Thyroid :: Tired Of Being Tired


Jun 27, 2013

Here's a brief background and symptoms I've been having. I've been a migraine sufferer since my preteens. Mainly migraines with aura but also morning headaches etc. about 7 yrs ago I gained 40 lbs very quickly over a 1-2 yr period and was exhausted all the time. I went to pcp office and saw a dr other than my own. She commented on my weight gain like she was appalled and asked if I was depressed. I did not feel depressed just frustrated mostly. She did a tsh test and said it was normal. I was also having what I was told was possibly ibs (mostly d but also c) and have dealt with this for the past 7 yrs as well. Skip ahead a couple years I noticed a correlation between the ibs and eating gluten products. I visited with my dr and he had me get a celiac panel. The results came up negative. I should also mention I was eating gf before the test so wonder how that may have effected the results. Fall/winter 2011 I was extremely fatigued, sore joints, muscle aches, hard time falling and staying asleep, noticed cold bothering me more ( I live in New England) so in January I found a new dr near where I lived. He basically said that it may be seasonal affective disorder even tho I told him I really didn't feel depressed just exhausted. After basic bloodwork as well as tsh and the wrong vitamin d test he said all was normal, get some rest. All I could think was gee thanks. So I saw another dr shortly after who was great but he tested me for Lyme and lupus which were both neg and also the correct vit d test which showed I was at a 6 and severely deficient. After a few months 50000 iu and then continued 1000 iu daily with some results of less fatigue. A couple months ago I started to feel the extreme leg cramps again, joint pain especially in knees and wrist, extreme fatigue as well as new symptoms of ringing in ears, dry scaly skin that I can literally rub off. I have always lost a lot of hair with showering and brushing but it seems like more lately. I called my pcp and asked for another vit d test thinking it may be related. come to find out it was a 17 so not as low as before but still low. I've done a little research and I feel like it could be hypothyroidism but I am unsure exactly what I should request for tests from my dr. I don't want to waste money on something if it doesn't seem needed. Any advice would be greatly welcome. I am just tired of being tired and frustrated.

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I recently saw a rheumatologist here in the State (I had previously seen one in Korea). She did a bunch of blood work. My Vit D was 28 (reference range was 30-70). RF, ANA were negative. CRP not done, but has been elevated in the past (multiple draws over a two year period, but none in the last year). ESR was 58 and has been elevated for 20 years (I went through a lot of blood work in high school and nothing was ever found, but it was with ID, not Rheum).

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I try to be an informed consumer. Current rheum just wants to throw more pills at the issue without getting to the root of it. It seems like if I go in with a fibro dx, everything must be fibro. How do I approach this new appointment (in September!!) to finally figure things out? This new doctor will be in the UH system as are all my other docs. I think she'll have access to previous lab results, if not I can pull them up in my EMR.

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