Thyroid :: How To Cope With Hyperparathyroidism?
Apr 29, 2014
I was diagnosed with this some years ago after suffering for years with kidney stones, they did try and remove my parathyroid glands but couldn't find them, mine aren't where they should be and further tests have come up blank as to where they might be in my body (looking for a needle in a haystack was the term used!) I take Bendroflumethiazide (sp) alternate days to alter the acid in my urine. I'm constantly tired and fed up being told i need to watch my weight and i should exercise more, i'd love to exercise more but some days it's all i can do to get my head off the pillow. I could go on and on here just wanted to know if there was any sufferers out there and wondered how they cope with this condition?
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I have Hashimoto's disease. Over the last year or so I have really started to experience some of the symptoms of hyperparathyroidism such as super bad fatigue, LOTS of pain in my bones, etc. Are the two connected?
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I just wondered if anyone has any idea how common it is to have primary hyperparathyroidism?
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I've been diagnosed with hyperparathyroidism on Thursday 5th of November, I was wondering if anybody has had natural treatment for this please?
In the meantime I'm going ahead with being put on the waiting list for an operation, I have my ultrasound scan tomorrow, Tuesday the 24th of November .
It would be good to hear from those members who have used natural treatment for primary hyperparathyroidism and to find out how you are getting on now please ?
I have had "M.E. " for 19 years , I'm being treated naturally, this helps with my weight and also some of the other symptoms , however I'm still not well enough to work and need help at home etc
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After a very painful kidney stone problem and thus being told I have Bilateral kidney stones; I have just been diagnosed with Primary hyperparathyroidism. The docs want to operate to remove the faulty gland(s) but I am very concerned about the procedure in the UK which does not seem to include the mini op or MIRP operation. Has anyone had this type of surgery in UK(either mini or other) and what were your experiences? I am wondering if I should travel to Florida for it?? I also have low vit D and they want me to take vit d supplements. I think this is dangerous to elevate my calcium level even more?
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I noticed before I had surgery I would have red, irritated and swollen bumps that would turn into nothing short of a raised mass on my inner thighs. It really hurt! After the surgery they all left. Well it's been since October 26th 2015 that I hadn't seen them until today. I have them again which leads me to believe that the hyperparathyroidism was not completely cured. They took one adenoma but left a complex nodule. I ask the surgeon to look at all of my parathyroid hormones and he flat out told me no. I'm concerned that when I go back to the doctor that my levels will be back up. If not then there is another issue I don't know about. However, I still believe my skin irritations are from nodule he refused to look at. I'm no doctor though. But if anybody is having this issue and still feels really weak in their muscles I could use some advise as to how I can help myself feel better. I still ache.
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I have recently been diagnosed as having hyperparathyroidism and I am currently on the waiting list to have two nodules removed. On reading up on the condition sickness is a symptom but for some reason my consultant wouldn't say that my continued sickness for the last 18 months is being caused by my overactive glands. I am getting desperate now so is there anyone on the Forum who is suffering / suffered the same problem and after having the op felt human again ?.
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Well it's 3.51pm here in glasgow we are in the middle of a heat wave and i'm lying in bed typing this in the same shorts n shirt i've had on for over a week. I cnt b bothered going out don't want to see anyone not eating anymore either breakfasts lunch hardly shower. Have no enthusiasm for anything not interested in anything. My wife got so sick of me not knowing how to have fun or want anyone up to the house she left me now has a new partner only time i'm happy is seeing my kids but i'm even struggling to be fun for them now as well. I am sick of anti depressants they do not work i have tried them all and given them time to work if it wasn't for my 3 kids i wouldn't be writing this just now. I a have no qualifications haven't worked in over 7 years right now almost every night i just cry and cry. Ppl tell you you need to just get out their i look fat and ugly and cant hold a conversation i have no friends except my 3 kids who i try as hard as possible to hide this horrible depression from. They are the only 1 thing that i got right in my life. And i feel so so selfish knowing theirs homeless ppl and babies dying in foreign countries and i am whinging about this i just feel like if i died i would have about 3 or r 4 ppl at my funeral because i push everyone away. I have a poisoned brain its all negative thinking all the time i try to turn it into positives but cant. My emotions are everywhere just now 1 min i'm just numb ext min im at tears like i nearly am writing this i just want to enjoy life i am 32 years old I dnt even have any skills like how to play an instrument or anything are my kids going to think their dad's a loser? Its the only thing i'm good at is bringing up my kids and the love they give to me is the only thing that keeps me hangin in their. Im gonna stop now i'm just upsetting myself more.
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I've been on Effexor XR for about four years, and about three years ago I attempted to gradually reduce my dose until I was off it, but once I did so I had intense nausea. It got to the point where I forgot what it was like to just be. I had to choose between hungry or being nauseous, and it was a battle every day keeping food down. I tried telling myself that it was just withdrawal and it would pass, but two months went by and nothing changed, so I went back on Effexor, and I could once again eat and digest food just fine. I then decided I needed to move on with my life, I couldn't revolve it around trying to get off this medication, so I've just been taking it ever since. I've been learning more about how cannabis can help with a wide variety of symptoms, and was hoping someone had experience with treating nausea withdrawal symptoms or, though I doubt it, if you know of someone that used cannabis to help them get off of Effexor.
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Having suffered all the problems connected with statins I have requested to stop taking them as my life is so different without them for the better.
However I have a condition called Subclavian steal syndrome which is basically a blocked artery that cannot be operated on as its too dangerous. On the advice of my doctor I am trying Pravastatin. Has anyone been prescribed this drug and had any of the usual side effects with it. If it is just like all the rest of the statins I am prepared to give them up altogether whatever the risk as I cannot cope with the side effects.
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Anyone out there got some good coping techniques? Positive thoughts? Feeling alone with this....
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how do you cope? One year ago I fell downstairs (vertigo) fractured my neck and had severe pain in upper left arm, felt like a very bad bruise and a swollen but not broken wrist. Neck healed, pain in my upper arm remained and could move it but not do up bra etc without severe pain. Had an injection in my shoulder - made it worse. 11 months on I fell down a shorter flight of stairs (return of vertigo!) on to same bad shoulder/arm. Now frozen and pain from neck to finger tips all the time and even worse at night. Can't take oral pain relief tablets has anyone tried pain relief patches? The pain is so bad I can't do anything and I am getting seriously depressed and being driven to despair, its like being in constant childbirth labour! constantly having to massage my arm including from elbow to wrist and palm of hand into fingers. Given conflicting advice by every medical person seen so far. Seems it is likely multiple problems but still no MRI, xray shows no broken bones in shoulder. Read most of the discussions, not many triggered by injury unless I have missed those. Any support groups locally in Cornwall where we could at least cry openly!
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I'm 25 years old and for the past 3/4 weeks i think I've been suffering from health anxiety. First I was having night sweats and google made me think this was the start of a serious illness. Next I had chest pains which I thought were strained muscles but it lasted for a few weeks and I convinced myself this was serious. I now have a pain in my left breast and now I'm convinced I have breast cancer and I'm losing the plot. I have two small children (aged 2 and 10 weeks) this is running my life and my partner thinks I'm mad. Every little symptom I get I google it and it makes me worry so much more. I've had my left breast checked and it's okay, also had an ECG and that was fine. I go from being fine one minute to panic and google searching the next.
I don't know what to do. I'm so upset and keep thinking about my children now growing up with a mum.
The pain I have is like a lingering pain from the back of my breast, sometimes i feels hot and the pain travels to my back. I'm also now worried about my other breast because the nipple has inverted tonight so I'm thinking this is serious.
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I would just like to ask anyone's opinion of my latest blood tests, as I have no idea if they're good or bad.
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Does anyone know anything about secondary hyperparathyroidism at all?
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I was originally diagnosed in 2010. I have recently been told I have a urinary infection, but apart from the fact that two lots of antibiotics don't seem to be working, all my symptoms relate to this, especially an irregular heartbeat and confusion.
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My husband as i look back on some of his Calcium levels the last 18-24 mo they are slightly above normal. He also had a kidney stone a few weeks ago. His Vitamin D level is low, and his PTH is low normal. He has been feeling really exhausted and wants to just sleep. His 24hr urine calcium is elevated.
Also his BUN and Creatinine levels have gone up rather rapidly and a little too much for comfort as far as i am concerned.
His creatinine in his blood has doubled from 1.1mg/dl to 2.4mg/dl
His BUN has gone from 25mg/dl in june to 41mg/dl when the test was taken the day he had the 2.4 creatinine .
He passed the stone and it showed on CT not to have been really large, but after about 2 weeks, his urine dipstick test for blood still says he has a large amount. I found site where there are doctors in Tampa, Fla that only do hyperparathyroid cases and surgeries.
The problem is that our family doctor knows little about this disease and the Tampa Docs say a lot of Endocrinologist don't really know a lot about it. So now an endocrinologist that has not seen my husband yet is telling us to see a nephrologist.
I think that he needs at least 3 PTH results to at least see where he is falling in the range. Naturally nobody moves very fast on this kind of thing, Doctors just don't want to talk to you, as if you can't understand the tests...well i can and can carry on a conversation about it, but i think because of their lack of really knowing a lot about this disease, its easier to avoid me and to send to this doctor and that. I don't want a bunch of different viewpoints i want the doctors to come together and at least discuss what the other has to say about his case. I am trying to save him as much "wild goose chase" as possible. Any advice on what I should do, ask or insist on from the doctors, while my husband is probably getting worse.
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Recently his symptoms have got drastically worse but hospital keep sending him home saying very little. His fatigue is becoming an issue and causing him to miss school and yesterday I couldn't actually wake him! Anyone else had similar symptoms?
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I had surgery for Hyperparathyroidism a year ago. I had 4 gland hyperplasia, which meant they removed 3 plus a part of the 4th gland. Immediately after surgery, I of course developed hypocalcemia. Since then, my Calcium numbers have fluctuated and I have had better and worse readings. However, my PTH has never gone above 19, and my last reading was 14. My Vitamin D is at 43 and my "active" D is apparently doing what it should be doing so I do not require Calcitriol to get things working. But, I still have issues with keeping my calcium up, and of course the attendant tingling, and etc.
My real concern is two-fold. One, is it safe to keep taking supplements given the conflicting data on males taking calcium, and Two, is there any harm in long term chronic hypocalcemia? I have read about heart issues and hypocalcemia, but I am assuming this is with respects very low and long term calcium issues. Also, anyone know of any ways to raise PTH at all? Funny how high PTH was an issue before surgery and now low PTH is...
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So I just got blood tests back and my vitamin d was 26 which is low and my calcium was 10.3 which is a tad high. I am 25 year old female. Should I be concerned about hyperparathyroidism?? I didn't get my PTH checked but my thyroid is normal. I don't know if they have anything to do.
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Can anyone relate to having muscle and bone pain with being deficient in vitamin D ? I get severe pains in muscles down my back and this has spread into my shoulders and up my neck into my head at the back. The pains come and go but i always feel tender and stiff in these area's. I get sharp shooting pains, burning pains and the feeling that my muscles are sore to touch. I also have felt like the muscle is tearing when i turn to reach something, the tearing sensation is really painful. I get shooting pains in my right leg in the hip/buttock joint which makes walking difficult at times and causes my left knee to give as i try to keep weight off right leg. The bone pain is usually in my lower back. When the pains in my neck muscles started it seemed to be triggered after i heard a cracking sound and got sharp pains in the back of my neck.
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