Pernicious Anaemia :: Intrinsic Factor - B12 - 6 Injections Didn't Help
Jan 15, 2015
I was diagnosed with low B12 levels and further tests revealed that I had intrinsic factor.
I was given the 6 injection course and was told I would have another in 12 weeks then again and then blood tested again. 6 weeks since my last injection and my symptoms are back. Feeling vague, tired, lethargic, irritated etc. How can it be that I have intrinsic factor but obviously have low B12?
is it likely something else is going on? - any ideas/suggestions?
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my son was diagnosed with B12 a year ago he got the 6 booster jabs last September he had been getting sore heads that were lasting up to 8 weeks his joints ache his shoulders and neck are really sore he was getting ear infections had 10 in last 6 months pins and needles in his hands and feet he is sleeping about 15 to 18 hours a day they started to give him 3 monthly jabs and after 6 month put him on monthly also done a blood test went back to get his second monthly jab but said his b12 levels were normal so put him back to 3 monthly but he could hardly get out of bed they have now put him back to monthly jabs which are only lasting a week if that asked if they could be given weekly the doctor said he would not be happy giving the jabs sooner he got his last jab on the 17 sep and its only lasted till yesterday the are treating him for chronic migraines and now telling me they think it is ME I am sick getting put of by doctors as my son has no life now and i was wondering if I could give him tablets in between jobs because when he first gets his b12 jabs the symptoms all disappear and he gets a week of feeling a lot better but they won't listen
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I have only recently started having the B12 injections. Does anyone know if you can still give blood? I used to be a regular donor but now I'm not sure if I can still give?
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I've decided that I have no other choice than to self-inject B12. I am older and don't have the same muscle tone that I used to have. I will be injecting into my thigh muscle. What would be the best sized needle for this? Would a one inch needle be ok? Anything longer might be too long if my muscles aren't what they used to be. And what guage?
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I have found reading the posts about PA very helpful, i was diagnosed early last year with PA and have injections every 3 months they have helped enormously with my symptoms, please could any one tell me about the side effects of the B12 injection, i have had various syptoms which i have just put down to the whole PA thing, but would like to know....
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I was diagnosed with copper deficiency a few months ago and sent for further investigations prior to treatment. As all scans, eye tests and liver functions were fine and no signs of copper storage or damage anywhere else as might explain the deficiency in my blood, so they have now decided that I am not deficient after all and I have not been treated.
These were my results which are all pretty low within the normal ranges (in brackets):
Copper 9.3 umol/L (normal is 12.0 - 20.0)
Free Copper <1% (<25%)
Ceruloplasmin 0.20 g/L (0.20 - 0.40)
I also have Pernicious Anaemia (B12 deficiency) and the two conditions often appear together and have similar symptoms. I have very regular B12 injections so I am happy that is under control but as there are still outstanding neurological symptoms, I am wondering if this is due to the low copper levels?
Has anybody else had similar results, please?
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I found out I had a B12 deficiency 5 years ago. My levels were very dangerously low at the cellular/functional level. I was told I was near paralysis. Now, after 5 years, they are still low. They have come up to almost borderline, but it still flags red on my tests. My serum levels though are too high for the lab to measure! Its just not getting into my cells so it's not able to be used. I do twice a week injections plus twice a month IV B12 and still it has taken my body 5 years just to go up a little bit. I feel the effects of the shot for about 15 hours barely then I just feel awful again, thankfully it's prescribed every 2 days. But I don't want to do it every 2 days forever!
In the beginning I was told it would take a month or two to get my body back to normal and then just a shot every few months for maintenance. My drs have not only increased my dose but also the frequency and STILL after all these years I'm deficient.
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Degenerative discs and spondylolisthesis,had injections worked well for 5 days now all back ...
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I have recently been diagnosed with fairly mild iron deficiency anaemia, which was picked up incidentally prior to an unrelated issue, and I was told it is a type that usually stems from bleeding. I was advised to speak to my GP about treating this, and on doing so he first asked me if I'd had any worrying symptoms, well I haven't noticed any obvious blood spurting from anywhere, or any blood in my bowel movements/vomit, so I said no. He then seemed to put it down to periods. I don't really have periods, and when I do they are pathetically light, so I don't think its that, but he didn't seem concerned. I am now on a 1 month course of ferrous sulphate and need to have more bloods after that to see if it's sorted it, but I am just worried about what caused it in the first place. I don't think my diet is particularly bad, so where on earth am I bleeding from!! My GP doesn't seem concerned, so I'm guessing I shouldn't be either, but just wondering what other people's experiences are of the causes of their anaemia?
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I have been to multiple doctors over the pas year. I started out at an orthopedic surgeon because my knee was swelling (previous meniscus removal in that knee btw). According to him nothing was wrong with my ligaments so he referred me to a rheumatologist. After testing positive for both blood tests (rheumatoid factor and high anti ccp level) he diagnosed me with rheumatoid arthritis. I did not have any of the typical symptoms of rheumatoid so I went to the Mayo clinic for a second opinion. I then tested negative for the rheumatoid factor and after a thorough exam, he concluded that I don't have rheumatoid. Throughout this time and still now I have been experiencing the following symptoms:-
-random blurred vision
-popping and pain in elbows
-popping in back when taking a deep breath
-numbness every once in a while in fingers
-chest tightness and shortness of breath
I have had chest xrays, full blood work, etc. All came back fine. Am I making this all up in my head?! I feel there is something wrong but every doc I go to says I am fine.
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I'm a mum of 6 and have had bleeding from the bottom on and off for years but never had it dealt with I was given suppositories for haemorrhoids but never took them I have been feeling really unwell lately and doc said I need to have a op to remove the haemorrhoids but after reading the posts on here im really scared but then im also worried that i am not running on all cylinders due to my low blood count what's worse operation or feeling this low its really hard as i have a family to take care off and not sure if i can deal with the recovery needed as per the stories on here is the operation really as bad or worse Than childbirth? i had 2 c sections and was ok after those but this sounds so much worse
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Hb 3.7 iron deficiency anaemia
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My pee smells like asparagus but didn't eat any, can something you eat cause this besides asparagus?
About two weeks ago, I noticed a pain in my back together with the asparagus smell, I took an antibiotic for a few days, the pain cleared within a day but the asparagus smell did not clear.
Two years ago my pee smelled like asparagus too and since I was convalescent from a physical injury and had antibiotics I took them and the smell cleared. Am a celibate person with clean health habits so it could not be an std, and I don't have any of the symptoms of a uti. Can something you eat besides asparagus cause this?
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I have to go for a gastroscopy and want to have sedation. Will I be allowed to as I am anaemic, Hb of 5.3. Can anyone advise me?
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I have historically had iron stores of .5 my gp said my hemoglobin levels are fine and has gave me iron supplements. He is also checking levels every three months. I am very dizzy all of the time, have shortness of breath, I have constant feeling of brain fog and often get my words mixed up. My gp says this is not a result of my low iron stores. I am really struggling is anyone else experiencing similar
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I'm suffering from exhaustion for long years.
Lately I noticed that in my blood tests there are a results that might indicate of an Anemia.
RBC-Red Blood Cells 4.46
Hemoglobin 13.4
Hematocrit 39.9
Fe - Iron 82
Ferritin 81
Are those results indicate os an Anemia?
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I have been low iron since i was born. Only recently has my doctor been checking my levels and trying to raise my iron from anaemia. My doctor says that i should be getting between 800 - 1000 mg of iron a day. That means i have to take an iron pill four times a day. So when should i take the pills? Do i take them right after or before meals? I will go back in two months and they will draw blood to see if my iron has improved. I am just wondering what to do in the meantime to improve my iron results?
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I've been on ferrous fumarate for 3 months and doctor says my results are improving (hemoglobin has reached normal and ferritin has went from 1 to 12)
My symptoms were continuing so I was tested for B12 deficiency and got result today. B12 came back as 276. The doctor left a message to say continue with iron for 3 months and that was it! I am really down as I don't know whether the iron will up my B12 or not? I don't know if this means my B12 is on the up or if the iron tablet has nothing to do with it?
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Basically in april 2015 i went to consultant for pile treatment, he advised me to have them treated by injection, i went ahead with this procedure, for a week i was fine then i noticed the itching and pile/pain had returned went back to my consultant he told me he thinks it was a fissure and to take creams and come back to him in 3 weeks time for further consultation.
alas 2 weeks later i was in severe pain and discomfort and phoned the consultants office that i was in bad pain and was told the consultant was on holidays and would not be back for a further week!
at this stage i was told by my doctor to attend hospital a+e for emergency
treatment ,this i did and was told to present myself at the hospital fasting from night before to see a new consultant---Phew it gets worse!
arrived at the hospital new consultant in fairness said he would put me under a full GA and see what is going on there
the following morning he told me yes indeed the piles were back there was one internal and one external and that i was better off going for the laser treatment called THD, which i booked in for the following week this was at this stage mid may had the procedure and for 2 weeks felt great
however on the third week i was in severe pain in the anal area and knew something was wrong (bearing in mind i was told the THD procedure has a 90%success rate..presented myself back to the consultant in hospital had to go under a full ga again he told me afterwards that the procedure had not worked for me for fu..s sake i was one of the 10% that it did not work for so i was booked in for the following week to have the piles which i was now told one of them was thrombosed removed by surgery so have had this done in mid june and have been in terrible pain since, especially after bm to the point where all i could do is sit/lie in the house all day taking pain killers stool softeners and baths every day. every time i phoned the consultant i was told it takes time to heal so after 7 weeks of severe pain id had enough, i went to my doctor got a letter of him to see the consultant urgently as i was in severe pain meet with the consultant am now booked in again for early next week this is what he said the wound is healing however it is a time thing, he will have a further look at me to see if there is something else causing this awful pain he said there is no fissure but wants to give me a botox injection in the anal area to help with the healing, can anyone please advise with this as i do not want to get any worse pain than i am in presently sorry for the long rant but this is actually what happened to me it has changed my life whereby in the last 6 months being in terrible pain and discomfort and am now wary about this botox injection
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I've had worms since last September which is almost 7 months. The worms are white and small. I've take ovex about 10-15 times in the past 6 months. I've taken pripsen about 4 times. Neither have worked.
My nose has been itching and really bad itching anus which is depressing me. Could this be anything other than threadworms(which I've sent a stool sample and sticky tape test off and all come back negative).
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I am healthy non smoking 65 year old, very active physically and overall healthy. I had the urolift procedure done May 23 2015 at which time the surgeon installed 5 clips. Prior to surgery I was on 8 mg of flomax which made it possible for me to urinate.I did wear a catheter bag for awhile then. After surgery I was on 4mg of flomax for approx. 1 month. I was able to urinate adequately for about 8 weeks. Never but once what you would consider a flow. At about the 9th week I started slowing down again until it got to the point (about 11 weeks) where it took me 8 minutes to start peeing and then it took two more times in the next half hour to finally eliminate somewhat completely. Now in the 14th week of post op I'm on 8mg of flomax right back where I was before surgery.I am now considering what options are available to me now.
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