TMJ :: Myofascial Pain Syndrome?
Apr 6, 2014
Have had TMJ Dysfunction for many years which was controlled. Then 12 months ago symptoms returned and did not respond to usual methods of treatment. At the same time had some kinesio taping for back problem. 3 days later my whole body went into spasm . I have muscle spasm pain , tenderness and trigger points. Attended acupuncture , osteopathy and had exercises and foam roller. Work was getting worse and was struggling in with great difficulty in pain . Last October virtually collapsed and had to retire. Went to local Hospital Dental clinic who said I had MPS as well as TMJ. Gave me exercises for jaw. January 14 also in pain from damaged nerve from operation 30 yrs ago wisdom tooth extraction. Have pain and Tinnitus taking pain killers muscle relaxants also having massage. Feeling lost. You have to have this MPS to know what it is like. Can anyone advise on coping strategies?
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I just started reading about this and it really sounds like I may have this but I'm not sure. I have headaches sometimes that are awful and seem to start from my neck and back of my head. I see a chiropractor once a month and my x rays showed problems in c5 and c6 in my neck. I also have notalgia paresthetica which itches me too death sometimes in my right back shoulder. We figure it's caused from the c5 and c6 in my neck. I never sleep all through the night, always tossing and turning. And I feel fatigued ALL the time no matter how much rest I get. I had a blood test and my vitamin D is low. I can find "knots" on my back, usually I can find about 5 or 6 of them, even on my sides. I work a very physical and mentally stressful job and this causes me a lot of pain. When I am working usually mid day I will get a horrible sharp pain somewhere in my back and it just stops me. It's like someone taking a hot knife and stabbing me with it. It's hard for me to straighten myself up. My pain is in my mid and upper back, rarely ever in my lower back. I do get dizzy sometimes also and feel off balanced.
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I am French. I’m 28, it’s being 2 years and a half that I have blood in the urine with horrible pain.
I had 3 ureteroscopies who have given nothing and now the professor who follows me told me I have the loin pain hematuria syndrome, and there was nothing to do. The only thing I can do is to wait till it’s going better. He refuses to make a biopsy and told me to take aspirin.
I wanted to know if you know doctors who offer other drugs. I've heard of self transplantation and kidney innervation;
I've been in different hospitals and doctors tell me that the pain is bearable and advised me to consult a shrink. I do not think my pain is psychic. I wanted to know if U.S. medical research is more advanced than the French one.
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I came across this syndrome when searching the Internet about extreme pain I have when I take the first bite EVERY time I eat and sometimes drink. That this could be a symptom of this syndrome but I don't know. I do have some of the other symptoms, i.e. neuropathy, blurry vision, muscle pain, fatigue but these can also be associated with Type 1 Diabetes which I have. Also, came across parotid/salivary glands are affected which also can cause the jaw to ear pain I'm having. Has anyone heard that the Coxsackie virus can have anything to do with it? How do you know for sure if it is Sjogren's and what type of doctor do you see about it - a primary?
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Has anyone else been diagnosed with this condition? I shall explain! for 10yrs i've been told i had arthritis in my right hip and right hand giving me chronic pain, only to be seen by 5 different doctors due to a recent change in location and investigations i've now been told i have , mild osteoarthritis in my right hip and the joint between my thumb and index finger.
Not only that but all differnet 5 doctors have said it was different things. seeing my own doctor today, she said (or applied) that the pain might be in my head, then to turn round and say that she was certain that i had A chronic medical condition and what it was she was unsure of.
Is this Chronic pain syndrome another name for they havent a clue whats going on?
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I was diagnosed with fibromyalgia about 18 months ago and I'm having a really bad flare up at the moment and still trying to work full time! I'm a beauty therapist so I Found I don't go in I let people down! I'm struggling to walk and my back and wrist is really swollen, I'm taking nurofen and paracetamol but they're not touching it.
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Has anyone out there with CRPS managed to return to work?
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I've been dealing with sit pain for almost 4 years. Mostly feels like on the bone on my left butt cheek but from time to time moves to the outside of iT (along panty line) or to the inside between bone and groin. I can't pinpoint any particular event that caused it. Been mis-diagnosed as piriformis syndrome, have had tons of injections, PT for SI joint issues, sciatica injections, ischial bursitis injections, when pudendal nerve (but didn't pursue that) & today I had RF ablation oF L2, L3, L4, L5 and S5. I've not had back pain except once in awhile an ache in lower back & hips feeling out of alignment (probably self inflicted trying not to sit on my left butt cheek). Anyone else having the same issue or found a solution?
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Another PVP sufferer. Had my snip done in October 12, local GP practice but got a GP who was acquiring the 'skills' to take over the practice once the main GP retired.
Well, he made a mess, first half fine, second half painful. Bust a blood vessel to, so that was stitched up to the VAS.
Rested after, ended up with two large haematomas one each side and a wound that didn't heal for 4 weeks and needed antibiotics.
That all eventually cleared but was still in considerable pain, especially the 'messed up side'. Off to GP, then referred to Urology. Scheduled for an epididymectomy soon now.
Won't do both sides due to risks of losing a ball, so it's one at a time, and if it works, as it only has a 50% success, they will do the other.
Pain isn't great, I won't take meds for it, other than ibuprofen etc, but that doesn't do much. Offered the usual gabapentin etc which I've refused.
As others have said, I queried what would happen if I got PVP and how would we manage it. The GP at the time said 'your Urologist would sort that' - erm I don't have one. No mention of how common the pain is 5-10%.
Only when I saw the Consultants in Urology did they say how common it was. It's a very difficult 'condition' to treat is all they have said.
Current choices. Wait - I've done that, now surgical removal of my epididymis, possible the less sore one two. High failure rate. If it doesn't work, then denervation may be a choice - that will leave your nether regions numb.
Friggin fabulous. Simple procedure that you don't really fancy, but 'pressure' dictates. Totally ruined our sex life. I get bad pain after, and it takes days and days to subside. Also the site of the burst blood vessel is extremely uncomfortable (between ball and penis) so the consultant will do some 'clearing out up there two.
Seriously hissed off by it - WHY DON'T THEY TELL PATIENTS ?
I've complained officially, general sorry and denial of PVP. Complained direct to the GP that did the Op - he now has the local contract. I've asked him to ensure he makes patients aware of the consequences.
Oh and it's pot luck if you get it. doesn't matter if you are fit or not. It's really affected me and my sport as a cyclist (ouch) and I can't stand being battered about down there - so stuff like go-karts, fair rides that are bumpy are a no no.
The epididymectomy is going to be nasty, as that's quite a recovery process. I asked about having both done, but they said if it went wrong I would lose both balls. Best do one at a time, then I'd have one at least they said. I said, I'd be happy if you took them both off !
Never again. Feel like I've freely mutilated myself - could have done a better job with two bricks.
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to understand fibro pain more
look up complex regional pain syndrome on the NHS choices page its a fairly new article only placed there today .your find it very interesting and might be a step forward to you understanding your pain better.
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Been having excruciating foot pain had every test and specialist latest diagnosis is tts had 1 injection worked 5 days 2 not at all been 4 days and have to wait 3 more till I see pain management had emg neg MRI back and feet spinal tap for Lyme neuro lots meds ra ruled out acupuncture no help 4 sets bloodwork plus more podiatrist did exam foot x rays and steroids oral says not feet saw foot ortho says same not feet pain management says is feet they missed it as emg only 50% accurate. Help who do I believe so I can get proper tx life been bad 8 months and losing job in 2 weeks due to my health.is there a positive test besides tinels to diagnosis I live in country area not many MD s have to travel long distance for all of this entire bottom and sides feet hurt but not ankles feels better non wght bearing and ice.any opinion s would be greatly appreciated. Thanks so much Diane
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I have just got worse throughout the day I had a seizure early this afternoon and the pain has just got worse. I have to stay strong for my husband and kids but inside I am crying right now . I am completely fecked off with it. I confess I am due on and the pain all over seems to be stronger. I am 42 and I am sitting in a chair propped up by cushions a blanket and a hot water bottle for my arms watching emmerdale , tried knitting a bloody scarf but my hands/ arms hurt.
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After reading some of the posts lately, I started thinking about what diversion tactics I use to block out the pain. It got me wondering what tactics you all use.
Apart from getting on with life as best I can, I do a few things to take my mind off it all. Doing simple crosswords, I don't have the
or patience for cryptic. Watching TV programs like Antique
Roadshow and watching movies. Reading novels, and going online to read articles.
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I have had various health issues in the latter part of my adult life but one thing that has always remained constant throughout is my groin pain. It does come and go but, in recent years, has become a real, persistent pain. I think I have learned to live with it until I was recently Assessed as having ME/CFS.
My support suggests I self medicate as all pain uses energy!
One specialist I saw suggested it was ACNES and gave me a cortisone injection which worked for a short while.
I have asked my doctor to do a scan for me just to see if it is related to my ovary removal 3 years ago.
That brought up nothing.
recently had blood tests done and no concerns there.
has anyone experienced this pain, just in one groin, not both; the right side ??
I would love to hear from anyone who has any thoughts on this or experience of it themselves.
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I had a very successful pain clinic appointment yesterday, by successful I mean i saw a Dr who wasn't a complete arrogant idiot, he was very nice and tried to think out of the box a little. I asked him for lidocaine patches and although he said he did not think they would work because of the pain being deep he was willing for me to try them, he couldn't prescribe them so he's written to my GP, he also suggested capsaicin cream and finally he thinks i should try cymbalta/duloxetine. I explained that id tried various anticonvulsants and hated them due to side effects and that i was not depressed (i probably should be) but i'm not, i get angry more than sad for the chronic situation but i don't feel hopeless and apart from super hellish days i cope fairly well.
The thing is my little boy is my world, i'm so concerned taking an antidepressant when i don't feel depressed will kick off depression, especially if they don't work and i come off. I used to suffer with depression when i was younger and i know how horrible it is and when your i was in that cycle nothing or no one mattered anymore so i'm concerned as i'd rather continue to live in daily pain knowing my son is getting the "real" me than be on any meds that might change how i feel or how i am towards him.
Does anyone have experience with these specific meds? Especially taking them for just pain and not depression?
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I'm a 48 year old male with sjogren's...I am unable to have an erection without pain. I am unable to have intercourse. Are there any males that are having the same problem with sjogren's?
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I've been on LDN - Low Dose Naltrexone for a few months now. It's been a bumpy road and the journey has had both positive and negative points.
I've been adjusting the dose but in so far the 3 main benefits I can claim from it are:
- some sleep improvement;
- less pain intensity;
- apparent normalising effects on some blood markers such as LDH (lactate dehydrogenase).
However I feel exhausted to an unbearable point and continue prone to inflammation. I've decided to continue treatment with LDN because I've read extensively about it and many authors say it may take up to a yer to come to fruition.
Meanwhile I've resorted to naturopathic medicine and I'm under treatment as well.
We're all different in the way we react to medications and because I've been reading so much suffering here with so little hope of remission that I thought of encouraging you of not giving up and trying new things.
I would like to share with you a recent study on LDN whose Abstract is:
"The use of low-dose naltrexone (LDN) as a novel anti-inflammatory treatment for chronic painJarred Younger, [corresponding author] Luke Parkitny, and David McLain
Abstract
Low-dose naltrexone (LDN) has been demonstrated to reduce symptom severity in conditions such as fibromyalgia, Crohn’s disease, multiple sclerosis, and complex regional pain syndrome. We review the evidence that LDN may operate as a novel anti-inflammatory agent in the central nervous system, via action on microglial cells. These effects may be unique to low dosages of naltrexone and appear to be entirely independent from naltrexone is better-known activity on opioid receptors. As a daily oral therapy, LDN is inexpensive and well-tolerated. Despite initial promise of efficacy, the use of LDN for chronic disorders is still highly experimental. Published trials have low sample sizes, and few replications have been performed. We cover the typical usage of LDN in clinical trials, caveats to using the medication, and recommendations for future research and clinical work. LDN may represent one of the first glial cell modulators to be used for the management of chronic pain disorders.
Keywords: Anti-inflammatory, Chronic pain, Fibromyalgia, Glial cell modulators, Low-dose naltrexone, Microglia"
Younger, Jarred, Luke Parkitny, and David McLain. “The Use of Low-Dose Naltrexone (LDN) as a Novel Anti-Inflammatory Treatment for Chronic Pain.”Clinical Rheumatology 33.4 (2014): 451–459. PMC. Web. 13 July 2015.
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I just wondered if any other female sufferers of Fibro had pain in their vaginal areas? I am newly diagnosed and just coming to terms with the symptoms and pain that this illness brought along with it but this new pain has begun recently and seems to accompany my hip and lower back pain ..
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I'm 25, and have recently developed symptoms (last 2-3 months). I had some mild sore wrists before but over the last few month it progressed to numbness in both hands. I did some physiotherapy and stretching and it did actually improve a bit but then my left ring finger began to develop pain and severe numbness, enough to stop me from typing with my left hand. I ice it several times a day which is keeping it at bay but doesn't do anything for the numbness.
Any comments or advice? I'm on a 1 month wait for an EMG specialist. The only thing that makes the numbness better is bending my wrist into a flexed position and holding it there for a few seconds.
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I know painful glands are common with Cfs under chin and in neck etc but lately im having sharp pains in the glands under my tongue- salivary glands im guessing. Nothing major- I just notice it a few times a day- anyone else have this?
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Hello I have tarsal tunnel syndrome which was diagnosed by a nerve conduction test. I go back to see my foot and ankle surgeon in three weeks
Does anyone else have this syndrome? If so how was it treated. So far all i know is mine is caused by bruising and possibly a fracture of an old injury.
The stabbing pain i get is at times is unbearable lasts only for a few seconds its like someone has stabbed me in the foot with a hot sharp blade and electrocuted at the same time. Also have tingling in my feet muscle spasms leading up to my knee all the time but more noticeable with online in bed at night.
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