Open Or Laparoscopic Myomectomy?
Aug 9, 2015
I have very large fibroids, and I've been offered a few options by different doctors. The first surgeon I saw recommended open surgery. The risks associated with major open surgery are serious. The first, and biggest concern, for me is the risk of waking up without a uterus. I'm quite attached to my uterus. My second concern is the amount of time I'd be out of work. I freelance, and my job is very physical. I will not be able to return quickly, and I don't get paid time off.
I was not on any type of insurance when, March, I found out the problems I'm experiencing are due to fibroids, so I went on Medicaid to pay for medications. Several doctors have recommended that I go on Lupron, which is $800 to $1,200 a shot.
Being on Medicaid, I'm fearful that I won't get the same level of treatment post-op. A few nights in a hospital charity wing can be deadly. Let's face it.
I went to get a second opinion from a doctor who referred me to a the head of robotic surgery at the hospital. She told me my fibroids can be removed laparoscopically. I researched the procedure, and the surgeon I was referred to, and I'm on the fence about what I should do. The surgeon would need to break up the fibroid in order to get it out, and when the FDA began discouraging its use she was quoted in an article touting it. "It needs more research." Well, I'm on public assistance. I'm on public assistance and I'm not stupid.
I'm between a rock and a hard place here, because none of my options are good. Morcellation spreads cancer in 1 out of every 350 myomectomies, which is why the machine is being recalled.
Do I take that gamble? Open surgery sounds terrible, and it will set me back for a long time--and that's if everything goes right! So should I risk laparoscopic surgery and hope that I get on with my life safely, or do I get the traditional major surgery? My friends and family are pushing me to get a laparoscopic myomectomy but I have reservations. I've also been exposed to a lot of chemicals, because I'm a painter. I've since been more diligent, if not militant, about safety and protection... but exposure is exposure. I worry about it. Certain types of cancers do run in my family, ovarian, uterine, cervical, etc. not being among them. Other endocrine related cancers do run in my family, along with diabetes and endocrine conditions not related to cancer. My mother had endometriosis, and both my mother and sister would get ovarian cysts. I, however, do not.
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I am 4 weeks post laparoscopic myomectomy.i have uterine hematoma of about 8 cm. I am anxious about it. Can it be reabsorbed by my body? Doctor said she will aspirate it If it will not get smaller. I still have pain even after i urinate. I have checked my urine for UTI but result was negative.. Am i in big trouble here?
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I am having a da vinci robotic laparoscopic myomectomy on Tuesday and I am really scared. I am scared of the general anesthesia, I am scared of the pain meds and recovery. I am scared of not being able to do things. I am even scared of being scared. Anybody else go through this surgery that could ease my mind...only positive stories please I can't take anything negative.
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Hi I am 3 weeks post laparoscopic myomectomy. Few days after surgery I started noticing my lower back ache. The pain is in the middle, by the tailbone. Pain can sometimes also travel to my right leg. And also the pain is a lot worse when I walk or sit for over 5 minutes.
Unfortunately I can't take anti-inflammatory because I get a lot of diarreah from just 200mg. So I've been using a heating pad and just sitting.
Anyone had the same experience? What is causing this? Will this go away? What can I do to make the pain subside?
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I just had surgery done on Fri April first. 4 days ago. Today (will be) Tuesday. What was supposed to be a quick, easy surgery requiring the 3 small holes in the uterus to take out fibroids w possibly an inch incision if they couldnt take it out, they opened up "a can of worms" and had to cut a 6 inch incision horizontal "c-section" at the bikini line to get fibroids and endometriosis taken out while manipulating the bladder and filling the stomach up w gas so they can see everything. Recuperation was originally supposed to be 2 weeks but has been changed to 6 weeks w post follow up in 3 weeks. Can anyone tell me if they have had a similar "procedure" done, what I can expect in the next "6 weeks" and how going back to work will be like. My part time day job-25 hrs a week is an easy non stressful behind the desk answering calls and at the computer. My 40 hr week FT is more physical, working in a laboratory, living heavy items up to 50lbs, LOTS of standing in one place, and if there is sitting, its a stool. Please help me out. I'm 33, 5'5, 123 lbs. I'm not a big girl, but not too skinny either, toned.
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I am just over 4 weeks post open myomectomy and was wondering how others have recovered. The scar is still swollen and sore which I expected however at times I get what I can only describe as sharp "stabbing" pains. These seem to be more from inside my body rather than from the scar. Is this normal? I'm not due to see my GP for another week so just wanted to check with others who may have gone through the procedure.
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It is 5 weeks since I had a bikini line open myomectomy. Had 1 orange sized fibroid in all layers of my uterus. My doctor said the location was making my bleeding particularly heavy. I had tried to avoid surgery for the 6 years that I experienced symptoms. I just couldn't keep from being very anemic. I ended up needing a blood transfusion as my hemoglobin was at 6. A few days after the transfusion I had the surgery. It was all done quickly to prevent another period as they where getting increasingly heavy. I am happy to report that my period was only 5 days and no cramps! My anemia is going away quickly! My scar is still swollen and gets worse the more tired I get (which is surprisingly quickly). My sleep is still off and there is a little pain. But it seems normal considering it is a major surgery.
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I am scheduled to have an operation in June for an open myomectomy. I was prescribed Zoladex for 12 weeks before surgery.
Firstly I am scared of the side effects of the drug.
Apart from the medicine I am scared of having an open surgery and what I will do with myself during the 6 week recovery
Has anyone had an open myomectomy? How was it for you? Did you recovery quickly? How safe is this form of treatment?
I don’t even know if I should do it…I have 6 fibroids –largest is about 7cm. My gynae said since I have so many I am better off doing an open surgery. But I would really prefer keyhole. The only symptoms I have is pressure on bladder and basically looking pregnant.
Anyway I am hoping to hear stories from people who have experienced this and how they felt/what they recommend?
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I had an open myomectomy 7 days ago to remove 7 fibroids. The largest was 14cm and the other 6 were in the ranges of 3-7cm. My surgeon seems to have done an excellent job, thankfully not a vertical cut either which i was dreading but also removed a cyst and endometriosis on one of the ovaries which came as a surprise. I have two concerns:
1. I have no children and aged 40. Has anybody successfully gone onto have a baby after an open myomectomy after the age of 40? If so how long did it take you to get pregnant after the surgery? Was it natural conception or aided by anything? I really need some hope here!
2. Does anyone know if it is normal to experience tight, pulling sensations on the incision? Like muscles contracting and relaxing (without pain)? Is this the uterus trying to heal?
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It's been 10 weeks since my open myomectomy but I still dont have my period. Is it normal? Was told by my ob-gyn 4 weeks ago (last post op check up) that I should have my period within 2 weeks but until now...nothing. Should I go back for another check up or wait a little more?
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I am in Australia (this website is fantastic by the way) and have just finished my first week of recovery after having an open myomectomy to remove a 15x11cm fibroid.
The fibroid was on the outside right hand side of my uterus.
I feel like I am recovering quite fast (have been able to get up and active during the day). However, I have a constant tenderness like pain on the inside on the right hand side. I have been sleeping on my sides at night because I can't stand lying on my back for too long! I feel like this may be irritating my insides though, do you think I could do permanent damage by lying on my side?
What are your experiences 1 week in post op?
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It is 10 days now since I had Open Myomectomy surgery. 32 Fibroids were removed, which surprised me, and I was in hospital for 5 nights. I am now home and getting stronger each day. The days before the surgery were anxious days but at the same time I was looking forward to the sugery and being free from the many symptons that fibroids cause. I had a great surgeon and anathestist and went fully prepared mentally, physically and spiritually for the surgery.
Surgery took 2 hours and remember being brought back to my hospital bed hooked up to IV fluids, catheter, oxygen and equipment on my legs to stop blood clots. Pain was minimal, similar to mild period pain and I was encouraged to use the Morphine pump to manage the pain for 2 days. Morphine did make me feel nauseated which is common. Once I was free from catheter and IVs on day 3 I was encouraged to do my Pelvic exercises and to walk around the hospital corridor. I was given paracetamol and ibuprophen at regular intervals and BP, tempearture and Pulse was moniored on a regular basis, which were all fine. I was encouraged to drink more fluids and had no issues with empyting my bladder or bowels so knew everything was working OK. Getting in and out of bed and sitting up was difficult during the first 5 days but became easier each day. Its amazing how much we rely on our stomach muscles for so many things. Once I was home on Day 6 I started doing very light duties around the house and a 10 minute walk outside plus regular naps whenever I felt fatigue. I can now do 15 minute walks and looking forward to getting stronger each day. I have some swelling around the incision but that is normal at this stage. Will see the surgeon 20 days after my surgery for post-op checks.
Overall my surgery went very well and I am very pleased with the progress I am making. Although Open Myomectomy is major surgery, becasue of the advance in technology, the skills of the surgeon and the excellent pain management and hospital care it is a much easier experience than I thouht it would be.
If you have been told by your consultant that you need Open Myomectomy surgery do not be afraid, focus on the positive aspects of being free of fibroids symptons, read up on the procedure, watch videos of the procedure if your that way inclined, understand the risks, prepare yourself physically and mentally and follow the advice given by your consultant on the aftercare.
I am grateful to God that my surgery went well and I am looking forward to getting back to the gym in dure course and having a better quality of life without fibroids.
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I am 11 weeks post op after having 13 fibroids removed. The largest was 10cm and they were over a 1kg.
My concern is that I still have a sore to press overhang. It hurts more when my bladder and bowels are full. In fact the bowels filling still hurt inside quite a lot so am still taking a stool softener (not that they are working as well as they were).
I am also still numb around the scar but mostly down into my groin. Am thinking of booking another appointment with my specialist but don't want to waste her time if this is all just normal.
Have read some places that 3 months is the general healing process but I really don't feel like this is all going to have disappeared by next week.
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I had the LNF surgery three days ago and just wanted to tell you my experience of it all as I was terrified of the surgery and of the side effects afterwards - so much so I considered cancelling it at the last minute! I read a lot of information on the web in the days leading up to the surgery (good and bad) and was left feeling that even people with what seemed to be good experiences seemed to be having a very hard time. As it is so far I've been pleasantly surprised!
I had surgery due to a loose gullet which was confirmed via endoscopy. I opted to not be sedated so I could get the results these are then (if you're sedated you get them a few days later as you tend not to be awake enough afterwards to take in the information). The endoscopy wasn't the most pleasant experience but was over fairly quickly and something I could do again if needed without being nervous about it.
I then had all of the PH testing which confirmed acid reflux and the associated tests for swallowing that confirmed that I was a good candidate for Nissens.
Fast forward to three days ago and arrived at the hospital very nervous about it all and feeling like I wanted to back out. I'd read information on the web about bloating, not being able to burp, not being able to vomit, dumping, diarrhea, etc. and couldn't see how I could live with all of that afterwards! My surgeon was very dismissive of most of my fears (in a good way) and confirmed that not being able to vomit may be a side effect and short term bloating may be an issue but the rest of the side effects won't be an issue. I really trust the surgeon as he has always been very open with facts and statistics so was happy to go ahead with the surgery.
Feedback from the surgeon was that the surgery was very straightforward. He found a Hiatus Hernia which hadn't showed up before which he fixed as part of the fundoplication.
Since the surgery I've had a lot of discomfort in my tummy area but I've put this down to the holes that were made for the procedure rather than the fundoplication as it is very localised on the surface of my tummy. My lungs have been a bit sore since too and breathing in deeply has been uncomfortable but both issues have eased over the past three days.
In terms of eating and drinking I'd been told by the surgeon to experiment with textures to see what I can handle which is much better than the clear fluids for a week I was expecting. So far I have been able to drink water, squash, Horlicks and Decaf coffee without any issues. It takes a lot longer to get through a drink as there is a feeling inside like a funnel where liquids get backed up a bit when I swallow too much but there is no pain associated with this and it goes away after a few seconds. I managed to each half a bowl of Weetabix the morning after the surgery, moving on to custard, semolina and chicken soup over the past couple of days, none of which was strained. I'm probably not drinking enough due to how long it takes but my bladder and bowel movements are pretty normal so I'm not too worried about that at this stage. Also I am able to burp after eating and drinking. Probably not voluntary at the moment but when my body feels like it needs to it does. The same goes for passing wind too although there seems to be a lot more of that than usual!
So far I have no regrets about the surgery and feel that it was definitely the right thing to do. I expected the weeks after the surgery to be difficult but so far haven't suffered too badly. I'm self employed and work from home on a computer and am aiming to do a few hours this afternoon building up to full-time again next week, one week after the surgery. However, if I wasn't working from home I don't know if I could manage working in a office at this stage yet and definitely couldn't handle a commute via car, train, etc.
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I hope you don't mind me posting on here a rambled question as I'm new to the forum and haven't contributed yet. I've read through several posts about Laparoscopic Ventral mesh Rectopexy and some not so positive outcomes, and my heart goes out to you all!
I had the LVR done nearly 6 weeks ago. I have had chronic constipation for 7.5 years now and have only just, this past year, been able to get anyone to take me seriously. I'm now 26, and have been through everything in terms of diet, water, exercise, toilet position, relaxation, supplements etc. I have been on Dulcolax daily; things like Senna or Movicol don't seem to do anything, and newer drugs like Prucalopride have been useless. I paid for a private consultation in Oxford follow my request to my NHS gastroenterologist for a transit study and defecating proctogram. I had a rectocele and intussusception grade with with full rectal prolapse.
On a side note, I have pernicious anaemia, folic and iron deficiencies, and was recently diagnosed with Hypothyroidism (after a lot of pushing!). I am being treated for all of these but the Levothyroxine for hypo isn't doing anything, so the GP has suggested some people look online for an alternative NDT...
Post surgery, I've been constipated as usual. The Movicol / Laxido did nothing on 2 sachets a day. 3 sachets a day and nothing happened either. Dulcolax did something, but it didn't work as quickly or as effectively as it did prior to surgery. Last week I called the consultant and he suggested I may have impaction and to take Citramag. I've done that this week and it was horrendous - 2 sachets and 8 hours later, and I was finally able to go. This was mostly with pushing my stomach out, massaging my stomach, moving around etc.
I feel like there's still some kind of obstruction because with laxatives I know there's something in the rectum, but it goes no further. Without laxatives, and I don't feel anything there; it's like nothing happens in the descending colon, there's no 'activity' that I can feel. Before surgery, the transit study showed all markers still in my colon as I didn't move my bowels at all. The markers were mixed, some made it to the rectum but many were at the top of the descending colon. I'm wondering whether it's possible I'm still 'obstructed' and whether my colon is even working (all these years having to take a stimulant laxative surely won't help!)
I was just wondering whether anyone has any thoughts? I'm exhausted, just spent all of the money I had to my name on this surgery and I feel like it's worse. I should have been looking to go back to work from next week but that's not going to happen with the state I'm in. I don't want to be on laxatives, and I feel these past 7 1/2 years have been a complete waste. It all seemed to happen over night that I became constipated as I'd never had any problems with my digestion before that (I was prescribed iron tablets and thought it might be those, so I stopped taking them but never regained bowel function).
I see the surgeon next week but don't know what I should be asking or what options I should look to explore. I can't go on like this and I'm sorry for the rambling and feeling sorry for myself, I'm just feeling very alone right now and pretty fed up.
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I really don't know how it happened or if it was caused during sex. But my clit slit opened. and i don't know what i should do. It did not hurt at all or did i bleed. Is this normal? and im trying to think since when it became like that...
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So I recently just gave this guy a blowjob. We are both clean. But he had precum and I have a open wound. What's the chances of me getting HIV or AIDS? Help please I'm just very nervous and anxious.
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I had an encounter with someone I don't know his status.We engaged in kisses and masturbation. I am worried because I have a fresh open wound on me feet due to new shoes and the man touched my wound with his hand. His hand had his precum. Am I in danger?
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I am getting a lot of light yellow fluid from the open wound. The open wound is red inside with slight whitish at the tope lining borders. Is my wound healing?
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Male, mid 50's,double inguinal hernia, open procedure.
Day 1 no real pain until the meds/anesthesia wore off. Not too groggy.
Day 2-4 no pain when lying down, just when getting up. Then sharp pains in groin near upper thigh, really nasty pain. Right side, retained feeling everywhere. Left size all numb below scar, to and slightly onto thigh, and to base of penis. Balls not sore nor swollen. Advice, get a bed pee thingy if you drink a lot of water, it's a lifesaver.
Then onward, once the pain began to wear off a bit after about five days, I stopped pain meds and switched to advil. Nothing made much difference. I didn't have a bm until about five days after the surgery and was terrified. I was taking Colace and it worked fine. I drank a ton of water.
When I started getting up and walking, the sharp, burning, scraping pain was there when getting out and into bed. When walking it was like someone had put a brick in the left side of my groin. It was heavy and uncomfortable, probably due to the neuropathy. My nerve was not cut, I found out later, but it was all probably due to the fluid, swelling, and trauma of the nerve during surgery.
The progress here on in was extremely slow. A month in, still some paint, but less, still equal amount of numbness and discomfort when walking and sitting. After week three i could finally like on my side, which was great. This relieved the pain in my heels that were killing me from resting against the bed. And it ended the sore kidneys/back from lying around. A friend said socks can prevent this.
Week 5, still numb, but the heaviness in the groin feeling is getting slightly better. I went through a sort of depressive time after reading online about people who didn't recover well after a year or more. I'm feeling better these days, emotionally. After sitting/walking around for a couple hours, especially if I go out and walk, visit a store or anything like that, I get completely wiped out sort of all of a sudden. It feels like my entire energy is gone. Other people I ask say this is normal with surgery and it takes a long time to get the energy back. Saw doc and he said it seems everything is healing per normal. That was good, at least.
So I wanted to post this, because it seems some people are up and running marathons the day after whereas for some of us, the healing seems to take a lot longer than expected. Here's wishing everyone good recovery and mental strength. It is taxing to lie around and wonder if and when things will begin to improve.
My recommendations: Tons of water. Daily vitamins. Colace for first few days, then bran etc. Get a cheap bedside hospital table from walmart or somewhere, it's great for sliding over your stomach and putting a book or computer on. I also put it over my abdomen at night to keep the cat from jumping up onto me.
Bottom line, don't get depressed. Only after nearly five weeks did I begin to notice a real sort of improvement at all.
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