Sarcoidosis :: Crazy Itching - No Allergies
Dec 12, 2015
I have lumps in my lower legs, shortness of breath (COPD) that is getting worst, even though I haven't smoked in a year. My eyes are not affected, just had them tested. I have been on leflunomide 20 mg for 2 months and lumps are going away. Doctor also put me on O2 at nighttime. My entire itches and that is driving me crazy, I take a baths only every 3 days, and have used all kinds of skin cream, nothing works. I have itches for 5 years, not allergies, that has been ruled out. Sometimes I itch worse than other times. I have also had all kinds of blood tests and the results always come back being OK.
View 11 Replies
Advertisement
My Urticaria started in August this year and no-one can be bothered to really help until I had gone through 2 lots of steroids and now 'the strong' prescription antihistamine at night but shop bought I have to take 2 in a morning!!! nothing is working !
Is there a cream to help because Calamine doesn't help at all... At this moment I have it on my right arm on the backs of my legs and my back but the worse is my feet on the tops they are itching like mad and I could cry...
2 weeks ago my right arm was swollen from my wrist to the top of my arm and it felt all stiff...
View 3 Replies
I'm on meno and no period for 2 years. Out of the 37 meno symptoms sort of have 25. I'm GAD diagnosed and feel like i'm losing my mind. For the last 2 weeks i'm itching like crazy especially under/on my boobs sides and armpits. I'm a DD and it is summer here. It gets worse when i sweat but yet there is no rash or redness only redness when i scratch which i know i shouldn't. Its so embarassing. I tried coconut oil and fungus ointment which helps a bit but still itching.
View 1 Replies
I have become allergic to something recently. I get itching sensation on hand , knees and other parts of body with small rashes. It disappears after sometime. My doctor prescribed me Exofen ( fexofenadine) tablets and dermovate cream.
I have finished 10 tablets ( 2 a day). Now again I had the itching sensation.
I am trying to find out which food I am allergic to. I eliminated mushroom , then egg. The problem persists.
View 1 Replies
I LOVE fruit bananas cantaloupe watermelon apples tomatoes oranges cuties but ever since I turned 12?? My mouth starts itching on the roof of it and my tongue then my ears (inner part) starts itching like the eardrum please what's wrong with me?? It first started with tomatoes is there any cure? Any way to stop the itching once it starts? Could there be any more food I'm allergic to?
View 1 Replies
I have been very unwell for sometime now and have had numerous tests for different things including TB and now Sarcoidosis. Reading what people are saying on here is very uplifting.
When I went to see my consultant again a couple of weeks ago I still did not have a clue what was wrong with me. He then said ok let's go with Sarcoidosis, then you ask what is this and he comes back with Granulomas, small tumors on you body organs. Ok here goes I then ask is this a condition for life will it go away? He said that we will discuss this when you come back next time after putting me on six steriods a day, which I have been taking and have now put on 5 pound in weight.
I am a very happy go lucky lady and will be 49 in May.
The posts that I have read in most cases have been positive.
It is now 3.54 in the morning and not for the first time I am waking up in the middle of the night for a couple of hours then getting up and going to work. Will the mortgage get paid if I don't go to work and would I be covered by critical illness. Such worrying times.
View 5 Replies
does anyone get a very hot head
I feel dizzy and hot but when I put my glasses on the top of my head and take them off it's just wet having to wash my hair every day sometimes morning and night.
View 1 Replies
Just been diagnosed with sarcoidosis of both lungs. Also have Fibromyalgia, Asthma and various other medical problems.
Had bronchoscopy and biopsies on Tuesday, felt every one taken from my right lung was in complete agony. Had x-ray 2 hours later and was told there was no pneumothorax and sent home.
On Wednesday I was in a lot of pain, but as I was seeing my consultant on Friday decided to wait to see him and it had subsided somewhat by then. Told him about the pain and he sent me for another chest x-ray which confirmed I had a pneumothorax, which he said would heal on its own.
I have to go back next week for another x-ray to see if it has healed.
He said that he wouldn't prescribe steroids at the moment and will be sending me for another lung function test in the next 3-4 months to see how things are going.
Just feeling very tired and slight pain from the pneumothorax.
View 1 Replies
Has anyone looked into treating the autoimmune part of sarcoidosis, if so, what was the outcome?
View 17 Replies
Well I had a small boil on the inside of my nose for months and it just wouldn't go away. I visited my NHS Dr who prescribed some cream, nothing happened - he advised to continue using it and suggested perhaps getting it cut off. Anyway I visited the Dr at work who advised getting it cut off which I thought would be end of it. But to my dismay they did a biospy on it and found out it was Sarcoidosis. My mum has this so I was aware of it. I was devasted. This followed with CT scans, lung test, blood test which confirmed Sarcoidosis on the lungs and enlarged nymph nodes. After a long consultation it was decided not to treat it yet as I had no other systems. But a couple of months later I developed a cough, two months later I am still coughing and on exertion (netball albiet quite a bit of running around) I end up having a sort of ashtma attack. Anyway to cut a long story short this is all related and have been prescribed steriods and some other stuff to counteract the side effects. I am really reluctant to take them but after reading the different views on this site with all the different effect I feel I should start taking them (waiting for the NHS to reluctantly prescribe them) before it gets worse. I am wondering now if I have had this for ages as the symptoms of tiredness, aching neck and shoulders I have always had but just thought it was me. My mum was diagnosed 20 years or so ago and it has only just flared up again but in the bones of her ankle. She has trouble breathing which they have said is asthma...
View 1 Replies
I recovered from stg 3 Sarc (in lungs, lymph, joints, sinus) 13yrs ago, after 5yrs of illness and 2yrs of steroids.
I now have Erythema Nodosum (sp?) - red painful bumps on lower legs.
Research suggests that 'EN' is associated with a specific version of Sarc, Lofgren syndrome, which is usually resolves quickly and without treatment.
I'm scared to go to the Dr, as I don't want to face the tension & round of tests to exclude a Sarc relapse. It's not something I want to go through again...
I wonder if it's very likely for a relapse to come with a whole new presentation of the Sarc? Or is it unlikely to be sarc, as I never had EN the last time?
Does anyone have any experience or advice which may help me decide what to do?
Best wishes to all who are currently battling with their Sarc, I truly understand your pain and your exhaustion. I was not expected to recover last time - but I did.
View 4 Replies
Due to Sarcoid I have an enlarged spleen & liver. It seems that other sufferers have the same problem. Question; has anyone found a solution to this problem. I have not heard any discussion on this topic ever?
View 2 Replies
I had a Mri scan for back pain, result found 2 small nodules in lung. Seeing specialist in July, I get a little short of breath and a little wheezy at times nothing to alarm myself, but I have terrible fatigue also have red lumps on forehead chin and buttocks. Worried this could be sarcoidosis my father had this sadly died 26 years, I have read different views on this being hereditary, so worried seems ages till July I am female age 55 & a smoker, any thoughts ?
View 32 Replies
What can i do about this heart burn!! Its serious and i cant deal! I like spicy foods they are what i crave the most!! But this heart burn smh
View 7 Replies
The past few weeks I've been having such crazy, weird dreams. My friends passing away, my boyfriend leaving me, seeing exs', it's just been so weird to the point it's quite emotionally disturbing. Has anyone else had this?
View 1 Replies
I've been on 50mg sertraline and 80 mg propranolol for over a month now, for bad social anxiety and depression. I only take the propranolol in the morning before i go to work or if i have to go out somewhere or if i have visitors coming etc, so i only take one of those a day, occasionally 2. The sertraline i also take in the morning. I have started to notice a slight change - on some days at work i feel almost like a normal functioning human being and i am actually able to talk to people and be around people without having a complete irrational meltdown. Yay! This is not every day, i still have bad days and i still feel very low but if it is a sign of things to come i am feeling rather hopeful. Side effects haven't been too bad, the worst one i would say was the tired feeling and just feeling very out of sorts sometimes, kind of dizzy and fuzzy headed, off balance etc. But now i have started to have really crazy dreams every single night for the past week or so. I am managing to sleep eventually, although it does take me a while to drop off, but it's just the dreams now. Not nightmares as such, just absolutely weird and crazy dreams, every single night now, is anyone else having this problem?
View 4 Replies
Recently I've been having constant aches in my neck and head. It's been going on for a while and I still don't feel myself it's so hard to explain I just feel empty and numb, this has been going on for over two months. I don't know why I'm still feeling like this, I've seeked help and see a therapist, I take medication but my thoughts still scare me. For some reason I've got it in my head that I'm not okay and something is seriously wrong with me, Iv convinced myself that I'm going to end up in a mental institution, I'm so paranoid about my mind I can't concentrate on anything. It's stopping me from having fun. I'm so scared and worried I don't want this illness to send me crazy.
View 3 Replies
Does anyone else have such crazy realistic dreams while being on citalopram ? I feel like since I upped my dosage to 20 that they are getting crazier...
Whatever I do or think about that day or before bed I dream about it.
View 2 Replies
I've been on lexapro for about 2 months now and the dreams are driving me crazy, they are waking me up every night now and really affecting my sleep/work..do they ever go away or is there anything I can do to help them?
View 3 Replies
does anyone have calf muscles that are constantly going crazy painful and keeping you awake
View 1 Replies
Here I am again like a broken record but just don't know what to do. I woke up today nervous and jumpy. I was so nervous that I made my heart race and called the paramedics. I felt fine once they got to me which in turn made me feel like a crazy person yet again. I have called the paramedics or ran to the ER so many times that I'm scared they won't come when I really need them. I just can't help it. When these crazy feelings come on the anxiety just overwhelms me. The fluttering in my chest, the internal tremors, weird head feelings, the flu feelings, the fluctuating body temperatures is just all overwhelming. Today I just can't seem to shake this nervous and jittery feeling. I ended up turning around to come back home on my way to work. I just didn't want my coworkers to see me acting like a crazy lady today.
View 93 Replies
