Uterine Fibroids :: Esmya, Side Effects And Coming Off
Feb 8, 2016
I am 37 and live in the UK, I've just finished my 3 month course of Esmya for the 5 Fibroids I have.
Now I can tell you about all the side effects of which I suffered from the weight gain to the hot flushes, but its really the stage of finishing the course and what happens next I would like advice if anyone has any??
It has now been 1 week and 5 days since i took my last tablet, and the first week I was ok but after that I have had very dull aches in the tops of my thighs and stabbing pains in my lower stomach, as you women will know when it gets to that time of the month majority of people have that stabbing pain which feels like it is going straight up the middle of your stomach, well this is just like it but more severe as to the point I double over, I was seen last night by the out of hours GP and he gave me some painkillers to manage the symptoms but that's all he could do, he had never heard of Esmya so couldn't advise me, just told me to contact my own GP who then would be able to get in touch with my consultant up at the hospital.
I just wondered has anyone else had this problem and was told it was a normal process as no-one has told me what happens after taking Esmya, only that my periods should start again within 4 weeks of stopping the medication?
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I am 39 and recently had a hysteroscopy to remove a fibroid that was causing heavy bleeding and blood clots. I have other smaller fibroids (17mm) which were not removed but I took a 3 month esmya course which gave me all sorts of side effects like tiredness, body ache and vaginal discharge. There is such little information available on esmya and I want to know what are the side effects once you stop esmya. It's been 11 days since my course ended and while my period hasn't returned today I had vaginal l discharge which was bloody. Is this normal? Any experience anyone can share?
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I am 38 years old and I have a 8-9 cm fibroids and I have been recommended by my doctor to use esmya to help shrink it. I am scared. Can anyone tell me what are the side effects?
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I'd like to hear from all of those women who have taken Esmya:
1. What kind of fibroid do you have?
2. Did Esmya effectively shrink your fibroids?
3. What kind of side effects did you encounter?
4. What is your overall opinion of your experience with Esmya?
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I have not yet had my pre-op as the hospital seem to be slack, I wondered how long after taking esmya do the fibroids start to grow back? If they do? How long after finishing the 3 months course did people have to wait for there op? My period stopped while taking them, will it start again and will it be as heavy as before? My op is just to remove the 2 large fibroids that i have, as i would like to have another child. I am 42, so with time not on my side, you can see why I am getting impatient with the hospital!
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I have recently been diagnosed with a 17 cm fibroid (which I believe has grow) I was prescribed tablets to shrink it but I have read that there is bad side effects which include weight gain, I have struggled with my weight and lost over 5stone so I am reluctant to start taking the tablets. I am 40 years old no children, in a loving supportive relationship but I am very scared in agreeing to a hysterectomy.
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Has anyone had any reduction in fibroid symptoms after taking esmya for a second course of three months. I have finished a first three month course and still have some pelvic pain. I wondered if it is possible to obtain an improvement with the second course of 3 months if not gained much in the first three months. There will be a 2 month gap in between as advised by the Dr. (They can be used intermittently now and not just prior to surgery).
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I'm 25 and have 3 uterine fibroids ranging from 4-6 cm in size. Due to extremely heavy bleeding which made me anemic I was put on norethisterone to stop the bleeding until I saw my consultant. She prescribed me esmya which I shall take before I have a myectomy. I was wondering if i do have to wait until I start bleeding again before I take esmya or whether I can swap from the Norethisterone to the esmya straight away?
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I went to a gyno last week to discuss treatment for my 5x7 intramural fibroid which causes me heavy bleeding and sometimes a pressure towards my tailbone.
I was curious about having a embolization but my gyno thought that Esmya would be better for me to start with.
I have so many questions that the gyno couldn't answer (!) so I hope that you who have been on Esmya would like to share your experiences and can help me answer some of them. I am mostly scared of side effects, if it will affect my work, libido etc.
The questions I have for you are the following:
After finishing 3 months on Esmya, how was the bleeding? Was it much lighter after that?
How much did your fibroid/fibroids shrink?
What side effects did you have? Were they transient?
Has anyone been on them for longer than 3 months? If so, did the fibroid continue to shrink?
Will the fibroid stay small and bleeding continue to be less after I finish Esmya? Is it worth taking?
Is it safe? Would you recommend it?
I might add that I'm just turning 40, have to kids and want to avoid having a hysterectomy.
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For anyone who has to undergo surgery for uterine fibroids...i am the biggest wimp i know and I had my surgery on the 18th Aug 15 & I'm already very mobile ( bout the house & short walks) hasn't even been 2 weeks. Its not all roses mind , I don't know if I could have any long term problems from taking esmya for so long when you're clearly not supposed to. I , like many others , dreaded the surgery & having to be cut not to mention having a catheter on when I woke up ..so gross , but i' ve survived . What have I been left with? I still have my ovaries, I have some numbness up my right leg & just above my incision , also I visited my gp who said I have been left with a lump of dried blood inside that should disintegrate with time. If I could offer any advice at all stay focused on why you need it , try to keep active & a stable weight leading up to surgery & listen to all the do's & don'ts , if prescribed codeine do take a prescribed laxative with it ...really coz wow ... Hope this is helpful
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My consultant has prescribed Esmya today and I had to give the prescription to my GP so waiting to see if she agrees it tomorrow. In fact I am sure she will but has anyone had issues with their GP not agreeing?
Also I noticed that most of the women in this forum are taking Esmya in preparation for a hysterectomy. Is there anyone else like me who does not want a hysterectomy and is just taking Esmya to shrink fibroids only? Well I am sure my GP will agree to process the prescription.
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Having had heavy bleeding for 6 months from fibroids, with mirena coil unsuccessful,I started Esmya couple of days ago. However, despite also still being on tranexamic acid, my bleeding is now worse than ever with lots of lower abdominal pain. Can esmya make symptoms worse before they get better? Also, possible option for future treatment is ablation. Has anyone had this done or can tell me how bleeding is after this?
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I have been taking Esmya tablets for 12 days and still have bleeding also i am getting bad pains on my right side. is this normal as i was told after 5 days my bleeding would stop
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Anybody tell me the generic name of Esmya?
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Hi All - I had a Polyp removed in March where they discovered I had a 12 cm Fibroid - I had an Endometrial Ablation to remove the fibroid and I went for the option of keeping my fertility, this Op was at the beginning of July, since this time I have had only 4 days where I haven't bled. I have just had my 3 month check up with the consultant and he has suggested that the Fibroid is growing back and to start taking ESMYA saying that this will reduce the fibroid and will stop bleeding.
I believe that this is a stop gap with the intention that I will take the tablets for 3 months but once the bleeding starts again I will probably have to have a full Endometrial Ablation.
Has anyone else had an Endometrial Ablation with similar effects and has ESMYA stopped the bleeding? AS you can imagine bleeding for over 3 months solid has become somewhat frustrating.
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I'm 29 years old and I have a few relatively small fibroids. The biggest one is 4 cm and the other 6 fibroids are about 2 or 1 cm.
I actually didn't have any idea of what was growing in my belly. I only had bad pains during my period but no other symptoms. So last year in October, I did the yearly examination and it was then when the doctor discovered them.
My husband and I want to have children an the fibroids might be getting in the way. So I started with the Esmya treatment, in hopes that the fibroids will get smaller, so I can get pregnant soon.
Does anyone here is in a similar situation? What is the treatment that your doctor gave you?
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I have been taking Esmya now for six weeks. Not had bad side effects until last couple of weeks . I keep feeling very sickly and tired. Anyone else had this and what did you do to alleviate the problem?
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Before I started Esmya I had to come off norethisterone. Fearing a large withdrawal bleed and hoping to avoid another hospital admission, my consultant put the coil in a month before. My period was heavy but OK but unfortunately the coil came out.
This may be a good thing in that I've read you shouldn't have a coil in while on ESMYA as they both compete for receptor sites. Makes sense but when I mentioned this to my consultant he said that the coil deals only with the womb (preventing uterine lining building up) and ESMYA deals with everywhere else. He is the professional and I should trust his judgement but it contradicts what I've read in different sources. Just wondering what you think of this?
My issue is that he hadn't anticipated the coil coming out and he has said that I can either "wait and see" (what period will be like after Esmya) or he could put the coil back in as "belt and braces".
I just don't know what to do. I'm terrified of haemorrhaging again in that period after ESMYA and so the coil would help limit that. However I really want to give the ESMYA the best chance of working and I don't think that will happen with coil in situ. Unless, are there any ladies out there who have had fibroid shrinkage with Esmya and the coil in? If so, I would dearly love to hear from you.
And in general, if you don't mind sharing I would love to hear what people's experiences have been like with that period after first course ie. Heavier or lighter than usual, how many days after stopping ESMYA ..
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I have been on Esmya for 2 months. There are quite a lot of minor side effects, but I can cope with this. My fibroids are quite big (about size of 5 months plus pregnant). I have noticed a very small change only, maybe a little flatter, so far. For those of you who have taken a full 3 months, when did you notice the most change. Also is there anyone who has taken a 2nd 3 months and did that produce any further improvement.
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There are lots of discussions on here as to whether esmya tablets work. I took them for 9 months, and my fibroid reduced by 30%. I guess they may not work for everyone. I did have a monthly scan at the hospital, where the consultant measured the size. The biggest reduction was at the 6 week stage.
I did also have a think uterus and it appears the tablets also helped thin the lining of this too.
After 9 months, I must admit I was getting a bit disheartened as it didn't appear to be shrinking, and the consultant wanted me to take them for 12 months. I was referred for embolisation, however after meeting the surgeon, he said that myomectomy would also be an option for me, to remove the fibroid completely, as there would be no guarantee that embolisation would work for me, as it was unclear if I had more than 1 fibroid at the time. He gave me me a choice, and I opted for myomectomy, so glad I did.
I had a myomectomy, on 4th July, I date that I will always remember. Whilst operating they also found that I had a form of endometriosis, adenomyosis, so removed that too.
I am now nearly 11 weeks post op, still recovering at home. My surgeon said that I did have major surgery (not as straight forward as hysterectomy) I am able to walk about, still not doing any lifting, but I do still experience pains. They said that as long as I don't bleed, no discharge or swelling then it will just take time, however nobody seems to know how long.
I did rejoin slimming world after my op, and have continued to eat healthy, and my stomach is getting a lot flatter. I just thought I was putting a bit of weight on, getting a stomach, I am 43, old age etc, but have gone from 16/18, and now down to nearly size 14.
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I took two packages ( doctor gave me only 2) of esmya from april to june.
My bleeding completely stopped and even month after I still do not a period.
Did you have a similar situation? When can i expect it. My plan is to be operated in August ( hopefully laparoscopy treatment).
During taking the esmya i felt good. Unfortunately scan showed that fibroid size had not changed still 6 x 6.
Bad effect on me was a cyst ( i had cysts before )in my left breast which at some stage was huge but now after there is only a little mark
I still have a little hope esmya is working a bit, i heard it is possible...
I hope my decision about the treatment is a good one. I've been thinking about it for 2 years. I would like to have children in the future im 33.
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