Ulcerative Colitis :: Joints Ache, Ulcers In My Mouth, Acne Around My Jaw Line
Sep 25, 2013
After being very ill for over a year I was finally diagnosed with UC I've not managed to get into remission yet I'm on two foam enemas a day and eight tablets plus three iron tablets. I feel so miserable I don't feel like myself anymore I'm constantly tired and weak, joints ache, ulcers in my mouth, acne around my jaw line which has slightly improved since being in the medication. I feel very alone my family and friends have no idea how bad UC is and to be honest neither did I before I was diagnosed I never thought id ever feel this ill I've always been such a positive motivated person, up for going out, walking having fun now I don have the energy at all my sex drive has disappeared and some days I just don't want to get out of bed the only reason I do is to get my son to school! I just want to feel normal again ! Has anyone any advice or suggestions that could help, to be honest I've not been oven any advice on diet although I am a vegetarian and have been since I was 8 I'm now 34!
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I get mouth sores quite frequently, and observed that whenever I get them it ends with some specific stomach conditions, ultimately when that condition clears by passing stool with large amount of mucus, sores start shrinking, and keep on drinking water and urinating, sores literally vanish in ours.
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About 7 weeks ago I had been to a roadside food stall. The guy preparing the food wasn't wearing any gloves while preparing the food. Within a minute of preparing the food, I consumed it. I didn't notice any cuts, or bruises on the guy's palms but I couldn't get a close look. Also, I had a very very small ulcer in my mouth (Otherwise my mouth is in good shape) .
I'd like to know if this was a low risk situation and I need to get tested for this?
What's worrying is that I had a very small ulcer then and the food wasn't heated to kill the possible HIV if at all present.
Also, have you ever heard of, even outside your organisation, of any HIV infection through food or through any other non-sexual way?
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I've got a question regarding really painful mouth ulcers, I feel like my mouth is full of them right now and just general mouth pain sometimes I can barely open my mouth for the pain in the back of my mouth and jaw, my tongue has a yellow coating a lot of the time Does anyone get this?
I'm finding it hard to deal with it the pain is incredible , then it disappears But a few weeks later will be back I do gargle with salt , use dissolving tablets the gp have corsodyl mouth wash etc I've been losing my voice a lot lately.
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about a month ago I messed around with a guy who was HIV positive and newly diagnosed without medication since then I been freaking out. I never had unprotected anal sex and I never will. What I did with this guy was deep kissed he had chapped lips I gave him a blow job no ejaculation on my mouth but I'm sure there was precum he rimmed for like 7 minutes and also grind me hard felt hard pressure & was with brief underwear I want to know my risk my mouth became sore 4 weeks after my exposure.
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has anyone had side affects to do with bone marrow, ie sore throat or mouth ulcers after taking carbimazole, if so how long was you taking them before you noticed these side effects?
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has any one had a really unbearable sore throat and mouth ulcers i have suffered with htis for 15 months and finding it unbearable, as i cant enjoy anything, and am fed up of docters and a and e.It feels like the ulcers are in my esophacus and i have a horrible wheeze when i lie down.I have had 2 cameras through the nose and had a barium swallow today.My stomach is very bloated all the time and i feel shattered all the time because the pain wakes me up the camera didnt show any cancer thankfully awaiting the results of barium swallow. I take omeprazole and gaviscon.
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I have UC and have had this for the last three years. At the moment it is quite settled however my anxiety and my social fear is taking over my life. I have a fear of not making it to the loo on time when I am out and am constantly thinking of where the nearest toilet is, and although I don’t require it I work myself up so much that I do. This mostly happens when I am stuck in traffic or if the train just randomly stops for a while- as I then get scared that I need the toilet. This brings me very down as my life has changed as I am always fearful and feel low and depressed at time.
Any help or advice will truly be appreciated please as I am longing to have a normal life with my family and friends without having a fear of needing the toilet.
Many thanks in advance.
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I am a Diabetic and have been for over 10 years. Since then I have also been diagnosed with Ulcerative colitis, cervical Osteoarthritis, and recently Diverticulosis. I had a fusion and discectomy on C5/C6 August 2014. Since the operation I have had such a bad flare up and I have trouble controlling it. I am now on steroids and hopefully this will take some control. And now I have been told I have high Potassium levels, not sure why this is, could this be because of infection?
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21 year old female diagnosed with left sided UC after 2 colonoscopies over a 6 month period.
I went from 3 to 4 capsules of Apriso daily, which isn't working, to now having just done my 4th Remicade treatment. I still have diarrhea all the time, and occasionally with blood in the stool. I spoke to the Gastro who has said our next steps might be to increase the Apriso (I have one friend who takes 8 capsules daily!), or to try stopping the Apriso all together and seeing how I do. I have tried to get my stress under control-I am a full time student that travels between two campuses and work about 30 hours a week, and even dumped a boyfriend because he added too much stress to my life, lol. I have found stress makes me flare up quite bad.
Is anyone else on Apriso? How much were you prescribed?
Thanks for anyone's experience and wisdom you can share. My Mom and I are about at our wits end trying to find a balance for my life that lets me heal and still lead a somewhat normal life.
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My son was diagnosed with OLP when he was 8..... But his mouth ulcers started when he was 3! He's 10 now. He has good weeks and he has Horrible weeks. No one has been able to help us relieve his pain. We do have some meds prescribed but none are miracle drugs (I know that doesn't exist. . I just wish it did). The medicine prescribed to him is Methotrexate 2.5 mg tablet - 6 at a time once a week. Also he's to take folic acid with this med. He's not started this yet because he must have blood work done routinely since there is a chance this med will effect his liver .... And he's terrified of needles. He uses Chloraseptic mouth spray very often for the pain. He misses school very often. He sometimes has "mystery fevers" and feels just awful inside. He gets bad headaches. I read on one thread that someone mentioned an OTC med for thrush and an enzyme for candida. I think I might try that for him. Does anyone have any other suggestions for me? My sweet boy is in pain and has been for so long and I'm worried that his childhood is being negatively impacted by all these mouth ulcers.
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I was just wondering if anyone has found any particular types of exercise that help flare ups? Or help to ease the pain... I read swimming is good but is there anything I could do at home?
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Evening all I was told I had colitis back in April
Was given mes 1g 4 to be taken daily.
They said I had not mild colitis but couldn't confirm
If it was colitis or crohn's. Anyway I do get blood mucus tummy pain when I go toilet. But no pain
Which I am thankful of. I am have a flare now which I meds are not helping they can't seem to kick it. So I am awaiting steroids.
The thing is my tummy makes some loud rimming noises. Is this normal with colitis. Little bit peed off
That they can't say it's colitis or crohn's.
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I have been taking prednisolone since August following a severe UC flare up (my first!!) which landed me in hospital for a week. I was on a slowish taper (starting on 40 mg per day and reducing by 5mg every fortnight). I am due to take my last 5mg tablet tomorrow (I am also on 8×pentasa a day at the moment) and am worried about withdrawal/side effects. Anyone experienced any from gradually stopping the steroids?
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I have recently started working in a salon and we sell the Aloe Vera range including a gel which is supposedly good for colitis? Has anyone tried it and seen improvement? I am on mesalamine oral tablets and mesalazine enemas - only been diagnosed a few weeks.
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I have left sided colitis and have been on azathioprine 75mg x 2 daily and two 5mg prednisolone tablets. Have been on the full dosage of azathioprine for four weeks and now suffer from constant constipation to the point where I have to take laxatives and eat prunes. Has anybody else had this problem? Have purchased a tub of benefiber but unsure as to whether I should use it.
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I've been diagnosed with ulcerative colitis yesterday and was given 30 x 500 mg suppositories but the consultant said I would have my next appointment in 3 months time.I have to use one per night.Do I use them just for 30 days or should I ask my doctor for some more after 30 days ? It's all very new to me.
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I was first diagnosed with UC in my early 20's, no real problems until I gave up smoking when I found out I was pregnant at 33 years. Major problems throughout pregnancy, but symptoms stopped almost immediately when I started smoking again after the birth. 7 years later I decided I wanted to give up smoking and did so successfully - until the UC returned with a vengeance - my consultant was at his wits end what to do until I came right out and asked him - would my symptoms stop if I start smoking again. He knew I had done some research into the link between smoking and UC and indeed confirmed that although he could not advise me to start smoking again, there was documented evidence to support that smoking in patients with UC can be beneficial.
I AM IN NO WAY ADVOCATING THAT ANYONE START SMOKING
I want to know if anyone has any experience of this as I feel someone should be doing more research into what it is exactly in cigarettes that is helping with UC, as I have previously tried patches, herbal cigs, etc etc and nothing worked. I hate being a smoker but I would rather suffer the consequences of smoking at a later date than suffer the horror that I endured when I was not in remission.
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Anyone on here been diagnosed with ibs as well as ulcerative colitis? I have been getting daily abdo pains and doc thinks I have Ibs alongside
uc which hopefully is in remission! Sometimes food relieves pain and sometimes a bm stops the pain but I cannot pin down any reason for the pains. I have been prescribed Mebeverine 135 but so far hasn't stopped pains. Would be pleased to hear from anyone else with IBS and UC and what their symptoms/ treatment are?
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I am 25 yrs old and I was diagnosed with UC when I was 16. I am currently on 2000 mg Pentasa twice daily and 75 mg Imuran ( azathioprine) once daily. I haven't had a flare up in over a year. So all is good only now my partner and I would like to try for a baby.
I have discussed this with my consultant and she advised not to come off any medication as a flare up would be worse for the baby than the meds.
The only thing is, I have been looking into the effects of Imuran and it gives awful side effects including miscarriage and fetal deformities.
I am just looking to see if anyone has any info on what I should do. And if any women out there have taken this medication through pregnancy.
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Just wondering how long it took people to get any kind of improvement in their colitis symptoms with renicade. I had my first loading dose today and the dr said it would take some time to see any kind of result.
Also did you experience any itching or headaches after? About two hours after i started expiencing itchy eyes and started to get a headache, now 8 hrs after the infusion finished my hands, arms and face are itchy. My eyes are still itchy and my headache is still there.
I had an allergic reaction to 6mp but it was far more intense itching than this.
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