Undiagnosed Symptoms :: Lipoma, Sebaceous Cyst Or Just Edema ?
Sep 6, 2014
In July I noticed a lump on my left underarm. I went to our local clinic and the Dr. diagnosed it as a lipoma or a sebaceous cyst. A few weeks later I went to have it removed. A different Dr. looked at the lump and opted not do do the surgery because he did not feel it was a lipoma or a cyst. I was sent to do an ultrasound and a diagnostic mammogram. My breast tissue looked fine. The Dr who did my ultra sound showed me that my lymph nodes were fine. She also showed me that the lump looked to be fatty tissue. She thought it to be possibly edema, but she did not sound so sure it was. I go back in three months for a follow up visit.
As a side note, about this time I was ten days in to going from levothyroxine to nature- throid. The bump was sore at that time. I switched back to levothyroxine about 16 days ago and the bump only hurts on occasion now and not nearly as much as before.
Has anyone heard of anything like this? I am just curious. Nobody seems to know what it is and what to do about it.
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If a patient has long term generalized edema (pitting in the legs), what are the other possible diagnostic alternatives, after heart, kidney, liver and protein abnormalities have been ruled out? I've been struggling with this edema nonsense for several years, unremitting, and yet my docs are stumped when it come to diagnosis. I also have some GI motility and hormone stuff happening but they claim there's no connection between the two, although I do tend to get rid of excess fluid (through urination), on the rare occasions when my GI system seems to be functioning correctly
I'm 45 yr old male, no diabetes, thyroid usually normal range but flagged as mildly hyper at on few occasions, and low BP. I was very thin prior to the fluid retention, which averages between 20-30 pounds, by my estimation. I was also otherwise very healthy and active prior to these symptoms, but since becoming ill, I am often very fatigued and sleepy most days.
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I have had rt thigh, calf and hip edema since 1/14 (8 months). It came on out of nowhere. No injury. Neg for DVT, neg MRI for mass, neg mass on abdominal CT scan. Multiple hypodense, Ill defined nodules were identified on spleen and a few on liver. CT scan of chest identified multiple hilar lymphadenopathy. This prompted bx. Dx: Sarcoidosis. Had 2 unsuccessful rounds of prednisone. Now getting Remicade tx. I feel better overall, but the edema. Has not changed. My sarcoid dr (pulmonologist ) thinks this may be totally unrelated to the sarcoid.
I'm desperate for an answer. Vascular consult was neg. any clues?
I was originally told this could be a spinal compression issue. I do have a hx of lower back pain/spasms.
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I rarely drink anything, maybe 1-2 cups of water a day, and I feel fine. But whenever it rains or I take a shower my fingers prune excessively. People always say "Oh just drink more water!" But I cant, If I am not thirsty (which is all the time) I physically cannot drink without feeling sick!
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I have hot spells and start sweating then I get back to normal for a while
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I am 20 years old and it's been at least 4 years since I started experiencing these symptoms. I am unable to perform normally in life (I have been struggling to live normal life up until now, I can't just take it anymore.) I'm from Czech republic so pardon my poor language skills.
These are symptoms I experience:
1) sore/stiff muscles, stiff neck, my muscles slightly hurt me when I stretch
2) being weak, tired, exhausted, feeling fatigue/nausea - nowadays basically to the point where I don't get up from bed whole day if I don't have to, this can go on for months even (when I have holidays)
3) permanently yellow/orange-ish stool no matter what food I eat. Eating fried food sometimes makes me feel worse. I think I also often go to the toilet - once every 3 hours. Similar for water: I drink usually 3 litres a day through the day and my bladder hurts me very slightly all the time - the more I drink, the more it starts to hurt.
4) symptoms as if I had mild cold all the time - permanently stuffy nose, sweating (it goes like this - I start to feel cold but when I get into warm environment, I start to sweat)
5) visual snow, feeling dreamy (aka depersonalization/derealization)
6) generally unspecified weird/unpleasant/painful sensations across whole body
Symptoms never go away, no matter how much I rest (when I don't rest, it obviously worsens them a lot).
Cold weather feels very bad to me so symptoms probably get little worse when its fall/winter.
I have undergone mononucleosis over a year ago, but as I said, I had the symptoms even before. It's however possible that mononucleosis worsened it.
I have been to several medical places during this year including gastroenterology (stool/blood/gastroscopy, ultrasound of my guts), oncology (blood test, it's known that I have 2 genes that make me more prone to cancer - family origin), immunology (blood test) and infections department (blood test).
All the results were negative except the few that had border values - smooth muscle antibody and something that indicated that I must have undergone lyme disease some time ago. (and the results from oncology)
I tried taking vitamins, magnesium (with B6 and B12 vitamins or so) and supplement that supports liver function (contains choline and few other things). It does not do anything.
As of the fact that I must have undergone lyme disease some time ago, I was prescribed antibiotics for 15 days, I have been taking them for 7 days now but I don't feel any better. Well they make me feel somewhat fresher, but all my symptoms persist.
I tried I think 2 or 3 kinds of probiotics but it did not help. I was also prescribed pills at gastroenterology to slower indigestion process (or something) 6 months ago, but I haven't started taking them yet.
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My fast heart rate (sinus tachycardia) started when i was about 17-18. I was a healthy active kid up until i got dropped from high school and i isolated myself from everyone except family and literally sat in a room playing video games all day everyday. Didnt eat much, not alot of water... I was sabotaging myself and i didnt even know it. I honestly was depressed. Then came pots. My heart was plummeting to around 100-300 bpm just from walking or attempting to walk. I felt really desperate and i bet the cause of my symptoms were lack of certain nutrients, magnesium, potassium... Etc. I went to a cardiologist, got a full workup and my heart looked 100 percent perfectly normal. I then tried beta blockers (big mistake) Metoprolol was not bad, but it gave me sharp chest pains so i got off it. Could it be that these sharp chest pains were caused by lack of potassium or magnesium while taking beta blockers, which was my heart telling me this is a mistake? Long story short... I was enormously uninformed on the effects of not getting enough magnesium, potassium, etc for the heart. I would have never tried meds. The cardiologists i went to didn't even acknowledge that or test me for low levels. I didnt have a pcp at the time. Its almost 1 year later and im still in the same boat. But now, my heart does not beat the same. Compared to before, it feels as if my heart has a much more forceful and stronger pump. Which would indicate a enlarged heart, or possibly heart block? Growing up i had absolutely no awareness of my heartbeat... Even when i use to exercise. That feeling feels so distant now because it feels like im getting 24/7 palpitations. I could feel my heart all the time and i now have high blood pressure, and i didn't have this before. Will my heart ever be the same again? It feels as if i completely sabotaged my heart and precipitated heart problems that i didn't have.
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I thought I had been bitten by something from my upper abdomen around to the middle of my back, but now I'm not sure. I have about twelve round red "bites" that are growing and itching and very sore. They are now odd shaped but I have no blisters. I'm having a shooting pain in the back. By the way, all of this starts from the middle of my abdomen, between my breasts, around the left side to the middle of my back. The two or three in the back are the biggest and the most painful. I can't wear a bra without pain, although I do it. I've put calamine on the ones I can reach. I live alone and I'm a 58 yo woman. I did have chicken pox at the age of 6. The places are bright red and on the big one in front, a part of it is almost numb if I rub my finger across it lightly.
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So for a few days on and off my left index finger has been tingly. It's just the tip of my finger and it is on and off. I work as a server and use my hands a lot. I've been wondering if it's just a burn. It feels like there is a string around the first joint of my finger. Not to tight but just annoying. I can still move it and feel things so it's not completely numb just a little tingly. Thanks for any help you can give
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I'm a 28 year old male. Over the past couple years my health has been steadily deteriorating.
Physical Issues:-
- Weight gain. 1-2 years gained 40lbs. (Now closing in on 295lbs)
- Unable to lose weight. Cut calories, ate better food, worked out with a trainer 4-5 days a week, 2.5 hours a day for a month and lost 2lbs. Muscle gain did not account for the lack of weight loss.
- knee pain (for 4-5 years). X-rays came back negative.
- legs are constantly overheated, and warm to the touch.
- exhaustion, all the time. To the point where it affects my life.
- no interest in anything due to always being tired.
- caffeine has no effect. Never drank coffee in my life, but started drinking black coffee and had no effect.
- constantly feeling 'I can't', whenever something comes up.
Doctors suggestions:-
-Doctor treated this as depression. I went on Celexa for 5 months and all that did was make things worse. Increased weight gain, more tired, more emotional, more depressed.
- I also saw a psychologist for about 10 sessions, but this was not very effective as I didn't have any specific trauma events.
- blood work and urine came back normal. No thyroid issues, no diabetes, nothing.
I keep trying to get healthy, but I can't shake this 'cloudy' feeling and exhaustion all the time.
I don't know if anyone can think of what this could be? I know I need to get more active, but like I said above my body and mind keep telling me 'I can't'...and no amount of caffeine helps.
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Night before last I woke up 9-10 times with the sensation you get when you drive over a large bump in the road too quickly, or when you pass over the high points of a roller coaster. I'm wondering if my heart is skipping a beat, or have I stopped breathing and I'm waking up trying to catch my breath? I've had some issues with chest pain lately, and they haven't found anything yet. They still have to do the stress test and ultrasound. Has anyone else experienced the "floating" sensation I am talking about? It's strong enough that it wakes me up.
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for about a week i have had periodic "heat flashes" in the back of my right leg from the foot to the back of the knee. Not painful, but odd sensation like hot compress being applied. happens 8-10 times a day when i am sitting or standing. Had a severe leg cramp, charlie horse, about 1 1/2 weeks ago so thought symptoms might be related. went to my MD who told me no danger of blood clot (would be very severe pain, swelling, hot to touch). said probably related to leg cramp and advised me to do more walking (i sit in an office chair all day) and to do exercises consisting of pushing left down down as far as it will go for 5 seconds, then arching up for 5 seconds, for 10 times. She likely due to spasms and that hot flash is due to when blood vessels stop dilating (???). I will try this recommendation for one week and will let you know, but I am not very confident that this will work.This discussion is related to Strange feeling of heat in my leg.
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I have a finger that is black and blue and is not going up into the top of my hand . I do not know of anything I done that would cause the bruising.
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Symptoms of ruptured cyst?
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I was diagnosed as having a synovial cyst by a neuropsychiatrist. I had a procedure where he went in and drained the cyst along with that I had a steroid injection. Apparently he did not get much out of the cyst. The pathology report came back negative on what he did manage to get out.
On day two post procedure the pain starting coming back. Each day the pain level increased to where I am now a level 8 and sometime 9 and can barely stand the pain. My lower right back just above the buttock feels like there is pressure and is very achy. The deep achy pain goes into my right buttock and wraps around the lower groin area. The achy pain goes down my right leg and into my foot. It is a pulsating deep ache and I can hardly stand it. It also feels numb at times and I get pins and needle tingling. When I get up from laying down or sometimes sitting (when I can sit) I get this sharp excruciating pain in my right groin that doubles me over. I have to stay still in the doubled over position to let it subside before I can straighten up and walk. Sometimes the groin pain just hits me out of nowhere when I am standing.
On my follow up visit with my physiatrist he recommended I have a consult with a neuro spine surgeon. My appointment with the surgeon is in a couple of days. I feel very fortunate to get into see this surgeon who is very hard to get in to see. He is rated as "one of the best" in a very large healthcare system where I work.
I am taking 1500mg of gabapentin along with 6 ibuprofen a day. I am also taking hydrocodone. I fight the pain and only take on the average one pain pill a day because I don't like the groggy feeling.
My question is, has anyone else with a synovial cyst had all of these symptoms? Is the groin pain related to the compression on the nerve from the cyst. I appreciate any feedback and would love to hear from someone who has had these symptoms.
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I have had scrotal sebaceous cysts since i was about 24. I also have fordyce spots on the shaft of my penis and balls. I tend to sweat alot which i believe can be related to my condition. I would say I sweat much more than normal person. I believe my cysts formed because my fordyce's spots get irritated and I started to itch them way too much because it felt really good. While doing this I noticed that cysts started to form because of rupturing the gland. The cysts form because of blocked glands which can happen on their own but can happen more frequently when irritated by rubbing or itching.
Here is an example of what Fordyce's spots are. I bet most of you have this too.
http://en.wikipedia.org/wiki/Fordyce's_spot
I also shaved my balls and it absolutely did not help the problem because the Fordyce's spots are usually around the hair follicle. I have gotten some cysts from ingrown hairs as well.
This problem has been so embarrassing for me and it took me 6 years to actually go to the urologist to get the cysts checked. I made an appointment - The doctored confirmed that they were cysts. ----Note--- tell the doctor that they bother you and that they are uncomfortable and that they keep growing. If you tell the doctor that it is a purely cosmetic issue the insurance company will not cover the removal procedure.---- The doctor then scheduled me for surgery which I went in for today. The procedure was not that bad other than the embarrassment i felt when the nurses asked me what I was in there for. Much better than feeling the "Are those herpes" question from the chicks you are seeing. The surgery took about 45 minutes. I had 5 cysts about the size of peas removed. The procedure was pretty painless and they give you good drugs to manage the pain after. I already feel much better about my decision to get them removed. I feel in control of my life again. There is not too much information on the web about this condition and I feel its important to tell my story. I will update on how it turns out as time goes on. I read through every post on this thread and here is what I can tell you.
1. Don't Rub or Itch your sack or penis.
2. Do not shave your balls because of risk of ingrown hairs
3. Do no use products such as lotions on your balls because you may clog the pore. Clog Pores lead to cysts.
4. Go see a urologist - Do not waste time with a mediocre dermatologist. Urologist are actually real doctors that go to real med school. There are many dermatologist and few urologist. Why do you think that is. Its easier to become a dermatologist.
5. Do not try and remove them yourself. Could you imagine getting an infection down there and losing your balls or worse everything.
6. Wash yourself thoroughly down there to make sure you clear your pores.
I know how embarrassing it is to deal with this problem and I know what it is like for a woman to make you feel bad about yourself because of this issue. Don't let it rule you. .. Be proactive .. Get them removed. If this post has helped you please let me know. Or if you have any questions feel free to reply. I will answer as I am still going through the recovery process
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I have just been diagnosed with having a large lipoma at the top of my leg i had it for about 18months it has grown gradually bigger and has recently become painful especially in bed at night. My gp has referred me for a scan to assess the size and says it may need removing.
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I recently had a Lipoma in the middle of my back to the left of my spine, which was pea sized but noticeable to the touch. Over a period of about 5 years it grew to become about the size of a golf ball or slightly larger (things always feel larger inside don’t they!)
I was annoyed because a doctor at my surgery explained that it couldn’t be removed by the NHS, only private as it was classed as a 'cosmetic' operation. I sought a second opinion from my own doctor who said no, it should be removed and could be removed on the NHS; as it was causing such discomfort. I couldn’t believe the first doctor could even think that something ‘about the size of a tennis ball’ (as she put it), which was obviously causing discomfort and could be seen through clothing, could be was classed as cosmetic! (If this happens to you, demand to go on the NHS or see another doctor!)
It was uncomfortable, not really painful, but it certainly felt like someone had left a tennis ball inside my back! I could feel it as I leaned back in a chair and with deep breaths, it felt like it was pushing against my insides (not very pleasant). By now it has also started to be visible when wearing a T-Shirt (as a bump), so I decided it was time to get it taken out.
Within 2 weeks of visiting my doctor I was in surgery. The operation was no problem, even though the anesthetic did hurt!!! (but I’m a man so I’ll soldier on!) After the op I was in Tesco’s shopping … but about 8 hours later, when the anesthetic had worn off, it bloody hurt! It was hard sleeping – I had to sleep on my front for weeks!
It still feels like something remains – its like a 6th sense and I can still feel something in there, but that may either be my imagination or, as I was told, part of the Lipoma that couldn’t be removed.
At the end of the day though, there’s no need to worry about the op (and I’m the biggest coward going when it comes to hospitals!) – it was simple and not too painful … and the hospital staff were very friendly.
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My name is Kevin I have movable lump under/around my left collarbone. It seems to have become slightly larger over past three years, feels smooth and round but is firm (cant be squished too easily). It sits almost behind collarbone but just on the underside of it. It can be moved on top of collarbone and also from side to side a bit. Not sure size (possibly 2 cm). I am concerned that it is lymph node and possibly lymphoma or liposarcoma. I have no other symptoms. Male age 38 non smoker.
Anyone with a similar experience would be a huge help to share their story. Thanks in advance
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I have 2 sebaceous cysts on my bikini line area near my rear end. They have both gotten infected and I put ice on them to bring down the inflammation. When the infection was gone, I put hot compresses on them to help get them to form a head and when they started to drain, I helped by squeezing them. I have been using antibacterial soap in that area and they haven't come back so far.
When I was first diagnosed that these were sebaceous cysts, my OB GYN had said that it was best to not have surgery because of their location. She had prescribed antibiotics - which didn't help.
I didn't see a lot of comments about cysts by females in the bikini line region, so I wanted to share my experience in case someone else has them in that area of their body. I wish there was an easier and less painful way to get these suckers off of me, but I have yet to find a way.
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I am going for surgery on a large cyst. I am expecting a baby so I am anxious about having to have surgery during this time. Has anyone been through similar and were ok and the baby was ok?
Also what were your experiences of the surgery pain relief and stitches etc?? Did it take you long to recover. Also if anyone has had this surgery pregnant or not I would love to hear from you but if you were what stage of pregnancy did you have surgery?
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