Thyroid :: Diagnosed With Parathyroid Hyperplasia
Dec 14, 2014
Recently have FINALLY gotten a diagnosis of PARATHYROID HYPERPLASIA?… After many years of fainting, blood pressure issues, kidney stones, ureteral stunting, a complete hysterectomy at 34 after ovarian cysts reoccurring….I had hoped it was HYPERPARATHYROIDISM…but my PTH wasn't high enough and the sestamibi and 3d scans and ultrasounds showed very thick glands? Does this sound like anything any of you have gone through or experienced, or should I be seeking another opinion?
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I ve been operated of parathyroid cancer in March 2015 in France. It seems very rare. I m looking for people with the same disease ? I am still in hypocalcemia after 8 months even with 3 g of calcium per day and vit D.
Have you ideas to go out ?
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My parathyroid hormone is 98.1 intact, the reference range is 14-72. My calcium is 9.7, reference range is 8.7-10.4, my vitamin D level is 50, reference range 33-100.
My parathyroid hormone has been elevated for a couple of years now, but usually my vitamin D levels were a little low, so the doctors seem to think my parathyroid was elevated because of my vitamin D level. Now that both calcium and Vitamin D levels are normal my parathyroid hormone is still elevated. Not sure if there is any correlation to why my parathyroid hormone is elevated, but I have multiple nodules on both left and right lobes of my thyroid. My left lobe has 3 nodules under 1 cm with one measuring 3.1 x 1.3 x 1.6 cm and my right lobe has one under 1 cm with the other 1.0 x 0.4 x 0.6 cm.
December 2013 I had a biopsy on the larger one on left lobe 3.1 cm and was benign.
I haven't been feeling well for more than two years now, doctors just tell me to see a psychiatrist, I am on a antidepressant but it really hasn't helped me that much.
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I am being referred to a surgeon to discuss a parathyroid operation. I am waiting to go for a scan. Can anyone tell me what the scan entails? I know dye is put into you. How long does the scan take?
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I have had a raised parathyroid hormone blood result recently also a raised calcium in the blood result. I had raised calcium levels several years ago but after a scan of my parathyroid glands which showed no growths it was put down to lack of Vitamin D and called secondary parathyroidism
I was told to increase my Vitamin D levels which I did and my calcium level dropped. I have continued on the supplementation. I have severe sleep problems, am tired and grumpy, my hypothyroidism been under control for the last 8 years. I am borderline diabetic. Almost 73 years old.
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I'm a 44 year old female. Earlier this year I went to the doc with lethargy, aches and pains, headaches, Backache, feeling sick, amongst a heap of other basic symptoms for a menopause check to which it came back as positive but they also tested me for low vit d which came back as deficient so checked my parathyroid hormone which was elevated. My Calcium they said was fine so iv been treated with a high dose of vit d pills for three months. Recent testing has shown my Calcium is still stable but my parathyroid has increased further but the doctor said she will have to do and enquires as to what to do next as she expected my parathyroid to balance out but as it isn't I haven't a clue what that all means if my Calcium is ok as I know they are all linked. Is there any clues or experience you can offer as to what it all means.
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I had parathyroid surgery 3 weeks ago, apparently i had a rare type of disease as my vit c and calcium were normal but pth off the scale, they removed 2 glands one had a tumour attached to it, so had lymph nodes removed to be sure it was all out, i now have severe hip pain in both hips and thigh bones and most days struggle to walk yet calcium is normal, awaiting lab results on the tumour, my concern is the severe pain and tiredness, any ideas ?
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I am 48 years old and been suffering many years with pain all over my body, my hip pain is the worst, closely followed by shoulders, wrists and hands, then buttocks, more recently knees. My history has been a bit of a nightmare - diagnosed first as fibromyalgia, then early RA, then back to fibro, abnormal antibodies (autoimmune disease). Years ago I complained to my gp about mouth ulcers and was discovered I was low in vitamin D. Two years ago I started suffering extreme head sweats and a few weeks ago I realised that I was still getting mouth ulcers even if I was just a few hours late taking my Calcium Vitamin D and told my gp, adding that I was concerned that I was still low in vitamin D. Blood tests revealed that I am, even though I never miss the tablets, get lots of outdoors when able, eat loads of fish, eggs etc. So, doc thinks its a parathyroid tumour and according to the website the only 2 reasons you would have low vitamin D is 1- if you don't actually get any and 2 - you do have a tumour. So its looking pretty much like this is the reason and I am guessing surgery will be necessary. My concern is, my muscles and bones ache so much, I walk like a very old woman.
My life has really been mostly bed bound for the last few years with pain, having to use a stick a lot when I do go out - on good days I will be out as much as possible and walk as much as I can-yeah the consequences are usually the next day in bed, but I try to push it as much as I can. I have put so many things on hold, work and social and missed out on so much. Now, I am wondering - if and when this is sorted out, the tumour removed (if the doc is right and I do believe he is) will my aches and pains go? Will I have a better quality of life? If osteoporosis has set it - can it be reversed? I have also noticed very recently things becoming much worse. If I move my hand in a different way the pain is unbearable and feels like something has just broken - my index finger has started moving involuntary, kind of jumping - is this related to anything?
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I don't know if anyone else has experienced any problems after parathyroid surgery. My surgery was 3 weeks ago. I am experiencing on and off again periods of severe weakness and nausea. My labs have all come back normal. I almost feel bedridden at times. Very unpleasant.
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Has anyone taken Viagra to help with BPH issues? I take finasteride (Proscar) and Uroxatral for BPH issues and these drugs help immensely along with herbal remedies. I am sexually active and when I take Viagra to help my performance I notice that my urinary flow improves immensely. As a test I started this week to take 50Mg of Viagra daily and I noticed the best urinary flow I have had in a long time and was wondering if anyone else had similar experiences?
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I was diagnosed, by my GP, with BPH about three years ago although I have been having symptoms for way longer than that as I kept putting off bringing it to his attention.
My question is can BPH lead to prostatitis, nonbacterial? I ask because over the past several months I have been experiencing a lot of 'discomfort' after urinating such as stinging, burning, which extends the length of my penis way back up between my legs and 'deep inside'. Along with this is the constant, and I mean constant, feeling of wanting to 'go'. Sometimes the stinging seems to turn to a dull sort of ache which is difficult to describe. Along with this is an intermittent feeling that I am going to wet myself as it feels a 'spurt' of urine is making its way down my penis but only one one occasion, thankfully, has anything actually leaked.
I went to my GP about a month ago now and he did a urine test but it was clear. He has referred me to the hospital to see a urologist as I also had another instance of difficulty in urinating but my appointment is a month away.
The 'discomfort' comes and goes over several weeks or months, or so it seems, but when it comes it drives me to despair.
I take Tamsulosin and Finasteride
Just wondered if anyone else is suffering similarly.
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Age : 42
Initially I was urinating 2-5 times a night.
Thought I had BPH. Began taking Saw Palmetto. Now urinating 1-2 times a night.
Not been to a doctor yet.
Tests I have taken:
PSA : Results were normal, Free PSA was .9
Urinalysis : Bilirubin level was high.
I assume I need to go to a urologist. What tests will he request?
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I have general query regarding parathyroid disease in the context of women with 50+ years of age. Is osteoporosis a symptom of this kind of disease ? Or, does it need to be both vitamin-D3 & Ca to be high in Blood too ? For example, if x-ray shows osteoporosis & also vitamin-D3 (25 OH) is too low (i.e. < 15), can we simply rule out parathyroid disease here ? Or, to be sure, we need to test serum Ca as well ?
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I was diagnosed with kidney stones and parathyroid disease in March 2010 whilst being in hospital as a result of high calcium levels (3.7 mmol/L) and significant pains in the back. A stent was inserted in order to help the kidneys and I went through a number of tests (Mibi scan, ultrasound, DEXA among others) for identifying the gland(s) that were overproducing the hormone for calcium (201 serum PHT). While I was told that the stent should not remain longer than two months and that I should have the stones removed as soon as possible, I have not been scheduled yet for the removal (ureteroscope). During the last month, the stent has become very uncomfortable, I cannot walk for more than 10 minutes and I feel very tired. I went to the A&E but I was offered only muscle relaxants and painkillers and I have not seen any improvement as a result of these. Simultaneously, I am waiting for the arrangement of the removal of the parathyroid gland.
Is there anyone with similar experience? Is it normal to have that long the stent and have these symptoms? And is there anyone that has gone through a removal of parathyroid glands? Any information would be most helpful.
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I have nearly all symptoms of a bad parathyroid. I am changing doctors as I am not pleased with his responses. My parathyroid hormones have been high for two years+. My calcium level stays at 10-10.4, with anything over 10.5 being considered high. Do I just go to a surgeon or what do I do? With sudden symptoms beginning over two years ago, I feel it is a bad parathyroid. In my last blood work, my VIT D was even LOW, which I understand can also be a symptom.
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Seen a pain doctor who suggested I get mr thyroid checked although it has always been normal but he said I should get my parathyroid tested my gp has only ever done 2 test in his 25 years of being a doc.
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I had an ultrasound today and it says that there is "a homogeneous appearance to the echotexture of the thyroid gland. Bilateral thyroid nodules are observed. There is evidence of a complex cystic and solid lower pole right thyroid nodule measuring 1.8 x 1.0 x 0.9 cm. Within the left thyroid lobe there is evidence of a hypoechoic midpole left thyroid nodule measuring 0.6 x 0.4 x 0.7 cm. Bilateral thyroid nodules. Dominant nodule is a complex cystic and solid lower pole right thyroid nodule measuring up to 1.8 cm. what does this mean?
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I have 3 thyroid nodules and 1 cyst. I have been advised to have a thyroidectomy. I do not want to go this route yet and am searching for some natural remedies. I have heard of using iodine but to be careful do to the fact that that might enlarge the nodules. I recently found out that I am very iodine deficient from a lab result. I have heard of iodine trapping, whereby the iodine taken in when their is a severe deficiency is immediately 'trapped' and held in the gland in order to preserve some iodine for the use of the thyroid. I would like to proceed with caution and try the iodine therapy.
Does anyone on this board have any experience with successfully dissolving or at least reducing the nodules/cysts?
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It wasn't long after I moved to an area within 10 miles of a nuclear power plant that I was diagnosed with an enlarged thyroid with nodules. And after a surgery I had, I became extremely depressed and I still am, this was three years ago. Also a feeling of not being myself.
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I am new to this site. I have been diagnosed as Euthyroid (antithyroid antibodies with a fully functioning thyroid) and I also have Anti-nuclear antibodies - Speckled 1:640.
I don't have Lupus as have been tested for that.
I am currently undergoing IVF and have had 2 failed rounds. I have been put on Aspirin (100 mg), Prednisolone 7.5mg a day and CoEnzyme Q10, folate and Vit B12 with no success.
I am desperately looking for anyone in my situation that can offer any sort of guidance, maybe a drug regime you are on or just anything at all. I desperately want children but it isn't looking too good. I'm terribly sad about the prospect of never having children.
Ive been trying for 3 years now and was pregnant once and miscarried at about 5 weeks back in 2011 and have never been pregnant since indicating a problem but I don't have any other issues except a low egg reserve which is from these other issues
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My blood calcium level is 10.6. So far what I've read on the Internet it looks like parathyroid disease but I'm not sure. I just tested again on calcium and the parathyroid but I won't know anything till next week and I'm going out of town tomorrow and I know I won't be able to enjoy myself like I should worrying about this. So I have all the symptoms like painful joints, unable to focus, tired, dizzy, tingling legs and feet and easily set off. But what worries me is that a year ago it was discovered I have an enlarged pituitary gland that I haven't followed up on and I've read something about that. Also I am a smoker so does anyone know if I would feel like this if its cancer. I've had issues with my neck for awhile. It was swollen a couple of years ago to where it felt like a golf ball in the back. Now it feels tight in the front. Could it be throat cancer?
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