I have recently been diagnosed with Parkinson's disease and am worried and confused. Are there exercises I should do? I am not on medicine but I understand that there are some that should be considered. Which ones are best for the early stage of the disease.
View 4 RepliesI have just been diagnosed with CKD stage 3 (GFR 48) and I can't understand why. I have low blood pressure and don't have diabetes. I am slim fit and healthy and age 52 so not that old. I also have a low white blood count. Can anyone shed some light? My GP does not seem worried, and so nor should I be, but I feel uncomfortable not knowing what has caused this.
View 3 RepliesHow can I improve my Stage 3 kidney disease, having a G.F.R. of 34?
View 6 RepliesI'm 10 weeks pregnant with our first child and I think I've hit the emotional eat everything stage. I can't stop eating I'm like the hungry caterpillar or something, but my husband's in Arizona for work and I'm in Virginia and I just wanted to talk to him so I hop on FB and I see he shared a video about 40 minutes ago so I send him a simple hello message and no response. It just makes me feel like hey pregnant wife should be the first thing you talk to when you get off work considering I'm your wife and pregnant with our baby. I went from so mad that I wanted to punch something to crying am I wrong for feeling this way ?
View 4 RepliesBackground: I am 66 years old and have suffered first attack in mid November 2015... I have been fairly active person and have done some triathlon in the past, so not being able to get out of the bed on my own was pretty shocking to me... It took about one month to diagnose PMR and I started medication (prednisone) at 15 mg/day mid December.
If there is an interest, I would like to post about the progress in recovery, with special attention to exercise. I am seeing specialist every 2 weeks and complete blood work is done to monitor inflammation caused by PMR.
I would like to post what I have done thus far and future progress in (hopefully) successful recovery.
Hi! I'm going to preface this post with some background information: I'm 19 and I've been suffering with constipation for my entire life (my parents have videos of me straining to have a BM when I was still in pampers). It wasn't until last year that I was diagnosed with constipation by delayed colonic transit and put on Miralax to help move my BM's.
Unfortunately, because this diagnosis came so late, I've been straining to have BM's for the past 19 years, changes in lifestyle (diet, exercise, fiber supplement, etc.) all for naught. This straining led to hemorrhoids, which brings me to this forum. I've been dealing with hemorrhoids since elementary school, and when I have a flare up, I'm practically debilitated from the pain– my last flare-up kept me awake for 3 days straight and gave me multiple migraines. The flare-ups happen once every few months, but can last up to a week.
I wanted to know if anyone on here has had a hemorrhoidectomy, and what their experience with the procedure was like. I'm figuring that my hemorrhoids are AT LEAST a stage 3, and the surgery looks like the most permanent option. Also, if anyone has constipation by delayed colonic transit and as a result have developed hemorrhoids: how have you dealt with it? What has worked for you?
I see a lot of the post-op for a hemorrhoidectomy has to do with the intake of fiber, but too much fiber can actually make me MORE constipated. :(
Any thoughts, opinions, or personal experiences would be a LIFESAVER. Thanks for listening to my rambles!
I am told surgery is only option but being alone in ....
View 2 RepliesI have sjogren's and systemic sclerodermatitis. I have been told to do some exercises as these may help stretch connective tissues and alleviate some stiffness in scleroderma. With sjogren's, i just feel exhausted most of the time and I wonder if doing some exercises could help or aggravate my exhaustion. Is there anyone out there who could point out to me what exercises best suit me?
View 18 RepliesI am 29. I have squint from birth. I squint my right eye occasionally to focus far objects. I can see the near objects without squinting. I have 100% vision in both my eyes. In my childhood I had my one eye patched to strengthen the muscles. Also I had some eye therapy. Since I was a child I did not take the therapy seriously. So I still squint. I was thinking of getting a surgery to correct this. Now after reading these comments I have decided against getting a surgery and search the internet for some eye exercise.
View 1 RepliesI am a 34 year old male who was diagnosed with hemochromatosis only after a liver biopsy because i only have one of the genetic markers. When diagnosed my ferritin was over 5000. Shortly after i was diagnosed with stage 4 cirrhosis of the liver. Is anyone out there in the same boat as me.
View 14 RepliesI had a microdiscectomy, L5-S1 on March 24th of this year. My recovery was terrible at first, possibly due to my waiting 5 months to have the surgery after 17 injections! Anyways, I was in fantastic shape before my injury. I would run a few days a week and do body strengthening exercises at home. At my 6 week checkup, my Dr. said basically all I can do is walk and swim. No squats, no crunches, no lunges. I don't have a pool or gym membership and I live in a state where it's getting to be unbearable to be outside! I'm getting depressed about my body. The pain meds have made me much lazier (and for a long time, hungrier!) although I am only taking them at night now. I have a pretty strict vegetarian, mostly vegan diet and I go to school for Dietetics so I know how to eat healthy, however I have gained a few pounds, although people tell me I look like I've lost weight. I don't feel comfortable in my clothes or own body for that matter. All of my lean muscle is gone and I feel squishy. It's bathing suit season here soon and I don't want to hide out all summer because of my insecurities. I just can't seem to get out of this sort of funk. I want to be able to be active and motivated again, it just seems like its taking forever! On another note, I am an exotic dancer. I have been dancing for 12 years now, I'm pretty sure that's how I ended up in this mess as I was very hard on my body, doing crazy upside down pole tricks and so on my Dr. gave me the ok to go back to work, but I am NOT allowed to do any of those moves I used to do, no tricks, no sudden twisting movements, no extreme bending. I have worked one shift so far, took it extremely easy and feel ok (although my legs were very sore the next day). I guess I'm going off here, but does anyone have any suggestions about any exercises I can't think of that I would be allowed to do? Can anyone relate to what I'm going through, or have any kind of advice at all? I feel so alone, and NO ONE understands the excruciating pain I've endured, sleepless nights and feeling so awful that I had wished at times I would not wake up. I already take antidepressants and benzodiazepines I am NOT willing to mess around with higher dosages (I plan to get off them after I graduate).
View 3 RepliesI recovered from stg 3 Sarc (in lungs, lymph, joints, sinus) 13yrs ago, after 5yrs of illness and 2yrs of steroids.
I now have Erythema Nodosum (sp?) - red painful bumps on lower legs.
Research suggests that 'EN' is associated with a specific version of Sarc, Lofgren syndrome, which is usually resolves quickly and without treatment.
I'm scared to go to the Dr, as I don't want to face the tension & round of tests to exclude a Sarc relapse. It's not something I want to go through again...
I wonder if it's very likely for a relapse to come with a whole new presentation of the Sarc? Or is it unlikely to be sarc, as I never had EN the last time?
Does anyone have any experience or advice which may help me decide what to do?
Best wishes to all who are currently battling with their Sarc, I truly understand your pain and your exhaustion. I was not expected to recover last time - but I did.
are there any exercises i can do to strengthen muscles? breathing now getting shallower and very frightened. I try weights to no avail
View 1 RepliesIn PT they me doing strengthening exercises.doing the pedal. Leg raises. Leg bending. What I want know is why my knee and leg isn't straight? I ice it and put heavy books on the knee, I stretch and I hang my leg off the bed just below the knee lying on my stomach. What else can I do?
View 10 RepliesI was told way back in August of 2013 I had copd. Smoked for 33 years. Started when I was 13. Did stop smoking in October. Now on 12 meds daily and get out of breath doing just about anything. I own a lawn mowing biz but getting harder and harder to do my job and getting ticked off clients because I cant keep up. Have been getting real depressed about everything. Someone told me to keep a daily blog about my life with copd. Started that about a month ago. Its somewhat therapeutic, it at least lets me get stuff off my chest so to speak. And maybe someone will read it and go hey i'm going through the same crap. In my case its hard to find folks going through it or those that do who even want to talk about it. So if your getting depressed i would recommend doing a blog. No one may ever read it, but you will be able to get out all the stuff you want to say. Thanks for listening and i hope you find what you're looking for.
View 3 RepliesI'm currently training for the army and my fitness level is so-so. I ran up and down hill, and then did Grit Plyo exercises. During Grit my knee felt sore, kind of a shooting pain. Afterwards it hurt like hell. Keeping it curled seems to make the pain go away but I can't fully extend it and I limp everywhere. I can't feel any swelling 24 hours later but there is inflammation (it's a bit stiff) I didn't hear any popping sounds and I rest it with a hot water bottle and some anti flammability pills three times a day. I've had achilles problems in the past if that's any help but I seem to get knee problems from going up and down hill, as last time I went uphill my knee hurt but I was able to rest on it. I went to a physio and within two weeks it was fine. I waited a month before getting back into high impact exercise and now this happens. Any advice please?
View 1 RepliesI'm a 37 year old man who was diagnosed with HSP in 2007. My symptom was the rash which appeared all over my legs and buttocks. The rash went away but left me with stage 3/4 kidney disease. I feel very scared this will lead to total kidney failure. My recent results doesn't look good with my creatine being 216. This has ruled my life and I'm so upset this could happen to me. The doctors don't know anything. All they have done is put me on 10mg of Ramipril and basically hope for the best. I'm getting married in July to my beautiful fiancé who I love so much but I seem to focus more on this disease and what might happen to me in the near future than her. I'm going to try an alternative way to help my condition. Systematic ideology (excuse the spelling) This focuses on strict diet control, with taking 100 percentage herbal ingredients. The therapy focuses on targeting muscle groups and emotional part of the body. Has anyone else tried this? Would love to hear from anyone in the same boat as me and is there anyone out there that has been in the same situation and continued in stage 3 for a very long time.
View 3 RepliesMy son is 8 years old and has today been diagnosed with first stage Perthes.
His foot turns in when he walks and he has pain in his knee.
Please can someone tell me how to make life in the house easier!
He has been told not to put any weight on his leg at all and has been given a pair of crutches, but is a wheelchair better?
How long after a stage 0 lumpectomy , can you wait befor you receive Radiation treatments !! mine is held up due to my HMO Ins. I didnt need Chemotherapy!
View 1 RepliesMy son is 2yrs 2 months old and has suffered Constipation for 10 months ... it started when i went away for a weekend and he had his first weekend without breastmilk... 3 days late he was screaming in pain and had a stool stuck I was about to take him to hospital when in dropped enough for us to remove it,
the problem got more frequent over the coming weeks despite a lot of research on web tryin all kinda things increasing his fluids (which just made him wee more) and changing his diet (we tried more prunes, brown bread rice pastas, watermelon and watery fruits cutting out bananas and other foods) and he was prescribed Lactulose by the dr, whom told me it was just something toddlers get at this age, but it got worse as we weaned him onto cow's milk and the dr just increased his does of Lactulose over and over ... and saying would be 2 years until he would ref him to hospital.....OMG was my reaction, he passes stools most days but all are firm large and dry like rock the poor thing is in tears trying to pass them. his hanging of furniture like his in labour and there telling me this is normal at his age.......
so with yet more net research tried yet more diet changes no milk at all , goats milk, pre and probiotics, exercises, massage still to little or no effect
he now has senna from the dr too but the dr is still refusing to give him a ref, but my Hv has at least said there is a problem she thinks its "slow bowel" so currently trying to find out more on this as i am at my wits end and running out of things to try to relieve his pain its breaking my heart,
I know this is also now becoming psychological too and who can blame him when it hurts him so much, I am worried it will effect his happy go lucky nature being in pain for months on end. not to mention he starts preschool in nov and i am worried if this isn't sorted by then what i am going to do....
Many professionals and the charity PD uk sat that you do not die of PD you die with it...BUT The world Health Organisation receive statistica from the UK about the Number of Deaths Caused By PD in the UK...PD is one of the leading causes of deaths in the UK... I haved PD and suffer from anxiety but it occurs to me on a regular basis that the lack of knowledge and information that is presented to us by a community of experts that all disagree is causing more confusion not only for the sufferers of pd , the public also find the whole thing a non starter. It is an illness for which there are no clear up to date definition and is therefore just seen an old person's shaking complaint
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