I am having a da vinci robotic laparoscopic myomectomy on Tuesday and I am really scared. I am scared of the general anesthesia, I am scared of the pain meds and recovery. I am scared of not being able to do things. I am even scared of being scared. Anybody else go through this surgery that could ease my mind...only positive stories please I can't take anything negative.
View 2 RepliesI have very large fibroids, and I've been offered a few options by different doctors. The first surgeon I saw recommended open surgery. The risks associated with major open surgery are serious. The first, and biggest concern, for me is the risk of waking up without a uterus. I'm quite attached to my uterus. My second concern is the amount of time I'd be out of work. I freelance, and my job is very physical. I will not be able to return quickly, and I don't get paid time off.
I was not on any type of insurance when, March, I found out the problems I'm experiencing are due to fibroids, so I went on Medicaid to pay for medications. Several doctors have recommended that I go on Lupron, which is $800 to $1,200 a shot.
Being on Medicaid, I'm fearful that I won't get the same level of treatment post-op. A few nights in a hospital charity wing can be deadly. Let's face it.
I went to get a second opinion from a doctor who referred me to a the head of robotic surgery at the hospital. She told me my fibroids can be removed laparoscopically. I researched the procedure, and the surgeon I was referred to, and I'm on the fence about what I should do. The surgeon would need to break up the fibroid in order to get it out, and when the FDA began discouraging its use she was quoted in an article touting it. "It needs more research." Well, I'm on public assistance. I'm on public assistance and I'm not stupid.
I'm between a rock and a hard place here, because none of my options are good. Morcellation spreads cancer in 1 out of every 350 myomectomies, which is why the machine is being recalled.
Do I take that gamble? Open surgery sounds terrible, and it will set me back for a long time--and that's if everything goes right! So should I risk laparoscopic surgery and hope that I get on with my life safely, or do I get the traditional major surgery? My friends and family are pushing me to get a laparoscopic myomectomy but I have reservations. I've also been exposed to a lot of chemicals, because I'm a painter. I've since been more diligent, if not militant, about safety and protection... but exposure is exposure. I worry about it. Certain types of cancers do run in my family, ovarian, uterine, cervical, etc. not being among them. Other endocrine related cancers do run in my family, along with diabetes and endocrine conditions not related to cancer. My mother had endometriosis, and both my mother and sister would get ovarian cysts. I, however, do not.
I am 4 weeks post laparoscopic myomectomy.i have uterine hematoma of about 8 cm. I am anxious about it. Can it be reabsorbed by my body? Doctor said she will aspirate it If it will not get smaller. I still have pain even after i urinate. I have checked my urine for UTI but result was negative.. Am i in big trouble here?
View 1 RepliesHi I am 3 weeks post laparoscopic myomectomy. Few days after surgery I started noticing my lower back ache. The pain is in the middle, by the tailbone. Pain can sometimes also travel to my right leg. And also the pain is a lot worse when I walk or sit for over 5 minutes.
Unfortunately I can't take anti-inflammatory because I get a lot of diarreah from just 200mg. So I've been using a heating pad and just sitting.
Anyone had the same experience? What is causing this? Will this go away? What can I do to make the pain subside?
Well my date for my hysterectomy is in two days ( Wednesday) I'm absolutely petrified, I'm not sleeping and I feel so nervous.
Any advice from any of you lovely ladies would be so much appreciated right now. Because at this point in time I feel like running in the opposite direction.
I finally scheduled my total bilateral joint replacement for Jan. 15, 2014. As you can imagine I am very nervous. Just yesterday I had screws removed from my latest surgery on September 13th. Back on September 13th, I was to have undergone a bilateral arthrotomy with fat grafting but unfortunately I had some scary complications and that particular procedure was not done. I ended up having an exploration of the left neck, open reduction and internal fixation of the left mandible, extraoral vertical ramus osteotomy and condylectomy and an open left TMJ arthroplasty. Plus I had a left cranial base bleed which I was sent emergently from the OR to interventional radiology to locate and control and bleed and spent several days on a ventilator in the ICU.
Currently, my bite is so off to the left side that it is not even funny. I look like Rocky from the movie "Rocky" when he is screaming...."Adrianne!!" and his mouth is sort of way off to one side.
Can anyone out there who has had TMJ Concepts joints replaced lend me any guidance or advice? I am unable to chew and have been on a non chewing diet since March and am only able to open my mouth two fingers and talking hurts quite a bit.
I know I am making the right decision for me as I have been dealing with this for years.
So, I have my date! June! Excited and nervous all at the same time, I'm reading lots lately about swelling, pain and being off your feet longer than you thought. This IS a difficult surgery, and I know it's not going to be easy. Trying to put some positive vibes out, and remembering why you did this, is anyone brave enough to show off their tootsies? Maybe before and after? A lot to ask I know.
View 53 RepliesI am going in tomorrow to have my cyst and fibroid removed.could anyone tell me what happens once you get there.i have to go for 11 am an have been told I should go down by 2pm.
View 31 RepliesAll set for my TKR tomorrow - it may sound strange to some people but after such a long wait for this - I am really looking forward to this operation !! I have to be at the hospital at 7am and have been told that I am first on the list as type 2 diabetic - I am not worried about the pain post op as can be much worse than the pain this knee has dished out so far. Wish me luck - they are keeping me in for 5 days so will communicate again next weekend, with some positive comments I hope.
View 36 RepliesI am scheduled to have an abdominal myomectomy tomorrow morning and I am extremely nervous. I am 27, no kids and this would be my 1st surgical procedure. I am second guessing going thru with it but the pain I am experiencing is unbearable. I have two fibroid’s (one the size of an grapefruit and the other a size of an orange). My OBGYN advised against the surgery because of the position and it being too complicated. Now he wants to removed them because my condition isn’t getting any better. Does anyone have any advice?? If I continue with my panic attacks, I know for sure things will go sour!
View 7 RepliesI am scheduled to have an operation in June for an open myomectomy. I was prescribed Zoladex for 12 weeks before surgery.
Firstly I am scared of the side effects of the drug.
Apart from the medicine I am scared of having an open surgery and what I will do with myself during the 6 week recovery
Has anyone had an open myomectomy? How was it for you? Did you recovery quickly? How safe is this form of treatment?
I don’t even know if I should do it…I have 6 fibroids –largest is about 7cm. My gynae said since I have so many I am better off doing an open surgery. But I would really prefer keyhole. The only symptoms I have is pressure on bladder and basically looking pregnant.
Anyway I am hoping to hear stories from people who have experienced this and how they felt/what they recommend?
I just had a cystoscopy and it seems like I am headed for a TURP. My local urologist seems quite competent but I am wondering if I would do better with a large medical center perhaps equipped with robotic surgery like Da Vinci.
View 78 RepliesI had the LNF surgery three days ago and just wanted to tell you my experience of it all as I was terrified of the surgery and of the side effects afterwards - so much so I considered cancelling it at the last minute! I read a lot of information on the web in the days leading up to the surgery (good and bad) and was left feeling that even people with what seemed to be good experiences seemed to be having a very hard time. As it is so far I've been pleasantly surprised!
I had surgery due to a loose gullet which was confirmed via endoscopy. I opted to not be sedated so I could get the results these are then (if you're sedated you get them a few days later as you tend not to be awake enough afterwards to take in the information). The endoscopy wasn't the most pleasant experience but was over fairly quickly and something I could do again if needed without being nervous about it.
I then had all of the PH testing which confirmed acid reflux and the associated tests for swallowing that confirmed that I was a good candidate for Nissens.
Fast forward to three days ago and arrived at the hospital very nervous about it all and feeling like I wanted to back out. I'd read information on the web about bloating, not being able to burp, not being able to vomit, dumping, diarrhea, etc. and couldn't see how I could live with all of that afterwards! My surgeon was very dismissive of most of my fears (in a good way) and confirmed that not being able to vomit may be a side effect and short term bloating may be an issue but the rest of the side effects won't be an issue. I really trust the surgeon as he has always been very open with facts and statistics so was happy to go ahead with the surgery.
Feedback from the surgeon was that the surgery was very straightforward. He found a Hiatus Hernia which hadn't showed up before which he fixed as part of the fundoplication.
Since the surgery I've had a lot of discomfort in my tummy area but I've put this down to the holes that were made for the procedure rather than the fundoplication as it is very localised on the surface of my tummy. My lungs have been a bit sore since too and breathing in deeply has been uncomfortable but both issues have eased over the past three days.
In terms of eating and drinking I'd been told by the surgeon to experiment with textures to see what I can handle which is much better than the clear fluids for a week I was expecting. So far I have been able to drink water, squash, Horlicks and Decaf coffee without any issues. It takes a lot longer to get through a drink as there is a feeling inside like a funnel where liquids get backed up a bit when I swallow too much but there is no pain associated with this and it goes away after a few seconds. I managed to each half a bowl of Weetabix the morning after the surgery, moving on to custard, semolina and chicken soup over the past couple of days, none of which was strained. I'm probably not drinking enough due to how long it takes but my bladder and bowel movements are pretty normal so I'm not too worried about that at this stage. Also I am able to burp after eating and drinking. Probably not voluntary at the moment but when my body feels like it needs to it does. The same goes for passing wind too although there seems to be a lot more of that than usual!
So far I have no regrets about the surgery and feel that it was definitely the right thing to do. I expected the weeks after the surgery to be difficult but so far haven't suffered too badly. I'm self employed and work from home on a computer and am aiming to do a few hours this afternoon building up to full-time again next week, one week after the surgery. However, if I wasn't working from home I don't know if I could manage working in a office at this stage yet and definitely couldn't handle a commute via car, train, etc.
I hope you don't mind me posting on here a rambled question as I'm new to the forum and haven't contributed yet. I've read through several posts about Laparoscopic Ventral mesh Rectopexy and some not so positive outcomes, and my heart goes out to you all!
I had the LVR done nearly 6 weeks ago. I have had chronic constipation for 7.5 years now and have only just, this past year, been able to get anyone to take me seriously. I'm now 26, and have been through everything in terms of diet, water, exercise, toilet position, relaxation, supplements etc. I have been on Dulcolax daily; things like Senna or Movicol don't seem to do anything, and newer drugs like Prucalopride have been useless. I paid for a private consultation in Oxford follow my request to my NHS gastroenterologist for a transit study and defecating proctogram. I had a rectocele and intussusception grade with with full rectal prolapse.
On a side note, I have pernicious anaemia, folic and iron deficiencies, and was recently diagnosed with Hypothyroidism (after a lot of pushing!). I am being treated for all of these but the Levothyroxine for hypo isn't doing anything, so the GP has suggested some people look online for an alternative NDT...
Post surgery, I've been constipated as usual. The Movicol / Laxido did nothing on 2 sachets a day. 3 sachets a day and nothing happened either. Dulcolax did something, but it didn't work as quickly or as effectively as it did prior to surgery. Last week I called the consultant and he suggested I may have impaction and to take Citramag. I've done that this week and it was horrendous - 2 sachets and 8 hours later, and I was finally able to go. This was mostly with pushing my stomach out, massaging my stomach, moving around etc.
I feel like there's still some kind of obstruction because with laxatives I know there's something in the rectum, but it goes no further. Without laxatives, and I don't feel anything there; it's like nothing happens in the descending colon, there's no 'activity' that I can feel. Before surgery, the transit study showed all markers still in my colon as I didn't move my bowels at all. The markers were mixed, some made it to the rectum but many were at the top of the descending colon. I'm wondering whether it's possible I'm still 'obstructed' and whether my colon is even working (all these years having to take a stimulant laxative surely won't help!)
I was just wondering whether anyone has any thoughts? I'm exhausted, just spent all of the money I had to my name on this surgery and I feel like it's worse. I should have been looking to go back to work from next week but that's not going to happen with the state I'm in. I don't want to be on laxatives, and I feel these past 7 1/2 years have been a complete waste. It all seemed to happen over night that I became constipated as I'd never had any problems with my digestion before that (I was prescribed iron tablets and thought it might be those, so I stopped taking them but never regained bowel function).
I see the surgeon next week but don't know what I should be asking or what options I should look to explore. I can't go on like this and I'm sorry for the rambling and feeling sorry for myself, I'm just feeling very alone right now and pretty fed up.
I had a total robotic hysterectomy on 11/17/14. after my 6wk ok for sex, it was very painful, bleeding,watery dishcharge, felt something inside my vag. I went to dr. an he said I had scar tissue and possibly didn't get all my cervix(how is that poss)so he put silver nitrate on it and I went back 4wks. said I still had some so put more silver nitrate on.. went back 2 wks later, said it was all gone and didn't see cervix & I didn't feel anything either (was ok for sex)we had sex 1x and very easy. was painful but not horrible. haven't since until 4/28/15. it was horrible, bleeding, cramps, excruciating pain. deep thrusts especially. since ive had watery yellow discharge (some odor)again -so much its like I pee myself-not pee, and feel a hard, thin something inside vag. (tongue shaped)when i touch it or move it, I instantly cramp bad. I need to know what is going on, y I cant have sex (never had prob presurgery)could it be torn cuff? is that my cervix still left?
View 1 RepliesI am in a bit of a quandary is there anyone out there that has had their prostrate removed with the use of a robotic arm,I need to find out as much information as possible as I am thinking this may be the lesser of the two evils that they say I need. I would like to find out everything about the op and how it impacts on your life after, how long does it take to heal, how long do you wear a bag, how long before you can have sex or is that part of your life just a memory
View 8 RepliesI had a robotic hysterectomy Jan. 2010. I have had pain ever since. I have recently been diagnosed with nerve damage. Has anyone else had any kind of problems after the robotic surgery?
View 8 RepliesI had a month ago, a robotic assisted partial hysto, I have only my left ovary. I chose to keep in, being 39, I was not ready for hormone replacement therapy. So, I feel pain so bad, and a warm burning sensation in my pelvic area. I was feeling better a week ago, Now, back to the pain before, I had Endometriosis removed during my hysterectomy, and two loose staples (internal) from my surgery in 12-14-15 (appendicitis/Fallopian right tube removal). I was wondering is there anyone else having pain? I was told Oh you'll feel so good in a month after the surgery.....
View 1 RepliesJust got Gleason score 4+3
PSA risen from 17.8 to 20
plan for robotic radical prostatectomy in 3 weeks - has anyone else had this surgery?
24 year old and yesterday my hysterectomy has been agreed by two gynecology professionals one of them being the surgeon
And I have also had my pre-op assessment and am now just waiting for a date however the surgeon has said he will perform the surgery by robotic assisted key hole surgery.
And I was wondering if anyone else has had this type of hysterectomy and any I formation....
I had a total robotic hysterectomy 5 weeks ago. Sunday night had unplanned sex. It was not painful, I'd say uncomfortable. When my husband ejaculated, it burned!
Today, Wed. Still burning, uncomfortable and frequent urination.
Does this sound like an infection? Or irritation because it was too soon.
I even resorted to using hydrocortisone last night because it was driving me crazy and I could not sleep.