Pityriasis Rosea Recurrence
Feb 21, 2010
I was interested to read other experiences. I am currently experiencing a recurrence of pityriasis rosea. I had the first occurrence about 9 or 10 years ago and my Dr too was not only surprised to see a rare disorder but to see it in someone at my age. I was 27 then. Even more surprised now at late 30's!
I too thought there was a patch of ringworm on my arm and recently had an awful cold and took 2 days off work (that's really rare for me as I'm a bit a workaholic). I didn't pay any attention to it at first, the spots that now cover my tummy, and a fear of having chicken pox actually made me look into what I had. When I read the symptons I realised that my symptoms are classic. I would have left it at that, because I'm not suffering at all - not even itchy spots, provided I don't scratch the herald patch - I don't even notice it. It was only when I read that only 2% recurs that I read on and found your experiences.
My herald patch and spots has been so typical in both cases that there is no doubt it is pityriasis rosea. My Dr the first time told me that it was most likely to be stress related.
My only curiosity this time is why now? It's made me consider taking a holiday in the sun (how often is the diagnosis to spend time in the sun?) to make sure I'm not opening myself up to to something more sinister - maybe this is nature's little warning that I'm over doing it.
Does anyone else think like that?
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I got diagnosed today by a dermatologist after ten days of suffering and wrong diagnoses by GPs. He gave me some Elocon to apply but did say that steroids usually have little/no affect and keep using calamine. He also gave me Atarax 25mg tablets as I told him I have been taking double doses of Piriton antihistamine at night to help me sleep and stop me itching with no effect. He said that I should also moisturise with E45 on top of any topical treatment.
He did however say something that contradicts a lot that I see on the internet. He said I can continue to take baths, saunas and exercise as this does not affect the condition. The internet is full of warnings against this.
Has anyone had it and continued to exercise? I have become a real gym bunny for once and don't want to stop training til this thing goes.
Thanks for advice re head and shoulders. I just applied some in the shower and then went for 4mins on the sunbed. I am fair skinned and burn easily but seem fine from it. ! I am desperate for this thing to go and have bought an immune-boosting multivitamin.
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I have been battling PR for 13 days now and have been having a terrible time (like most of us!). I am one of the lucky ones that has been experiencing severe itching and burning with no relief. Today my husband called me in a panic because he woke up with a similar looking rash that is itchy on his forearm. I was under the notion that PR was not contagious. Has anyone had experience with this? I haven't seen him today yet and haven't gotten a look at the rash myself or looked the rest of him over, but now I am in a panic.
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For the last week I have been feeling out of sorts..loss of appetite, exhaustion, sickness.. then I developed a rash starting on my stomach and spreading now to my back, chest, tops of arms and legs. It starts of as a blister looking rash and is VERY itchy!!! Some of the bumps have scabbed over and some are looking flaky.
Anyway visited GP yesterday who thought it was one of two things, PR or chicken pox.. he couldn't give me an exact diagnosis but has signed me off for a week to rest.. any ideas what it could be? Is there anything that distinguishes between the two?
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Day 18 of secondary rash. Herald patch appeared about 3 weeks before rash appeared (thought it was just a harmless bit of dry skin!).
Secondary rash started on chest then over 1st week spread to neck, stomach, back, arms, thighs and groin (wonderful!). My goodness does it itch!
Went to Docs who said not to worry it's only PR and it should go away as suddenly as it appeared in about 8-10 weeks!!!
The itching was particularly bad on my chest and back so Doc advised using Aveeno body wash and intense cream as well as taking daily anti-histamine. The Doc also said not to run or exercise as overheating can irritate the skin - should also only take tepid showers/baths for the same reason.
Over the last couple of days the rash on my chest and stomach is less red and my skin has started peeling (a bit like after sunburn) and thankfully the itching has stopped where the peeling has started. I am hoping this is the beginning of the end!
It is the strangest condition I've ever heard of or experienced. The Doc said at least it wasn't shingles (as they 1st suspected), but on day 13 when the itching was at its worst and I thought I still had up to 8 more weeks of it I began to wonder if a shorter period of more intense pain/illness associated with shingles would be the lesser of the two evils!!
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I discovered the herald patch last December and noticed pink blothes appearing on my stomach and back which I assumed was dry skin so just moistuirsed, they eventually faded to leave pale patches so I consulted my doctor and he diagnosed Pityraisis Versicolur, I was sure it was P.R due to the herald patch?? Anyway I used Nizoral cream and went on a sunbed determined to get rid of it before my wedding in May. The faded patches began to tan and no further pink patches appeared until I returned from my honeymoon, the tan appeared to have fallen off my pale patches and the doctor assumed it had returned so prescribed a course of Sparanox capsules and selsun shampoo, after this lots of pink and very itchy/burning pink patches appeared so I stopped the shampoo and they seemed to calm down, with the use of sunbeds they would dissapear then only very slightly reappear. We were taking our young children to Spain for a week so I was really depressed about either pale or pink patches re-appearing I've never felt so down in my life. Much to my surprise I was fine and it kept at bay until again I returned home and more pink patches appeared again very itchy.
My doctor now thinks I have Chronic Urricaria but I'm not convinced, has anybody else experienced pale patches with P.R and how have you managed to keep it at bay? It has been 8 months now on and very slightly off and it is affecting my relationship with my husband and children due to my mood swings and being very irritable :-(
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I have had PR for 3 weeks now.
I have spots all over my stomach, chest, arms and a few on my upper legs.
The itching is driving me mad.
I have tried calamine, bio oil, moisturisers, piriton and anti-itch creams but they just don't do the trick. Today I tried anti dandruff shampoo as I know it has worked for a lot of people on here. Sadly not on my spots. The minute I put it on the itching got 10 times worse!
The only thing that I have found to work is to have a warm shower and exfoliate them. I have found that after doing this I have at least 90 minutes with no itching. So far this evening I have had 4 showers!!!!! Fingers crossed this is nearly the end of PR as I may go crazy if it doesn't go soon.
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First started with a small path on my upper arm which just got bigger each day. Then some small patches started appearing on my collarbone and on my tummy. Went to the doctors and they weren’t sure what it was initially and gave me steroid cream. Three days later I felt awful and the rash was beginning to appear elsewhere and the original spots were getting larger. I went back to the doctors and she knew straight away it was PR. This was great as at least I knew what I had and I could research a bit on it. Unfortunately no-one seems to know that much about it!
In the space if a week I had loads more spots come up, all over my back, my front and along my scalp. I have to say that I really didn’t feel well at the beginning stages. I felt exhausted, had a huge loss of appetite, very emotional and just wasn’t myself. I looked pale, tired and my hair felt in awful condition. I decided to read some forums on other peoples experiences and picked up some suggestions on how to get rid of PR quickly!
For just under a week, I have done the following:
– Used Head & Shoulders as a shower cream and E45 Bath Oil in the bath.
– After each shower or bath, applied pure coconut oil all over my body and face.
– Before bed, I apply Myrrah Essential Oil (diluted in a carrier oil) all over my body and face.
– Had three tanning sessions of 6 minutes each.
– Plenty of sleep!
Using the above regime has improved my skin SO much. I can’t believe what an improvement has been made within this short amount of time, and I was literally covered in spots on my back, front and scalp. Most of my spots have faded, dried up and I look and feel so much better. I have some spots on my neck and collarbone which are the freshest ones, but using the above regime I expect them to get better very soon.
I would really recommend to all of you to use Coconut Oil, Myrrh and small tanning sessions. I really believe these have speeded up PR for me and I believe I will not have much left in a week's time. I have used E45 moisturising cream too when needed.
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I was diagnosed with herpes when I was 19 years old. Fast-forward 35 years... I am experiencing my second recurrence. How common is this? Has this happened to anyone out there?
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Two days ago my CA125 marker went from 14 at my last two month check up to 68.5. My dr says this is a significant rise in tumor marker. I have been in remission for 4 and a half months. Where does ovarian cancer spread to and how? Initially I had 7 hour surgery and they said they got all the cancer. I had 6 months of chemo and I feel fine. I don't understand and am scared.
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I'm a 26yo uncircumcised male. I've noticed a couple of times I have some red spots in my glans and the inside of the foreskin. This are not painful and they disappear quickly (a night, a day or so) and I've had a few recurrences. I notice sometimes white mucus, which it think it's smegma.
Apparently I got a negative test a few weeks ago, which the laboratory told me it was normal to get 0.00. However this was done before 8 weeks of my last contact.
Questions are:
1. Does this sound like Balanitis?
2. In which cases is balanitis a sign of herpes? Only during initial infection? Or recurrences too?
3. If it is caused by herpes, could it be painless? Could it be accompanied with smegma?
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In the spring of 1990 after a chronic right middle ear infection, I began having bad vertigo, nausea, and disequilibrium problems. I saw the ENT recommended by my PCP and after testing that came back normal was scheduled for exploratory surgery. A perilymph fistula was visualized and patched. Recovery was normal with some slight dizziness continuing for a few months and then resolving. Postoperative testing revealed no loss of hearing from the surgery and I was released from care to resume normal life.
Fast forward to March 2014, severe disequilibrium, tinnitus, and noticeable hearing loss brought me back to the same ENT (A relief, as he remembers me as being his only visually confirmed PLF) Testing showed hearing in the right ear normal but not as good as the unaffected left ear, other testing showed a possible recurrence of a PLF in the the same ear (right). I am scheduled for surgery on April 30, 2014.
There was nothing during this time that would account for the fistula to recur, no heavy lifting, head trauma, air travel, upper respiratory illness, etc. He feels that I may have a predisposition to increased pressure in my inner ear that causes the fistula to recur. Has anyone heard of this? And, if so, why would it take 24 years to happen again?
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2 years ago I tested positive to entamoeba histolytica (amebiasis) which I contracted while travelling in central america. I was originally prescribed metronidazole which eliminated the symptoms (I was getting swelling around the abdomen especially when eating sugary food). Around 9 months later the symptoms returned and the tests again showed positive for the above parasite. I was prescribed paromomycin that time and it worked. 12 months later the symptoms are back and after 2 tests for parasites the results are negative. I'm a bit confused as the symptoms are exactly like what I experienced when I tested positive previously. The Doctor (don't have a lot of faith in him) has prescribed a course of prednisolone and said if that doesn't work I will need to see a gastroenterologist for a colonoscopy but reading up on that I am not sure what that is supposed to reveal. Any thoughts?
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I'm now 38 and was diagnosed with achalasia in 1998. The condition stated in late 1997 and progressed very quickly. I was unable to eat any form of solid food and every meal had to be accompanied by buckets of water!
I had the myotomy and a fundoplication in Sept 1999.
However, the symptoms soon returned. They never got as bad as they were before the operation, but I think suffers of the condition become very adept at managing the condition.
I went through a series of dilations and other tests until, in 2005, my surgeon decided that another operation was the only hope. However, by this time, I had completely lost confidence in my surgeon and decided to live with the condition.
I have found that swallowing has continued to get worse over the years, but I manage it reasonably well by drinking lots of water with meals and avoiding problematic foods such as bread, pasta and fruit.
However, I suffer from dreadful substernal pain and have been admitted twice to A&E with a suspected heart attack. My use of painkillers is now at pretty serious levels so I am having the condition investigated again.
I guess that I knew this was inevitable, but I'm not looking forward to the barium swallows, endoscopy, manometry etc and I guess further surgery is unavoidable.
I utterly sympathise with those who have the condition. It is painful, restricting and embarrassing - you only have to regurgitate an oesophagus full of chewed food over a plate to realise what a bummer of a condition this is. It may not be life threatening, but it is certainly not fun!
I wish everyone with the condition every best wish in managing their condition.
PS - I really struggle with my weight and am now 5 stone overweight which must be a record for achalasia!!! Would love to hear from anyone in a similar position.
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So I have had an issue with fissures in the past, due to being on pain meds for pancreatitis for months and cooccurrent constipation. I have already had one surgery to heal the fissure, and it seemed to work. So when I started have that same burning pain when I had a BM I assumed that was what it was. I became really used to it, and it went on for a LONG time. Flash forward to now. I noticed a couple weeks back what looked like pus on my toilet paper when I wiped after urinating, and was freaked out. I pushed on the area near my anus and more pus came out. I assumed my fissure got infected somehow and left it alone. It happened again, this time I was home so I grabbed a hand mirror and looked down there. I saw a bloody spot that was leaking blood slowly about 1 inch from my anus, and I freaked out. I had NO idea what it was, so I googled it and looks like it may be a fistula. It seems to "close up" and go away for a while, then I can smell something and when I go the bathroom I am leaking a little bit of blood/pus from the hole. Seems to happen randomly, its opening doesn't seem to have any correlation with when I have a BM and BM's aren't bloody typically. I have been using anti bacterial soap down there frequently now and I can feel what feels like a ridge under the skin running from the hole to my anus if that makes any sense?
I am completely embarrassed. I am 28 years old and a female, someone who doesn't even leave the house without makeup and this situation is so bad. It smells, I feel like I smell 24/7 (nobody has mentioned it but I feel like I do) and I am almost too embarrassed to go to the doctor. Doesn't help that I am overweight, and though I am meticulously clean (I even use a bidet) I feel like somehow the doctor will judge me as a gross fat girl.
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I am 21 now, I had gotten shingles when I was 20. I only had it for a week luckily but, it was on my face...around my left eye and cheek area. While I had it, I had a lymph node swollen behind my ear that was pretty large also a couple lymph nodes on my head that were swollen as well. Both with piercing, constant pain. Then with the Shingles, the marks on my face and near my eye also hurt BAD. I got through all of that, no scarring.VERY lucky on that one. But now about 8 months later I have the same lymph node behind my ear swollen, my cheek actually filled up with fluid one day and when I opened my mouth something popped, all the fluid was released and the trash can became my best friend that night. NASTY. I thought it may have been a abscessed tooth causing the swelling and fluid build up, but after the fluid left my body my tooth stopped hurting. Now I'm just kinda lost and looking for some help on what may be going on.
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