My doctor put me on nifedipine 30mg for my Raynauds but was not helping. So she put me on Diltiazem 60mg has anyone been on this for there Raynaud's? If so have you had side effects like your insides are jumping around and jittery/shaky hands?
View 1 RepliesI was diagnosed about 4 months ago. It was a discussion about my symptoms but no tests were done and I was prescribed Nifedipine but like many, I suffered nasty side effects so stopped but I didn't feel that it helped my pain. I have never had the colour changes or swelling and I never have any pain at night. When I first get up in the morning my feet feel perfectly normal but once I have been on my feet for 10 minutes or so I feel them start to feel sore and as the day goes in the stinging gets more severe and is coupled with severe aching in the balls of my feet and episodes of them wanting to cramp. Does this sound like Raynaud's?
View 1 RepliesMy daughter has tried the Diltiazem cream again recently - but this time she has come out in a very itchy rash so had to stop this. I spoke to the pharmacist & they have changed the brand of Diltiazem tablets they use - so I am wondering whether she is allergic to a different ingredient that the different brand is made from ? Again if anyone has had this issue - please reply. She has been getting some relief (after painful bowel movements) with a warm wheat bag (it is long with 3 sections - so can be moved to fit the painful area) I have just been reading about Nifedipine suppositories - does anyone have any experiences with these ? Thanks for any info - in fact it is so helpful to read anyones stories of what works/doesn't work
View 10 RepliesI'm 36 now and was diagnosed with Raynaud's when I was 16.
The last few years I have slowly been getting worse. My hands and feet are always blue regardless whether I'm hot or not,changing colour (red,white) depending on the temperature. The aching joints are better as I put myself on cod liver oil and have been for a year and a half. I've also been going to a gym for that time too.
Does anybody else get excessive sweating! I have had other medical problems and I wasn't sure whether the sweating was connected to that or this but my GP has said it's a part of this.
My problem now is the swelling in my hands whenever I use them. Gripping becomes hard work and simple chores such as peeling veg! I am also so tired all the time. I swear I could sleep on a washing line!
My GP put me on Nifedipine (Coracten) but I can't stand the side effects. This is the second one I've tried and I am going back this week to see if there is another to try.
I am not giving up I want a full a life as anyone and not to look too freaky with blue extremities. I am going to keep trying with the GP until it's all been exhausted.
If someone in your family has raynaud's should I be tested.
View 5 Repliesi have Raynauds. I am not taking any meds so far. It is more related to anxiety then cold. But cold affects as well. It started in my hands but now seems to be in my feet. They get white and blue. And when I wear shoes my feet get numb. I've had all the tests for diabetes and nerve damage and that's all negative. I'm healthy. I run outside for 38 years. I don't drink or smoke. Drs don't believe this is from Raynauds but I do.
View 1 RepliesMy partner got this the same time as me. Is this something that normally happens?
View 3 RepliesLet me tell you I had full blown Raynaud's. I'd need roughly one hour recovery from an attack. Blue fingers white fingers, pain - the lot. I've got low blood pressure so I can't take medication. I have to go to hospital for a week for iloprost infusion. Anyway let me tell you what cured me. I take 3 pills. Butcher's broom, odorless garlic and gingko biloba. I had been taking just Gingko (which didn't work) but I was advised to take Butchers Broom in Holland and Barrett, they also said buy fish oil but I didn't like the thought. Anyway, it's only been 5 days but you could describe me as having bad circulation now but not Raynaud's. I've washed my hands with cold water, gone out without my mittens and I'm ok. I went to an event and minutes after entering I was shaking hands. My hands were warm!! You cannot imagine what it feels like to not have cold hands anymore. I was ready to saw my fingers off. This 'spring' has been awful but now I'm no colder than anyone else . Please buy these natural remedies, it'll change your life.
View 25 RepliesI have had raynaud's for a couple of years now I get no break from it at all I have primary raynaud's I have ulcers on my toes chilblains on all of my fingers i'm in constant agony i've tried medication to no effect nifedipine /losartan/amlodipine and just last week had an iloprost infusion up to now no effect I was wondering does anyone else have it this bad
View 1 RepliesI have being in and out of the hospital for my asthma. But for the last month or so my hands/fingertips have been going White on me it will do this when I'm outside or when I am at home or in bed sleeping. I wake up with pain in my feet and my fingertips. My doctor thinks it may be Raynauds but does not understand why it's happening when I am sleeping or in my home. Can I get some people's thoughts on this? and if it is Raynaud's what can I do to help myself with the pain in my hands/fingertips feet?
View 1 RepliesI was on diltiazem (cartia) for several years. It eventually raised my blood sugar level and I was diagnosed with diabetes 2. My blood pressure was not going down, so they took me off diltiazem 240mg, and put me on lisinopril 5mg.
The lisinopril gave me a dry cough, so I was put on losartan 25mg. I asked why not 5 mg and my NP told me because it doesn't come in 5mg....
My wife had a bladder infection (the second within a month) and was prescribed a 7 day course of trimethoprim. On the 7th day (having taken the last tablet) she began vomiting and shaking - within 10 minutes of this starting she become disorientated and lost her memory. She was immediately hospitalised and given a MRI scan of her brain plus various blood and urine tests but all tests proved negative. For 24 hours she suffered from extreme short term memory lose. She could not remember events that had happened just 10 seconds before hand. Very scary. I have found this web site on the second day and am relieved to see she is not alone and that the events she is experiencing are probably related to trimethoprim. 36 hours later she is still bed bound (now back at home) and has a bad headache and hot/cold sweats, neck pain and diarrhoea. Sleep seems to be the best aid but she is finding it difficult to sleep as her brain is a hive of activity trying to reconstruct the lost bits. The only drug she is now willing to take is paracetamol which helps a little. Thankfully her short term memory is now working again. How this drug has obtained a licence is a question that needs to be asked
View 1 RepliesMy son 16 years 10 months of age had a seizure this morning while partying post school exams with his friends wherein they had food from KFC, played XBox games, watched a movie and gossipped till 330 a.m. The seizure happened soon after he was woken up at 8.30 a.m. to be taken home from his friend's place. His whole body was shaking, fists were clenched and he was drooling. It lasted for close to 45 seconds after which he slept for 10 minutes; then woke up and could talk normally. He of course doesn't remember anything happening to him.
Previously he had febrile seizure at age 4 for which he was treated & had never had an episode since then.Then, he was on a dose of Valparin which was stopped at Age 6 after two incident free years.
This incident has left me worried & tense. I would like to know from you how serious this might be and what are the next steps.
I am a mature adult female, I drink heavily. I'm a functioning alcoholic. I do not drink before work or when I have an appointment. But after I'm done for the day I often drink to the point where I cannot remember the next day. I have developed a tremor, that's an easy way of saying it, I shake during the day. Even after I've had nothing to drink for 4 or 5 days it persists. This is something that I noticed with my mother, who was also a functioning alcoholic later on in her life. I noticed it later on in her life. I'd like to know, is this a given for alcoholics or should I be looking for a deeper meaning?
View 14 RepliesI have been seriously ill the last 2 months to the point i've been too ill to go to hospital apts and when attending an eye clinic was so ill the doctor sent me through to A&E. my blood sugar level shot up to 12 then fell to 2.4 i was given a sugary drink and it settled down but was so scary (new symptom) i was shaking from head to foot,heart rate was high and i nearly passed out. its happened 4 times since. i've had a headache for 5 weeks so bad it's affecting my sight. also nerve pain and weakness both arms but painful at the same time. what seems to be vertigo but not spinning just a feeling my head is moving.neck pains and cracking. feeling run down and very ill my weight has continued to drop now underweight and malnourished. I've been to my GP countless times and A&E no one can offer any help and there's no concern or urgency to find out what's happening to me. just given me endless pills that have not helped at all. what can i do to get the help i need NOW?
View 5 RepliesThe only way to get through this "transition" in the best possible way is to stay informed as to what is going on with our bodies. Being as though every woman is different, what may work for one may not work for the other. But knowledge is key to being able to live our lives the best and healthiest way possible.
With that being said, I came across some information on the internal shaking and jitters. Now this info may not apply to you, but if if does, by all means take it and do more research on your own to help yourself. Some of the first symptoms that I experienced that started to really ramp up anxiety for me is the racing heart and the internal shaking. I felt the the shaking in my chest and stomach mainly, but I could feel it all over. At times I would get the racing heart with it.
The shakiness and jitters first. We already know that the decline in estradiol can affect blood sugars, and digestive issues. For some the shakiness and jitters can be due to the blood sugars and dietary changes can help to stable that during peri/meno if you are not a true diabetic. It can also be due to anxiety and adrenaline surges. The other possibility can be digestive related. Since the digestive system is affected by declining hormones we digest food slower and have more gas than we usually do as well as an excess of stomach acid. I since have been diagnosed with GERD as many women do in peri/meno and I do have excessive gas and stomach acid which causes that burning feeling. For me what has been causing that internal shaky feeling in my chest and stomach is stomach acid putting pressure behind the breast bone which irritates the vagus nerve that can cause the anxiety type symptoms. If I chew a tums or take an acid reflux tablet the internal shakiness and jitters stop. Drinking chamomile tea, ginger capsules or tea, tums, rolaids, omeprazole, zantac, cal/mags or whatever you choose to use calms the stomach acid, calms the vagus nerve and neutralizes excess gas. Also when the vagus nerve is irritated it can cause heart palps and that is why when your reflux is acting up the excess acid pushing the vagus nerve can start palps. Now again this may not be the case for all, but it may be for some. So I thought that I would share the info just in case it may help you.
I am 14 nearly 15 years old and for as long as I can remember i have had this problem and my father also has the same problem but I seem to have it on a much larger scale.
My feet do not warm up naturally, even in bed at night they are freezing cold and if it is cold outside my feet are purple and I have very blotchy looking skin on them and my hands, when they are like this they look like the feet of a dead person.
Also, when it is cold, my hands go white, purple, and then bright red. They are numb during this and when they become bright red, my fingers swell slightly and it looks like they are about to burst. Also at this point, if I touch my hands or fingers together, they will sting and the pain is unbearable, it feels like stepping into a hot bath after being in the snow all day, but 10x worse.
I haven't yet been to see a doctor although I know I probably should. The problem with my hands doesn't affect me unless it is unusually cold, mostly during the winter and the problem with my feet is constant, during all weather and all seasons. I have had multiple friends and family members say it could be circulatory problems but I am yet to know for certain
I have the SLE-Raynaud's-Sjogren's package of auto-immune illness (listed in the order of diagnosis). The Sjogren's is the latest and most burdensome flavor of the decade for me. I was diagnosed with it about 3 years ago but was probably suffering from it for several years prior before the symptoms persisted enough to result in a diagnosis. I guess that's typical. It was with the SLE and the Raynaud's.
I can't imagine it could get any worse, but I get the impression that I might be "early" in the cycle and that scares me. No tears, corneal erosions, no spit, heroic (expensive and painful) dental treatments to save teeth that may already be doomed, pain, fatigue. Little annoyances that by themselves are "nothing" all together its a spirit crusher. Can it possibly get worse?
I was diagnosed with raynaud's back in 2010, but have suffered for about 7 yrs - I'm currently 36. I suffer with typical raynaud's in my hands & feet, they get cold whether it's been outdoors to walking in the fridge isle of a supermarket to holding cold cutlery and now even when I get out of the bath/shower. Back in 2010 my bloods tested positive for the antinuclear factor, so it suggested I had a connective tissue disorder, but with no other symptoms other than raynaud's was left as that. However, I've recently started getting pain in my finger joints - the pain is unrelated to when I have a raynaud's attack. I've been referred for further bloods & X-rays. Anyone else suffer with secondary or similar to my symptoms?
View 2 RepliesI have trouble writing, cooking, even sleeping and living a normal life generally due to my cold hands.
Has anyone found and eventually bought any gloves that helped hands get warmer and be able to work with them on as well?
I am a student and I have great trouble to do my work.
Let me introduce myself as a 57 year old male living in Minnesota. We are currently experiencing one of the longest sub-zero cold spells in my memory. 55 days below zero degrees F already this winter. Yes it is very COLD.
Twenty five years ago, in my early 30's, my fingers began blanching white while carrying items during summertime. I was frightened when several visits to the doc hadn't helped. Carpal tunnel syndrome was ruled out. At that point a neurologist asked if I was a smoker. Yes I was, two pack-a-day. He looked at me very pointedly and told me I'd better quit smoking ASAP. I was crushed, I had tried many times to quit cigs to no avail. I looked down at my white fingertips and bluish toes and decided to quit then and there. That was my last cigarette. Sept 1989. Miraculously, I never saw a white finger tip or blue toe again.
Twenty five years later my left hand has been suddenly reminding me that there is still an issue. Two or three fingers remain cooler than the others and will empty of blood when carrying parcels, or squeezed. Slowly the pink returns. I do not smoke. Hopefully that will keep the symptoms limited.
Someone had posted that what affected you in youth is probably gonna come back to haunt you later in life.
Young people with raynaud's; Quit smoking! Don't move to arctic climates, either.