-Eyelid twitching
-Smell/odor/chemical sensitivity
-Complete alcohol intolerance, like one sip will make you feel hungover
-Skin conditions (particularly plantar warts that won't go away with any treatment, and that are spreading)
I have an asian friend and everytime he drinks alcohol, not much, maybe 2-3 ciders, he seems normal drunk for a little while, like just running around for a little while except that he goes very bright red Then after about half an hour he suddenly collapses on the floor. We can't wake him up. Sometimes he will come round and open his eyes or talk for a little while but then he will lose consciousness again and won't be able to walk. Then he will sleep for around an hour and wake up completely normal. I know one of the symptoms of alcohol intolerance is flushing but haven't seen one of the common symptoms being losing consciousness. Do you think it is just alcohol intolerance or there is something underlying? He did drink quite a lot once and he also vomited as well as being very flushed and losing consciousness for a longer period of time
View 1 RepliesI was never a big drinker, but lately I can't drink vodka or tequila without immediately getting a headache and pain behind my eyes. I'm talking one, maybe two drinks and I feel miserable. Some beers have the same impact - I always loved a good stout, but now I get a headache before I even finish one. I can no longer go out and enjoy a few drinks with friends. (They love it - built in DD).
I was diagnosed in 2011 - and this intolerance to alcohol has gotten worse in the past two years. Is there a possibility that MS can cause this??? I can't imagine it would, but not sure what else could be going on.
I do not drink very often so I don't know if it's just because my body isn't used to to it but whenever I do, I only need a very small amount for these symptoms to show. Basically the corner of my eyes (either side of my nose) get really itchy and I also start sneezing one or two times a minute for maybe half an hour or so and also I get what feels like a grain of rice in my throat that feels like it's rising up and feels a bit sharp whenever I swallow.
View 1 RepliesI have Primary Sjogren's Syndrome but was born Hypermobile. It was only after my present Rheumatologist diagnosed that I have scoliosis that I started to research. I found the Beighton Scale and the Brighton criteria which I match completely. I explained my research to my consultant and she agrees. However while she and another consultant both agree I do have POTS so far I don't have an appointment to see anyone to help me. I have had ECGS and a bubble ECG but they have been taken while lying down. Now the POTS I really noticed post the birth of my last son 29 years ago is getting much worse, can anyone advise me as it has taken decades to get this far, I don't feel time is on my side
View 4 RepliesI went out for a meal with work on Saturday night and have been feeling under the weather ever since. I initially said I wouldn't go but it was a special evening and I really felt that I should make an effort and go. I only had one small beer and lemonade but the food wasn't what I would normally eat and I did feel stressed as I had to sit at the top table which made it difficult to hear and join in conversations. I went to bed about 11.30 and slept for 12 hours. I spent Sunday afternoon in my pjs and slept another 12 hours last night. My muscles have been really twitchy and jerky and my appetite has been down. Do any of you suffer in either a similar way or differently after going out?
View 46 RepliesI have suffered for the past 2 years with bad stomach cramps , diarrhea , and bad wind . this would occur every week and mostly every day . i went through the doctors and they just saw it as "oh you have Ibs there really isn't a cure just deal with it ". i knew for a while that it really wasn't just ibs but something more , i started looking at food allergies and decided to take a food intolerance test. They found out i had a really bad yeast allergy!!??. Does anyone suffer with yeast allergies?? i have started a new diet cutting out yeast and trying to cut down on sugary foods ( this is impossible!) however i do feel a lot better and i have been taken medicine to kill of the bacteria in the gut.
View 4 RepliesHaving been officially diagnosed with Sjogren's syndrome about a year ago, I think back on ALL the diagnoses I have had related to it: "nutcracker esophagus and severe GERD", "esophageal spasms", polyarthritis, fibrotic lymph nodes, fibromyalgia, Prinzmetal angina, benign parotid tumor excision (trabecular adenoma), dry skin, dry mucous membranes, etc. and now know they are all part of the same syndrome, which has been steadily worsening and becoming more malignant (and I am only sixty). There are many other more serious difficulties, but now I'm wondering if I, too, will get non-Hodgkin's lymphoma, since that is what some people progress into. It is NOT that this frightens me at all--but now there is something of which to be aware (and I'm not certain my M.D. knows of this). I also have glaucoma and cataracts--so I really have to protect my eyes (and I have had a vitreous bleed into one of them).
My ophthalmologist (a retinologist) placed upper and lower tear duct plugs in my eyes--which has helped, but I still have to use lubrication. Since I am a writer and use the computer extensively, I find it quite hard on the dry eyes. I am extremely careful to drink lots of water and often mix pure fruit juice with my water to avoid calories (sugar) and to make the water more interesting. This does, however, exacerbate my stress incontinence gained after fracturing my back--for which I stay close to a toilet (but my writing is done at home.)
Well, I've come across a new symptom. Not new exactly, just worsening. In the last 6 months or so, there does not seem to be a fruit that I can tolerate. No matter what I try, I end up nauseated and close to throwing up. Anyone else lose an entire food group before? And if so, did you get it back over time?
View 9 RepliesI'm trying to be diagnosed, my doctor is that loss, extreme muscle fatigue for 2 1/2 months and now I started twitching. Of course I am freaking out I could be ALS, I feel always exhausted as if a truck as one over me, I soon as I come home from work I have to take a nap, but Dr. mention CFS but he's very worried about the twitching , Any of you have CFS with twitching of the muscles?
View 18 RepliesMy dentist told me today that I need upper dentures due to Sjogren's Syndrome. Has anyone else had to get dentures and how did you deal with it?
View 1 RepliesAnybody tried it? I've just started. I'd been reading up on it on-line for some time. It's supposed to be the bee's knees for the whole sicca syndrome, and dry eyes in particular. As I was due to spend a few days in London last week, I debated getting some, but decided it was too expensive.
Then fate took a hand. As I haven't had dry eyes for months now, I didn't take my eye drops with me. That's the trouble with remissions - you forget you've got the wretched condition and get cocky! First night in the place where I stay it was a bit stuffy, so I turned on the air-conditioning for half an hour. One of those individual ones that blows air out fiercely however low you set it. I sat up in bed, facing it, watching the TV for just half an hour before going to sleep, but that was enough. I managed to get replacement eye drops the next morning, but now I'm in big trouble. Decided to invest in the sea buckthorn oil anyway, and have now been taking it for a week.
They say you're supposed to take four capsules a day for the first two weeks then cut down to two, but I'm being careful. Took one a day the first week, will start on two tomorrow and build up to four by the end of the month. I once had a terrifying experience on a low starter dose of Siberian ginseng. Just because something is "natural" doesn't mean it won't harm you!
Sea buckthorn is also said to be good for RA. The main ingredient is Omega 7, btw, but it also has Omega 3, 6 and 9 - though a different type of Omega 3 than fish oil. I'll be interested to see how that works out. I'm actually having an RA flare-up at the moment, but it seems to have peaked since I started my usual homeopathic treatment a few weeks ago. As I'm taking the oil alongside the homeopathic remedies, that will muddy the waters, of course. But I'll stay on the homeopathy for six months because it always works.
I hear you have to wait three months for Omega 7 to kick in, so I may be in for the long haul with the dry eyes. My right eye is already starting to bleed from a crack at the outer corner. We're having high winds here at the moment, which isn't helping things, particularly as my hips and knees have now improved enough to stand a 45-minute walk most days. I finally caved in today, and put on my wrap-around industrial goggles (provided by an optician in the UK). But I feel a right berk wearing them when walking around city streets - especially as it's not considered rude to stare in this country!
My mother has been diagnosed with Sjogren's syndrome. Her main symptom is dry mouth and someone recommended us product called Biotene. Is Biotene really enough to contain this syndrome?
View 1 RepliesI get bladder infections quite often. For the last year I've had 6. I get very sick with them. I run a high fever and am in alot of pain. They last for a couple of weeks. I have to take antibiotics for them and worry about having to take so many. Does anyone else experience this problem or have any suggestions?
View 4 RepliesI have had dry eyes for about 2 year now (I also had lasik in 2005). Within the last 4 months my have have gotten really dry. I have all 4 tear ducts plugged and I am on Restasis. I also use sclera lenses (more for vision but also helps the dry eye). My eye dr said he thinks I may have Sjogren's even though I have never has a Schirmer's test (I am not sure how accurate that would be since i have had lasik anyway). tested positive for ANA 1:80 titer with homogeneous pattern but negative for RF and SSa and SSb. Should I pursue this further? Dry eyes are the only symptom I have.
View 40 RepliesI was wondering whether depression is actually a symptom of this illness. I understand that it is natural to feel depressed when receiving a diagnosis of chronic illness, but my current mental state feels like something much more insidious and severe. I have never felt depressed in this way before, even when I got a diagnosis of another painful AI condition 8 years ago. I also know that mental stress can negatively impact symptoms so it is vital to 'feel better' quickly in order not aggravate the condition. I am not sure how to start to do this and wonder whether systemically something is going on that is affecting my brain chemistry to feel this bad.
View 11 RepliesI have had chronic bronchitis/sinusitis for years.
Had sinus surgery due to level of sinus issues.
I don't get a cold, I get bronchitis - pneumonia/pleurisy, etc.
I have cold sores on my lips often.
In june I was diagnosed with an eye ulcer - I have never had any problems with my eyes. Ophthamalogist did test and said my tear ducts have stopped working.
I have blurred vision and my eye sight is deteriorating.
Exhausted
Joint paint
Tingling toes and fingers
Migraines for years
CT of chest shows enlarged lymph node in lower right pre tracheal region 2.5x1.4x0.8 and they want to do another ct in march
sore throat and coughing they just prescribed prilosec for acid reflux and although I've never had heart burn or anything like it, it's working....
I have testing borderline positive for lupus one time and negative the next. 1:80 Homogeneous Pattern
RA factor was -9.0
Igg subclass 3 LOW at 21 everything else normal
No lyme disease
White blood count tends to be a little high
Seg tends to be at about 80%
Lymph tends to be low
SED rate was elevated
CPK was normal
First appt with rheumatologist on the 24 of Feb. any thoughts on what this could be? Sjogren's seems close but I have no dry mouth Would really appreciate it.
My daughter was diagnosed with Sjogren's Disease I was just wondering if there is anyone that has this Disease, and to inform me how they are living and coping with pain and day to day living. She is only 20 years of age.
View 1 Repliesi have had sjogrens since I was 41 years old, I'm now 74 . I've been told there's nothing can be done for it, it's just as I've got older I ache more and get extremely tired,I do go out walking with my dog to get some exercise, have a sit down , then do a few jobs , then sit down and so forth , sjogrens is not life threatening, but it changes your life completely .but it's nice to keep in touch with people who has this horrible condition.
View 21 RepliesI have been in pain for about 8 years now. Whole body hurts, mainly back, traps and neck. Dry mouth and down there where it matters. I never feel good, cant remember when last I did. Often dizzy, always very tired, I can't exercise at all, used to be a personal trainer and now I can't even walk to the shop. I feel dead and hating every minute of it. Don't have a lot of faith left in doctors as they have been giving me quite the run around. Now, I am on a mission to sort all this out, went for blood test, twice and both times came back positive for Sjogren's, but the Rheumatologist still doesn't think I have it as I don't have dry eyes. Can I have it without dry eyes? I don't even want to ask her questions anymore, seems like you not supposed to ask doctors questions, just sit, listen, accept and feel like poo for the rest of your life. I also have 0.00 testosterone.
View 34 RepliesI was told i have Sjogren's syndrome and now about a week ago i got this burning on top of my head and to be honest it is unbearable i need to know what can i do please help me it reach to the stage am always crying the burning is too much it feels like it is going inside my head and also i have alot of face pain.
View 1 Replies