I have been living with neuropathy pain for about 4 to5 years now. it seem as of lately that about 5 to 10 minutes after I take my pain medication that pain get strong for about 15-20 minutes and then the meds kick in and ease the pain. is this normal?
View 3 RepliesI was wondering what would happen if a Schizophrenic person stopped taking medication. (Without a doctor's permission.)
View 2 RepliesI came across this syndrome when searching the Internet about extreme pain I have when I take the first bite EVERY time I eat and sometimes drink. That this could be a symptom of this syndrome but I don't know. I do have some of the other symptoms, i.e. neuropathy, blurry vision, muscle pain, fatigue but these can also be associated with Type 1 Diabetes which I have. Also, came across parotid/salivary glands are affected which also can cause the jaw to ear pain I'm having. Has anyone heard that the Coxsackie virus can have anything to do with it? How do you know for sure if it is Sjogren's and what type of doctor do you see about it - a primary?
View 1 RepliesJust going into an air conditioned room; a fan is blowing on my legs; even at home in the evenings my feet and calves get cold. Then comes that cold-to-the-bone feeling for hours. Does anyone else have this problem? If so, what do you do to prevent the misery from cold feet that are hard to warm up?
View 3 RepliesHas anyone tried methadone for nerve pain? I've just started a low dose and wondered if you had any side effects and how long they lasted? Most important, any relief?
View 1 RepliesI've suffered with chronic pain in groin area for over 2years now after a few tests and Mri exam my specialist Dr Chawla told me there's no cure for Neuropathy besides help with medication and pain clinic. None of the painkillers have worked, bad time with side effects! I recently had Acupuncture with Gp only for the pain to spread all over body.
I have had no help and as single parent to 2 children this puts a strain on my depression. I don't want this to take over my life.
Has anyone had a DNA test to determine the effectiveness of pain medication? I have chronic 24/7 migraines and take high doses of Dilaudid (16 mgs) every 3-4 hours. Even at this dosage the pain is only reduced to about a 6 on the pain scale. What were the findings from your test? Did it provide any useful information or was it a way for my pain management dr to pad his pockets? As it is I have to see him every 4 weeks and provide a urine sample every other month. After 4 years you would think he could rest assured that I am not taking more than prescribed. I'm just afraid he looks at me like a way to make more money. Any, I digress. Please let me know about the DNA testing.
View 6 RepliesDoes anyone know if it is ok to use stairs immediately you get home from surgery. I live in a mill house, which has 3 floors and I am concerned about how I will manage these. Has anybody been given any information regarding this issue?
View 45 RepliesI noticed in some other threads that some people have nerve pain and are taking gabapentin. I have nerve pain around my vulva and vaginal opening. I have been given gabapentin. I presume it is some sort of post herpetic neuropathy....
View 2 RepliesI have had low and mid abdominal pain and bloating for a couple of days, which is getting worse. Since last night I have also had upper abdominal burning pain and nausea. I started taking Ramipril 3 days ago for high blood pressure and have read that gastrointestinal inflammation, abdominal discomfort and dyspepsia can be common side effects, so I am assuming this is the cause. I can't see a doctor for 3 days. Is there anything I can do to ease the pain/burning in the meantime please? I have taken paracetamol, a pro-biotic and gaviscon tablets to no effect.
View 1 RepliesAny experience with gabapentin causing chronic pain problems when taking or withdrawing? During my taper I developed major issues with sciatica and my hip. I'm also taking forever to heal from a frozen shoulder injury (14 months). I had preexisting issues. My guess is it's from all the couch time necessary to heal. But it feels like it shouldn't be this bad. I'm only 29
View 3 RepliesHas anyone found anything to help neuropathy after ALIF surgery? It has been 19 months and the pain is increasing. I cannot bear to wear anything except the loosest of clothing, I cannot walk without a cane or walker, I have new bowel and bladder function problems within the last 3 months. Is there anything that would even work temporarily to allow an airport ride? I buy even groceries online. I am in pain management with a respected doctor. I have have PT, water PT, massage, acupuncture, and narcotic medication. The fusion on L4/L5 and L5/S1 is fine; my life is not worth living.
View 3 RepliesIn May I was told I had a vitamin d deficiency. My level was 11. Right before i was told about my low d i had burning pain throughout both of my thighs. If anything touched my thighs it felt like bees were stinging me. I went to the neurologist because I was also getting numbness in my arms. He told me i had mp or another name for it is lcpn from wearing tight pants. I bought new pants and waiting six weeks. Saw him again and now he thinks it's because my d levels were so low. D is up to 50 s now so why am i still in pain. I had an emg done on my legs and it was normal. Emg on arms showed mild carpal tunnel. I was tested for hiv 5 months after any exposure results were negative. He tested me for a bunch of other stuff all was negative. Could all of this be vit d
View 2 RepliesI am a 51 year old male. My cholesterol was 256 and my doctor convinced me to take a statin in Jan 2013. I started simvastatin but my joints got so stiff I couldn't walk down stairs.
I switched to pravastatin ..only 10mg. I felt my joint in shoulder stiffen constantly (little league pitcher) but Dr said take if I can tolerate. Since I had chest pains for a few prior years I continued on the statin. MY Total cholesterol has slowly went down. I had no activity until 2014 when I pick up ice hockey.
However it is my belief my testosterone sank to only 400 along with my sexual desire. I will monitor my mood which has been very low for a few years, erectile dysfunction, testosterone level and total Cholesterol.
Been on too many different kinds of medication for my seizures from 3yrs to now. Is there any other options besides having surgery to possibly them
View 1 Repliesmy TSH level is 6.3, does that mean have to take medication forever? this is the first time it came this high.
View 1 Repliesi have just realised that a small part of one toe is numb - start of neuropathy? I hope not. Has anyone tried using the homeopathic tablet Kali Phos for this or indeed anything else?
View 2 RepliesWas on 600mg Gabapentin 3 times a day for peripheral neuropathy to little effect. Was prescribed Amitriptyline, took 25mg for 3 days then 50mg for 5 days - replacing the 2 Gabapentin at night. Reduced Amitriptyline to 25mg after awful side effects. Took for 2 days with 300mg at night (in addition to the 600mg in morning and new GP said stop Amitriptyline and increase morning dose to 900 mg. Was OK for a while, but then feet and lower legs started severe pins and needles, difficult to walk. Disturbed sleep last night and feet and legs still bad. Is this withdrawal from Amitriptyline? How long will it last? GP rang and said gradually increase Gabapentin to 900 mg 3 times a day and if necessary go to 1200 mg 3 times a day.
View 7 RepliesI have heard they have this to help neuropathy. Have not thoroughly checked it out. Has anyone tried this or know anything about this?
View 1 RepliesI am 74 years old and I'm having diabetes type 2 for last 4 years, than i have controlled my diabetes with proper diet and exercise without using any medication. but nowadays this seems not be working any longer, as my HbA1c level is above the normal range that is 7+ ....
Over 2months ago in jan 8th, when i took generic benadryl with dextromorphan, acetomeniphen, phenyleprine,(pill. after about an hour, noticed i loss about 99 of smell which in turn made me unable to taste certain flavors. Throughout the whole day i started feeling unusually shivering and cold. and notice i started to get tingling on the left side of my body. the next day my smell hasnt returned, and i went to the ER, was afriad it was a stroke or some brain injury. Spent 5 1/2 hours trying to find out the cause, but was unable, the whole time the doctor did notice my other symptoms i was jerking twitching while on the bed, and felt very tingly, i also have tachycardia. i was eventually discharged, over the next few days, i still had sense of smell loss which went to 50% but went to 90% loss very quickly over the next few days. While i was sleeping, at night my neuro symptoms intensified, my myclonic jerks, twitching increased, and RLS developed, at the same time i realized i also pins and needle show up on the left side of my body.
After about 1 week, the pins and needle came back on my left hand and feet. Then a few weeks later i noticed i had loss all internal sensations(full or empty bowel,stomach,bladder, eye movements) Any internal movement you can think of is loss. Actually about 99% gone, because i can still have a bowel movement, pee, and stomach sensations only when its overwhelming and prolonged stimulation. i do not have loss of bowel movement, no loss of bladder control.
The pins and needle came and went and move around my hands feet above the ankles. this is over the weeks as its now.
The pins and needles eventually started to appear more frequently on the right side, but not as frequent as left.
In feb 2 i went to the pcp, for possible diagnosis, but i hit a wall, as the pcp kept insisting that my conditions were mental, or genetic in nature.
Within the week, my pins and needles progressed to cool feeling(randomly but not frequently), now im experiencing random joint pains(1-2 sec bursts, not frequently or constant). Also the twitching is more prevelant when i am still.
I have been diagnosed with vit d deficiency, i am taking 2k per day(i dont know how long i have to be on) but she wanted 4k but was scared it causes itchyness, i already have itchyness from the so-called rashes i got, she diagnosed me with atopic dermatitis, which i dispute, as some other doctor said was contact.
Due to me being on welfare(MEDI-CAL ) i am not able to see my medical tests or records online, as they do not have this technology, but the medical center i go to seems to have it integrated into thier database. I do not have to acess to it, unless i pay for copies of medical record, they dont accept cash.
Furthermore, my specialist appt is in aprl 30th, which cannot be changed to earlier, because of me being a mED-CAL patient. i did not go the pcp appt last week because its across the city from where i live, and the pcp is already losing favor, because my previous visits with her was not finding whats wrong with my present conditions, but trying to make up a diagnosis related to mental health issues, hypochondriac, and i felt like i was going to get the same answers as b4.
i was tested for b12 and cbc blood count, but i do not have access to those results. when i requested other vitamin tests, she refused, i also requested lyme(because my symptoms only fit the neuro portion, now that i have limited joint pain). The parasthesiasins and needle, spider web on arm and leg feeling, tickling,prickling, pin priks, coldness feeling,some joint issues) these are constant everyday, there were days where they subside, and when i wake up. loss of sensations prevents me from feeling (if im about throw up acid). abnormal sensations of my right hands. i do not have numbness, loss of pain or itching, but i am certain thats coming next. Any ideas its lupus.i am in college, and i had to drop a class so i can deal and try to find out what my mysterious neurological condtions is..
My pcp thinks this is also hypochondria, because i stupidly told her i had kaiser records, before turning to WELFARE.
You wouldve think that sudden loss would warrant an immediate red flag, but she/they are not taking my condition seriously i am currently taking 4000IU, (2x2000Iu) per day. and taking b12 (1000IU prophylactic, i don't have test results for this yet.