I have been provisionally diagnosed with Crohns and have been on Prednisolone for 3 weeks, starting off with 40 mg a day and reducing weekly by 5 mg.
I am having terrible headaches and no releif from the abdominal pain.No other symptoms yet.Can I expect some improvement as time goes on in your experiences ?
I'm 28 and have crohn's disease. I have been on humira for 2 years which had worked well. The past few months, however, I have been suffering from a debilitating flair up. My Dr upped my dosage but it hasn't made a difference and am now back on steroids. I was wondering if anyone else had experienced this with humira? And if anyone had had success with any alternative medications?
View 7 RepliesMy husband was diagnosed with crohn’s disease some time ago. It seems that he is not allowed to drink beer. I don’t know how he will be able to do this, since he is a great fan of beer. Why isn’t he allowed to take it? Can someone tell me?
View 2 RepliesMy wife has been diagnosed with crohn’s disease. We have no children yet, but we were planning to. However, this disease is something that surprised us. She manages to coup the disease with medications. However, we don’t know if this affects her fertility. What do you think about this?
View 1 RepliesI know something about crohn’s disease. However, there is something else that intrigues me. I was wondering if this disease can be manifested with haemorrhoids. As far as I know, those are two different entities, so I would like to know if they can be linked in any way.
View 2 RepliesI've had hearing loss now for a few years but don't know whether it's down to Work, crohn's or chemotherapy, anyone else?
View 1 RepliesI had my surgery in 98. I've been symptom free for over 10 years. I recently hurt my back at work and was prescribed Naproxen (Aleve) because of the new pain med laws. Well after taking it for a week, I just started vomiting large amounts of blood. I went to the ER and they were shocked to hear that this was prescribed this for my pain since they were aware I had Crohn's. Has anyone else had symptoms like this from Naproxen? Would it be a honest mistake or malpractice?
View 1 RepliesI had a blood test today as I'm being tested for Crohn's disease and a load of allergies however my blood was really thick and gloopy and would flow even the nurse said that it was unusual. She couldn't get much blood out either as it would flow so ended up having to use bottles that they use for babies because there nearly any blood. I'm just wondering what this could mean or if anyone else has had this before?
View 2 RepliesI've had Crohns for 20 years I have a structure but is under control with drugs but the tiredness and fatigue is terrible specialist isn't much help or understanding on this point how do others cope with it ? My bloods are checked regularly and are always fine. I sometimes wonder how I'm going to get through the day at work sometimes and don't have the strength to do anything when I get it at night and I cannot wait to get to bed even if it's to watch tv I wouldn't mind but I'm no party animal has anyone got any sensible suggestions please ?
View 37 RepliesI had a high transsphincteric fistula (multiple abscesses). CRS placed a cutting seton with fistulotomy in July. CRS told me that the seton would be in prob 4-6 weeks. It is now 8 weeks later, new CRS (first one moved), told me that he doesn't use these much as they are not tolerated well and that he thinks he will have to go back in and tighten it as it is not advancing. He says this is/can be a long process. Now I am to go back in several weeks to finalize new plan. Problem is, after surgery, I had Augmentin. The fistula track was not draining like it was supposed to and I got another abscess... after the fistulotomy and seton placement. CRS gave me Augmentin which I'm not sure really helped. So, I got a total body rash from the augmentin. I lasted 5 weeks before I was so miserable that I finally took oral steroids from Dermatologist with CRS approval. After I did two weeks of steroids, which helped tremendously, the rash came right back. Derm subsequently gave me a new prescription for prednisone (for one month taper!) and told me that it is a rebound rash after I stopped steroids. CRS says he won't do next surgery until I am off of prednisone for several weeks. Do I take the prednisone? or try to power thru the rash and not tear off my skin? How long will this next seton take to cut thru? wonder if it will get "stuck" midway too? More tightening procedures? Oh.. what to do?
View 1 RepliesHi I have just joined the forum and would like to know if anyone feels the same as myself or am I going mad. Was diagnosed with crohns in 2010 after doing the over 50 bowel screening ( I am 55) have been on several medications and had a very nasty abcess where you dont want one and had to stay in hospital 11 days. Last november I had been in infliximab for 2 years having infusion every 8 weeks and also taking mercaptopurine and tramadol for the pain, I now have infliximab every 10 weeks still taking mercaptopurine which I have been on for 4 years, the doctor asked me to try and stop tramadol but I only take 2 per day 4 on a very bad day, I have tried several times not to take these but when I stop the next day I feel bloated, very sick and its a struggle to get out of bed and as a full time carer for my disabled husband thats no good, it happened today so I took 2 tramadol and crawled back to bed and within an hour I felt a lot better, have explained this to 2 doctors and 1 wants me off tramadol and says symptoms are due to them and the other gives me a prescription and says if I need to take them to do that I am so confused. I take them because the option not to makes me feel so crap (pardon the pun ) has anybody got any advice please I hate this crohns
View 4 RepliesI have been taking Azathioprine for crohn's for some time and have been lucky not to have had any side effects. For a while I have had a sore throat but not needed any medication. When I read the possible side effects on websites they mention sore throats. Any one else experience this, if so have you spoken to GP or consultant.
View 3 RepliesI took Co Amoxiclav + Prednisolone for 6 days to treat a wheeze I had in my chest. After the second day I had to call the doctor as the tablets made my stomach feel so queasy, he prescribed some anti sickness tablet which I took alongside the Co Amoxiclav & Prednisolone, they made little difference to be quite honest. Throughout the past 6 days I have felt disorientated, confused, aggressive, highly emotional, suffered reflux, palpitations, been unable to sleep and feel thoroughly miserable! I stopped taking them after 6 days of a 10 day course.Thankfully my chest has cleared however I now feel as though my whole body is hypersensitive to my environment!
View 1 RepliesIs anyone else taking prednisolone for ITP? I've been on 60mg for a month now and my doctor wants to start reducing my dosage, even though my platelts are still at 87k. Has anyone had a similar experience?
View 2 RepliesI'm not sure if it's related, I'm on prednisolone - gradually reducing from 40mg per day, now on 30 and reducing by 5mg every week. However in the last few days I get very sore legs when walking relatively short distances - mainly in my shins then spreading up my legs. Feels like cramp. It dies down quite quickly but as soon as I walk any sort of distance the pain comes back - has anyone else had this?
View 1 RepliesI have asthma usually managed with symbicort inhaler and ventolin reliever. I get intermittent chest infections and consequently I have been taking prednisolone occasionally for 5 years now - 2 or 3 times a year along with antibiotics when I feel I can no longer function at all normally and have to resort to going to the doctor's. I take 30mg a day for 5 days and they work very well. I am concerned reading other experiences of taking prednisolone and the horrendous sounding side effects. I have always known these drugs are not "good" for you but they have provided me with such effective and fast relief that I have continued to resort to them, albeit occasionally. I have no severe side effects - some interrupted sleep, heartburn etc. Can anyone tell me if, at the levels I am taking them, whether I am likely to suffer the side effects other people speak of - e.g. weight gain/redistribution, moon face, osteoporosis etc? Also whether the side effects go away and how long they last once you have stopped taking the pred?
View 4 RepliesI have been taking Prednisolone now for 6 weeks now for Fibromyalgia and i have been fine with every thing, but there is one problem i have been having and that is sweating very badly iys like my whole body is like a tap it happens as soon as i get warm or when i am doing housework or even walking the dog.
View 3 RepliesI started getting the following symptoms 6 weeks ago, explosive diarrhea, blood loss, mucus in poo, constipation, 7-10 bm's a day, bloating, cramps, loss of appetite, severe fatigue.... I left it 4 weeks as thought it was a bug & have a very hectic lifestyle so didn't have chance to give it a great deal of thought but went to the docs & she said she's pretty sure it's ulcerative colitis. She was quite concerned & requested I had an urgent colonoscopy within 1 week but I have to wait 6 weeks for this to happen. My doc wasn't happy but said there is nothing she can do to expedite this. I was at my wits end yesterday so my hubby took me to a & e but again they were reluctant to run any tests as I'm already booked in to have a colonoscopy. They did the standard tests which were all normal. I'm now waiting to call a private hospital to get an appointment so that I can get this procedure done ASAP as my family are so concerned. I can't believe that I've got to pay £2k to get this issue checked out? I thought that losing blood for 6 weeks would be classed as urgent but I guess not?
Sorry if tmi but I noticed veg in my stools this morning & that was from a meal I had last Tuesday?
Does this his sound like ulcerative colitis to anyone or could it possibly be crohn's?
I have been a regular migraine sufferer for 34 years, averaging about one per week. I've been on prednisolone 15mg for a few weeks now for PMR, and not the slightest hint of a migraine. Could it be down to the steroids? I'm not happy about taking them, but maybe every cloud does have a silver lining!
View 10 Repliesi have been taking 5mg per day of prednisolone not a high dose but i have been feeling so hot and not to good since taking it also i seem to ache all over i have been tempted now to stop taking them but on such a low dose do i have to be weaned off them i started taking them last september and i i still need to take painkillers for my joints thanks for reading.
View 3 RepliesI have been diagnosed with PLE - Polymorphic Light Eruption - which for those of you who don't know - causes a severe allergic skin reaction in sunshine. I am having 5 weeks of desensitizing treatment which I also had last year prior to my holiday. It involves going to hospital 3 times a week for 5 weeks and standing in a capsule which delivers measured amounts of UVB light and this is increased over the treatment period. Last year I had the light treatment and got some symptoms after about 3 or 4 weeks and then when I went on holiday I took 20mg of prednisolone for the week I was away - and didn't get any of the horrible symptoms of PLE which was brilliant. My Dermatologist has therefore suggested that this year I start the prednisolone at the start of the treatment (today) and continue it throughout the treatment period. I am a bit concerned that I am going to be on 20mg for 5 weeks and the week of my holiday also. Am I likely to put on lots of weight and experience mood swings...or is my treatment period not long enough.?
If anyone can help I would appreciate your thoughts. I have asked the nurse at the hospital to ask the consultant whether the dosage should be reduced as the weeks go on.