Non Epileptic Unexplained Seizures
Sep 8, 2015
I got a seizure full blown convulsion, for the 1st time at age 24yrs, up until today i dont no what is the cause of it, all test is negative and clear just that now im living my life day to day on my nerves ,hoping and praying it does not happen again, that the fear i have. i work in the emergency services, i dispatch ambulances and take in all emergency 911 calls to send them ambulances, and now i hear whole day about seizures and then it play on my mind. im just busy going through server depression, i had a party joyful fun laughing life style until age 25yrs, now im 29yrs old in this 4yrs i lost so much out of life, im scared of everything and nervous and anxious, anything that doesn't sound normal to me scares me like a Aura is about to begin.im scared im going to loose my sanity, my wife, my kids, my job everyone I love
dearest.I'm honestly living life,everything I do I want the best for my family. But not knowing when it could happen is the part that freak me out. I was even wondering if hypnosis is a solution. i just want answer?? am i the only one?i have no scans or test to show why i got a seizure at age 24years.
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im getting frustrated because i have these seizures and when i go to hospital all i get is tests. after that i get appointment after appointment
and referrals. but still the seizures keep going on and no solutions.
my husband has put numerous complaints in and get more appointments.
this has gone on for quite some time. i stopped breathing twice during the seizures and was in hospital for 5 hours unconscious and on razapan all that time. so i need to get this sorted as soon as i can. the paramedics that took me to hospital thought i had epilepsy but consultants assumed different
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I was diagnosed with NEAD which also goes by the name of pseudoseizures. It has been 9 months now and even with a psychologist and a psychiatrist, I still have the attacks. They have lessened with the medication I am in. Valium, wellbutrin , and lamictal. I have decided to learn to live with this. I am grateful that I am not sick, I just have occasional seizures. I make sure someone is always with me if I am out somewhere who knows what to do. Knows to guard my head, not to call 911, and keep calm, if it ends great, if not keep living.
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For years have had unexplained bruises. any known causes
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Recently, I have experienced an itching sensation inside my left elbow. There is no sign of a rash or any bites (I have examined under a magnifying glass) and it comes in episodes of several minutes both day and at night when it wakes me up. It does not respond to any gel or cream including moisturising creams and hydrocortisone 1% cream. Episodes last between five to thirty minutes and it is very difficult to resist the urge to scratch.
My recent history has been that of a second heart attack in January and a procedure to carry out angioplasty and the insertion of a single stent. I have recovered fairly well. I am also type two diabetic and take metformin to control my blood sugar levels. I take a beta blocker, an ACE inhibitor, blood thinning agents and a statin.
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Just wondering whether people get any unexplained bruising or get easily bruised? I get them quite often and it's worrying me. My rheumatologist said that it can happen as our body is over sensitive.
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After struggling with docs for years over this I thought I would turn to the wider world some input. I am a 27 year old, healthy (enough) male who has been getting intermittent, irregular and infrequent chest pains on and off for around 10 years.
During an 'attack' the pain can be quite severe and sharp - I guess a bit like being stabbed. The pain is localised to the left side of my sternum and feels fairly deep (i.e. it cannot be palpated).
Attacks can last anywhere from a few seconds to a day or so, and tend to come in 'clusters' that can be present for up to a week. There can be months between each cluster of attacks (if you get my drift!).
Pain can sometimes be exacerbated when leaning forward, coughing, lying on my side or raising an arm (seems to always vary - and can sometimes not have any stimulators).
During a 'cluster' period and between attacks I can often feel a mild, underlying ache in my chest. This is easy enough to ignore however.
I have had ECGs and chest x rays that have all been fine, and am not affected at all during exercise - I can happily go out and run 10k with ease.
Doctors have in the past ruled out gastro reflux as there was no tenderness on palpation of my stomach area, although I have sometimes thought that attack can follow a big meal and be accompanied by burping (although this may be my mind tricking me).
Musculoskeletal problems have been mentioned, but why would attacks come in clusters and seemingly out of the blue?
I am at a complete loss and doctors have been no help. My wife is scared that I will just drop dead from a heart attack - and I am struggling to find new ways of reassuring her.
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About 10 days ago, I began to feel little prickly feelings, like a light needle poke, in random places on my body. I was a little concerned but figured it would go away. After a day or 2, I began experiencing a little muscle cramp in my left and right legs but my cholesterol and blood had just been checked so I called my doctor's office to find out if it might be a blood clot. They told me there were no blockages (they had just done a routine cholesterol test on me about a week before). Another day went by then my muscles began to get sore and my joints were popping sometimes. My muscles in my legs, arms (mildly), around my ribs (sometimes) and my under arms (sometimes) felt sore. I used a heated massaging pillow to make them feel better but was perplexed as to why I was having these aches. Sometimes I felt an arthritic ache also like the pain might have been in my bones. I was also having mild dull headaches. Then came a day when I felt extremely fatigued and so after a couple of days I went to the doctor. She said she was thinking I might have anemia so she had me go to the hospital and get a CBC test, a CPK test and to have my thyroid tested (I have hypothyroidism which I take medication for). The day I had my blood work done (yesterday) I felt very fatigued and was asleep by 9:00 pm, which is very unusual for me. I didn't feel muscle pain just weakness sort of. Today I feel a little muscle pain but not much, but I do feel a little weak. Also I had been having panic attacks a few times during all of this. I called the doctor's office today and the nursing staff told me the results of the blood tests from yesterday morning were all normal. I had thought it could be anemia which at least then I would have a diagnosis and could be treated but now I am even more scared because I don't know. What could this be?
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I was wondering if anyone can help. I have had these strange episodes for years that no doctor can diagnose. Out of nowhere my hands go kind of numb, I get a metallic taste in my mouth, my face gets hot, and I feel like I am in a fog. Sometimes I feel nauseous, sometimes I feel like I will fall to the floor. They are very random. When I do have them, I will have a few in one day, like I said, sporadic. Has anyone else had these symptoms?
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I was on the depo for a year. The first 3 months were fine, no side effects at all. The second month started the pain. Constant migraines, bloating, irritation and unexplained anger, depression, mood swings, panic attacks, and severe hypoglycemia. Hypoglycemia so bad that I had to eat ALL THE TIME or I would be close to fainting.
I never got the 4th shot. Coming off of the depo was complete torture. I was more depressed, I was fighting with my fiance so much that we almost broke off a multiple year relationship.. I was suicidal for a long time. But the problem is, the symptoms from coming off of it never got any better.
It's been 2 years, and I"m still depressed. Almost suicidal most days. I"ve been off and on a few different antidepressants and mood stabilizers but they only help until something triggers me into a depressive-bipolar state. I've also gained close to 50 pounds since coming off and that hasn't helped the depression either =/ (no real change in diet or exercise. I exercise the same but honestly eat better than I did when I was on it)
Is it even possible for the depo to be affecting me still? Could it have permanently affected me?
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For nearly a year now I have been having these symptoms, which are really starting to affect my life and college work.
Start off first with zoning out of conversations and just not being quite with it.
Then comes loss of consciousness and eyelid fluttering.
Then confusion, wandering round, verbal aggression (not screaming or anything, but apparently I can be quite rude)
Then I come round, just feeling tired.
Altogether (apart from tiredness) this can last anything up to an hour. I don't remember anything of these, and all the information has come from witnesses. I have had an EEG and MRI, which were clear. So why am I still having these?
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About 10 years ago I had something that resembled a stroke. I felt really strange that day and thought I needed to dilate my veins, i reasoned a run might help. After running about half a mile half the side of my body tensed or stiffened up; my head locked to one side, my arm curled in, my fingers curled in, the same side's leg stiffened and it was hard to walk. This lasted for something like 4 hours, and since then I've had trouble concentrating on things and the left side of my head/brain feels like numb/inflamed. I went to the ER and they gave me an MRI and said I had a brain cyst.
I always thought it was a stroke and I got some degree of damage, but a recent MRI doesn't show evidence of a stroke (but the pineal cyst is still there). So if it wasn't a stroke then what was it? Does this sound like an asymmetric tonic seizure?
I've had some other incidents that I thought were panic attacks where my vision goes dark, my hearing goes away and have to fight to not black out. Is my pineal cyst causing me seizures? I don't shake though.
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I am looking for information. My Mom has been diagnosed with Seizures about 10 - 15yrs. ago. She has been on different medications- currently taking Carbamazepine 500 mg A. M. and 400mg P.M. her doctor is starting her on Depakote with 250 mg twice a day then 500mg twice a day. She also sleep walks and high anxiety.
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My son has been having episodes at school, he explains then as he stares, and he can't hear anything, but he can remember what's happened and he can see and move his hands, he doesn't think he could stand or anything though. He is 10 years old and has recently moved schools, He has only noticed these episodes at his new school for the last few months and he had not experienced one at home until the other day when he said he opened the cupboard and just stared at the cups for a while. He also says he doesn't know when it starts or when it is happening but knows when it has finished that it has happened. He is going in for an EEG in a few days, I am a stressed mother who doesn't like waiting :/ Does this sound similar to any seizures anyone else has had?
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I think I been having seizures, I fall to the ground and start shaking a lot, when I was a child I did have seizure I did faint a lot but that had stop at the age of five, I told my mom because one time my friend was about to call 911, is it possible for me to start having seizures again?
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I recently had an EEG because of sensory symptoms, auras and smelling strange smells. The test came back abnormal but did not record any seizures. Would it have showed a seizure even if I did not know I had one? Or are the auras and smells themselves considered seizures?
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Back when I was 15 I started fainting, it didn't happen often but it always seemed to be in the morning after a cigarette. I would feel myself going, my fingers would go all tingly, and it would work all the way up to my head and my vision would go blurry and then i would fall. Over the next few years it was happening about once a year but this time it seemed to be caused by severe period pains - it happened at work once and an ambulance was called and apparently everything was fine with me. When it was period pain related i had more the sweats that would start right before and my hearing would go all tinny.
I am now nearly 25 and like most young adults I often go out drinking with my friends. It now seems these 'faints' are happening the morning after the night before type thing. It's happened twice in the past 3 months, once at home and one last week on a bus on the way to work.
Once again, i get the tinny hearing, tunnel/blurry vision, excessive sweating and heavy breathing and then i just go, but on the past 2 occasions, i've woken up almost having a fit - but its only my head that is shaking from side to side and i can't control it for a good 30 seconds and can't figure out where i am and am so confused... On top of this, on both occasions (unlike the previous 10 years) i have lost bladder control.
As i was on the bus for the most recent one i was roughly able to work out how long i was out for judging from memory of where i lost consciousness to where i regained it and it must've been 1-2 minutes. I don't think i could've been 'fitting' that bad on the bus as my head bust rested on the chair in front and i woke up smacking it with my head (sounds funny now, terrifying at the time!) so must've just looked like a weirdo on the bus. When it happened in my kitchen, i felt myself going so sat down but woke up with my head smacking against my cupboard door.
It's a horrible feeling and i know by the sounds of it alcohol is the main cause but i have many friends that drink a lot more than me and they certainly don't have any of this.
It's worth noting that i have been on Citalopram (10mg) since August 2014 -although i don't think the dose is strong enough to make any change to my mood let alone any side effects. I'm currently undergoing tests for a lump found in my breast which has been ruled out of being a cyst so awaiting results until beginning of May.
Is this anything to be worried about do you think? I've resisted going to the dr's as when it's happened before and paramedics were called and they said it was nothing and when i fainted in oct 2013 i went to A&E and he said i had extreme low blood pressure and i just got up too quick... but other than that, all blood tests and BP checks i've had in the past 2 years have said im fit as a fiddle basically.
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Have had seizures for 74 years. They are under control yet. I feel bad today, so I will try and be back tomorrow.
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I've had epilepsy all my life. I find the stress has really brought my seizures on a lot. Relationships has anyone had problems with their seizures in a relationship.
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I have been suggested 500 mg depakote.Very scared of weight gain..
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I have been taking Wellbutrin for years with no problem and its the only drug that managed to pull me out of a severe depression. Recently, For several weeks I had noticed I was starting to have some alarming cognitive issues at work (I'm 27). Then one day I had a horrible headache one morning and a seizure that afternoon. Neurologists looked at my file for 10 seconds and said you have to discontinue wellbutrin it's what caused the seizure. I told them about the issues that started before and they shrugged and said "stress maybe, it's got nothing to do with the seizure because wellbutrin caused the seizure."
So I'm tapering Wellbutrin down slowly but my cognitive issues are rapidly worsening.
I want to try taking some supplements as a desperate attempt to see if maybe I can get to a point where I can at least do my job. Gingko comes up a lot in my search but it has a seizure warning on some sites!
I'm aware of wellbutrin's impact on seizure threshold and it is supported with plenty of anecdotal evidence online but I can't find a single story saying this herb gave them a seizure. Has anyone heard of this?
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