I am hoping to find other parent's that also have an adult with Down Syndrome. I am finding that there is several subjects for baby's etc. but very little groups that focus on "adults with Down Syndrome".
View 12 RepliesI understand there is research suggesting that severe trauma shock or stress can be carried thro the DNA to the next generation. I know my mother was stressed during pregnancy with me and her mother committed suicide when my mother was young. The Baby Boomers parents had both world wars to contend with as well as The Depression, How many LS sufferers' mothers had traumatic times, and whether their histories should be taken into account when considering what causes autoimmune responses like LS
View 13 RepliesI had my right kidney removed 3 year ago. It was atrophic and only functioning at 19%. They could never explain what happened to it. Right after my daughter was diagnosed with VUR and had to have it repaired. Recently after a stay in the hospital for an infection in my only kidney, they said they found VUR in my kidney. I have not had anymore test yet due to waiting on my insurance. My questions are. Can they fix it? If not will I need a transplant? Am I a good candidate for a transplant Because I also have AIH?
View 1 RepliesMy mother of 60 y/o has recently developed a problem whereby she clears her throat very often, sometimes up to every 10-20 seconds, and literally all day.
I think it is more habitual rather than necessity, and because of that I feel a bit awkward about bringing it up. She has no other symptoms and is generally in good health. Her sister has always had a mild form of Tourettes, she has certain small tics, but my mother has never shown any signs before.
I have searched the internet, but the only info regarding this seems to be about infants.
Is Adderall effective in adults as well as children?
View 2 RepliesI am 35 years old. I had crooked teeth since my childhood but I didn't pay much heed. As time has passed now I desire good properly aligned tooth because I am facing teeth cleaning, brushing complications and bite problems. Can senior adults have braces for their misaligned teeth? Will I get results for the same?
View 4 RepliesOur 25 year old athletic marathon running/bike riding daughter with good sugar and cholesterol levels most of her life had a massive heart attack recently. Has anyone studied the effects of "insulin" in young adults to see if there is any correlation between taking insulin and heart attacks in young adults?
View 1 RepliesI have Primary Sjogren's Syndrome but was born Hypermobile. It was only after my present Rheumatologist diagnosed that I have scoliosis that I started to research. I found the Beighton Scale and the Brighton criteria which I match completely. I explained my research to my consultant and she agrees. However while she and another consultant both agree I do have POTS so far I don't have an appointment to see anyone to help me. I have had ECGS and a bubble ECG but they have been taken while lying down. Now the POTS I really noticed post the birth of my last son 29 years ago is getting much worse, can anyone advise me as it has taken decades to get this far, I don't feel time is on my side
View 4 RepliesHaving been officially diagnosed with Sjogren's syndrome about a year ago, I think back on ALL the diagnoses I have had related to it: "nutcracker esophagus and severe GERD", "esophageal spasms", polyarthritis, fibrotic lymph nodes, fibromyalgia, Prinzmetal angina, benign parotid tumor excision (trabecular adenoma), dry skin, dry mucous membranes, etc. and now know they are all part of the same syndrome, which has been steadily worsening and becoming more malignant (and I am only sixty). There are many other more serious difficulties, but now I'm wondering if I, too, will get non-Hodgkin's lymphoma, since that is what some people progress into. It is NOT that this frightens me at all--but now there is something of which to be aware (and I'm not certain my M.D. knows of this). I also have glaucoma and cataracts--so I really have to protect my eyes (and I have had a vitreous bleed into one of them).
My ophthalmologist (a retinologist) placed upper and lower tear duct plugs in my eyes--which has helped, but I still have to use lubrication. Since I am a writer and use the computer extensively, I find it quite hard on the dry eyes. I am extremely careful to drink lots of water and often mix pure fruit juice with my water to avoid calories (sugar) and to make the water more interesting. This does, however, exacerbate my stress incontinence gained after fracturing my back--for which I stay close to a toilet (but my writing is done at home.)
I am 14 nearly 15 years old and for as long as I can remember i have had this problem and my father also has the same problem but I seem to have it on a much larger scale.
My feet do not warm up naturally, even in bed at night they are freezing cold and if it is cold outside my feet are purple and I have very blotchy looking skin on them and my hands, when they are like this they look like the feet of a dead person.
Also, when it is cold, my hands go white, purple, and then bright red. They are numb during this and when they become bright red, my fingers swell slightly and it looks like they are about to burst. Also at this point, if I touch my hands or fingers together, they will sting and the pain is unbearable, it feels like stepping into a hot bath after being in the snow all day, but 10x worse.
I haven't yet been to see a doctor although I know I probably should. The problem with my hands doesn't affect me unless it is unusually cold, mostly during the winter and the problem with my feet is constant, during all weather and all seasons. I have had multiple friends and family members say it could be circulatory problems but I am yet to know for certain
Here are my test results, should I seek treatment? My other thyroid labs look okay. Not sure what to think....
RT3 22.5 (9.2-24.1)
FT3 3.6 (2.2-4.4)
Ratio 16
Also any thoughts on these antibody tests?
TPO 15 (0-34)
Thyroglobulin antibodies < 1 (0-.9)
TSI 42 (0-139)
Also for reference, here are my thyroid labs and b-12 Vit D labs. I've started to supplement b-12 and vit d. But should I ask for anything else? Any other meds or tests?
TSH 1.32 (.45-4.5)
FT4 1.24 (.82-1.77)
FT3 3.4 (2.0-4.4)
B-12 267 (211-946)
D 37.4 (30-100)
Symptoms, fatigue, muscle and joint pain and stiffness, numbness in my hands, cold all the time, low temperature, low bp, no sex drive, losing my eyebrows, low metabolism, have trouble losing weight or gain weight for no reason, depressed mood, easily irritable, can't handle stress or I don't handle stress well, high cholesterol despite healthy diet...I'm sure there are others but these are the worst ones..
I'm just so confused... It appears that it's not my thyroid although, thyroid explains alot of my symptoms and I have a strong family history. Just not sure where to go from here. It's been suggested on another board that I have adrenal fatigue, but I'm not sure what to think about that either. Trying to get some ideas.
I've felt something, fluid-like, under my right rib for some months. I had my gallbladder removed last September and had no problems for several months. Recently I have had irritation under my rib with soreness. It feels like a fluid sac that moves around. It's uncomfortable at time and I have to watch how I sleep on my right side.
View 2 RepliesI was diagnosed with an extreme case of RLS and have been taking Requip along with Klonopin, I am up to 2 mg of Requip 3 times a day and it worked great for a while. It seems like it quit working, my legs hurt so bad I could cry, the weight of a blanket feels like a two ton weight on them, they feel like they on on fire, and and I haven't sleep for days. I just started taking gabapentin, I really don't like taking it because it makes me feel looney kind of like in a fog. Sometimes I break out into a cold sweat so bad that I am just dripping with sweat and feel like I need to lay down, and turn the fan on me. The sweats are beginning to be more often. I just don't know what else to do.....
View 14 RepliesMy dentist told me today that I need upper dentures due to Sjogren's Syndrome. Has anyone else had to get dentures and how did you deal with it?
View 1 RepliesDoes anyone have this should it be affecting my teeth and jaw they are agony on top of the burning.
View 2 RepliesOne day last November I awoke with a 'bitter' taste in my mouth.
Several visits to my GP later and I'm still not much further forward.
I'm a 43 year old female. In October 2013 I was diagnosed hypothyroid and began treatment of 50mg levothyroxine per day. Because the bitter taste started relatively soon after beginning the medication, I put 2 and 2 together and thought it was causing the taste. But, no, I took myself off the medication for 3/4 weeks over Christmas and still had the bitter taste.
I've drastically altered my diet as I thought certain foods made it worse but can't pinpoint one particular allergy or sensitivity.......
I've changed toothpaste, tried mouthwash, cut out tea, milk, all dairy, and mainly eat very healthily - fruit, veggies and chicken.
My GP suggested LPR (silent acid reflux) but it doesn't taste like 'acid' - it's just bitter/sour.
I've been on Gaviscon after every meal for over a month and Ranitidine for almost 2 weeks. The symptoms persist still
My mouth can get quite dry, and the bitter taste seems to be on my tongue and/or the roof of my mouth or around a wisdom tooth on one side.
I can't cope with this for much longer. It only eases up when either sleeping or eating.
Has anyone ever had problems with lithium and restless leg syndrome? I can't keep them still. I have been back on lithium about 2 months
View 1 RepliesI started having vision issues just before Christmas. I went for a visit to my Ophthalmologist today. Turns out my blurry vision issues are a result of the cold air and my Dry Eye Syndrome. I did leave with a prescription though for mild correction for distance.
The doctor told me I could fill the prescription or not, it is up to me. How do you decide when your vision is bad enough to start wearing glasses? I don't mind the glasses themselves, just wondering if it is worth the cost yet. Thanks for your input.
Have had TMJ Dysfunction for many years which was controlled. Then 12 months ago symptoms returned and did not respond to usual methods of treatment. At the same time had some kinesio taping for back problem. 3 days later my whole body went into spasm . I have muscle spasm pain , tenderness and trigger points. Attended acupuncture , osteopathy and had exercises and foam roller. Work was getting worse and was struggling in with great difficulty in pain . Last October virtually collapsed and had to retire. Went to local Hospital Dental clinic who said I had MPS as well as TMJ. Gave me exercises for jaw. January 14 also in pain from damaged nerve from operation 30 yrs ago wisdom tooth extraction. Have pain and Tinnitus taking pain killers muscle relaxants also having massage. Feeling lost. You have to have this MPS to know what it is like. Can anyone advise on coping strategies?
View 2 RepliesSo yesterday I went to see the RA and it appeared as if he cared. He explained that I was severe with FIBRO and that there isn't too much that he could do. He upped my LYRICA to 200 mg (not sure why as it gives me more issues than taking pain away) . He also suggested that I go to a Fibro Clinic in UF , some where in the panhandle of Florida, I can not do it (Finances, Insurance, I don't drive because of LYRICA) . He also gave me a referral for SUBOXONE This is a medicine that they usually give for people who have had problems with pain pills.The RA explained how he just read an article in how this could help me. Has any one else experienced this? Did it work?
View 2 RepliesSelenium deficiency is considered by some naturopathic doctors the key to Fibromyalgia and CFS.
Some even relate it with animal “Nutritional muscular dystrophy” AKA “White muscle disease”.
Should we go to the vet?