Psoriasis :: Hydroxychloroquine - Cheeks Looked Red And Swollen


May 18, 2016

I was prescribed the above about two months ago. About two weeks after starting it my cheeks looked red and swollen and I had an itchy rash under my chin. Stopped taking it and it all cleared up in the following two weeks.

the Rheumy nurse has told me to try it again to make sure it was the cause. Thing is, I've had Sjogrens for about 20 years with the usual dryness, but I cope with eye drops and vaginal lubrication and HRT cream. Apart from the odd tummy troubles, I'm thankfully not in pain and lead a pretty normal life.

i'm not at all sure if taking hydroxychloroquine is worth it for me, as I dread it damaging my eyesight. My Specialist seems to think it may help with my poor sense of taste and smell, which would be great as it's depressing. 

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I was encouraged to be in the sunlight by my GP but being in the UK that is really hard, the Summer we've just had wasn't much of a summer either. When it is sunny I can't go out wearing shorts or short sleeves due to how bad it is.

I am about to start my second year in college and it has gotten much worse over summer. Nobody would guess I suffered from Psoriasis from a distance from the way I dress but I fear I won't be able to hide it much longer, over summer it started spreading to my hands and steroids can't get rid of it, touching my keyboard hurts my hand, I can't wash the dishes and I have to keep hiding my hand from people.

I am currently studying Computing at College, hoping to study Computer Science at Uni, this problem has already affected my social life, at times I even skipped school because of how bad it got. Due to the stress I have started losing a lot of hair, it was great just a few months ago - stress is a killer! If I can't even touch the keyboard how on earth will I pass?

I spoke to my GP about Phototherapy about 3 weeks ago and I've had no contact at all from them or the Dermatology clinic. Many people link Psoriasis to stress and I try to stay happy but the problem is that the moment you see it, what it is doing it, how it is affecting your present and future it gets too much.

Balding itself doesn't worry me too much but the fact that I have Psoriasis on my scalp would just make me want to hide in my room, some of it is quite visible already. I have used various shampoos and although they tend to stop the build up of flakes the redness itself doesn't go away.

We all know that kids my age aren't exactly mature and don't deal with these things well so I wanted to know your advice as to how I should deal with this.

I just want to get through this year of college and perhaps take a gap year before finally going to Uni. I don't know how long the Photo-therapy will take but I wanted to know if I was allowed to ask my GP for help with my hair loss and with the Psoriasis on my hands. The redness on my scalp is so visible so if I can keep my hair at least I will be able to hide it, the pain I get from using my hands sometime even puts me off from doing work.

I have tried keeping my hands moisturised and it helps, albeit a little but do you think my GP would prescribe me Propecia? If it stops the balding for the duration of college I will be happy, once it is over I will stop the treatment and shave my head as I believe that fresh air and more access to sunlight will help the Psoriasis on my head.

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Arthritis :: Ringing In The Ears With Hydroxychloroquine

I was diagnosed with OA in my lumbar & cervical spine 10+ years ago although it has not caused me any severe problems. I am now in a new state & under the care of a new rheumatologist. She has diagnosed me with Sjogren's & also "probable lupus" (I have many of the symptoms but nothing has shown up in blood tests as of yet.)

Over the past few months my knuckles have gotten bigger so that I cannot put on rings or remove my wedding band. My fingers also swell, & there are some nodules on the knuckles of 2 fingers up near the fingernails. My rheumatologist told me I now have RA.

I have been taking prednisone bursts every now & then to help with my problems. I have also taken it for several weeks at a time, either 10 mg/day or 5 mg/day. Most recently I had been taking 5 mg/day but it was not helping me. I asked at my last appointment about bumping it up to 10 mg/day again, but she is not wanting to do that. I don't know if its just this state I'm living in or what, but every medical professional I see tells me that taking prednisone long term is not good ... yet I know of people elsewhere who have been taking it for many years.

Three weeks ago my rheumatologist asked me to try hydroxychloroquine while I tapered off the prednisone. Not long after I started taking this medication, I noticed I was having ringing in my ears. I really didn't pay much attention to it ... figured it was just some fluke thing. I never had ringing in my ears prior to starting the hydroxychloroquine. As time went on the ringing got worse. I checked the side effect sheet that came with the medication & ringing in the ears was listed as an "unlikely but serious side effect" & it was noted that if this occurred I should "notify my doctor immediately."

I called my dermatologist's office & unfortunately her nurse took the call. This nurse seems to feel that she is a doctor. She has given me incorrect instructions in the past regarding medication. When I told her what was happening, she told me to stop taking the hydroxychloroquine for one week, then to start taking it again ... "just to see that there's nothing else that could be causing the ringing."

If the ringing hadn't been happening prior to me taking the medication, & it stopped immediately after I stopped taking it, then why do I need to start taking the medication again? Again, this ringing is described as an "unlikely but serious side effect." I am concerned that starting to take it again may result in irreparable harm to my hearing.

Am I just being silly/overcautious? Has anyone had this experience or a similar one?

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