i have Raynauds. I am not taking any meds so far. It is more related to anxiety then cold. But cold affects as well. It started in my hands but now seems to be in my feet. They get white and blue. And when I wear shoes my feet get numb. I've had all the tests for diabetes and nerve damage and that's all negative. I'm healthy. I run outside for 38 years. I don't drink or smoke. Drs don't believe this is from Raynauds but I do.
View 1 RepliesIf someone in your family has raynaud's should I be tested.
View 5 RepliesMy partner got this the same time as me. Is this something that normally happens?
View 3 RepliesLet me tell you I had full blown Raynaud's. I'd need roughly one hour recovery from an attack. Blue fingers white fingers, pain - the lot. I've got low blood pressure so I can't take medication. I have to go to hospital for a week for iloprost infusion. Anyway let me tell you what cured me. I take 3 pills. Butcher's broom, odorless garlic and gingko biloba. I had been taking just Gingko (which didn't work) but I was advised to take Butchers Broom in Holland and Barrett, they also said buy fish oil but I didn't like the thought. Anyway, it's only been 5 days but you could describe me as having bad circulation now but not Raynaud's. I've washed my hands with cold water, gone out without my mittens and I'm ok. I went to an event and minutes after entering I was shaking hands. My hands were warm!! You cannot imagine what it feels like to not have cold hands anymore. I was ready to saw my fingers off. This 'spring' has been awful but now I'm no colder than anyone else . Please buy these natural remedies, it'll change your life.
View 25 RepliesMy doctor put me on nifedipine 30mg for my Raynauds but was not helping. So she put me on Diltiazem 60mg has anyone been on this for there Raynaud's? If so have you had side effects like your insides are jumping around and jittery/shaky hands?
View 1 RepliesI was diagnosed about 4 months ago. It was a discussion about my symptoms but no tests were done and I was prescribed Nifedipine but like many, I suffered nasty side effects so stopped but I didn't feel that it helped my pain. I have never had the colour changes or swelling and I never have any pain at night. When I first get up in the morning my feet feel perfectly normal but once I have been on my feet for 10 minutes or so I feel them start to feel sore and as the day goes in the stinging gets more severe and is coupled with severe aching in the balls of my feet and episodes of them wanting to cramp. Does this sound like Raynaud's?
View 1 RepliesI have had raynaud's for a couple of years now I get no break from it at all I have primary raynaud's I have ulcers on my toes chilblains on all of my fingers i'm in constant agony i've tried medication to no effect nifedipine /losartan/amlodipine and just last week had an iloprost infusion up to now no effect I was wondering does anyone else have it this bad
View 1 Repliesat night difficult to be relaxed...also have bursitis in hips....tingling and numbness on both feet, the right one is much worse and even goes into my hands a little. feeling off balance This discussion is related to Right Leg & foot pain and numbness.
View 1 RepliesIi have purple/blue with white spots on my legs,feet, and hands. i get numb feelings in them and fall asleep easily. i am very tired all the time. i am starting to get depressed more easily. i have joint pain in my hips fr about 2 years now. i have high blood pressure and found out birth control can cause more reactions (i am on birth control).
View 3 RepliesAlso have a dull pain on right side of abdomen. And, get tired easy. I would say this is a bit of low iron symptom would you?
View 2 RepliesI've been taking duloxetine 30mg for 2 weeks for anxiety. I've been noticing my feet - mainly my toes will go numb for no reason. Also, if I'm cycling to work and it's cold they will get very cold and stay numb for a long time afterwards (very unusual - the weather's much better now than it was a month ago). I've also got chilblains on my toes. Also I get burning feet at night time which drives me crazy! It keeps me awake and I have to sleep with my feet out of the duvet.
These side effects aren't as bad as sickness and insomnia etc (which I got with citalopram) but I'm worried as they are not on the side effects list I was given. I noticed that duloxetine is actually supposed to treat numb and burning feet in diabetics with nerve damage. So I'm slightly worried that this drug is having adverse effects on me and actually giving me nerve damage!
I have been diagnosed with WG and am on the usual medication.
WG attacked my nervous system. My feet are swollen and movement is painful. At night the swellings subsided but the moment I get up and move around the swelling flares up.
My hands have also been affected. The fingers are dead, no feeling and no muscle movement possible - cannot use the left hand at all. The right hand I can still use but the skin feels numb.
I am 14 nearly 15 years old and for as long as I can remember i have had this problem and my father also has the same problem but I seem to have it on a much larger scale.
My feet do not warm up naturally, even in bed at night they are freezing cold and if it is cold outside my feet are purple and I have very blotchy looking skin on them and my hands, when they are like this they look like the feet of a dead person.
Also, when it is cold, my hands go white, purple, and then bright red. They are numb during this and when they become bright red, my fingers swell slightly and it looks like they are about to burst. Also at this point, if I touch my hands or fingers together, they will sting and the pain is unbearable, it feels like stepping into a hot bath after being in the snow all day, but 10x worse.
I haven't yet been to see a doctor although I know I probably should. The problem with my hands doesn't affect me unless it is unusually cold, mostly during the winter and the problem with my feet is constant, during all weather and all seasons. I have had multiple friends and family members say it could be circulatory problems but I am yet to know for certain
I have the SLE-Raynaud's-Sjogren's package of auto-immune illness (listed in the order of diagnosis). The Sjogren's is the latest and most burdensome flavor of the decade for me. I was diagnosed with it about 3 years ago but was probably suffering from it for several years prior before the symptoms persisted enough to result in a diagnosis. I guess that's typical. It was with the SLE and the Raynaud's.
I can't imagine it could get any worse, but I get the impression that I might be "early" in the cycle and that scares me. No tears, corneal erosions, no spit, heroic (expensive and painful) dental treatments to save teeth that may already be doomed, pain, fatigue. Little annoyances that by themselves are "nothing" all together its a spirit crusher. Can it possibly get worse?
I was diagnosed with raynaud's back in 2010, but have suffered for about 7 yrs - I'm currently 36. I suffer with typical raynaud's in my hands & feet, they get cold whether it's been outdoors to walking in the fridge isle of a supermarket to holding cold cutlery and now even when I get out of the bath/shower. Back in 2010 my bloods tested positive for the antinuclear factor, so it suggested I had a connective tissue disorder, but with no other symptoms other than raynaud's was left as that. However, I've recently started getting pain in my finger joints - the pain is unrelated to when I have a raynaud's attack. I've been referred for further bloods & X-rays. Anyone else suffer with secondary or similar to my symptoms?
View 2 RepliesI have trouble writing, cooking, even sleeping and living a normal life generally due to my cold hands.
Has anyone found and eventually bought any gloves that helped hands get warmer and be able to work with them on as well?
I am a student and I have great trouble to do my work.
Let me introduce myself as a 57 year old male living in Minnesota. We are currently experiencing one of the longest sub-zero cold spells in my memory. 55 days below zero degrees F already this winter. Yes it is very COLD.
Twenty five years ago, in my early 30's, my fingers began blanching white while carrying items during summertime. I was frightened when several visits to the doc hadn't helped. Carpal tunnel syndrome was ruled out. At that point a neurologist asked if I was a smoker. Yes I was, two pack-a-day. He looked at me very pointedly and told me I'd better quit smoking ASAP. I was crushed, I had tried many times to quit cigs to no avail. I looked down at my white fingertips and bluish toes and decided to quit then and there. That was my last cigarette. Sept 1989. Miraculously, I never saw a white finger tip or blue toe again.
Twenty five years later my left hand has been suddenly reminding me that there is still an issue. Two or three fingers remain cooler than the others and will empty of blood when carrying parcels, or squeezed. Slowly the pink returns. I do not smoke. Hopefully that will keep the symptoms limited.
Someone had posted that what affected you in youth is probably gonna come back to haunt you later in life.
Young people with raynaud's; Quit smoking! Don't move to arctic climates, either.
Is there anyone who has both these conditions? And if yes, do they flare at the same time?
I have had raynaud's since a child (am now 57). I think erythromelalgia has been gradually getting worse since perimenopause began in the early '90s.
But only over recent years has this gradually gotten so bad that I'm relatively lame and housebound
My feet, hands and face are affected. The feet are worst. The NHS rheumy tried my on low dose vasodilator which had to stop cause it made all my symptoms much worse, apparently permanently.
When both conditions flare together my feet are sort of the colour of raw meat. This has been happening daily for nearly 1 year.
The erythromelalgia association website is v helpful, but even on the raynaud's & scleroderma org website it's hard to find anyone with EM, let alone both EM & RP.
If you are out there and have any tips for how to manage these 2 conditions.
I read on the RSA website that Magnesium supplements may be useful in Raynaud's. Anyone got experience of using it, and how much to take?
View 2 RepliesI've been having various health problems over the past 8 months. However, one symptoms that I have been having is purple knuckles. I was curious to know if anyone has raynaud's only in their knuckles? It heavily affects the top knuckles closest to the wrist, especially the one on my pinky. However, all the knuckles have been affected at some point. The main reason I don't believe it's raynaud's is because it doesn't affect the top of the fingers at all and I don't have any other color change except purple. It doesn't happen every time I am cold and they don't seem to hurt or tingle when they change colors.
View 3 RepliesAs a chronic migraine sufferer i'm just wondering if there is anybody else who also suffers both migraine and raynaud's? Maybe some sort of connection?
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