Parkinson Rule Out - Still Walking And Balance Difficulties - What It Could Be?
Sep 7, 2014
My grandmother has serious difficulty walking, only being able to make small, shuffling steps with a walker and when someone is holding her. She was originally diagnosed with parkinson's, but lacked other symptoms like tremors, cognitive issues, etc and did not respond to levodopa. MRI and not responding to treatment ruled out Parkinsons, but doctors are unsure what she has. What could cause the symptoms and the trouble with walking?
Specifically, she cannot balance standing upright and most hold on to something. When walking, she can only make small shuffling steps, she sometimes fails to lift her feet off the floor. She can move her leg fine when sitting or lying down. She also feels heavy pain.
This has been leaving all of us confused as a lot of conditions (like Parkinson's) have been ruled out, but.. what could it be?
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I came here to hopefully help others who may have been told they have LPR when really, they have something else.
The symptoms of LPR are exactly the same as the symptoms of nutritional deficiencies of B vitamins, vitamin A, and iron.
In particular, a riboflavin deficiency will dry out the soft tissues of your throat so that you feel every tiny drip of what is actually normal mucus. Riboflavin is a B vitamin that is not stored in the body and you must eat it every day. Dairy products, something many of us with mucus are told to avoid, are very high in riboflavin, and one of the best sources. Stress, illness and certain chronic conditions can increase the body's requirements for riboflavin, causing deficiency symptoms, like a dry, post nasal drip in the throat. (In my case, I became deficient due to an undiscovered thyroid issue. When the thyroid is not functioning properly, you do not metabolize riboflavin.) Mild riboflavin deficiency will also cause dry, itchy or burning feeling of the eyes.
Other B vitamins which affect the throat are niacin and folate. Iron deficiency causes tongue and throat swelling and can even cause webbing of the esophagus. Vitamin A and zinc also affect the mouth, tongue and throat. Iodine is essential for the salivary glands.
Certain health issues can affect the metabolism of nutrients. You can be deficient even though you get plenty of it in your diet. Your genetics, your diet, and your current health conditions all affect your nutritional status.
Proton pump inhibitors and acid reducers can make things worse by reducing your absorption of nutrients.
If you want to try some vitamins to see if they will help, start with the water soluble B vitamins. I recommend taking coenzymated sublinguals which melt under your tongue, so that you don't have to worry about whether you are digesting and metabolizing them properly.
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My latest consultant advises I need an operation to treat a deviated septum(restricted airway on one side of nose).
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Has anyone had this operation,and if so, did you have relief from nasal drip and improved breathing through the airways.
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I am looking to make contact with someone that has had surgery or experiencing the same symptoms as mine.
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I've had swollen nodes in the past. I noticed a few times on my jaw line.
I haven't been diagnosed with lupus, tests many years ago were totally clear as were vasculitits tests. But curious if anyone has had nodes on one part of the body pop up. Im praying its not IBC. I'd much rather it be something else. IBC is the most aggressive form of BC and spreads in a matter of weeks, so grasping for other explanations
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I am 29 year old female and for the past 2 years I have been feeling off balance and sometime dizzy, but mostly off balance.
I have went too 2 different Neurologist, A E.N.T, and A Cardiologist. I have endless blood work, A CT of the brain, and a MRI of the brain. Everything was always NORMAL! Once I was anemic and my b12 was low which is normal now.
This past weekend I was dizzy, and I got scared, I went to the ER which was nothing but a waste of time, they just told me sometimes people get dizzy and that's all.
I went to a doctor I had seen before but not alot she had looked at the blood test that one of the Neurologist had order and found out I was anemic and had a b12 deficiency and re-order blood work so she knew I had been having this problem for quite some time.
I went and did my blood work the next day she called me and told me that everything was back but my VIT-D but everything was ok, she said my b12 was on the low end of normal and she was gonna give me a shot once a week in case my body was just needing more than normal. I said thanks and went on my way at work. I was truly starting to think I was crazy.
The next day while at work, she called me again to tell me my Vit-D was low. It was a 19. And that is why I was getting Dizzy and Off Balance. I can't tell you how happy I was to finally have a answer!
So my questions are:
1.) Did anyone here get dizzy or off balance with a Vitamin D Deficiency?
2.) How long to I feel better? I am taking Vitamin D 50,000 units once a week for 8 weeks then going to re-check...
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Anyone else feel dizzy/off-balance every day? I don't think my doctor(s) believe me when I tell them that I feel this way (almost) every day....I've not actually fallen down, but it feels as though I'm swaying even when I'm standing (or sitting) still....in fact, it's almost worse when I'm standing/sitting still....I was talking to someone in the hallway at work yesterday and thought I was going to fall over (although I don't think anyone can actually see me swaying)....I also feel a weird "internal" shaking in my legs sometimes...I've had a ridiculous number of medical tests, and they all came back normal....my doctors have suggested that it's anxiety, but I'm wondering if it might be perimenopause? My periods have been very erratic for the last eighteen months or so (which is about when all of this began happening)....coincidence? Looking for some advice from anyone who has these physical symptoms....how do you get through the days? I'm so frustrated...I just want my life back!
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I switched from xanax 1 mg at night to the equivalent dose of diazepam sleep has been for the most part ok but during the day i am off balance somewhat and just have a heavy feeling. Feel worse than the xanax.my dr would not give me 2 mg tabs said they don't come that way.New doctor see what happens I really need to start reducing but hard on 10 mg.also I have some vertigo.
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The excruciating sciatic pain is gone but I am left unable to walk w/o a walker or sometimes I can use a cane. My back, at the incision is painful and weeping slightly. My R. knee hurts like all hell , my R. hip has pain but is somewhat better. I am afraid to stay alone for risk of falling, as I tend to still lose my balance. Both of my ankles are heavily swollen to a point of being unable to put shoes on. I know that the muscular atrophy didn't occur overnight as well as, well most of my symptoms. So tell me, anybody who has been here, is this normal,? Should I expect up and down "victories" as I have described?, I know that I am young in my recovery but does this seem to be following a normal path of recuperation ?, or could something else be wrong? The Dr. never did mention what to expect post op.
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I have been diagnosed with Spondylitis in the top of the neck it's not the tightness or the pain it's the way it's affecting my balance! I also have a inner ear problem so not sure what is causing the Vertigo or could it be a bit of both can anyone out there help before I go crazy thanks!
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Some of you might have read my ongoing battle with constant dizziness/lightheadedness and general feeling of being off balance along with the usual symptoms of anxiety thrown in for good measure!
I thought after having to clear CT scans, seeing an ENT doctor twice, having an echocardiogram and wearing a heart monitor for 24hrs and having a scan on my neck and numerous other checks and bloods that I would start to feel better knowing that everything is checking out to be fine but unfortunately not it's just not going away just when I think that things are improving and I have a good day it comes back and bites me in the backside today being a good example I've felt OK all day then go to bath my kids and bang it hits me, I go all dizzy and my body feels very heavy and like I'm being pulled to the right all the time then I go into panic mode and worry about what is happening to me, how I feel and what if I pass out, I'm so sick of worrying about what's going on all the time it's taking over my life!
I also had a call from the docs about some bloods I had done last week they want to see me so wondering if anything has showed up on them!
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My father (now 81 yrs) was diagnosed with Parkinsonism some years ago. My understanding is that Parkinsonism is considered to be a "cousin" of full-blown Parkinson's disease. Is it as bad as Parkinson's?
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Is dystonia related to parkinson's?
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What is the difference between the 2 ( sinemet- requip) and has anyone tried the fisher wallace stimulator?
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