Thyroid :: Graves Disease Or Hashimoto's Thyroiditis?
Oct 6, 2014
I am very new to this site and extremely grateful that I found it. I was diagnosed with inappropriate sinus tachycardia almost three years ago. I am taking 350 milligrams of metoprolol. My primary doctor ordered new labs since my cardiologist has not requested any in the last 2.5 years. My results are as follows:
TSH - 0.01
Vitamin D - 26
Carbon Dioxide - 18
Free T4 - 1.3
Thyroglobulin Antibodies <1
Thyroid Peroxidase Ab 421
Primary doc originally thought I graves or Hashimoto's, but now wants me to follow up with an endocrinologist. Of course that appointment is 2 months away.
I do not have many symptoms. I do have the feeling of warmth in my shins, but that comes and goes. I have a little muscle weakness. I have been having trouble sleeping through the night, but 2 glasses of wine have been helping.
If I do have either Graves or Hashimoto's is waiting 2 months for a doctor appointment ok? I would think that I need some type of medicine.
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I Am wondering if someone can help me out with what my blood results mean . ok so i went to a walk in clinic because i was having a laundry list of stuff going on with my health . asked doc to do some blood work and see if he could find what might be wrong .
blood work came back showing some thyroid issues . my TSH was .16 my T4 free was 18 free T3 was 6.1 and my TPO was 102
the doc said i have Hashimoto's thyroiditis and referred me to endocrinologist which im waiting for appointment .
so my question is after doing some googling im wondering if the doc might have meant to say graves disease rather than hashimoto's . it was very busy in the office and maybe he just mixed the two up ? the reason im thinking this is because when i look at what my blood work results are they point to hyperthyroid rather than hypo . can anybody tell from my numbers i really would like to know and its a bit of a wait till my appointment with the specialist.
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I'm wondering if anyone has any advice regarding diagnosing graves and thyroid eye disease in pregnancy. Having never had any problems until being pregnant I'm very confused as to why I've suddenly got it? At around 12 weeks into my pregnancy I noticed a change in my eyes (one was protruding), after seeing an eye dr, he advised I'd be tested for hyperthyroidism and following his advice the bloods came back as a positive for hyperthyroidism. I was put on PTU by an endocrinologist for the rest of my pregnancy and at week 39 I noticed a yellowing in the White of my eyes and admitted myself to the maternity unit for blood tests following speaking with a midwife. It turned out I had developed severe jaundice (Which I now have learnt through research to be a severe side effect to PTU) and that my liver was failing; I had to have an emergency c section that night. I am pleased to say I have a had a healthy baby boy but I'm so anxious as to whether these conditions will worsen post pregnancy.
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I was recently referred to an endocrinologist due to 'abnormal' blood test results. The results were not shared with me. The endo gave me a full exam & at the time concluded my thyroid was fine & I was just stressed from work & maybe a psychologist would help. He took a blood test anyways.
A week later I got a call to say a prescription was in the post for 125 mg of Eltroxin!
I've managed to get a copy of the blood test result that the endo took & I'm trying to figure out if it means I have Hashimoto's disease. My endo never mentioned this to me but it seems from what I can find online that might be the case. Any help at all with this is greatly appreciated :
TSH: 13.79
Free T3: 5.2
Free T4: 14.7
ESR: 2
Anti TG: 358.8
Anti TPO: 8.1
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I have Hashimoto's disease. Over the last year or so I have really started to experience some of the symptoms of hyperparathyroidism such as super bad fatigue, LOTS of pain in my bones, etc. Are the two connected?
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Over the last year and a half, they have been testing my thyroid as it keeps showing up as underactive (no they have not done anything about it, for some reason they just keep getting more bloods done?). Until 2 years ago, all of my bloods came back perfect, with a high iron count of 148, but the other levels pretty much smack in the middle of normal ranges. This time, My iron came back as 53 - the doc said for me this is quite bad because mine are usually so high. My Thyroid level was 13, and he told me that my Vitamin D was terribly low. Although he did not give me the exact level of Vit D, I can only assume it was rather terrible as that is the only supplement he told me that I need to get onto immediately.
So, I know these levels are not great, but as it was a rushed appointment, he told me those levels, told me that I have Hashimoto's Disease and wrote up another batch of blood tests. So now I am lost.
Can anyone tell me what on earth this all means?
I AM going back to him, but couldn't get an appointment until mid/end next week (which is great because my bloods should be back by then anyway).
This will be the 4th set of bloods I have done in the last 18-20 months, all of which showed an underactive thyroid. I'm just not sure why they are still testing?
Is this normal? And what do those iron and thyroid levels mean? I'm assuming it isn't anything drastic or he would have done more about it?
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I was tested for Sjogren's due to my eyes being so dry. I was negative for SSA and SSB but my ANA was 1:80 w/ the hemo pattern. I have read that anything less that 1:100 on an ANA test you can rule out CTD. The only symptom I have is dry eyes. Every now and then my feet tingle a little but that has been going on for as long as I can remember. I do have antithyroid antibodies and have been diagnosed with Hashimoto Thyroiditis. So with only the ANA being 1:80 and only really symptom dry eyes (mainly the right one). Do you think I should see a Rheumy Dr?
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I have just been diagnosed with graves disease (and overactive thyroid as a result) and prescribed 3 5mg carbimazole pills a day whilst i wait to see a specialist and have an ECG so i can also be prescribed beta blockers.
My doctor said to take all 3 pills at once but i have read that the effects don't last 24 hours and its better to spread them through the day. Does anyone else take 15mg and do you take them all at once or spread out? In your experience when is the best time(s) of day to take them?
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Say you have been treated for Graves Disease with RAI and that deals with the hyperthyroidism (not so much with the eyes though!), what happens to the antibodies that were attacking you thyroid with such vigour and verve? Do they just go home because there's nothing left to attack? Are they always in your system waiting to attack public enemy number 2? And why do these things decide to attack the very thing they are meant to be protecting? Is it genetics? Childhood illness (whooping cough, measles and mumps in my case.) Environmental factors? Stress? Diet?
I am sure there are many schools of thought and theories to all of these questions but I am curious still about where these wee anti-bodies go after the illness (or symptom of your illness) has been irradiated in my case.
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I've been taking carbimazole 20 for 2 months now as i have graves i had a uptake scan which shows its my whole thyroid gland is playing up .up and down so my specialist had gave me carbimazole to block my thyroid hormones and replacing them back with thyroxine 50 i feel so terrible sickley cant eat well also headace i believe the carbimazole is causing all the trouble.with side effects.
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I have posted to this Board before about what has made a difference to my recovery from Graves. In addition to the medication Methimazole, I started on Regular L-Carnitine and then later Acetyl-L-Carnitine and vitamin D supplementation. Others on the Board have posted about the addition of selenium as well as other natural herbs such as Melissa and Bugleweed. I saw this posting on another Hyperthyroid Board and the author has given me permission to copy it to this Board as follows:
I am shocked that our doctor's don't know more about the thyroid, autoimmune disease and its connection to the gut. I went to a naturopath when I was first diagnosed in 2012 because my husband and I didn't like what the endo suggested. After seeing the naturopath we made a connection between my occasional IBS type symptoms, bloating and my thyroid. We started a probiotic and immune support vitamin called Moducare. Then she ran food sensitivity testing through All Tests labs (some MDs are skeptical about this but it worked for my stomach). I had all four antibodies for graves and Hashimoto's and I had symptoms from both and almost undetectable TSH levels. She removed gluten and dairy from my diet and pulled out foods I tested sensitive to like yeast. Then added Lycopus Virginicus and lemon balm tincture to my routine along with vitamin D, B complex and CoQ10. I finally figured out though that the real cure for me was going gluten free and dairy free. No more bloating, no stomach cramps, gas or the big D. Then I found out there is a link between Celiac disease, gluten sensitivity, leaky gut and Thyroid disease. There is a natural graves treatment FB page I am on and a lot of us have cured ourselves of Graves using dietary modifications. I went into remission within 3 months of this diet. I have been normal for over a year now. You really need to be tested for celiac before you start the diet. If you don't have it (it can lead to thyroid disease and then other autoimmune disease when left untreated) then you are sensitive to something you are eating and are most likely dealing with leaky gut. Someday the MDs will catch up with what is really going on here. Our pediatrician is so progressive and knows all this stuff but warned us that a lot of her colleagues are not there yet when it comes to medicine."
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I've just been diagnosed with Graves disease. I am taking Carbimazole 40mg daily now, for 8 days. I have the dreaded 24hr sweats - aching leg muscles - sleeplessness - no energy and lie on bed for most of each day!
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I'm 23 years old, 5 months ago I got diagnosed with Hashimoto's. I was scared of having to go on meds for the rest of my life at such a young age so I opted for natural route. The homeopathic Dr. I went to see gave me i Throid iodine pills, and had me go on a 2 week liquid diet (I only lasted 4 days) and he wanted me to do a 60-90 smoothie diet. Needless to say I gave up after the 4 days and when I stopped the diet I stopped taking the i Thyroid pills. 2 weeks ago I went to see my endocrinologist who wasn't very happy that I hadn't been taking the Synthroid as she had prescribed and told me the results from my ultra sound to my thyroid looked rough. She went on to stress how important it is that I take it and how my levels are worse off then when I first came to see her. She also told me if I was trying to get pregnant how important it is for the baby to have thyroid. So yesterday I find out I'm pregnant and now I'm freaking out. My natural part of me is screaming don't take it, start the iThroid religiously and stick to it, but I feel like it's too late. At this point it's too late for me to experiment what may/may not work for me in terms of trying out the natural route. I had months to figure that out and I didn't and now I'm pregnant. If my baby needs my thyroid to develop properly then I need to start taking the prescribed synthroid. My endo prescribed me .05 mg I don't know if that's a lot or a little. She also told me if I find out I'm pregnant I need to let her know immediately so she can increase it by 30%. I guess I'm wondering if others who have hashimoto's and those that have gone through pregnancy while taking synthroid can tell me anything. I'm scared my body's going to react weird to it. I'm scared my hairs going to fall out and I'm going to gain weight (currently 5"5 114lbs.) I read those are some of the side effects from Synthroid. I'm scared to have heart palpitations and anxiety) which I already have but I'm scared it'll make my anxiety worse to the point I'm a complete wreck. While having all these fears I'm also scared about what may happen to the baby if I don't take it. So before writing this post I popped my first synthroid pill. Maybe I'll go on it until the baby is born and then come off it and try natural again? Anyone think that's a good idea? I just don't want to be dependent on something big pharma produced in a lab. Maybe it's just a matter of changing my diet and exercising and eating gluten free foods. I'm wondering if anyone with Hashimoto's can tell me about their experience with it and help ease my mind.
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I have an important question.
My last blood work from one mouth ago revealed a TSH of - 0.16. (ranges 0.3-4.5)
Though my levels of free T3 & T4 were midrange and maybe even slightly lower than they should be.
FT3: 3.30 (ranges 2.1-4.2)
FT4: 1.02 (ranges 0.7-1.8)
I'm on 112,5 levothyroxine and 12,5 cytomel daily dose.
Is it safe to have a TSH that low?
Can I even upgrade my meds to 125 levo a day? I still feel hypo and under medicated.
I did hear about the 'optimal' values between the ranges were a lot of people are on their best in their 'sweet spots'.
If the rule of thumb is that FT4 has to be 50% of the range and FT3 upper half to upper third, i's logical that I'm still hypo. This all being said, will my TSH drop even more when I go to 125?
I don't understand the link between TSH and the FT3 & FT4 results. How can I have such a low TSH and still not reach the recommended levels?
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I have seen some videos that support a gluten free diet and an end to Hashimoto's.
Has anyone tried going completely gluten free and had an improvement in their symptoms or even and reduction or end to their meds?
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I don't really know how to begin this message, I'm so exhausted and mad against that weight gain and stuff.
I am 20 years old and was diagnosed with Hashimoto one year ago. Since then, I put up 20 kilos ( most of them in 6 months ). My t4f and t3f are okay, and THIS is at 0.40, which is the minimum.
There are two years and a half ago, I was 110 kilos. I decided to lose weight and did 2 to 3 hours of sport per day + a diet. I lost 54 kilos and reached 56 kilos for 180. I felt soo good and happy for the first time of my life, no kidding.
And then, I haven't even had the time to have fun with my new body, that I began putting up weight.
I do 10 to 14 hours of sport per week ( I run a lot, quick walks in the mountain and so on ) and still follow my diet ( 1200-1300 cal )
I'm sick, I'm trying not to be too depressed, but it's hard. I'm so tired, my muscles don't want to keep on, and neither want I. Thinking that I've lost one year of my life trying to lose weight for nothing makes me mad.
I'm followed by a diet doctor, who can't even find why I keep on putting weight,m but tries to change some of the aspects of what I eat. I also see a psy, he can't really help me, as my problem is real, and not just in my head.
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I was diagnosed w/Graves disease 5 yrs ago after presenting with atrial fibrillation, bp 214/125,tremors;sweating & other symptoms- (I thought previous to this I was in menopause so I hadn't gone to the dr.)-Dr did bloodwork for thyroid and sd my tests were the highest he'd seen in his 50 years of practice- wanted me to go ER but I couldn't as I was the caregiver for my mom w/Parkinson's- To make a long story short, he gave me 20 mg methimazole, atenolol,paxil (I was a nervous wreck) 25 mg hctz and 1 aspirin.
After 1 yr methimazole was dropped to 15mg and now 10mg because I was doing so well my tests were indicating Hypothyroid rather than Hyper. So, up & down and up & down for 5 long years. Lately, I have been HOT & Cold on the same day, hair & skin very dry, cold feet and hands, joint pains in lower back and knees and some days can't walk well due to knees- has this happened to anyone? Computer suggested Hashimoto's symptoms and I cannot go to the Dr for 3 months due to finances- I am currently taking 0-10 mgs methimazole,10 mg paxil, 25 mg hctz and 1 aspirin- I tried cutting the methimazole for a month and everything SEEMED ok, but then got scared and went back on it- additionally, my weight has gone from 119 lbs to 165 in 5 yrs- Cannot lose weight no matter what I do; another indication of HYPO- Dr says weight gain is my body responding to disease and I was underweight when I was 119 lbs at 5'6"- HUH? I read that some of the side effects for methimazole are MY LIFE- Anyone have any suggestions?
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I have Hashimoto's. I was diagnosed with this 2 years ago. I take 75mcg T4 and 10mcg T3 but I want to raise this on alternate days with 100mcg T4 and 15 mcg T3. My endo does not yet know I want to do this because I'm worried she will think I'm doing something silly.
I have had my thyroid function test done last week and the results have come back but I'm not being told what they are until I get it in writing. The endo wants my TSH to come back up to 2.5.
Symptoms I have:
Goitre (ultrasound says thyroid is swollen but no nodules)
Difficulty swallowing
Ongoing cough
Headaches
Joint pains
Dry eyes
Dry ears
Dry mouth
Constipation
Itchy feeling in throat (front of neck where thyroid is)
Hair loss
Heavy periods
Painful periods
Pale skin
Dizziness when standing
Fatigue
Peeling skin
Peeling nails
November 2015
! Serum TSH level: <0.02mpmol/L IU/L (0.27 - 4.20)
Serum Free T4 level: 19.8pmol/L (12.0 - 22.0)
Serum Free T3 level: 5.2pmol/L (3.90 - 6.70)
October 2015
! Serum TSH level: <0.02mIU/L (0.27 - 4.20)
Serum Free T4 level: 20.5pmol/L (12.0 - 22.0)
Serum Free T3 level: 5.0pmol/L (3.90 - 6.70)
August 2015
Serum TSH level: 1.30mIU/L (0.27 - 4.20)
Serum Free T4 level: 17.1pmol/L (12.0 - 22.0)
Serum Free T3 level: 4.1pmol/L (3.90 - 6.70)
May 2015
! Serum TSH level: 5.61mIU/L (0.27 - 4.20)
Serum Free T4 level: 18.1pmol/L (12.0 - 22.0)
Serum Free T3 level: 4pmol/L (3.90 - 6.70)
! TPO antibodies: 275IU/L (<34)
March 2015
Serum TSH level: 0.41mIU/L (0.27 - 4.20)
Serum Free T4 level: 13.2pmol/L (12.0 - 22.0)
Serum Free T3 level: 4.2pmol/L (3.90 - 6.70)
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I'm a 16-year-old female who has been diagnosed with Hashimoto's disease. I was diagnosed in November of 2013, and in December of that year I had the left side of my thyroid removed because of a mass. I am currently taking 88 mcg of Levo. I have struggled with headaches nearly every day for the past year and a half. I've tried everything, I've had blood tests, an MRI, I've tried every OTC pain pill, and I was prescribed Vicodin and Hydrocodone. I have gone to an ophthalmologist as well. I haven't had my levels checked in about 3 months, and my appointment isn't until next month. But I wanted to know if anyone knew if this disease can cause constant headaches, as well as depression.
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Has anyone read or been told by their doc they should "not" take probiotics if they have Hashimoto's or other autoimmune illness?
I read somewhere that one with autoimmune problems should not take probiotics that it could cause systemic yeast infection. Now I can't find that article. Everything else I read states probiotics good for autoimmune disease.
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I've read recently that iodine is not necessarily bad if you have hashi's. I found other articles that say too much iodine is the cause of many hashis cases. Nothing better than getting feedback from those that are living with hashish. My questions are:
Should I not be using regular iodized salt?
Will using uniodized sea salt be better than regular salt?
Do I need to be concerned at all with my salt/iodine intake as long as I'm taking 200 mg selenium now?
Are these articles about iodine mainly referring to iodine supplements and not what a person consumes through diet?
I understand hypothyroidism is not necessarily hashimoto's thyroiditis but quite frankly, my head is spinning right now. I don't want to aggravate my hashi's but on the other hand, maybe I'm overly concerned. BTW, I am currently not taking any thyroid medicine. Other than having difficulty losing weight.
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