Neuropathic Pain :: Whats Next For Neuropathy Patients
Aug 25, 2015
I've suffered with chronic pain in groin area for over 2years now after a few tests and Mri exam my specialist Dr Chawla told me there's no cure for Neuropathy besides help with medication and pain clinic. None of the painkillers have worked, bad time with side effects! I recently had Acupuncture with Gp only for the pain to spread all over body.
I have had no help and as single parent to 2 children this puts a strain on my depression. I don't want this to take over my life.
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I suffer with pain on the left side of my face in the form of tingling feeling in the lip, gum, tongue, nostril and eye. Have been on amitriptlyne for a while and then on gabapentine and pregabalin but the last two gave me awful side effects so have come off them and just taking painkillers at the moment, but they don't do much at all. Has anyone tried a Tens Machine?
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I was diagnosed 10 weeks ago with shingles and unfortunately it was on my head, forehead and around my eye, which was very painful and uncomfortable, My vision is ok but I keep getting a very sore and pink eye, and have been told at the eye clinic that it is dry eye and I now have the same type of drops that I was given weeks ago. Has anyone else experienced sore itchy eyes so long after getting shingles and if so, any idea how long it lasts? my eye gets SO itchy and sometimes I have to rub it which I suppose is just making it worse!! There seems to be nothing i can put on my eyelid to stop the awful itching
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I came across this syndrome when searching the Internet about extreme pain I have when I take the first bite EVERY time I eat and sometimes drink. That this could be a symptom of this syndrome but I don't know. I do have some of the other symptoms, i.e. neuropathy, blurry vision, muscle pain, fatigue but these can also be associated with Type 1 Diabetes which I have. Also, came across parotid/salivary glands are affected which also can cause the jaw to ear pain I'm having. Has anyone heard that the Coxsackie virus can have anything to do with it? How do you know for sure if it is Sjogren's and what type of doctor do you see about it - a primary?
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I was diagnosed with peripheral polyneuropathy 11 years ago. I take 300mg lyrica/day 60mg duloxetine/day and now they want me to take an opiate nucynta to manage my pain since I have trouble with pain. I live in California and recently got my MM license and obtained some Charlotte's web which is suppose to help with pain. Helps a little but pain killers work better. A friend of mine had me smoke some pot by way of vaporizing and it actually took my pain spike away for about 5 hours. Has anyone experienced this before? I'm afraid of what vaporizing cannabis could do to my health. However I feel like I actually have found a way to reduce my intake of meds and much more affordable.
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been taking this medication since September 2011 as i was having back surgery in the December.. looking back on it all now i have been severely depressed but haven't realised until now... i want to come off them without a visit to my doctor & was wondering if anyone knows the safest way to do this
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I have been on gabapentin for about 5 years. I have suffered from trigeminal neuropathic pain since a botched dental operation in 2003 and have tried a range of different medication that made me feel either spaced out, dizzy and sick or made no difference what so ever. Finally the pain clinic at Pontefract Hospital prescribed a combination of Gabapentin, citalopram and pain relief, zomorph. I can honestly say that it has saved my life. The pain had been so unbearable that I just couldn't see an end to it.
I take from 600g up to 2400g per day when the pain is at its worst. My memory has been affected but is nowhere near as bad as when on other similar medication. I do think it's like anything else in that people react to it in different ways and if it doesn't suit change it. During the summer, the pain recedes and I have gone on for days without any gabapentin and have suffered no withdrawal effects at all. Although I am not pain free, and I know that is never going to happen, the gabapentin makes it bearable.
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I was prescribed Gabapentin for fibromyalgia like pain - neuropathic pain. About 90 mins after taking one 300mg capsule I was experiencing some strong side effects. My spatial sense was distorted - I seemed bigger or smaller than I usually experience myself. I kept hearing indistinct voices - whole sentences in voices I did not recognise. I felt intense nausea. At one point I caught sight of my face in a mirror and had the feeling that the image was somehow independent of me, and that the face there was malevolent, and I was unable to break away for several minutes despite quite strong fear. I went to bed and as I lay there I felt like I was not quite in my body - lying beside myself somehow. My mind was caught up for a while in a series of incredibly violent and distressing daydream-like images over which I seemed to have little control. My body twitched and convulsed irregularly - although I've experienced this with intense anxiety and at this point I was really quite afraid! I woke early after a fitful sleep with an intense headache - behind the forehead, temples and also pain in my neck. Also some nausea. The headache lasted all day and into the night. It felt on a par with a moderately bad migraine (maybe 7 out of 10). I was unable to do much of anything except lie down and wait for it to pass (pain killers had no discernible effect on the level of pain).
That was one pill of 300mg. And needless to say I won't be taking another, let alone the prescribed 3 a day!
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I have been prescribed Amitriptyline for neuropathic pain, after Keppra did not suit me. The pain seems to be derived from a back injury, but a neurologist Thinks an antidepressant drug will help. The pain has been suppressed, but the side effects are a problem, like extreme tiredness and today dizziness when I was driving. Anyone had a similar problem and is it worth sticking with.
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I'm not sure Wat it is I have I have numbness in both feet and lower legs but my knees are in constant pain and buckle on random occasions or if I try and jog/run at the start of this I was detoxin of of alcohol addiction and that's when it started i've had and mri of my head and back bloods etc and all seems OK so it's leaving me and doctors scratching their heads?
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I had foot surgery 8 weeks ago - quite a major reconstruction that took a few hours.
when the plaster was removed at 6 weeks I was told that I had nerve damage causing partial foot drop and a lot of numbness and pain. I have just had nerve conduction studies and have started on Gabapentin and physio..
They said either the tourniquet or nerve block has caused it. I can't believe that this can happen, surely they know about these nerves and how to prevent problems.
Has anyone else experienced this and what has the recovery been like. I'm just wondering what my life is going to be like from now on.
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Just going into an air conditioned room; a fan is blowing on my legs; even at home in the evenings my feet and calves get cold. Then comes that cold-to-the-bone feeling for hours. Does anyone else have this problem? If so, what do you do to prevent the misery from cold feet that are hard to warm up?
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Has anyone tried methadone for nerve pain? I've just started a low dose and wondered if you had any side effects and how long they lasted? Most important, any relief?
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I was diagnosed with shingles in my forehead and eye 6 weeks ago,( the worst kind!!) and after weeks of discomfort with eye and forehead re-infecting, watering eye, headaches , itching etc, I now feel better in myself and my vision is ok, but unfortunately I have had complications ands am left with such painful neuralgia, my head hurts just to touch it and my temple is so tender, I have been told that this can go on for months or longer.
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I have been living with neuropathy pain for about 4 to5 years now. it seem as of lately that about 5 to 10 minutes after I take my pain medication that pain get strong for about 15-20 minutes and then the meds kick in and ease the pain. is this normal?
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Whats a good sleep aid while 18 weeks
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Whenever i go jogging, within 5-10 minutes, the calf muscles near my shin starts cramping/tightening up, I think it's the soleus. Usually one leg cramps up a lot more than the other but not tired one bit. I run on asic gel 1100, got them about 3 weeks ago and i run on a trail in a park. Also sometimes my calves don't cramp up but instead my hips hurt. Is it my running form or something else?
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What is the effect of tadalafil in diabetic patients..
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Hello my mother has diabetes and she is trying to Control it, I was wondering what she is allowed to eat? cereals or any other things like that. I have searched online but unable to find something that she can actually eat. I know she's not allowed to have carbohydrates but I can't find things without it, I think 50/50 bread and brown paste are allowed but she can't live on this diet forever.
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I've recently been diagnosed with Chiari Malformation type 1 and after reading up on the condition I found that lots of people with the condition either already have or develop syringomyelia. Does anyone know how likely it is that this will develop? Also, does anyone know if the symptoms will continue to worsen over time or will they improve now I'm on medication?
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The past 9 weeks I treated with olysio and sovaldi. They stopped at 9 weeks. The test came back at week 8 still positive. Tx was stopped. Geno 1A, Past biopsies showed stage 1 mild fibrosis. In 2010 they didn't get a good sample but told me it was probably still stage 1, but not sure. Now after an ultrasound that's "suggestive" of cirrhosis I fear after failed tx the progression will bring me down even quicker. Anybody have any GOOD info that olysio/sovaldi speeds up the virus progression? Dr.says no. Have been positive for 50 years. Since 1999 I have lived a very healthy lifestyle. For most of the years I supplemented and took the herbs to keep my liver in as good of shape as I could until a "cure" came along. So much for that idea. I never did the interf/riba. The past couple years for some reason I stopped taking my supplements, (glutathione raising supplies etc) I used to be a member of a group that was alternative oriented, then I stopped that. I did the q80 variance test and it was positive, and so I went ahead with the tx. My question is: Is this new drug coming out only for those who weren't sensitive to the q80? Or is it supposed to take care of tough bugs like mine? Im hopeful I will be eligible for the new tx. Im 68 now. I am starting to experience symptoms, unpleasant symptoms. Good days/bad days. Sorry for rambling but I saw Blue Metals comment about disease progression after failed tx and it kinda spooked me.
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