, 6 hours total travelling and 6 hours in meeting, and half hour walks to the station and back....and the result on my body has been catastrophic. Really aching all over, severe pains in my arms and legs, both much more than usual, bad back, and just generally feel awful. Is this to be expected? Is this normal with a vit D deficiency. How long will it be before I start to see any benefits. The doc mentioned it will be at least another 6 months before my blood levels are tested but I work full time, am a carer at home and really want to start feeling better soon.
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Just 2 weeks ago, my PCP diagnosed me with a vitamin D deficiency through blood labs. My level was 16.9. I've been on 50,000 units of vitamin D2 for 2 weeks now (once a week) and noticed my sleep has improved some (I also have sleep apnea and high bp).
In the past couple of weeks, I have noticed a strange feeling in the left side of my chest. It feels like numbness and it's about the best way I can describe it. Doesn't really hurt, it is just annoying. It also comes and goes and seems worse in the evening. I do have a low testosterone level as well (200) but didn't think this would be related. I'm becoming concerned about this feeling and it's becoming more frequent and more intense.
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Hi everyone, I was diagnosed with CFS/ME a year ago and since having surgery last November it has got so bad that I am unable to return to my job I am only 22 and it's really making me upset.
I have had all the blood tests available and all came back negative apart from today my doctor called and said I have a vitamin D deficiency and has given me 3 months worth of medication. Has anyone else with CFS/ME got a vitamin D deficiency? Also did supplements help your CFS? Or even cure it? How long did it take for you to feel better?
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After LFT resulted in high GGT levels, my Dr. tested my vit D levels which were 43 and slightly deficient.He told me to take supplements for 3 months and recheck levels.
I feel awful. Fatigue is main issue and feeling very low. Should I stoo taking it? I take 25/1000iu per day
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Well as it appears my vit D is a bit low. It's 18 and my Iron is 10. For a very long time now I've been feeling quite unwell to the point I can barely function at all. It's been a long struggle trying to find out what's wrong with me given that all of the tests I ever did were excellent. I'be for a while now I had an iron deficiency, but I haven't known about vit D up until yesterday. These are my symptoms has anyone had this?
- breathlessness
- extreme fatigue
- lingering anxiety
- muscle weakness
- muscle stiffness
- occasional numbness
- internal tremors
These are the most common ones and I don't always experience all of them. Also it's like I always feel a need to warm my body with warm water bottles and such. It's gotten to the point I never leave my bed even when I feel better because I'm afraid I might feel unwell. And I know this is so bad because on top of everything my body is getting deconditioned, but I can't make myself do it because I get so anxious.
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Over 2months ago in jan 8th, when i took generic benadryl with dextromorphan, acetomeniphen, phenyleprine,(pill. after about an hour, noticed i loss about 99 of smell which in turn made me unable to taste certain flavors. Throughout the whole day i started feeling unusually shivering and cold. and notice i started to get tingling on the left side of my body. the next day my smell hasnt returned, and i went to the ER, was afriad it was a stroke or some brain injury. Spent 5 1/2 hours trying to find out the cause, but was unable, the whole time the doctor did notice my other symptoms i was jerking twitching while on the bed, and felt very tingly, i also have tachycardia. i was eventually discharged, over the next few days, i still had sense of smell loss which went to 50% but went to 90% loss very quickly over the next few days. While i was sleeping, at night my neuro symptoms intensified, my myclonic jerks, twitching increased, and RLS developed, at the same time i realized i also pins and needle show up on the left side of my body.
After about 1 week, the pins and needle came back on my left hand and feet. Then a few weeks later i noticed i had loss all internal sensations(full or empty bowel,stomach,bladder, eye movements) Any internal movement you can think of is loss. Actually about 99% gone, because i can still have a bowel movement, pee, and stomach sensations only when its overwhelming and prolonged stimulation. i do not have loss of bowel movement, no loss of bladder control.
The pins and needle came and went and move around my hands feet above the ankles. this is over the weeks as its now.
The pins and needles eventually started to appear more frequently on the right side, but not as frequent as left.
In feb 2 i went to the pcp, for possible diagnosis, but i hit a wall, as the pcp kept insisting that my conditions were mental, or genetic in nature.
Within the week, my pins and needles progressed to cool feeling(randomly but not frequently), now im experiencing random joint pains(1-2 sec bursts, not frequently or constant). Also the twitching is more prevelant when i am still.
I have been diagnosed with vit d deficiency, i am taking 2k per day(i dont know how long i have to be on) but she wanted 4k but was scared it causes itchyness, i already have itchyness from the so-called rashes i got, she diagnosed me with atopic dermatitis, which i dispute, as some other doctor said was contact.
Due to me being on welfare(MEDI-CAL ) i am not able to see my medical tests or records online, as they do not have this technology, but the medical center i go to seems to have it integrated into thier database. I do not have to acess to it, unless i pay for copies of medical record, they dont accept cash.
Furthermore, my specialist appt is in aprl 30th, which cannot be changed to earlier, because of me being a mED-CAL patient. i did not go the pcp appt last week because its across the city from where i live, and the pcp is already losing favor, because my previous visits with her was not finding whats wrong with my present conditions, but trying to make up a diagnosis related to mental health issues, hypochondriac, and i felt like i was going to get the same answers as b4.
i was tested for b12 and cbc blood count, but i do not have access to those results. when i requested other vitamin tests, she refused, i also requested lyme(because my symptoms only fit the neuro portion, now that i have limited joint pain). The parasthesiasins and needle, spider web on arm and leg feeling, tickling,prickling, pin priks, coldness feeling,some joint issues) these are constant everyday, there were days where they subside, and when i wake up. loss of sensations prevents me from feeling (if im about throw up acid). abnormal sensations of my right hands. i do not have numbness, loss of pain or itching, but i am certain thats coming next. Any ideas its lupus.i am in college, and i had to drop a class so i can deal and try to find out what my mysterious neurological condtions is..
My pcp thinks this is also hypochondria, because i stupidly told her i had kaiser records, before turning to WELFARE.
You wouldve think that sudden loss would warrant an immediate red flag, but she/they are not taking my condition seriously i am currently taking 4000IU, (2x2000Iu) per day. and taking b12 (1000IU prophylactic, i don't have test results for this yet.
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i had a vitamin b12 test yesterday. the result recd today is 277. i am having pain in my both calves and i get tired very quickly. please suggest what it is ?
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Hi I have been having pain in my ribs and arms and shoulders for 4 months I don't seem to be getting anywhere with doctors I do have vitamin d deficiency and was Just wondering if it's anything to do with that?
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Okay so I'm feeling really down at the moment due to chronic pain. I was diagnosed with fibromyalgia three years ago but can't tolerate all the medications such as gabapentin, pregabalin and amitriptyline so I'm basically just taking solpadol 30/500s and tramadol 50 mg if it gets really bad. I've now been diagnosed with severe vitamin D deficiency and all they would tell me it was below 20 so I've been started on 60000 units of cholecalciferol per week. I'm now getting sharp pains in my feet which I can only describe as a cross between a bee sting and an electric shock in my heels and feet, and a constant ache of calf muscles and bad bone pain to my shins. Everything is getting me down
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Symptoms I been having. ..
*Weakness in arms and legs
*Pain in both legs and arm, worse when walking/working
Also in my feet.
* Frequent bladder
*Random muscle twitching all over the body, especially feet
*Eye sight slightly worse (need glasses now)
A doctor I saw was just at a regular clinic and he did blood work and it came back fine beside that my Vit D level was at 7 which he had the nurse call me and immediately gave a prescription over the phone for V2 vitamin 10,000unit pills and been working on that. Anybody know if my symptoms sound like a legit cause of the vitamin d deficiency? Could it really cause pain and muscle twitching?
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I've had some blood work done because I was extremely tired and have been for the last couple of months, muscle pain (mostly upper back and neck), headaches, muscle weakness, being emotional (bursting into tears) mostly because extremely tired. digestive issues etc.
Results came back, only thing wrong is D3 level at 6 ng/ml (minimum should be 30). I was prescribed 25000 UI a week for three months. I also sent a mail with the results to my endocrinologist. She says she doesn't think my symptoms come from a vitamin D deficiency. Now I respect the woman a LOT. She has helped me in many ways in the past and she's been the only one to find what was wrong with me years back when I had severe health issues and every other doctor thought I was just "depressed".
I am though very surprised by her answer. I've read of a lot of people having very similar symptoms with vitamin D deficiency, and for most of them the symptoms just flew away when their vitamin D level went back up.
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My doctor told me today I have a severe vitamin D deficiency. I had been to see her because of terrible bone pain lasting months. She told me this could be the cause.
I'm currently taking 20,000 units of vit D for 15 days, then down to 800 for maintenance.
I'm not expecting results straight away, but the problem is, the pain has gotten 10x worse since my first dose today, and it was already pretty bad. I can't find pain as a side effect anywhere so I'm just seriously confused as to why this has happened. I've never felt pain like this before, so I'm assuming it's related to the vit D.
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I've been unwell for on and off now for almost a year. I remember phoning off sick a couple of times before feeling tired and 'achy'. I thought I was just being lazy and this was psychosomatic. Then I started getting really ill when I developed a sudden onset of neck/shoulder pain which is still an ongoing problem now although the pain has turned into discomfort/ache which I have learned to manage doing exercise and stretches. I also feel sensitivity on other parts of my body (like invisible bruises.For 6 months I was coping with my neck/shoulder problem (symptoms are crawling/tingling sensation in the arm, sensitivity to touch like its bruised and cold feeling and dull ache on my shoulder blade).
Then gradually I started developing 'flu like symptoms' without cough or cold but with tiredness/fatigue and dizzy headache which are intermittent throughout the day, until 2 weeks later I started getting throbbing ache in my legs and eventually I couldn't sit all day without getting restless legs and crawling/tingling sensation in my legs which caused weakness in my legs and worse when I'm going upstairs - and my knees keeps clicking. I went to my doctors who prescribed me with naproxen. And told me that I had something called Reactive Arthritis, which i thought was a misdiagnosis. Overall I thought that it could be viral related
This time I've been off work for a week when I started to feel better after a week on naproxen. I came back to work for a week feeling like i thought I recovered. Then boom 2 weeks later gradually the flu like symptom came back with extreme tiredness / fatigue and I've been in bed since. I'm still achy all the time regardless. I have no energy to do anything, even showering is a struggle. I've been in bed most of the time, sometimes I try to go out with my husband for a few hours but I come back home absolutely exhausted and the soreness/headache i get is a different level. Most of the time I feel like my body is inflamed.
So i decided to get a second opinion and i went to see another GP who referred me for a blood test. A few days later, my results came through and I have Vitamin D deficiency. Everything else they tested seem fine. I have a better outlook now though after the diagnosis, apparently it will take months for the treatment to take effect. I guess now they found something they will stop investigating further (which worries me a little bit) but i guess its process of elimination so treat one thing at a time. Would be great to hear from others who also has this deficiency and whether the treatment was effective?
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I have recently been made aware that I am vit d deficient , following feeling extremely rough for a considerable period of time .
Symptoms have included:
severe pain in my shoulders , elbows ,hips
loss of muscle strength
poor coordination , very wobbly at times
excessive sweats
fluctuating body temperature - sudden change from comfortable to freezing or the other extreme excessive Heat !!
extreme tiredness
lethargy..... To name a few
I have found this forum really informative ,and reassuring hearing that with vit d supplements a lot of writers have noticed a big difference in their symptoms.
my question is once diagnosed as vit d deficiency is this something that is prone to drop in the future ?or following a course of supplements does your own immune system usually maintain its levels ?
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I'm 52 I went to Doctors because I'm always tired, weak & suffer with joint stiffness & pain. Couldn't find any thing wrong. I had a vitamin d blood test. My result was 40 which is a little low. I have been told to take a supplement 1000 iu. Has anyone else had this kind of reading and what us the best vit d supplement out there to take?
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I was diagnosed with with B12 and Vitamin D deficiency. Both levels quite low. I have been taking my Vitamin B12 shots for three weeks now. Also I am on supplements for Vitamin D 60000 IU once a week. Most of my symptoms like tingling numbness and headache have gone. But since a few days i have been experiencing this weird feeling in my chest and entire body, the kinds when we are nervous, with palpitation while sleeping. I wake up and sit for sometime and then I seem to be fine. However, it happens again when i am about fall asleep. My GP said its anxiety and prescribed clonazepam. It did help for three days. But yesterday I tried sleeping without taking clonazepam and the same feeling of anxiety and palpitation came back. Is it a part of the vitamin D recovery process? I don't want to take clonazepam regularly. Any suggestions?
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I'm 16 years old, and I have now been sick for over a month (I first got sick at the end of November). I have been experiencing stomach pain/discomfort that comes and goes. It is generally all through the middle of my abdomen, but I have also noticed that I sometimes get sharp, shooting pains on the left side. The pain is worse after I eat, and it doesn't matter what I eat, the pain is still there. I don't have much of an appetite, but I have been trying to eat because I know that I should. This is extremely difficult, though. I have lost almost 10 pounds in the past month because I haven't been eating much, and really don't feel like eating. I've also been having horrible diarrhea.. sometimes I will need to use the washroom three or four times a day. I have tried taking Imodium for the diarrhea, but I always end up extremely constipated.. and the diarrhea only returns (I might have one regular bowel movement, but after that the diarrhea just comes back). I'm exhausted as well. I just want to sleep all the time, and I find it hard just to keep my eyes open throughout the day. My lower back is also constantly aching.. I just do not feel well at all.
I have been to see my doctor 4 times because I just don't seem to be getting any better. He initially thought that I had a viral infection, but after I did not improve after two weeks, he decided to run some tests. I gave a urine sample and he said that I probably had a kidney infection (but he wasn't 100% sure because I had my period when I gave the sample). He put me on medication, and sent me for blood work. I also had to give a stool sample. All of my tests came back normal, but the medication didn't help at all. The next time I saw him, he said that I might have an ulcer, and put me on apo-omeprazole, which I have been taking for about two weeks now. I'm also on medication for a case of bronchitis.
I am incredibly frustrated because nothing seems to alleviate my symptoms. I have missed 15 days of school because I just feel terrible. My parents think that I might be making it all up, or that it's all in my head, and my doctor has suggested the same thing (he told me that there was "absolutely no reason" a person my age would be experiencing symptoms like this for so long. I am NOT making this up, and I know that it ISN'T all in my head. I just wish that someone would actually take me seriously and believe me when I say that something is wrong. I have an ultrasound scheduled for Tuesday, but I just don't know how to cope at school until then. I'm also scared that the ultrasound will come back normal, just like all the other tests I've had done. Has anyone experienced anything like this before? I'm desperate for answers and ways that I can cope.. I want to get back to school and my life.
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I don't know what's going on with me. I keep going to the doctor and all they say is that i'm suffering from a stomach bug, but it just doesn't seem to be that simple. My symptoms are;
Nausea, headache, fatigue, dizziness, loss of appetite, diarrhea, weight loss and lower abdominal cramps, similar to menstrual cramps and I'm not on my period. Recently I've started experiencing shortness of breath as well. What could it possibly be?
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Hi I have recently been diagnosed with vitamin D deficiency after years of pain and tiredness. I have quite a long history but have had surgery twice on my right foot. The first time was a straightforward bunion op and the second one I am now wondering if was caused by Vit D Deficiency as I was in so much pain after first op I needed the 2/3/4 metatarsals cuttings and replacing into different positions.
I also have Carpel Tunnel in right hand and been told I need surgery on it due to muscle waste, inflamed tendons and slight loss of sensation.
There isn't a part of my body that doesn't hurt and I am a 36 year old female. I am self employed and a mum (which can be very challenging with all the pain and tiredness at times!).
I have been prescribed pre d3 20,000 iu 3 times a week.
It turns out that I had a blood test in 2011 that showed I was low on vit d then so I have spent the past week battling between my GP and hospital to try get the levels and find out who did the original test and find out why nothing was done years ago for me. I am starting to feel fobbed off as no one is giving me a clear answer. The hospital won't give me the answers and told me they have to be faxed to GP which I asked for and after waiting days for this and chasing up twice the GP rang today to tell me they have recent blood test result which showed vit D below 30 if that makes sense to anyone?
They weren't sent the 2011 results so have had to chase up again!
I am concerned after having pain for years that this may have done damage. How long does it take to see a difference on that dosage?
My main pains are in lower right back, back right rib, hips, feet, hands, neck.
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