Recently Diagnosed COPD - What's Your Experience?
May 9, 2015
I was diagnosed two weeks ago. I was told you have COPD, use these inhalers and we will see you in three months and duly sent home with printed material to read. Freaked out the whole week, hardly slept and felt upset after I googled and read what COPD is and the affect it has. I feel I have been left to get on with it..Should I be seeing a specialist at the hospital and having chest X-rays? What's your experience been?
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I've recently been diagnosed with Fibro although I have suffered many years now that I have a diagnoses I suddenly feel completely overwhelmed with everything. I have 5 children and my husband is supportive where he can be. I'm really struggling with things I can no longer manage as I have always been so independent the thought of having a carer coming in to do my jobs really upsets me. Does anyone else feel this way??
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I was diagnosed with Bells palsy 1 week ago, 5 weeks after having a baby! I was on a steroid dose pack and antiviral meds for a week. I've started having excruciating pain behind the ear on the affected side. It's so bad especially at night. Has anyone else experience pain?
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Have any experience of a Breath Easy group. I believe they are run by The British Lung Foundation. There does appear to be a local group for us. My husband who has just been diagnosed with COPD is not keen on this sort of thing but I thought I might give it a go. Does anyone know what goes on at these groups.
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I am a 50 yr old man who has recently been widowed. Is it normal to have wet dreams? It seem kinda weird.
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I'm on the start of day 5 now after my tonsillectomy and in the worst pain imaginable, I was aware the procedure would be painful but nothing like this did I ever imagine, the mornings we the worst, waking from my sleep with no pain resistance at 4am is horrible.
I would really like someone to help me make a plan so I can manage my pain relief better so I don't need to be in so much agony,il list below the medicine I have and the daily dosage told to take:
Paracetamol 500mg take 2 upto 4 times a day
diclofenac/volterol 50mg take 1 upto 3 times a day
codeine 30mg take 1 or 2 upto 4 times a day ....
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I have COPD along with CHF. My blood pressure is normal. Have only 20% use of mitral valve. ( Cardiomyopathy). I was put on 60 mg of Furosemide (Diuretic) then 2.5 mg. Then after 2 months I am now at 7.5 mg.
My question is I have a constant cough, pulling up mucus. It starts with a real itchy throat and then the coughing. There is no relief. It goes on for anytime 7 to 15 minutes stop and then starts again. At night it is worse.
I am afraid that my COPD will get worse. Please let me hear from you if you have the same problems.
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I am a carer for my Hubby, who has Pleurisy at the moment. I am his carer & I am meant to be going into Hospital for a hip operation. I am full of acute Anxiety myself as I need to get my Husband better. He is on antibiotics and strong painkillers as well. He also suffers from arthritis and also is deaf & severely sighted.. I am giving him hot fluids as much as possible.
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I know a lot of people that have cold extremities and they don't have COPD. My adoptive Mom was one of those people. Her hands and feet were always freezing cold and she did not have COPD. I've had cold feet and hands all of my life long before the diagnosis of COPD.
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I was diagnosed with copd two years ago and use a serovent inhaler twice a day and have a ventolin for back up. This is my second winter since being diagnosed and the cold weather seems to be affecting me more this year. My spiro test in January showed a slight improvement but generally l feel more breathless and l wondered if maybe l should ask for a change of inhaler. Does anyone know of an alternative to serovent or is it just the weather making me feel worse.
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i was lying down on my back last night and suddenly felt my whole chest (lungs maybe)inflate. Does anybody know why this happened as its happened quite a few times recently? This left me really gasping for breath.
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i was diagnosed with Emphysema in February and am having further tests. This has all come at me so quickly and caught me off guard. Is anybody else suffering with these headaches?
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i am 25 years old, i have been suffering from breathing difficulty or not able to take deep breath problem.. all day i feel like taking deep breath. but when i try for it.. am not able to take deep breath. during night time i sleep normal.
what could be the reason. anybody pls help.. my Xray CT scan all normal.
could this be psychological problem. doctors trying to say that also. if so. how to recover from this.. it feels like i don't have any life without solving this problem.
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Anyone get sore throat? I have a bad one. I read that it could turn into strep? Or just common? Remedies at all?
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I foolishly went back to smoking a while back because I feel BETTER when I smoke. I stopped, but get tempted because my breathing is much better when I do! I know it is insane, but has anyone experienced this? When I quit My breathing was much worse. I think it has to do with waking up your lungs, clearing them out, so you become sob. But I swear when I did smoke, I felt fine! So crazy.
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I gave up smoking at new year, just over two years ago. My dad died from emphysema when he has 60, and i always said that if i ever got a cough that reminded me of my dad i would quit. It got to the point where i was coughing myself to sleep each night, and i realised this wasn't just a cold that was going away, so i set myself a smoking deadline of new year (this was in the autumn) and did just that. Well 90% of my cough went away virtually overnight, but i was left with a niggly throat clearing thing, which wasn't too much hassle. Felt pretty good, and pleased with myself. So anyway, a couple of weeks ago i was doing a meditation app, and the instruction was to take a deep breath and hold it. It kind of took me by surprise, and the next day my back was hurting. So i made an appointment for the docs and she booked me in for a chest x ray and prescribed me a peak flow meter and some ventolin. 3 times a day i have to do a best of 3 reading, take two puffs of ventolin, then twenty mins later do another best of 3 reading. After three days of doing so i'm feeling constantly breathless, worse than i ever did, i still have that pain in the left side of my back, and i am sure now that indeed i have emphysema like my dad. I feel like crying all the time yet i'm putting a brave face on for everyone. I don't have any kids, and my boyfriend still smokes in the house. I try not to be around it, bit it's only a small house and difficult to avoid. He didn't see the long horrible death my dad had, both his parents are still fit and healthy. My morning peak flow reading is 350 and the other two (noon and night) are roughly 370 with hardly any difference from the ventolin except i think its giving me a dry throat. I guess my question is, has anyone else had COPD from age 40 and still lived a long time? How bearable is it? Because my dad carried on smoking quite far into his (he gave up when he went on oxygen) i'm finding it hard to expect anything different than he got. Also is it possible for the peak flow tests to be making me breathless?
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Had chest xray done .I have no cough slight out of breath has I have asthma. doctor's have now told me I have mild change if my lung copd.when I asked does this mean I have the decease she said it might just be from the damage from smoking all those years ago.am so worried and stressed. does this mean this is the beginning of a death sentence? not sleeping or eating.
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I went for a CAT scan for my heart and it was discovered that I have two nodules measuring 4mm in each lung. I haven't seen the doctor as yet. Has anyone experienced this and what was done for it? I am quite anxious.
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I have recently been told that my diaphragm is not working properly and this could be the cause of my constant chest infections. Does anyone else have this problem?
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I have been recommended to use NAC as a COPD therapy so I guess I would like to hear something about this medication. Will it works, what are the possible side effects. I have also heard that if you are using it for a long time, combining it with copper supplements would be a smart thing to do. Why is that?
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I finally received Atrovent and a nebulizer yesterday and I may be crazy or just overly excited but I think I can tell a big difference already. Pharmacist said it was fast acting. Anyways, was going to clean house and light candles like normal and didn't know if there are certain smells I should avoid. Other than the obvious, smoke, fumes, etc. More like fragrances.
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