Polymyalgia Rheumatica - How Long Steroid Injections Take To Work?
Aug 12, 2015
Hi, I have just been diagnosed with PMR and just taken my 3rd day of 15mg steroid. Can anyone tell me how long before they start working?
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Aug 12, 2015
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Would someone be able to give me some input into this bone-saving medication?
I was told by a "fill-in" doctor who I had not seen before, that Prednisone is a terrible but often necessary medication. What bothered me when he said that PMR is "annoying" which is truly an understatement.
We all know how excruciating the pain can be......!
I am wondering what the side effects of Actonel might be. I am taking 1000 mg of Calcium, 2000 UI of D, and 500 mg of Magnesium.
I am on 15 mg of Prednisone.
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Two weeks after getting these shots I became paralyzed from waist down with daily headache and other problems.My pain dr. Put together a team of doctors who were able with strong medications to get my feeling back in my legs.They ran all kinds of tests that showed masse on liver,kidney,lung and large mass on thyroid.Blood sugar was 140 and then 61.Noone told me anything,they just told me I could go home with meds and appointments for tomorrow and the 31st.
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I've had PF in one foot for best part of a year, now in both feet for the last 4 weeks. Im in excruciating pain as I'm sure most people who suffer from PF can relate to. Painkillers I have been prescribed up till now are useless but my GP is giving me stronger ones for when I go on holiday in 2 weeks so I can walk around hopefully. He has told me that when I return from hols, I will be having steroid injections. I'm interested to know what other sufferers think regarding this and also if it has helped the people who have had the injection.
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View 19 RepliesPolymyalgia Rheumatica :: Could I Have Shingles?
I've been experiencing some aches and pains over the past few days, it started off with aching in my wrists up to my elbows, now my joints in my legs and ankles are aching, also a bit of a stiff/ sore neck and top of spine is sore. In general my whole body is aching, feels sore to touch, throbbing and from time to time can get sharp pains. I don't have any rash as yet.
I have been in contact with chickenpox lately so didn't know if Id caught anything from that at.
Polymyalgia Rheumatica And Shingles
I was thinking about PMR and although I am very nearly stable on 10 mg Prednisolone it is a knife edge dose. I still have many side effects from 4 years use of the steroid. In some kind of order they are:-
Muscle wastage, fatigue, lassitude, thinning of skin, easy bruising, cuts which take an unusually long time to heal, glaucoma, dry eye, exacerbated and premature cataracts which necessitated operations on both eyes to replace the lenses, virtual permanent stiffness and loss of motion in neck, constant shoulder and back pain, balance problems and now a recent discovery which I believe to be bronchiectasis. The last manifested itself with a slight productive cough I have had for about a year, with a shortness of breath which is steadily getting worse. Initial exam by GP showed no ‘crackle’, X-ray was ‘normal’ blood ‘normal’, whatever that is. Have seen this GP who gave me a course of amoxicillin (5 days) which did nothing. Then just left me to get on with things, no follow up, nothing. Not sure what to do next. I can see any one of the other doctors at this particular practice and am thinking to see one of them soon; well at least I can try for an appointment, currently 2 weeks!
Now the latest manifestation…..Shingles. Or to give it its proper title
Herpes Varicella-Zoster. A particularly painful affliction caused by the chicken pox I must have had as a child. It has affected the left side of my scalp, my left forehead, eye and face; I am not a pretty sight! By the time I knew what it was it was too late for any anti viral medication so will just have to let it take its course. Existing on Paracetamol, Codeine, Neurontin and the occasional Tramadol. All of these analgesics are for a short time only, don’t want to get hooked. Managed to see a doctor reasonably quickly about my eye who sent me to the eye unit at my local hospital, ophthalmologist examined the eye and gave me the all clear, phew!
On top of all this I have the daddy of all flares I put the cause of this down to the trauma of my new affliction. My immune system is compromised due to the daily use of 10mg. Prednisolone which I have increased to 15 mg. for a short time. It appears that any kind of trauma either emotional or physical will set off a flare.
I wondered what causes a flare in other sufferers from PMR/GCA and do they do as I do and increase the dosage of steroid and try to rest? Or is there a magical cure I should know about?
Long ramble I know but strangely feel better for writing it, apologies if you think I’m wasting your time, or a hypochondriac. (I’m not).
Polymyalgia Rheumatica And Chickenpox
To my knowledge I have never had chicken pox. I have been taking Pred for three years and am now down to 3mgs from 15. My granddaughter is with me with chickenpox. Should I be worried please?
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Background: I am 66 years old and have suffered first attack in mid November 2015... I have been fairly active person and have done some triathlon in the past, so not being able to get out of the bed on my own was pretty shocking to me... It took about one month to diagnose PMR and I started medication (prednisone) at 15 mg/day mid December.
If there is an interest, I would like to post about the progress in recovery, with special attention to exercise. I am seeing specialist every 2 weeks and complete blood work is done to monitor inflammation caused by PMR.
I would like to post what I have done thus far and future progress in (hopefully) successful recovery.
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View 33 RepliesPolymyalgia Rheumatica With Low ESR Results?
I have recently had blood tests again and have a low esr. I have symptoms of pmr and discussed these with my gp. I begged her for prednisolone and she reluctantly agreed but only one week. I felt great! I was walking normally, getting out of bed for the whole day where I was bed bound a lot before, just felt so wonderful having so little pain in my hips and shoulders. My blood tests came back normal and she said she cant give me any more and is referring me to rheumatology again. The pain has come back, my hips are crippling me my shoulders are so so painful again and nothing else has worked, just the prednisolone. My orthopaedic specialist may give me one more injection in ten days, vpbut that will be the third and he said 3 is the max so I should have relief for 3 weeks, if previous injections are to go by but after that.
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For the last week or so, I have been getting short of breath, and very dizzy, feel like I am losing my balance, and my heart is racing. I have never had panic attacks, and this seem to start strangely enough when I have been reading....and then the weird feeling lasts the rest of the day.
Is it possible it`s the 11 mg pred I`m on? (have been for 4 years) Just can`t pin down what`s causing it! My blood pressure is ok....not diabetic...
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I am wondering if gum inflammation is related at all to the PMR, GCA. I will see the dentist in a couple of days. Thanks.
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Just wondered if anyone on here has trouble with their Achilles Tendon? First thing after resting a while and if I've walked far too much they get very very stiff and painful! There doesn't seem much flexibility in either ankles. I didn't have problems with them when I was first diagnosed with PMR, only now 10 months into the condition and in 7 mg of pred!
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I have been a regular migraine sufferer for 34 years, averaging about one per week. I've been on prednisolone 15mg for a few weeks now for PMR, and not the slightest hint of a migraine. Could it be down to the steroids? I'm not happy about taking them, but maybe every cloud does have a silver lining!
View 10 Replies