Thyroid :: No Mini OP / MIRP In UK For Primary Hyperparathyroidism?
Jul 31, 2014
After a very painful kidney stone problem and thus being told I have Bilateral kidney stones; I have just been diagnosed with Primary hyperparathyroidism. The docs want to operate to remove the faulty gland(s) but I am very concerned about the procedure in the UK which does not seem to include the mini op or MIRP operation. Has anyone had this type of surgery in UK(either mini or other) and what were your experiences? I am wondering if I should travel to Florida for it?? I also have low vit D and they want me to take vit d supplements. I think this is dangerous to elevate my calcium level even more?
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I just wondered if anyone has any idea how common it is to have primary hyperparathyroidism?
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I've been diagnosed with hyperparathyroidism on Thursday 5th of November, I was wondering if anybody has had natural treatment for this please?
In the meantime I'm going ahead with being put on the waiting list for an operation, I have my ultrasound scan tomorrow, Tuesday the 24th of November .
It would be good to hear from those members who have used natural treatment for primary hyperparathyroidism and to find out how you are getting on now please ?
I have had "M.E. " for 19 years , I'm being treated naturally, this helps with my weight and also some of the other symptoms , however I'm still not well enough to work and need help at home etc
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I have recently been diagnosed as having hyperparathyroidism and I am currently on the waiting list to have two nodules removed. On reading up on the condition sickness is a symptom but for some reason my consultant wouldn't say that my continued sickness for the last 18 months is being caused by my overactive glands. I am getting desperate now so is there anyone on the Forum who is suffering / suffered the same problem and after having the op felt human again ?.
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I was diagnosed with this some years ago after suffering for years with kidney stones, they did try and remove my parathyroid glands but couldn't find them, mine aren't where they should be and further tests have come up blank as to where they might be in my body (looking for a needle in a haystack was the term used!) I take Bendroflumethiazide (sp) alternate days to alter the acid in my urine. I'm constantly tired and fed up being told i need to watch my weight and i should exercise more, i'd love to exercise more but some days it's all i can do to get my head off the pillow. I could go on and on here just wanted to know if there was any sufferers out there and wondered how they cope with this condition?
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I have Hashimoto's disease. Over the last year or so I have really started to experience some of the symptoms of hyperparathyroidism such as super bad fatigue, LOTS of pain in my bones, etc. Are the two connected?
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I noticed before I had surgery I would have red, irritated and swollen bumps that would turn into nothing short of a raised mass on my inner thighs. It really hurt! After the surgery they all left. Well it's been since October 26th 2015 that I hadn't seen them until today. I have them again which leads me to believe that the hyperparathyroidism was not completely cured. They took one adenoma but left a complex nodule. I ask the surgeon to look at all of my parathyroid hormones and he flat out told me no. I'm concerned that when I go back to the doctor that my levels will be back up. If not then there is another issue I don't know about. However, I still believe my skin irritations are from nodule he refused to look at. I'm no doctor though. But if anybody is having this issue and still feels really weak in their muscles I could use some advise as to how I can help myself feel better. I still ache.
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Hallo - my husband was taken into hospital a few days ago with a ?heart attack - but that (thank God) was not proven. They said it could be angina. But the next day after having been given Amitriptyline he showed the symptoms of a mini stroke and I couldn't understand what he was saying because of slurred speech. The GP (when he was discharged) said it was highly unlikely to be a stroke and he blamed this drug - as did all the hospital doctors.
This is very odd to me and can I ask whether it could be true? He hadn't been on the drug prior to admission, so I don't know why on earth they gave it to him in hospital.
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Almost 2 years ago, my wife started having, with what acts like, Mini Strokes. She has had over 60 of these events with varying severity. Sometimes she has quick recovery, sometimes it takes days.
Loss of movement is always on her left, her eating is affected, her left eye, left face drooping, left arm, left leg. Just like a TIA, this can affect her for a short time and mostly resolve itself within a couple hours or take days to resolve. CT Scans show nothing and stroke doctor says they are not strokes. Our neurologist says she is not an epileptic per some tests she did. Her blood tests show no STDs. She does not have Celiacs disease either.
She does have several health conditions but the doctors are stumped.
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I'm 15 years old, the first time i tried weed was when i was 13. i have started smoking weed a lot more when i was 14 , i always got nervous to speak in front of a large group like a school presentation, but that nervous became more serious turned into anxiety, i just went to doc. today, my anxiety gets so bad at school i ask to go home because of it i look for every chance i can get to "escape" the uncomfortableness. i won't even read out loud at my own desk. i don't know if weed caused this because i love weed. i'm not a person that freaks out if i don't have it but if its in my face ill hit it. i went to a physiatrist for my first time she said i need to go to the docs.(which i did). IDK for sure but i think the doc. will give me med. i am just wondering if i can still smoke weed and take the med. without having my mini "heart attack''.
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I've had migraines a good chunk of my life and I haven't had one in roughly 9 months but I have been experiencing almost like mini migraines? in that I experience pain very similar to a migraine but without the aura or having to lie down or take it seriously. I guess these could be tension headaches, but I'm not sure? I've also been experience other symptoms, including: ear pain, sensitivity to light/sound, ringing in the ears, and various pains all over my body. these symptoms can happen with a migraine but lately they've been constant and if not, happening often enough that I'm noticing. I've had a brain scan and nothing. I don't think it's ever been like this before and I'm curious as to what it could be? As in, a starting point. I do have migraine medication but all it does is put me to sleep, it doesn't help with the pain. Not sure if that matters.
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At the age of 79 I became aware that the pads on the balls of both feet felt tight and a bit puffy and hardish. Then gradually I experienced a sensation in my toes which I can describe as tingly. This area of both feet became susceptible to cold and required contact with heat pads to feel more comfortable. No pain is experienced. Walking seems to alleviate the tingling sensation. After a visit to a G.P. Raynauds Syndrome was confirmed and keeping the feet warm at all times was advised.
Although I live in a well heated bungalow I take heat-pads to bed at night.
In the morning my toes feel quite warm and look rather pinkish red. This condition doesn't affect my normal activities in any way after a year of beginning. 8)
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My daughter is taking hydrocortisone for primary Addison's due to Pheochromocytoma. Does anybody know if she should be taking something to help prevent osteoporosis??
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I took Cerazette for 9 days, felt so ill i came straight off it. Anxiety attacks, racing heart, was off work for 8 weeks it was a nightmare. its now 3 months on, my periods are getting somewhat back to normal, but i've been left with a fast heart rate. I've been rushed to A&E a few times its been so fast i thought i was having a heart attack. i'm now on beta blockers to keep it under control until it's investigated. its ok sat down, but if i try and walk or do anything it goes through the roof.
I've heard of other women that have had this but i'm desperate to find out whether it will eventually go back to normal on it's own or has it left me with long term issues.
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I've been suffering from these for some time and they've recently become worse. I also had migraine headaches in my youth and now occasionally have silent migraines - aura, but no headache. I've recently been diagnosed with fibromyalgia and I understand that this type of headache is common with fibro. I wondered if others have suffered from this and what, if any, medication has been tried.
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I kissed and had sex with a female partner with unknown std status 6 weeks ago I have not had any symptoms but I'm scared il have a recurrent outbreak. The sex was protected. What are the chances that I had an asymptomatic outbreak and it's only a matter of time for a recurrence to happen. I'm still terrified please help
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I've been suffering from this type of headache for some time and they've recently become worse. I also had migraine headaches in my youth and now occasionally have silent migraines - aura, but no headache. I've recently been diagnosed with fibromyalgia and I understand that this type of headache is common with fibro. I wondered if others have suffered from this and what, if any, medication has been tried.
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Do you think that Sjogrens caused my pbc(primary biliary cirrhosis)? or maybe its just the autoimmune system and I happen to have both?
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I would just like to ask anyone's opinion of my latest blood tests, as I have no idea if they're good or bad.
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Does anyone know anything about secondary hyperparathyroidism at all?
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I was originally diagnosed in 2010. I have recently been told I have a urinary infection, but apart from the fact that two lots of antibiotics don't seem to be working, all my symptoms relate to this, especially an irregular heartbeat and confusion.
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