I hadn't been feeling great all last week. Went to bed Saturday night and slept 11 and half hours. I remember feeling so cold and shivering (it was probably a high temperature) When I got up I was so weak. I upped my pred from 9mg to 10mg. I'm not in pain but so so weak, is this a flare or something totally different. The weakness reminds me of the early stages of ME/CFS.
View 14 RepliesI have had PMR since March. Today I feel like I have a fever and "hot flashes". Could this be a PMR "flare"...or just a coincidental illness.
View 9 RepliesI have been on pred for over a year started on 20 mg. reduced down to 5 then alt of family problems it's flared up again. Got down to 2.5 mg and feeling great then the cold weather and getting my business prepped meaning a lot of outside inside cleaning in the cold weather plus getting over a cold and broken nights from a new puppy! But what triggered it yesterday was a very bitter jealous grumpy 80 old member of the family turning up and being negative to me straight away, got me down and last night I was in agony, could barely move. Stress is definitely a trigger. I am not seeing her anymore she is not good for me so today I am upping my dose to 5 mg and will see what happens. It's so annoying and my husband has been a rock! This all originally started when I went no contact with my mother! The crap I had to put up with the smear campaign all took its toll so I think / know STRESS is a trigger.
View 37 RepliesI had a fall last Friday shortly after arriving in Panama. Result, a badly bruised left knee.Next morning all my old symptoms were back with a vengeance. The only option was to give myself an increased dose of 8mg.Symptoms disappeared.Now getting back very slowly to my old dose of 4.5/. But very very slowly over weeks.I learned my lesson of not rushing it.
View 1 RepliesI'm now one week into my first taper from 15 down to 14 preds, for the last 3 days I felt really well, in fact began to think my diagnosis was wrong.
Silly me, woke up a 3 am feeling sore, by 6 am I was at 7 out of 10 on my own pain scale, so depressed but now certain I do have a problem.
Just wondering if cold could spark a flare? before the diagnosis I suffered aches and pains when the weather changed, this week I've enjoyed pottering in the greenhouse with the lovely sunny weather making it a joy to be outside, yesterday back to really cold weather and I got very chilled. Is there a relationship with temperature and PMR?
I love fruit and eat plenty,also i have Manuka honey, my question is as we have to be aware of diabetes should we be aware how much we eat, does our body process natural sugar in a different way to processed sugars.Just a thought, been awake and up since 5.30( and was hungry so thought have some fruit before breakfast then thought am i having too much)
View 19 RepliesI've been experiencing some aches and pains over the past few days, it started off with aching in my wrists up to my elbows, now my joints in my legs and ankles are aching, also a bit of a stiff/ sore neck and top of spine is sore. In general my whole body is aching, feels sore to touch, throbbing and from time to time can get sharp pains. I don't have any rash as yet.
I have been in contact with chickenpox lately so didn't know if Id caught anything from that at.
I was thinking about PMR and although I am very nearly stable on 10 mg Prednisolone it is a knife edge dose. I still have many side effects from 4 years use of the steroid. In some kind of order they are:-
Muscle wastage, fatigue, lassitude, thinning of skin, easy bruising, cuts which take an unusually long time to heal, glaucoma, dry eye, exacerbated and premature cataracts which necessitated operations on both eyes to replace the lenses, virtual permanent stiffness and loss of motion in neck, constant shoulder and back pain, balance problems and now a recent discovery which I believe to be bronchiectasis. The last manifested itself with a slight productive cough I have had for about a year, with a shortness of breath which is steadily getting worse. Initial exam by GP showed no ‘crackle’, X-ray was ‘normal’ blood ‘normal’, whatever that is. Have seen this GP who gave me a course of amoxicillin (5 days) which did nothing. Then just left me to get on with things, no follow up, nothing. Not sure what to do next. I can see any one of the other doctors at this particular practice and am thinking to see one of them soon; well at least I can try for an appointment, currently 2 weeks!
Now the latest manifestation…..Shingles. Or to give it its proper title
Herpes Varicella-Zoster. A particularly painful affliction caused by the chicken pox I must have had as a child. It has affected the left side of my scalp, my left forehead, eye and face; I am not a pretty sight! By the time I knew what it was it was too late for any anti viral medication so will just have to let it take its course. Existing on Paracetamol, Codeine, Neurontin and the occasional Tramadol. All of these analgesics are for a short time only, don’t want to get hooked. Managed to see a doctor reasonably quickly about my eye who sent me to the eye unit at my local hospital, ophthalmologist examined the eye and gave me the all clear, phew!
On top of all this I have the daddy of all flares I put the cause of this down to the trauma of my new affliction. My immune system is compromised due to the daily use of 10mg. Prednisolone which I have increased to 15 mg. for a short time. It appears that any kind of trauma either emotional or physical will set off a flare.
I wondered what causes a flare in other sufferers from PMR/GCA and do they do as I do and increase the dosage of steroid and try to rest? Or is there a magical cure I should know about?
Long ramble I know but strangely feel better for writing it, apologies if you think I’m wasting your time, or a hypochondriac. (I’m not).
To my knowledge I have never had chicken pox. I have been taking Pred for three years and am now down to 3mgs from 15. My granddaughter is with me with chickenpox. Should I be worried please?
View 24 RepliesI was told years ago i haf fibromyalgia but now my blood work shows a high sed rate
View 31 RepliesBackground: I am 66 years old and have suffered first attack in mid November 2015... I have been fairly active person and have done some triathlon in the past, so not being able to get out of the bed on my own was pretty shocking to me... It took about one month to diagnose PMR and I started medication (prednisone) at 15 mg/day mid December.
If there is an interest, I would like to post about the progress in recovery, with special attention to exercise. I am seeing specialist every 2 weeks and complete blood work is done to monitor inflammation caused by PMR.
I would like to post what I have done thus far and future progress in (hopefully) successful recovery.
Has anyone tried Q10 supplements, and are they alright to take with pred.
View 33 RepliesI have recently had blood tests again and have a low esr. I have symptoms of pmr and discussed these with my gp. I begged her for prednisolone and she reluctantly agreed but only one week. I felt great! I was walking normally, getting out of bed for the whole day where I was bed bound a lot before, just felt so wonderful having so little pain in my hips and shoulders. My blood tests came back normal and she said she cant give me any more and is referring me to rheumatology again. The pain has come back, my hips are crippling me my shoulders are so so painful again and nothing else has worked, just the prednisolone. My orthopaedic specialist may give me one more injection in ten days, vpbut that will be the third and he said 3 is the max so I should have relief for 3 weeks, if previous injections are to go by but after that.
View 42 RepliesFor the last week or so, I have been getting short of breath, and very dizzy, feel like I am losing my balance, and my heart is racing. I have never had panic attacks, and this seem to start strangely enough when I have been reading....and then the weird feeling lasts the rest of the day.
Is it possible it`s the 11 mg pred I`m on? (have been for 4 years) Just can`t pin down what`s causing it! My blood pressure is ok....not diabetic...
I am wondering if gum inflammation is related at all to the PMR, GCA. I will see the dentist in a couple of days. Thanks.
View 6 RepliesDoes anyone know whether cannabinoids have been clinically studied for PMR? There has certainly been a study that shows they may be effective against the inflammation in other diseases. Google: cannabinoids and inflammation.
View 2 RepliesJust wondered if anyone on here has trouble with their Achilles Tendon? First thing after resting a while and if I've walked far too much they get very very stiff and painful! There doesn't seem much flexibility in either ankles. I didn't have problems with them when I was first diagnosed with PMR, only now 10 months into the condition and in 7 mg of pred!
View 7 RepliesI have been a regular migraine sufferer for 34 years, averaging about one per week. I've been on prednisolone 15mg for a few weeks now for PMR, and not the slightest hint of a migraine. Could it be down to the steroids? I'm not happy about taking them, but maybe every cloud does have a silver lining!
View 10 RepliesI have severe bruising on my arm. Whole right arm. Super ugly. I've been diagnosed with pmr for three years. Could be down to 5 mg. However, had major insect sting and hives and reaction. So, went back up to 40/20/10 mg prednisone for 12 days per Doctor. . Doctor gave me steroid shot, too. Please tell me that this new super dose of prednisone may have caused all this major bruising? If so, maybe can tolerate for a month or more?
Can anyone tell me if you have fainting feelings with GCA...
View 10 RepliesCan anyone tell me if its ok to drink alcohol while taking PREDNISOLONE.
I like a beer at the weekend or to share a bottle of wine, but, can't find any thing in the Prednisolone paperwork that suggests not drinking.