Psoriasis :: Pain Management - Stelara, DMARDs, Enbrel And Humira Not Working
Feb 27, 2016
despite using strong painkillers, oxycodone-both long lasting plus short acting plus amitriptyline for sleep plus topical ointment, I cannot get on top of the pain or swelling. I started Stelara in December after DMARDs, Enbrel & Humira failing. I'm also on 7.5mg Prednisone daily. I can't cope much longer, this flare started in November. I suppose I should be grateful that my skin is clear but the pain in my joints is horrendous. My knees, hands and wrists are so swollen. Mobility is crap, I'm virtually crawling to get upstairs, getting dressed is so difficult and painful. I'm seeing OT in 2 weeks plus my rheumatologist on 8th March, also I'm seeing another rheumatologist in may for 2nd opinion because I'm not convinced my current one is expert in PsA. I've been going to hydrotherapy for a few weeks and am going to continue as a paying client because it's been good for me mentally and I don't want to sit around waiting to become completely immobilised. My knees are like melons today, should I rest, elevate or what? Sorry for negativity but I've just about had enough
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I have recently been diagnosed with AS. At my last hospital visit the consultant gave me a self assessment form about my level of pain and mobility. I have to complete it again in 2 months when I go back to see if there has been any change - the consultant did say it was very unlikely there would be, but there is a process to follow. Anyway, she said when I return I could choose between Enbrel and Humira, and gave me some literature on them both. I understand that everyone is different, but wondered if anyone else could comment on the highs and lows of both drugs. I am 44 years old, and the main problem is in my neck. I can look left and right, with limitations, but cannot tilt my head to the side or look up. The anti-inflammatory drug that has so far worked best for me is Naproxen. Also do you have to continue with painkillers or are the injection a replacement for the anti-inflammatory drugs only.
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Pills for RA are not working for me so rheumatologist is suggesting self-injected Humira or Enbrel. I read the side effects and they are scary. Especially it can cause heart failure even if you don't have a bad heart. I'd like to hear from any of you who are on these drugs and your experience with them.
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I have been to the hospital today. I have been treated for psoriatic arthritis for about 5 years. My consultant says that as I have tried everything else, without success I now have to decide whether to have Enbrel. I am a bit concerned about the side effects especially increased chance of infection. While I was on methotrexate I had quite a few infections including shingles.Also not keen on giving myself injections
Not taking anything is now causing deformity in my joints and tissue inflammation so an important decision.
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I'm 28 and have crohn's disease. I have been on humira for 2 years which had worked well. The past few months, however, I have been suffering from a debilitating flair up. My Dr upped my dosage but it hasn't made a difference and am now back on steroids. I was wondering if anyone else had experienced this with humira? And if anyone had had success with any alternative medications?
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I'm a 29 year old male. I have been diagnosed with rheumatoid arthritis in October and my doctor put me on Enbrel. He told it's a miracle drug promising me it would change my life. I took my 5th injection today and I still don't see any major difference in my body. I still have morning stiffness and pain, and I still have a couple of swollen joints. I'm waiting for the Enbrel to take effect, but I'm starting to get worried that it's not working with me. My doctor said that after few weeks I could expect significant pain relief, but I'm still in pain. I've also heard that Enbrel can take effect anywhere from a few days to couple of months and that it doesn't work for all people equally. Anyone here with the same symptoms or Enbrel experience I'd love to hear your feedback. What was your experience with Enbrel?
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I have Spor/Arth. and have been treated for over thirty years.
Almost every joint has been affected over the years,operations to hands,toes and knees.
Diagenic stopped after 20 years which put my body into shock,now taking Tramacet for the pain.
A major problem now is pain generating in the neck and into my entire head and into my ears nose and face.
I can feel small lumps under the skin and the head pain is severe.
Also heavy sweating from the neck.
I also have a heart condition,thyroid dysfunction Chronic fatigue syndrome.and kidney problems.
There is a number of medication I cannot take because of the other
conditions I have.
I have had acupuncture,physio,and steroid injections but the head pain is so severe even to the touch.
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I take humira and MTX for a mixed Connective tissue disorder. I'm getting on in life (maternally speaking, late 30s) and while I have one child I'd really like another to keep him company. I haven't discussed this with the doctors as it's only really an idea floating around my head at the moment. I know previously pregnancy gave me a temporary remission and for a good few months post pregnancy too but I was undiagnosed at that point and wasn't on these medications.
I'm aware I have to stop the medications for a minimum of six months before trying and this is the bit I'm unsure of. Has anyone else stopped their medications to get pregnant? How did you feel in the months before you were pregnant? Did you have to take steroids? What did you do for pain relief? Any anecdotal information would be helpful. I don't want to commit to something I will never be able to do so I need to find out as much as possible before speaking with my doctors about it as I can't see them being overly enthusiastic.
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I was switched from Nucynta 50mg to to Opana 5mg (OxyMorphone) by my Pain Mgt doctor and I have a total different experience. I don't know if they messed up or what, but here's the issue.
While I was on Nucynta, I would take it, and eventually feel the effects, i.e. the lightheadedness, the "high" feeling, and also the pain relief. The reason I was switched was that Nucynta gave me migraines. Bad enough where I got ill and had to run to bed with all lights off.
Onced I was switched to Opana 5mg, things were different. I took 3 last night, my very first dosage, and took the first. No effects, no pain relief, no "high" feeling, nothing. So, about a hour and fifteen minutes later, I took another one. Still nothing. So I wait again, same amount of time, took a third pill...... Nothing.
So, when I saw the doctor originally and was switched, I was told that Opana was an equivalent to the nucynta. So, if it's an equivalent, why did I go from 50mg to 5mg? I'm just curious. I know they are different drugs and probably manufacturers. Can anyone shed some light on this bizarre issue?
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I was in a car accident about a week ago and 4 days after the accident I started having pain on the left side of my ribs right under my breast when I take deep breathes, yawn, sneeze, ect. It a little swollen but doesn't hurt to touch. what could this be?
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Couple days ago I stepped out of bed and almost hit the floor as the excruciating pain shot through my calves. I have not exercised or done anything extreme. I have tried stretching and over-the-counter pain meds ..
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I have excruciating pain on my right side almost constantly and when I take a 1mg xanax, my pain goes away. Why is this? A Lot of people question this when I tell it but in all honesty it works. I wouldn't be telling it on here as telling it on here doesn't benefit me at all. I would just like to know why a xanax will stop my pain on my right side. Any ideas?
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I have asked to be removed from all pain medications as they were not helping at all and did not want to just keep increasing dosage. So my PM Dr. suggested i try Ativan or Diazepam before bed and also a muscle relaxant called Baclofen for spasms during the day (which i had been on in 2013) it did not work, but he insists on trying it over the Soma 350mg i had been on before the surgery.... any input
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I have been on 3 pills a day of norco 10/325, I want to slowly taper off. I need a plan that would be with no W/D's. I thought about starting a reduction of 1/2 a pill every week until I am free of the pills.
I also need to stop taking celexa, I am going to cut back 1/4 a week to iam off.
Will this work?
Or do I need to get suboxone and is that addicting.
Once off the pills, I don't know what I will do about my chronic pain.
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My dr. did a CT scan on my left side to see if I had sciatica as I had a lot of symptoms of it. It showed minimum damage to the nerve. I was not told what to do next? Should I get a follow up with what kind of specialist? Would a MRI show more information then the CT scan?
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will i have withdraws after taking suboxone 3 weeks? they put me back on pain meds because i having surgery soon
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I went to my Pm yesterday and let him know that I wanted off the methadone. So since I had to see the NP because it was considered an emergency visit they decided they were going to put me on the patch where you wear it for three day then take it off. So I asked about the side effect and after hearing them something in me panic and snapped and I said forget I want off of everything. So as off right now I am coming off of the methadone. I decided that with the scare of my heart and the new neurological problems they only way to know is if I come off of the meds. I am still on the Topamax he did not want to take me off of that because I have been on it for over a year and never had a problem. SO I am hoping in with 2 months we will know if it was the meds causing the neurological problems or the something else.
What made me snap was I was telling him that I wanted something for the muscle because I was having a lot of spasms and tightness and off of the methadone and he totally ignored me and said well we are going to give you something a lot strong and this should work since the methadone has not been working. It was as if he was not listening to me. He said to me you are going to Cleveland clinic (CCF) to be treated for the muscle so the will figure it out soon, I said yes but I do not get medicine from them because I have a contract with you. I don't know why he would not give me a muscle relaxer but I feel better knowing that I am coming off of the medicine for a while I just hope I can handle the pain long enough to see of it is neurological or a side effect from the methadone....
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.I had a C5-C7 disc fusion done 5 years ago that alleviated all of the pain in my neck and shoulders. What I am left with is a severe case of peripheral neuropathy. My feet and legs are numb to the touch but hypersensitive when I walk so I cannot go very long distances without the tingling burning throbbing pain. This pain is heightened at night when I go to sleep thanks mostly to the 300mg of Lyrica twice daily. I had an EMG nerve conductivity test performed which of course indicated severe neuropathy.
Now I am going to a neurologist who says I have to put up with the pain. I am going back on Monday to my neurosurgeon to ask for a lower MRI (never done) and I wanted a referral to PM because the pain is out of hand on 600mg of Lyrica daily. I have been on Oxycodone before and hated it and I do not like the stigma attached to these drugs so I thought I would ask my doctors to consider Methadone. What does everyone think? I know Methadone has its own stigma but is long acting and something I NEED right now and probably for good as I have had this neuropathy for 5 years.
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I have suspected Piriformis Syndrome & SI Joint Dysfunction also causing sciatica, have also had some nerve pain in the back of my thigh, occasional calf cramps, foot cramps, and foot pain. Since my last Cortisol injection into my SI joint it has made everything horribly worse, I cannot sit now for very long without severe left foot pain that makes me feel nauseous it's so horrible. I have informed the consultant of this and am on a waiting list to go back and see him, this is the 2nd time the injections have caused me extra pain so have now lost faith in these and want to try alternatives.
My consultant previously wanted to put me on Amitriptyline but I have been on this before and was taken off it due to serious sedative side effects (even fell asleep eating in a restaurant) was on a small dose and still didn't improve with time. So I've read that Nortriptyline is an alternative with less side effects, can anyone advise if they have had less sedative side effects with this than Amitriptyline please?
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So I'm on 10 mg norco 4 x daily. I keep telling the doctor if I can take 5 a day because 4 isn't enough and I'm in a lot of pain. he doesn't even respond I'm frustrated. Should I ask for percocet 4 x daily.
Wouldn't I have to take 10mg percocet for it to be stronger then 10 mg norco since percocet 7.5 mg is equivalent to 1o mg norco
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I have a few questions about withdrawal I have been taking between 2-4 Norco 5/325 for the last year for pain and i'm ready to get off but im so scared to go through the withdrawls so i'm wondering ow bad it would be I have read so many stories on the internet but they are taking way more then me any advice would be great I want my life back......
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