20 Years ago I had My thyroid partially removed now they tell me one side was never removed and the other side that was, grew back they want to do a 2nd removal what are the risks
View 1 RepliesI suppose a little history would be fitting first...I've been hypothyroid since birth (born without thyroid function), and was placed on a regimen of Synthroid for years. From there, my thyroid grew nodules and became a goiter, and at the age of 23, had to be removed completely. Since then, I struggled on the Synthroid, and finally found a doctor who agreed to try me on Armour. At first, I seemed to do well on it. I've been on Armour for about 2 1/2 years now.
Over the past year, I've developed migraine- like headaches that completely incapacitate me. For the most part, these would come on a frequent basis but I could go about my daily routine without disruption...until about four months ago. The headaches became non-stop. There is no break in the pain (the doctors don't understand this concept- they keep calling them "episodes"). The intensity changes, but the pain is ALWAYS there. I've been treated for migraines, but the medication for it doesn't work, and the pain isn't quite the same as a migraine. It's very hard to describe...almost like a twisting sensation in my skull and across my forehead.
That's not all of it. The pain gets worse with exertion. If I try to go out and run a few simple errands or do some household chores, my body heat goes through the roof- along with a lovely fever and I'm done. I can't do anything else for the rest of the day because I'm in too much pain (from the headache AND body aches from the fever).
I'd love to say I'm making this all up. But would I really put myself through all the blood work, a lumbar puncture that went awry (yes, it was downright awful), and bounce from doctor to doctor? I finally found one who had a brain in his head that said "it could very well be your thyroid!"
The biggest problem I've had is that every doctor I've seen has said "your thyroid levels look fine!" But they've only tested my T4 and TSH...shouldn't they be testing my T3 as well? I know I'm no doctor but...
I know I should be under the care of an endocrinologist, but they are really hard to find around my part of town (at least one that's any good). I just want some other points of view here before I subject myself to more poking and prodding.
I was diagnosed with a goiter in 2010 and have suffered with severe depression, and anxiety since then but now it seems to have gone away. I went to my endo and she said she doesn't feel an enlarged thyroid and I don't feel it when I swallow anymore and I feel better with the depression and anxiety. What could have caused it and what could have made it go away??? No one made any connection to the goiter and the depression/anxiety. I was not diagnosed or medicated with anything. I made the connection which scares me because I knew something was wrong, but no one helped me...so I'm glad its gone at least for now.. I started probiotics about a month ago, could that be it?
View 2 RepliesI have had an enlarged Thyroid since 2004 I have had regular blood monitoring and visits with my local GP who said it was quite normal and dismissed it quite a lot. I became pregnant in 2011 and a good midwife referred me as she thought it was quite large to an Endocrine. They done my bloods etc and picked up an underactive thyroid with antibodies. I began treatment on levothyroxine 50mgs and have been on it ever since. I had my last ultrasound review three weeks ago and got a letter through from my referring doctor today stating my thyroid was quite large and radiographer had suggested a chest x ray to check for substernal possibility? I am a little nervous.....I am waiting on additional appointment with endocrine to discuss treatment options. As I have been have a swelling and shrinking sensation of gland through day I am very active run two miles per day, and am gluten free etc. My last bloods where T4 15.1, TSH 3.59, Antibody level 34.
View 3 RepliesFor the last year I have not been feeling myself tired fatigue muscle aches hair falling out small weight gain. I have just contributed to me being around the age of 50 and having a hysterectomy in the last couple years. My job is a little bit stressful as well so thought the symptoms were because of the stress. Last week I went for my annual checkup and the doctor noticed that my thyroid was enlarged especially on my left side. I went for blood work and I went for a ultrasound my blood work came back with in normal limits and the ultrasound came back saying I have several nodules on the left lobe. Because my bloodwork is normal he wants to send me for a thyroid scan at the hospital which I go in for next week. My question is has anybody had any side effects in using soy products and your thyroid? I have read that soy products specially in protein powders will affect your thyroid. In the last four days I have not used my regular protein powder in my smoothie in the morning and I have noticed a considerable shrinkage in my thyroid. Has anybody else had this experience?
View 2 RepliesI have a very large 5.3 cm multinodular goiter that is benign. After my ultrasound my Dr. recommended a Thyroidectomy. He received my Radioactive uptake scan results and now he can recommend the RAI. I have an appointment next week to discuss my options further with him. Anyone that has been hyper with a large goiter and had the RAi, would you recommend it?
View 10 RepliesSo for the last few weeks or longer I was sporadically feeling a lumpiness in my throat, especially while sleeping. I thought it was how I lie in bed while reading. Then this lumpiness, this weird feeling that isn't exactly painful just awkward and uncomfortable is a daily annoyance. So bad in fact I felt nausea from the feeling in my neck. Sort of like something is rolling up and out; of course nothing ever did. So now this feeling his constant I feel like I'm either vomiting or choking. Lovely! So I also have asthma so my breathing is not 100% in the first place, add tightness to my throat and what? Full blown panic attack sure, lets not sleep tonight. So I finally drag my feet to a Dr. guess what PA says I have an enlarged thyroid, i.e. Goiter. So now I am to have a thyroid ultrasound blood work. Now this goiter is extremely uncomfortable, borderline painful; especially when I swallow, cough or yawn (oh yawning *****). Is this simply because I am now aware of this enlargement in my body. The pain and discomfort seemed to become more acute during a 24 hour fever spike, which is what motivated me see a Dr in the first place.
View 19 RepliesJust recently I was diagnosed with a small goiter & nodule on the left side. The doctor ordered all of the tests (TSH, T4 and TPO antibody level) and everything came back normal. The biopsy on the nodule is normal as well. Benign and no signs of cancer. My concern now is regarding my goiter & nodule. If my test results are all normal, what caused it to enlarge? What do I do to shrink it? My doctor will not give me anything because he said there's nothing wrong with my thyroid. The functions are normal. It just enlarges for a reason sometimes.
View 2 RepliesHelp! In 2001 I had a thyroidectomy. Immediately, my blood pressure, (which had always been remarkably low), shot through the ceiling and I've been on BP meds ever since. But I digress...
I was always super active. I skied, ran, kite boarded, hiked, biked... all a healthy and important part of my life. I even had booked a trip to climb Kilimanjaro for my 60th birthday in 2010 when I came down with Swine Flu, followed by a couple bouts of pneumonia. When I recovered, I tried to go back to skiing about three months later and found that I had lost muscle strength! I couldn't make turns (and that's a bad thing...) I got weaker and weaker. My doc had no clue. We checked heart, lungs. I was at low end of thyroid and adrenal levels, but "not a problem", I'm told. I'm not a drama person at all, but I really began to believe I was dying because I was getting weaker and felt like my energy was draining away.
At wit's end, I went (for the first time) to a brilliant naturopath who drastically improved my already good died and put my on Chinese meds. It took about three months, but I eventually stopped getting weaker and became stable. That was HUGE! Since, however, I've remained pretty stable and we keep trying other things but nothing has put me even close to where I was.
The best guess is that its related to thyroid or adrenal function. I dunno...
I can now make between 6-10 stairs before I have to stop for a few seconds to regroup. I can swim very short distances but never alone because when I run out of energy, its GONE and I have absolutely nothing left. This has drastically impacted my life and I want to be strong again!
My penis never grew when i went through puberty. I am 33 yrs old and my normal size is about 2-3 inches in length and about 1 inch in width
View 1 RepliesI had parathyroid surgery 3 weeks ago, apparently i had a rare type of disease as my vit c and calcium were normal but pth off the scale, they removed 2 glands one had a tumour attached to it, so had lymph nodes removed to be sure it was all out, i now have severe hip pain in both hips and thigh bones and most days struggle to walk yet calcium is normal, awaiting lab results on the tumour, my concern is the severe pain and tiredness, any ideas ?
View 2 RepliesI don't know if anyone else has experienced any problems after parathyroid surgery. My surgery was 3 weeks ago. I am experiencing on and off again periods of severe weakness and nausea. My labs have all come back normal. I almost feel bedridden at times. Very unpleasant.
View 10 RepliesIf anyone has dealt with this or know anyone who has I would love if you would share. I'm just curious about how the operation goes (its preparations, and after). I have 2 thyroid nodules and they are pretty big and is causing phlegm, voice changes and other stuff.
View 42 RepliesI recently had a Lipoma in the middle of my back to the left of my spine, which was pea sized but noticeable to the touch. Over a period of about 5 years it grew to become about the size of a golf ball or slightly larger (things always feel larger inside don’t they!)
I was annoyed because a doctor at my surgery explained that it couldn’t be removed by the NHS, only private as it was classed as a 'cosmetic' operation. I sought a second opinion from my own doctor who said no, it should be removed and could be removed on the NHS; as it was causing such discomfort. I couldn’t believe the first doctor could even think that something ‘about the size of a tennis ball’ (as she put it), which was obviously causing discomfort and could be seen through clothing, could be was classed as cosmetic! (If this happens to you, demand to go on the NHS or see another doctor!)
It was uncomfortable, not really painful, but it certainly felt like someone had left a tennis ball inside my back! I could feel it as I leaned back in a chair and with deep breaths, it felt like it was pushing against my insides (not very pleasant). By now it has also started to be visible when wearing a T-Shirt (as a bump), so I decided it was time to get it taken out.
Within 2 weeks of visiting my doctor I was in surgery. The operation was no problem, even though the anesthetic did hurt!!! (but I’m a man so I’ll soldier on!) After the op I was in Tesco’s shopping … but about 8 hours later, when the anesthetic had worn off, it bloody hurt! It was hard sleeping – I had to sleep on my front for weeks!
It still feels like something remains – its like a 6th sense and I can still feel something in there, but that may either be my imagination or, as I was told, part of the Lipoma that couldn’t be removed.
At the end of the day though, there’s no need to worry about the op (and I’m the biggest coward going when it comes to hospitals!) – it was simple and not too painful … and the hospital staff were very friendly.
i have been taking for over a month 20mg of carbimazole (5mg 4 times a day) the edno said i have hyper and a quite big nodule which is toxic.
i have been suffering the last two years with weight loss and tachycardia,agony and had that worrying feeling all the time.
After taking carbimazole for one month i start to feel BETTER but yesterday i had hyper symptoms again.how is this possible the blood test have showed that I AM NO LONGER HYPER!!!!
i know that eventually i have to choose between RAI or surgery but i m scared that the symptoms will come back.Does carbimazole stopped working? is it normal to have symptoms while taking it?
the edno prescribe me also propranolol but i took it once and it scared the hell out of me!
I had an ultrasound today and it says that there is "a homogeneous appearance to the echotexture of the thyroid gland. Bilateral thyroid nodules are observed. There is evidence of a complex cystic and solid lower pole right thyroid nodule measuring 1.8 x 1.0 x 0.9 cm. Within the left thyroid lobe there is evidence of a hypoechoic midpole left thyroid nodule measuring 0.6 x 0.4 x 0.7 cm. Bilateral thyroid nodules. Dominant nodule is a complex cystic and solid lower pole right thyroid nodule measuring up to 1.8 cm. what does this mean?
View 1 RepliesI have 3 thyroid nodules and 1 cyst. I have been advised to have a thyroidectomy. I do not want to go this route yet and am searching for some natural remedies. I have heard of using iodine but to be careful do to the fact that that might enlarge the nodules. I recently found out that I am very iodine deficient from a lab result. I have heard of iodine trapping, whereby the iodine taken in when their is a severe deficiency is immediately 'trapped' and held in the gland in order to preserve some iodine for the use of the thyroid. I would like to proceed with caution and try the iodine therapy.
Does anyone on this board have any experience with successfully dissolving or at least reducing the nodules/cysts?
It wasn't long after I moved to an area within 10 miles of a nuclear power plant that I was diagnosed with an enlarged thyroid with nodules. And after a surgery I had, I became extremely depressed and I still am, this was three years ago. Also a feeling of not being myself.
View 2 RepliesI am new to this site. I have been diagnosed as Euthyroid (antithyroid antibodies with a fully functioning thyroid) and I also have Anti-nuclear antibodies - Speckled 1:640.
I don't have Lupus as have been tested for that.
I am currently undergoing IVF and have had 2 failed rounds. I have been put on Aspirin (100 mg), Prednisolone 7.5mg a day and CoEnzyme Q10, folate and Vit B12 with no success.
I am desperately looking for anyone in my situation that can offer any sort of guidance, maybe a drug regime you are on or just anything at all. I desperately want children but it isn't looking too good. I'm terribly sad about the prospect of never having children.
Ive been trying for 3 years now and was pregnant once and miscarried at about 5 weeks back in 2011 and have never been pregnant since indicating a problem but I don't have any other issues except a low egg reserve which is from these other issues
I am seven weeks post surgery for an Achilles' tendon rupture and still have intense pain from the blood pooling when I stand for even a minute to brush my teeth. After one minute I immediately have to lie down and elevate my leg otherwise it feels like it will explode. Has anyone else felt this 7 weeks post surgery?
I also can only bear minimum weight on the leg at this stage. At seven weeks does that sound normal? I had my tear at the connection to the heel and had haglund's deformity where part of my heel broke off. Anyone else have that and is minimal weight bearing at seven weeks normal for this type of tear.
I have a benign 1.4 cm cyst in the middle part of my thyroid (isthmus). It is visible in my neck. The doctor said to remove it would require to take out my thyroid and since it is benign he wants to watch to see if it gets bigger. Currently it is not causing me any problems. Has anyone had this same thing, and if so, what did you do? Also, do the cysts ever get smaller or go away on their own?
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