Polymyalgia Rheumatica :: No Appetite But Weight Gain
Jan 28, 2015
I was diagnosed 12th November with PMR and started 20mg pred, then saw consultant in Endocrinology on 8th January (who has referred me to Rheumatology) she stated I reduce pred by 5 mg. I had appt. the next day with my own dr and we agreed I would reduce by 2.5 So Saturday 10th January reduced (no problem). Re joined my old slimming club on 7th January (slimming world) followed the plan religiously, didn't lose any weight. Got weighed tonight and have put 3lb on.
My problem is I have no appetite and haven't for the past 10 years or more. I do eat though, fresh food nothing processed. I need some hints and tips about low carb or no carb. I'm ok with certain fruit and most vegetables. I haven't had bread in 3 weeks, I like my potatoes but not every night.
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I've been on Mirtazapine (30mg) for roughly 10-11 months now after suffering with my second bout of severe depression in 2 years and although this drug has helped me overcome my depression, I cannot seem to get rid of the excess weight that I have gained whilst taking it.
I am a very active guy, I play football twice a week and do lots of cardio but it seems whatever I eat, it goes straight to my belly. This has pretty much always been the case with me throughout my life.
I think I was roughly 15.5 stone when I started on Mirtazapine in July 2014 but I now weigh roughly 17.5 stone. I am 6ft7 in height so I guess I needed to put on a few pounds (as I was quite slim previously) but 2 stone is a rather big weight gain.
For an unknown reason I always feel hungriest late at night, does anyone else get this symptom? I take the tablet every night before I go to sleep (around 10:30pm).
How long are you supposed to take this drug for before reducing the dosage? Obviously the last thing I want is to become depressed again so I don't mind taking it but I would be interested to see if my weight decreases if I was to lower the dosage to say 15mg.
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I may have ask before but has anybody lost weight while on preds. I have lost muscle mass. Guess that would make you lose numbers on scale. I know I sound dumb to this but i am. I have so many questions that my doctor just seems to vaguely answer so i come here for answers. Thanks to all for any help.
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All I have eaten while on the 40mg pill for five days is fruits, veggies, lean protein, and whole grains. I've drank lots of green tea and water.
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Been for a lush walk today and popped into a health shop local to me, i wasn't expecting much really but the lady was lovely in there, gave me loads of advice to do with weight loss, and helping your metabolism!
I have discovered that you can take green tea tablets instead of/as well drinking the tea...(although guidelines should be followed as you can overdose)!! From what i have read it has all the same benefits as the liquid form.
She also gave me a tip about eating a couple of brazil nuts each morning to help with metabolism and energy levels, also helps prevent weight gain!They are high in fat tho, but as im already on a low fat diet i should be ok, gonna see how it goes. anyone already doing this?
Has anyone heard of chromium picolinate? anyone taking it? It's marketed as a weight loss supplement because it aids the body in metabolising fats and is sometimes used as an appetite suppressant! i did buy it and im researching it, but im not convinced.
Just wondering if anyone else takes any supplements which they think helps weight loss, appetite, metabolism?
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Fluoxetine not working well been on it 13 weeks tired all the time. Motivation minus a hundred and thoughts of wanting to die are more often than ever
Saw specialist thinks Duloxetine would be good for me anyone tried it? Lost all my appetite on fluoxetine but was glad needed to lose grieving weight and now worried new pill will make me want to eat!
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I love fruit and eat plenty,also i have Manuka honey, my question is as we have to be aware of diabetes should we be aware how much we eat, does our body process natural sugar in a different way to processed sugars.Just a thought, been awake and up since 5.30( and was hungry so thought have some fruit before breakfast then thought am i having too much)
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I've been experiencing some aches and pains over the past few days, it started off with aching in my wrists up to my elbows, now my joints in my legs and ankles are aching, also a bit of a stiff/ sore neck and top of spine is sore. In general my whole body is aching, feels sore to touch, throbbing and from time to time can get sharp pains. I don't have any rash as yet.
I have been in contact with chickenpox lately so didn't know if Id caught anything from that at.
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I was thinking about PMR and although I am very nearly stable on 10 mg Prednisolone it is a knife edge dose. I still have many side effects from 4 years use of the steroid. In some kind of order they are:-
Muscle wastage, fatigue, lassitude, thinning of skin, easy bruising, cuts which take an unusually long time to heal, glaucoma, dry eye, exacerbated and premature cataracts which necessitated operations on both eyes to replace the lenses, virtual permanent stiffness and loss of motion in neck, constant shoulder and back pain, balance problems and now a recent discovery which I believe to be bronchiectasis. The last manifested itself with a slight productive cough I have had for about a year, with a shortness of breath which is steadily getting worse. Initial exam by GP showed no ‘crackle’, X-ray was ‘normal’ blood ‘normal’, whatever that is. Have seen this GP who gave me a course of amoxicillin (5 days) which did nothing. Then just left me to get on with things, no follow up, nothing. Not sure what to do next. I can see any one of the other doctors at this particular practice and am thinking to see one of them soon; well at least I can try for an appointment, currently 2 weeks!
Now the latest manifestation…..Shingles. Or to give it its proper title
Herpes Varicella-Zoster. A particularly painful affliction caused by the chicken pox I must have had as a child. It has affected the left side of my scalp, my left forehead, eye and face; I am not a pretty sight! By the time I knew what it was it was too late for any anti viral medication so will just have to let it take its course. Existing on Paracetamol, Codeine, Neurontin and the occasional Tramadol. All of these analgesics are for a short time only, don’t want to get hooked. Managed to see a doctor reasonably quickly about my eye who sent me to the eye unit at my local hospital, ophthalmologist examined the eye and gave me the all clear, phew!
On top of all this I have the daddy of all flares I put the cause of this down to the trauma of my new affliction. My immune system is compromised due to the daily use of 10mg. Prednisolone which I have increased to 15 mg. for a short time. It appears that any kind of trauma either emotional or physical will set off a flare.
I wondered what causes a flare in other sufferers from PMR/GCA and do they do as I do and increase the dosage of steroid and try to rest? Or is there a magical cure I should know about?
Long ramble I know but strangely feel better for writing it, apologies if you think I’m wasting your time, or a hypochondriac. (I’m not).
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To my knowledge I have never had chicken pox. I have been taking Pred for three years and am now down to 3mgs from 15. My granddaughter is with me with chickenpox. Should I be worried please?
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I was told years ago i haf fibromyalgia but now my blood work shows a high sed rate
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Background: I am 66 years old and have suffered first attack in mid November 2015... I have been fairly active person and have done some triathlon in the past, so not being able to get out of the bed on my own was pretty shocking to me... It took about one month to diagnose PMR and I started medication (prednisone) at 15 mg/day mid December.
If there is an interest, I would like to post about the progress in recovery, with special attention to exercise. I am seeing specialist every 2 weeks and complete blood work is done to monitor inflammation caused by PMR.
I would like to post what I have done thus far and future progress in (hopefully) successful recovery.
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Has anyone tried Q10 supplements, and are they alright to take with pred.
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I have recently had blood tests again and have a low esr. I have symptoms of pmr and discussed these with my gp. I begged her for prednisolone and she reluctantly agreed but only one week. I felt great! I was walking normally, getting out of bed for the whole day where I was bed bound a lot before, just felt so wonderful having so little pain in my hips and shoulders. My blood tests came back normal and she said she cant give me any more and is referring me to rheumatology again. The pain has come back, my hips are crippling me my shoulders are so so painful again and nothing else has worked, just the prednisolone. My orthopaedic specialist may give me one more injection in ten days, vpbut that will be the third and he said 3 is the max so I should have relief for 3 weeks, if previous injections are to go by but after that.
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For the last week or so, I have been getting short of breath, and very dizzy, feel like I am losing my balance, and my heart is racing. I have never had panic attacks, and this seem to start strangely enough when I have been reading....and then the weird feeling lasts the rest of the day.
Is it possible it`s the 11 mg pred I`m on? (have been for 4 years) Just can`t pin down what`s causing it! My blood pressure is ok....not diabetic...
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I am wondering if gum inflammation is related at all to the PMR, GCA. I will see the dentist in a couple of days. Thanks.
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Does anyone know whether cannabinoids have been clinically studied for PMR? There has certainly been a study that shows they may be effective against the inflammation in other diseases. Google: cannabinoids and inflammation.
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Just wondered if anyone on here has trouble with their Achilles Tendon? First thing after resting a while and if I've walked far too much they get very very stiff and painful! There doesn't seem much flexibility in either ankles. I didn't have problems with them when I was first diagnosed with PMR, only now 10 months into the condition and in 7 mg of pred!
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I have been a regular migraine sufferer for 34 years, averaging about one per week. I've been on prednisolone 15mg for a few weeks now for PMR, and not the slightest hint of a migraine. Could it be down to the steroids? I'm not happy about taking them, but maybe every cloud does have a silver lining!
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I have severe bruising on my arm. Whole right arm. Super ugly. I've been diagnosed with pmr for three years. Could be down to 5 mg. However, had major insect sting and hives and reaction. So, went back up to 40/20/10 mg prednisone for 12 days per Doctor. . Doctor gave me steroid shot, too. Please tell me that this new super dose of prednisone may have caused all this major bruising? If so, maybe can tolerate for a month or more?
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I have had PMR since March. Today I feel like I have a fever and "hot flashes". Could this be a PMR "flare"...or just a coincidental illness.
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