Occipital Neuralgia - Metallic Taste And Cheek Numbness
May 16, 2016
I was told by my neurologist that's what I have which is fine I have a lot of the symptoms (burning in head, ache, sharp pains, etc.) however I would like to know if anyone else experiences a metallic taste with theirs?
Or bitter taste? Hard to explain the taste exactly but I noticed I only get this taste when my ON acts up.
My right cheek also feels numbish when it comes along. I have a nerve test for neuropathy in a few weeks (to see which kind I have) and have had CT/MRI of brain which was clear so the taste may be related to the neuropathy but it just seems weird it comes when the ON comes.
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I was wondering if anyone can help. I have had these strange episodes for years that no doctor can diagnose. Out of nowhere my hands go kind of numb, I get a metallic taste in my mouth, my face gets hot, and I feel like I am in a fog. Sometimes I feel nauseous, sometimes I feel like I will fall to the floor. They are very random. When I do have them, I will have a few in one day, like I said, sporadic. Has anyone else had these symptoms?
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I will Make this quick cause if i listed all my symptoms I would be here all day. And i'm sure most of u ladies know me from other threads. This vile taste is making me sick to my stomach. I was diagnosed with non ulcer dyspepsia two years ago but the ppi make me sick. Been taking ginger capsules for three days not helping. Please help
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My 74 year old mother in law had her gallbladder removed a week ago. After a year of intense pain she is now pain free, but seems to be taking a long while to recover from the anaesthetic- she has suffered headaches, backache, a dry mouth and a nasty metallic taste as well as feeling unsteady on her feet. She has not eaten well for months, due to near constant pain, but although she has been drinking lots of water and eating small but proper meals again post op, she is not feeling herself yet. She has not had a GA in over 40 years and we have been reassuring her that at 74 it will take a good week to get all the anaesthetic out of her system, but I had hoped she would have been feeling better each day. It is my father in law's 80th on Saturday and she would love to be well - any suggestions welcome, or just reassurance. She is seeing a nurse tomorrow to have the stitches removed so will be checked then but I suspect she will be told it just takes time.
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I was given lansoprazole due to a suspected stomach ulcer. I started taking it but was unable to continue to take the lansoprazole as it gave me a worse pain in my stomach than I already had and also a dry throat and mouth. I have now been diagnosed with h.pylori and started with triple therapy - esomeprazole (nexium)/amoxicillin/clarithromycin. The nexium isn't causing any stomach pain but is making my throat and mouth very dry and given me a sore throat and I am also suffering from a very unpleasant metallic taste in my mouth constantly. I went to the doctors again today and was given omeprazole to take instead but now I don't want to take it because I don't feel it will make much difference. Has anyone else had these side effects from the PPI and are there any alternatives I can take to inhibit the acid enough to let the antibiotics do their job?
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I noticed the following changes in my body when I experiencing some stress:
1. Frequent urge to urinate.
2. Restless legs (and other parts of body).
3. Heightened irritability (Anger/Mood swing).
4. Irritable bowel.
5. Metallic taste in my mouth and weak gums.
6. Metallic smell coming from my fingers.
7. Frequent feeling of thirst.
All of these seven symptoms occur simultaneously when I am late awake in the night or during stressful situations, and they are affecting my ability to function.
On a related note, I also experience sleep paralysis and hyperhidrosis but it is not simultaneous with the above symptoms.
I have noticed that these symptoms manifest themselves together. The restless legs problem occurs when there is urge to urinate (which is frequent) and I experience some relief after I urinate.
There is some bowel irritability and gastric problems which worsens during the night.
I have noticed that even at times when I do get my 8 hours of sleep in the day, I experience rage issues late in the night (at around 4-5 am) which recedes quickly in an hour or two.
I experience metallic taste in my mouth and a metallic smell in my fingers often. Other symptoms, such as gastric problems, urinary incontinence, and restless legs are almost always present when I am experiencing the metallic taste and smell.
The symptoms are relieved when I urinate (which I have to do quite often), brush my teeth, or sleep. They return quickly though when I am experiencing some level of stress.
The problems have been slowly worsening over the years and are interfering my ability to function normally.
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For nearly two years now, I have had a severe pressure pain at the base of my skull on the right hand side of my head. It has steadily got worse, often flaring up whilst I have been in the gym, but now, like tonight, it has been throbbing/stabbing so badly that I am unable to sleep.
I have been back and forth to my doctor about 5 times so far and every time she has sent me for a blood test and concluded that I have low iron and to take supplements for that. My whole family are susceptible to iron deficiencies and I am a regular blood donor who has never been turned away, so I am confident low iron has nothing to do with it.
I was getting quite frightened that I could possible have an AVM in my head, or something putting pressure on my skull, so after much persuasion, my doctor referred me for a CT scan that came up 'normal'. She called me and suggested that I keep taking iron tablets as this must be the cause of my 'headaches'.
I do NOT have a 'headache'!! I keep reiterating to my doctor that it is a constant pressure in that area, sometimes my head even hurts to touch, but she is insistent that it is a headache. Occasionally I get a pain behind my right eye and over the top of my head, so I am getting a lot better at wearing my glasses any time that I am reading or studying. I have looked online at my symptoms, and I think it could possibly be occipital neuralgia - does anyone have symptoms like this? I have looked on other threads but there seem to be a lot of associated physical symptoms, for me it is just the head pain.
If you would believe it, my doctor actually asked me if I wear my hair up at night as she thought having my hair in a loose ponytail could be causing the pain. When I said I wanted a scan, she told me she would 'have to make something up' that sounded worse than what I told her because if she sends a person for a scan and it's not serious, she gets a slap on the wrist, as scans are expensive and she can only request three per month.
I am going back this week to discuss occipital neuralgia with her (let's hope she knows what it is!) and to insist on maybe an alternative treatment to injections or meds - maybe acupuncture?
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I have had horrible migraines for 10+ years which have become chronic daily headaches, manageable, but daily. A year ago I started having horrible pains at the base of my skull on the right side, some days it is a horrible stabbing pain, some days it is just a dull ache, but it is always there. I saw my neurologist in May about the pain since it just would not go away, she really had no ideas for me, she thought it might be a pinched nerve but said she really didn't know, she started me on nortriptyline, after being on the nortriptyline for 2 months and no change, she switched me to gabapentin, I am now taking 1200 mg 3 times a day. Some days I notice a difference, other days no change at all. My Neurologist said to stay on it and it should be helping. About 3 months ago the same type of pain started on the left side of my neck, about 1.5 inches below the base of my skull, closer to the middle by the spinal cord than the outside of the neck, it felt like a muscle knot that wouldn't go away, for the first few weeks, thinking it was a muscle knot, I was trying everything to get the knot to go away, after no relief with heat, massage, ice, I saw my neurologist and basically demanded that we get an MRI to see what was going on, she said she didn't think that was necessary, but ordered it anyway. She said my MRI looked totally fine and that i should still stay on the gabapentin, but no more help than that. After that I decided to find a different doctor. I started seeing a physiatrist, specializing in neurologic issues. My first appointment with him was fantastic, right away he said from everything i am describing i have occipital neuralgia. He explained what it was, and that it is a tricky thing to get under control, and he really couldn't say what is causing it. He said that the gabapentin is what he would prescribe, and it probably is helping, just not taking the pain away totally. He did prescribe a cream to apply to my neck, that he said he has great results with. He said he likes to try this first before doing any injections. It is a special compound cream that is specially made at a pharmacy he uses, its a mix of baclofen, gabapentin, ketorolac, and lidocaine. Its hard to tell if the cream is working, kind of like the gabapentin, sometimes it feels great, other times the pain is the same...
My true issue and reason for posting is, I have had a bad headache on the right side of my head, it moves from the right base of my neck, around my ear to my front temple area. Throughout the day it is in a different spot and I can pinpoint exactly where it is, it feels like someone is stabbing a knife right in that area, but it lasts for hours, throughout the day it does get a little "better", but i can always feel it, when it gets "better" it just feels like a massive pressure in that area. I have been a headache sufferer for as long as i can remember, but this headache is different than any headache I've ever had, and it going on day 19. I have tried everything; my many different headache medications (including an injection i give myself), I've taken a dose pack of steroids along with some anti nausea medication my neurologist gave me, i have gone to get a DHE treatment from my neurologist, i have gotten a toradol shot, and pretty much anything else i could think of, and nothing is kicking this headache. After doing lots and lots of online research, it leads me to believe that this is related to my occipital neuralgia, not a "normal" headache. Has anyone has a headache like this before? Do you think it is related to the occipital neuralgia, or something else? Does anyone have any ideas to make it go away. Also, if anyone has any tips on dealing/treating neck pain from occipital neuralgia.
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Ever since I've contracted HSV2 my life has been a living hell! I've been having sharp pains all over my body , leg pains, itching sensation all over my body, and last but not least pains in the back of my head and neck which sometimes radiates to my scalp. can herpes cause this to happen? If so is it life threatening or deadly?
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Does anyone have problems with occipital neuralgia? I have been having headaches everyday going on 7 months now that are dull and cause shooting head pain. It travels from my neck, to the top of my head, behind my ears, and behind my eyes. I have had MRI's and CT scans, and everything has come back normal. I have gone to PT for 4 months and had 2 nerve blocks. Nothing has given me relief. I went to a new doctor yesterday and he suggested that I may have occipital neuralgia. I am desperate to hear about what has helped other people and to hear about how everyone else copes with this/if it has gotten better.
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I had bad head and neck pains and lightheaded/dizzy days for about 18 months. Would last a day or two then feel fine in between. Held down a super full time career and ran a home really well. Was successful etc. But since xmas when I had a major headache/pain in the back lower part of one side of my head which started boxing day and went on and on I saw a neuro who thinks it is occipital neuralgia. On gabapentin and awaiting some procedures in theatre to help (I hope!) Anyone else have this out there?
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My friend has had diagnosed with occipital neuralgia. I am now living in my country of origin because I developed Parkinson at the age of 28. I kept receiving medication in the UK but opted out for DBS at this clinic abroad. They were so great that they offered me a job as I recovered. I told the doctors about my friend and they told her to come over for something called peripheral nerve surgery as they had a doctor visiting from the States. She initially exhausted all medication therapy and also nerve blocks, I think she used botox did not help her. Now she is migraine & headache free, happy, smiley person.
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I had this unit put in in Dem. 2013 but because of the lead trying to push through the back of my neck it had to be revised in August 2014. Was doing great until January 19, 2016 when the lead again pushed entirely through the skin on back of my neck. Now my insurance company will not approve for me to have another unit put back in. I was free 90% of the time with my unit in and now I am back to having so much pain in this area. It makes it very hard to have any quality of life except to wait around for another horrible burning pain that takes 3 mores days to overcome each time. Has anyone else had their insurance refuse this especially when it worked great?
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I am 27 years old. For a few days I have had a headache on my right side which goes with a numb feeling in my cheek. I have pain down my right neck shoulder and arm which goes to my hand. I went to my GP today and he gave me painkillers Naproxen I think they are. I have took 2 already and due to take my third one. He told me I have a migraine.
I have left for 15 hours last night and another 3 today after coming back from my GP. I still feel tired. I have never had a migraine before but I am scared to death that this is not just a migraine.
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I have not officially been diagnosed with Occipital Neuralgia, but I am beginning to think that that is what I have been suffering from. I will be going back to a doctor soon (husband is military and we are currently getting ready to move to a new country...so it will be a few months before I settle and can get to specialist). In the meantime, I wanted some advice from others who deal with this. I am curious if this sounds like ON to you (I know you can't diagnose me...just curious if my story is similar to anyone else's) and what you do for the pain.
I am 25 years old right now. The headaches started when I was about 18 or 19 years old. It started on the right side of my head right at the base of my head and neck. I got them almost everyday. It was just a dull ache. Nothing awful, but definitely annoying enough that I would have to take advil (especially when I had class or work or something). As months went by and the pain continued, I started getting nervous that I had a tumor (I am a pretty big hypochondriac). I went to my doctor and he sent me to get a CT scan. Everything came back normal. The headaches continued. Went to a neurologist and got an MRI. Again everything came back normal. The headaches still continued. Went to physical therapy. Still not much improvement (granted, I don't practice the exercises he taught me very often). At this point, to be honest, I gave up hope. I took advil almost every day and learned to deal with the pain. I assumed it was just tension headaches. The pain has now gotten worse. The headaches are still only that one side of my head, but the pain spreads behind my ear and up to my right eye when it is at its worst. It feels like a deep ache and I constantly want to stretch or crack my neck or something (which doesn't work). I have a "knobble" that I use to massage the area. Applying a lot of pressure on it hurts...but in a good way. It sort of relieves the pain for the time being, but unless I take advil it will usually come right back and it will last for a few hours if I don't do anything.
I am a teacher and I obviously have to be at my best everyday. The pain makes it impossible, which is why I usually give in and take meds even though I KNOW I should not be taking it everyday. If I am just at home and have nothing to do, I try to massage the area and relax until it dies down.
Does this sound like it could be Occipital Neuralgia? Does anyone have any other idea of what it COULD be? I haven't had much help from doctors, so I sort of want to be armed with information the next time I go see one. I am sick of being told it's nothing when I am spending every day in pain.
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I'm a 27 year old female and I've been having abdominal pain for 2 months now. I've had a CT scan and blood tests done and everything came back normal other than an elevated WBC in the urinalysis. I can't get in to see my doctor for a few days and just want some peace of mind. I'm having bad sharp upper abdominal pain. It started on the left side originally but is now happening all over my stomach and I'm ridiculously bloated. I started having weird bone pain a few weeks afterward--there is no pattern. My hands will hurt, then my left leg will hurt, then my right hip, etc. Today I started noticing a metallic taste in my mouth as well. Anyone know what this could be? I've researched everything from hemochromatosis (my mom carries the gene) to H Pylori but nothing fits perfectly.
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I had no idea what Excruciating Pain was. Does Radiofrequency Ablation in the facet joint nerve work?
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(Background: Had an ear infection over the Summer that had me taking antibiotics, nose and ear drops. Put flea powder on my cat that went up my nose and caused a metal blood taste in my mouth. I stopped drinking well water because of it. A couple of months after the ear infection seemed to go away.) My sense of taste sent me to the doctor to begin with. If I ate certain foods my body felt sweat through my veins, burning almost. So I went off sugar thinking that was it. I had my blood tested and they said I was on the border of having thyroid. I took the synthroid medicine prescribed and had a really bad reaction, so they took me off of them. I haven't had any medication for 1 month and a half, but now my taste went from sugary to bitter. Like maybe I had ate too much cheese or something. Sometimes it feels like I have a lump of cream cheese in my stomach. I am waiting to go to a specialist about my thyroid, but I have my doubts about it. I think I might have a bacteria infection throughout my body. I did notice a bump on the roof of my mouth on the right side. Is this normal? Can someone please tell me what is going on? I have always been a worry wart, but I am not tired, I have a little difficulty going to sleep, and I lost 7 pounds since June.
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For about a month now I have noticed a metallic smell coming from my vagina. Recently it has gotten stronger. During intercourse is the only time I smell it. I also am experiencing dryness during intercourse as well. My fiance noticed it a few days ago while we were intimate. He also said he felt a burning sensation, but I feel nothing. We don't use protection when we have sex..Its not my period, but I know something isn't right. Now my fiance feels burning. I'm very worried and have an appointment in a few days to get checked out. What can this be?
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The last couple of months, I have been suffering what I find to be an unusual vaginal odor. It is not "fishy" or "bleachy" but rather smells... metallic/coppery? Could also be described as a slightly "sour" smell?
Similar to the smell of menstruation-- yet occurs even when I'm not on my period. My discharge doesn't have this odor at all, and doesn't seem to be out of the norm. I can only smell it on my partner after we've had intercourse, etc
My doctor has prescribed me medication for yeast infections and bacterial vaginosis and both didn't seem to have any impact whatsoever on the issue.
I'm taking Blackmores Women's Bio Balance probiotics and I haven't seen any change either.
This is becoming very frustrating and putting a damper on my self-confidence and my sex life.
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Ok so about 6 days ago my husband and I have had unprotected sex for 3 days in a row and then 3 days after I started spotting its a little pink with a high metallic smell slight cramp and slight pressure almost like I'm fixing to start my period.
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