Ulcerative Colitis :: Sickness And Nausea
Mar 17, 2015
Another thing to ask as I am trying to find out who has what with UC and who doesn't as it helps to talk to others.
Anyone had any problems with horrible feeling sick before eating or after eating? Or and this is the even sillier part feeling hungry and sick at the same time?
It is a vicious circle eat, feel sick, can't eat, still feel sick. It lasts around 2 hours or sometimes half the day and it is one of the many symptoms this annoying thing does.
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I have UC and have had this for the last three years. At the moment it is quite settled however my anxiety and my social fear is taking over my life. I have a fear of not making it to the loo on time when I am out and am constantly thinking of where the nearest toilet is, and although I don’t require it I work myself up so much that I do. This mostly happens when I am stuck in traffic or if the train just randomly stops for a while- as I then get scared that I need the toilet. This brings me very down as my life has changed as I am always fearful and feel low and depressed at time.
Any help or advice will truly be appreciated please as I am longing to have a normal life with my family and friends without having a fear of needing the toilet.
Many thanks in advance.
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I am a Diabetic and have been for over 10 years. Since then I have also been diagnosed with Ulcerative colitis, cervical Osteoarthritis, and recently Diverticulosis. I had a fusion and discectomy on C5/C6 August 2014. Since the operation I have had such a bad flare up and I have trouble controlling it. I am now on steroids and hopefully this will take some control. And now I have been told I have high Potassium levels, not sure why this is, could this be because of infection?
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21 year old female diagnosed with left sided UC after 2 colonoscopies over a 6 month period.
I went from 3 to 4 capsules of Apriso daily, which isn't working, to now having just done my 4th Remicade treatment. I still have diarrhea all the time, and occasionally with blood in the stool. I spoke to the Gastro who has said our next steps might be to increase the Apriso (I have one friend who takes 8 capsules daily!), or to try stopping the Apriso all together and seeing how I do. I have tried to get my stress under control-I am a full time student that travels between two campuses and work about 30 hours a week, and even dumped a boyfriend because he added too much stress to my life, lol. I have found stress makes me flare up quite bad.
Is anyone else on Apriso? How much were you prescribed?
Thanks for anyone's experience and wisdom you can share. My Mom and I are about at our wits end trying to find a balance for my life that lets me heal and still lead a somewhat normal life.
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I was just wondering if anyone has found any particular types of exercise that help flare ups? Or help to ease the pain... I read swimming is good but is there anything I could do at home?
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Evening all I was told I had colitis back in April
Was given mes 1g 4 to be taken daily.
They said I had not mild colitis but couldn't confirm
If it was colitis or crohn's. Anyway I do get blood mucus tummy pain when I go toilet. But no pain
Which I am thankful of. I am have a flare now which I meds are not helping they can't seem to kick it. So I am awaiting steroids.
The thing is my tummy makes some loud rimming noises. Is this normal with colitis. Little bit peed off
That they can't say it's colitis or crohn's.
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I have been taking prednisolone since August following a severe UC flare up (my first!!) which landed me in hospital for a week. I was on a slowish taper (starting on 40 mg per day and reducing by 5mg every fortnight). I am due to take my last 5mg tablet tomorrow (I am also on 8×pentasa a day at the moment) and am worried about withdrawal/side effects. Anyone experienced any from gradually stopping the steroids?
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I have recently started working in a salon and we sell the Aloe Vera range including a gel which is supposedly good for colitis? Has anyone tried it and seen improvement? I am on mesalamine oral tablets and mesalazine enemas - only been diagnosed a few weeks.
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I have left sided colitis and have been on azathioprine 75mg x 2 daily and two 5mg prednisolone tablets. Have been on the full dosage of azathioprine for four weeks and now suffer from constant constipation to the point where I have to take laxatives and eat prunes. Has anybody else had this problem? Have purchased a tub of benefiber but unsure as to whether I should use it.
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I've been diagnosed with ulcerative colitis yesterday and was given 30 x 500 mg suppositories but the consultant said I would have my next appointment in 3 months time.I have to use one per night.Do I use them just for 30 days or should I ask my doctor for some more after 30 days ? It's all very new to me.
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I was first diagnosed with UC in my early 20's, no real problems until I gave up smoking when I found out I was pregnant at 33 years. Major problems throughout pregnancy, but symptoms stopped almost immediately when I started smoking again after the birth. 7 years later I decided I wanted to give up smoking and did so successfully - until the UC returned with a vengeance - my consultant was at his wits end what to do until I came right out and asked him - would my symptoms stop if I start smoking again. He knew I had done some research into the link between smoking and UC and indeed confirmed that although he could not advise me to start smoking again, there was documented evidence to support that smoking in patients with UC can be beneficial.
I AM IN NO WAY ADVOCATING THAT ANYONE START SMOKING
I want to know if anyone has any experience of this as I feel someone should be doing more research into what it is exactly in cigarettes that is helping with UC, as I have previously tried patches, herbal cigs, etc etc and nothing worked. I hate being a smoker but I would rather suffer the consequences of smoking at a later date than suffer the horror that I endured when I was not in remission.
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Anyone on here been diagnosed with ibs as well as ulcerative colitis? I have been getting daily abdo pains and doc thinks I have Ibs alongside
uc which hopefully is in remission! Sometimes food relieves pain and sometimes a bm stops the pain but I cannot pin down any reason for the pains. I have been prescribed Mebeverine 135 but so far hasn't stopped pains. Would be pleased to hear from anyone else with IBS and UC and what their symptoms/ treatment are?
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I am 25 yrs old and I was diagnosed with UC when I was 16. I am currently on 2000 mg Pentasa twice daily and 75 mg Imuran ( azathioprine) once daily. I haven't had a flare up in over a year. So all is good only now my partner and I would like to try for a baby.
I have discussed this with my consultant and she advised not to come off any medication as a flare up would be worse for the baby than the meds.
The only thing is, I have been looking into the effects of Imuran and it gives awful side effects including miscarriage and fetal deformities.
I am just looking to see if anyone has any info on what I should do. And if any women out there have taken this medication through pregnancy.
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Just wondering how long it took people to get any kind of improvement in their colitis symptoms with renicade. I had my first loading dose today and the dr said it would take some time to see any kind of result.
Also did you experience any itching or headaches after? About two hours after i started expiencing itchy eyes and started to get a headache, now 8 hrs after the infusion finished my hands, arms and face are itchy. My eyes are still itchy and my headache is still there.
I had an allergic reaction to 6mp but it was far more intense itching than this.
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I have recently been diagnosed with Ulcerative Colitis after a bad flare up that put me into hospital for a a few weeks and then off work for a couple of months. Much better now, but I am knocked out on cyclosporine and will be taking azathioprine for the next few years, which in itself can be unpleasant and has associated risks/lifestyle changes such as avoiding sunshine because of the increased risk of skin cancer.
Does anyone know about this new drug coming forward called Vedolizumab? Apparently it is much easier going on the system and doesn't act a general immunosuppressant but rather targets the specific response that causes Ulcerative Colitis and Crohn's. I can see it'll take time to get accepted into the UK because of the NICE (ironic name) bureaucracy, but what are the stories coming out of the US about this drug?
I am on a LOT of medication and whilst most will taper off in the next couple of months, I could do with a one hit drug for UC and I have been tole Vedolizumab might just be ut.
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I have been on prednisone for 62 days I am finally off of it today and scared as hell as to what to expect now... I have been reading as much as I can but am still unsure of a lot of things . like will I loose a bunch of weight now ?(the weight that i gained on that dreadful medication) or will it be better once i know my triggers? I have figured out some things that have bothered me and i have been staying away from those things I have no family that i know that is dealing with this feeling really alone.
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The last two days have been painful. Now at 11 45 pm they are easing. The pain comes in waves. I find laying of my left side helps. I then catnap. Despite the pains I managed to fix my man cave door and unblock a drain. It took 45mins. It made me feel better just because I have achieved something which needed doing.
My wife is my carer, I am disabled also with back and knees, I try to do things myself. She's a diamond and my wife not a slave.
I no longer drive a car. Colitis is very life changing. I haven't been out for 6 months except for hospital both times in an ambulance.
A vegan told me that colitis is because I eat the flesh of dead animals. So I offered him a bacon butty with HP sauce. It's like religion--- guilt
Tomorrow all being well I am going to tidy my man cave up.
I am lucky in that I have a large supportive family and I am moneywise safe , just. Especially not driving. I get stuff delivered. Tesco and Asda are good.
It must be far worse for a younger person who loses their job and house because they can't work.
So when I get into the woe is me bit. I count my lucky stars, things could be worse.
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All just wondering does anyone else have mild flare ups that are like two or three days you are ok then a few days where you are up and down. And also got to be careful when passing wind. And your tummy is rumbling like hell.
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I have ulcerative colitis(uc), and watch my diet, but just found I have very high cholesterol. Can that somehow be connected to uc?
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Background:
i have always had heavy painful periods. Initially they would come every 2 weeks and last 8-10 days. I was put on the pill and stayed on it for about 10 years (2011) when we decided to start our family. It largely controlled my symptoms with the exception of a handful of times when the pain was uncontrollable.
in 2010, I was diagnosed with ulcerative colitis (UC) after 12 months of on again off again diarrhea. Nothing could be seen during the colonoscopy but is showed up on the biopsies. Between 2010 and Jan 2012 when i fell pregnant i still had "flares" every 3-4 months. 1 flare while pregnant. C sect in sept 2012. My UC seemed slightly worse after the c section. Periods were irregular again and was recommenced on the pill which mostly controlled it however had some spotting and pain mid cycle. August 2013 i became pregnant again, apart from one big flare while pregnant my UC was great. i had another c section in May 2014.
Since then i have had nothing but trouble. Diarrhea every day since August last year, a good day is 6x a bad day is 20+x and disabling pain, bloating, fatigue.
i have had basically non stop bleeding, i will have red blood but only light every 2-3 months and in between i will have old blood for 2 days, stop for 1 day, go for 3 days, stop 2 days etc.
in july i was put on a special liquid diet to try get some vitamins, i was losing 1kg a day while on this diet. My bleeding and diarrhea stopped (it was partly digested so there wasn't really anything to leave my body, it was all absorbed).
as soon as i was put on normal food again my diarrhea and pain returned and my period was so heavy, worse than after both my kids put together.
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Just wondering if anyone else feels the same with this tiredness. Sometimes I will be fine then all of a sudden my eyes will want to close for around 5 mins then I will be fine. I'm always yawning and fall asleep a lot more if I simply lie down or watch TV. I haven't changed the times in which I go to bed recently so I'm not losing sleep, I've tried going to bed earlier but it makes no difference. It's making getting up for work really difficult.
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