Neurological Disorders :: Discolouration On Optic Nerve With Septo-Optic Dysplasia
May 19, 2016
I have Septo-optic dysplasia, and I'm lucky if I ever get to see someone who's even heard of it because it's apparently one of those rare and awkward conditions with varying symptoms. But basically, in my case, the nerves in my eyes didn't develope well or at all.
I have 6/60-6/48 vision in my right eye and 0 in my left eye; as in I don't even see black or anything at all. I don't think light could ever get in there.
My most recent check up at the Optician showed some discoloration on the optic nerve in my left eye (the blind eye). It appeared black, apparently, which my Optician said meant it had been there a long time, as opposed to grey? But no one seems to know if this is normal for an optic nerve that never formed properly.
Apparently the discoloration is not mentioned in any of my letters on record, though. Is that weird? That's the only thing making me worried. Some people say it should be obvious so not included, but others say that means it's new?
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Just back from an eye appt and was told that my (L) optic nerve is thinning and my field vision test was normal.
I have not had any loss of vision or blurriness other than the blurriness that comes with my migraines. Is it possible to have optic neuritis w/o it affecting your vision?
I have to wait until 7/19 to see my neuro, so I am still waiting to be diagnosed, however, the news I was given this morning makes me lean more towards MS.
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My mother can't see anything clearly for 3 to 4 years. Doctor says that her eyes nerve are been blocked.
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Was cross eyed as a child. One surgery on left and 2 on right 57 year old male. Surgery at 6 10 and 20. Had about 5 bouts of optic nerve neuritis about 15 years ago. Both eyes but more serious in rt eye. No MS. MRI every year for 5 every other since. Now my right eye wanders up and out all the time contacts and glasses do not help much. My vision came back fine other than age stuff. I Want to know why my eye wanders up and out and is there anything I can do for it ? Is it from old surgeries? Is it from optic nerve?
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I m diagnosed neurocysticercosis on left optic nerve n m having blurring of vision.
Drs have put me on steroids past one year ,but no Improvement is seen.
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I was having frequent headaches and occasionally feeling lightheaded with floaters. I went to the opticians and they referred me to the ophthalmologist who put eye drops in and said that at the back of my left eye the optic nerve was sheeted. (I don't understand what this term means and cannot see anything on the internet to explain either) He just said that I didn't have any other symptoms for Optic Neuritis and wasn't sure but didn't think it was anything sinister. I am now waiting for a scan of the eye to see what that shows.
However, the last couple of weeks I have been getting pins and needles all over my body, mainly in arms and legs. I've also had general aching pains.
I have read online about symptoms and they point to all kinds of things, Fibromyalgia, Anxiety and possibly MS. As you can imagine this has really scared me as I have read that problems with the optic nerve can also be related.
Has anyone else had these symptoms or are they too few for me to be making assumptions?
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I'm 32. It was only detected after suffering 2 weeks of intense headaches which eventually affected my optic nerves in my eyes. I wear glasses and after 2 weeks of intense headaches my eyesight actually became much better which baffled me. I was sent away from GP with the diagnosis of a tension headache (which I don't hold any blame for) but luckily I pursued further and booked an immediate appt with an Optician who found that my visual field was affected in my left eye. I was advised to go to the Emergency Eye Casualty who continued with further tests on my eyes. They discovered the damage to my optic nerves but at this point were unable to find the source and I was seen immediately by a Neurologist who at first thought it was benign cranial hypertension. He arranged a CT scan and said that he did not expect to find anything but was very surprised to see the clot on the CT. I was admitted immediately and underwent a lumber puncture. I spent 5 days in hospital and was discharged on Warfarin medication for 3 months. I have since undergone a repeat CT scan. I believe I was very lucky as any longer I could have had a stroke. I was advised to stop the oral contraceptive pill immediately as they said this may have been the cause but also that I have recently underwent a breast reduction 3 months before.
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Deviated uvula; Is it cranial nerve palsy?
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I have worn glasses all my life and always been dependant on them. I was having trouble with my vision so decided to have my eyes checked out again, although i only had a sight test nine months ago. It resulted in me requiring stronger glasses and a large increase in both eyes, especially my left eye. I have a difference of 1.75 between my left and right eye.
I was referred onto the eye specialist again for further checks and i was told i have Optic Neuritis, and was told that my eyesight will probably get worse and been advised to return to the opticians in a few months to have them checked out again.
I was prescribed last year additional reading lenses i wear multifocal contact lenses most of the time but wear my glasses at night. I was advised by the opticians that my prescription is pretty strong especially needing additional reading help.
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I had my first bout of Optic Neuritis five years ago in my right eye and from memory I had no vision loss at the time only pain, my MRI was clear and the ON went away without any medication in about six weeks.
I had my second bout of Optic Neuritis that started in August 2012 (that's never gone away) it began very different with severe pain in both eyes then went to my right eye only for around a week then to my left eye (my right eye returned to normal) I completely lost the vision in my left eye and the opthamologist put me on oral steroids and referred me to a Neurologist due to a number of strange symptoms I was experiencing, she was no help as she said I was depressed and wanted to start me on antidepressants she really didn't want to listen so I didn't go back. I had a further two brain MRIs that were also clear and I regained cloudy vision that has only improved slightly now 12 months later I have days that are cloudier than others and have accepted that it will never get better,my opthamologist said I don't need to go back to him unless I feel I need to. My main question is I have recently been to three different optometrists (all from the same place) for new glasses and each time my new glasses came back I couldn't read through them, I don't know if they are getting my prescription wrong or if its my eyes, I contacted my ophthalmologist for advice and he said to try a different optom but Im embarrassed and scared that its just my eyes or Im going crazy, has anyone else had this problem?
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Over the past few days I have been experiencing pain behind the eye which had optic neuritis previously. Tonight as I was reading to my son in a dark room, with a lamp to my left, I noticed that vision from my right eye was normal, while from the left, it was significantly darkened. Maybe this is a question of physics, and how light falls and is perceived. I have also been dealing with headaches over the past week or so. I am at a loss now to know whether the eye pain is to do with the headaches, which may be brought on by the amantadine I started (how long for side effects to show? this would be the first headache side effect after about 3.5 weeks), or if this is optic neuritis again. Anyone here any good with physics and physics of light especially?
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I am a sixty year old female and went for my annual eye exam. I was told by my optometrist my left eye optic nerves were elevated - OS>OD. Also has irregular Mac. OS. She had her nurse call and make an appointment for me to see an Ophthalmologist tomorrow. I had a Brian MRI in December and the report reads. "There is nonspecific mild focal areas of bilateral supratentorial which is commonly secondary to chronic microvascular ischemia. MS seems less likely, but cannot be excluded".
I have intermittent headaches only on the left side and at times feel nauseous. Should I be concerned?
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I took my 11 year old daughter for an eye exam yesterday and the optician told me that the angle the nerve entered the eye was slightly tilted. She gave me a letter to give to my GP who would further refer her to the eye clinic. It wasn't an urgent referral but I am worried about this. Her eyesight was perfect and she doesn't suffer and headaches eye.
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I went and do a check up on my eyes and the optic nerves in my eyes is swollen ...I did a CT scan and the results was clean...so I want to know what causes the swelling.
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Referred to ophthalmologist by my neuro to investigate left eye grey vision spots, and weakness. Optho diagnosed optic neuritis (pale optic nerve, extreme light sensitivity, abnormal pupil dilation etc. etc...) and neuro prescribed IVSM 3 days at home. I was found to be allergic to the IVSM, however my post is referring to the worsening of my neuritis.
Since the treatment my eye is now constantly in pain fluctuating from minor to pretty debilitating. I am in sunglasses all day long except with indoors with no windows.... Or lights... Due to light sensitivity. The strangest addition to the neuritis symptoms, however is that as the day progresses (and my eye is used) the whole left side of my head goes numb. Since the MS work up beginning in Feb, I have only have left side facial numbness once for 5 hours. Now, it's daily. It certainly worsens as my eye gets tired... And there are bouts of shooting pain through the whole left side of my head that are very light and sound sensitive.
Is this normal for neuritis? To cause facial and head numbness as well? Or, could this possibly be some weird side effect from the IVSM as it's trying to "calm" my inflammation.
Also, every single day at about noon, for a week, I get this severe anxiety chest compression that makes breathing labored and short. I am aware of the side effects from the IV causing anxiety, as well as MS in general, but this is a trigger less symptoms that's more significant than any anxiety I have felt before? I'm curious if this could be, instead, the MS hug? However, there is no pain with it, just a complete chest compression that lasts about 3 hours.
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I am a female Caucasian that is 23 years old, 5' 7" and about 155 pounds. I was diagnosed with optic neuritis in early March. I had eye pain upon movement, blurry vision, slight loss of color (Which still remains), and some odd headaches (almost felt like a severe hot flash inside my head). The doctor did not feel it was necessary for me to take the steroid treatment. My vision is recovering, but I don't really expect it to be 100%. I had an MRI of the head and neck and it came out clean with no lesions. My blood tests came back clean as well. I consider myself to be relatively healthy aside from some urinary tract infections and my neurologist said that he doesn't think I will develop MS, but what I have read makes me think differently and I want to be informed. I know that there is no way to pinpoint exactly what my risk of MS is, but I was curious if any other cases like mine have not developed MS?
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The Drs thought I had Pseudotumor Cerebri, since my optic nerves have in swollen since Oct 2013. I had a MRI and Spinal tap. Found out my pressure was too low. But they found oligoclonal bands in my CSF. BUT concluded not enough evidence for MS. I have many symptoms of MS. My leg has been numb and burning in my thigh all day. Has anyone experienced their optic nerves swollen with MS? I'm not talking about inflammation in the nerves just swollen. Worried about going blind and trying to figure out what's wrong. I'm waiting for the Michigan head and pain neurology clinic to set me up with an appt.
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I went to a neuro-ophthalmologist due to some issues with my right eye. Blurry spot. Nothing too crazy, but annoying.
He did Optical coherence tomography (OCT) and vision field test. The vision field test came out fine, but the OCT showed thinning of the optic nerve. He told me he wanted me to be seen for an evaluation of possible MS.
After posting here a earlier this month about whether or not to go see a neuro, I had made an appointment with an MS Specialist. I see him on June 3rd.
Any idea what thinning of the optic nerves can mean?
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I have a ton of stairs at my new house. Go upstairs to get to front door, stairs to go to master bedroom and stairs to climb back up, and stairs in the barn. I must have walked up and down stairs today at least 10 times to do things outside. Well it's no wonder my hips are killing me! Ugg! But why has no doctor recognized that as a cause for my trochanteric bursitis that no corticosteroids has even touched the pain and burning sensation in my right and left hip? I had AVN supposedly left hip femoral head crushed like a ping pong ball and I cried at the diagnosis and treatment for hip replacement to find out after surgery I'm an inch shorter now on the left side. I totally appreciate that and yes I'm down right mad. I'm in worse pain now than when I had a crushed femoral head bone. I'm more upset that I'm still in pain and docs are just taking my money left and right and no results. Just keep taking a piece of me away, oh take some antidepressants that will take the pain away. What a joke! I'm subject to drug testing too for being in pain, this sucks! Especially when I see so many youngsters without pain. I wish I could go back 5 years ago. I might have changed what I ate, where I lived, dietary supplements and types of housing, stretching and exercise. Sorry about the rant, I just can't take the pain anymore!
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I was diagnosed 3 years ago and recently spent a week in hospital due to a headache not moving my eyesight went with it this time for the first time ever and I was driving with my 7 year old in the car it really scared me yet I had a lumbar puncture pressure was only 24 but my speech has been effected my eyes keep blurring this headache has been here for 10 days now and still no budge when I was in hospital they said both my optic nerves were swollen and I seen my neurologist today and he says it's just a migraine. The first 4 attempts at lumbar puncture they did in the wrong place so was unsuccessful and have left me in agony can anyone suggest what I can do I am not overly obese but all's my specialist says is lose weight they will stop
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I finally saw the MS specialist today, after months of waiting. His opinion was that my symptoms point to MS, but I will be having a plethora of labs drawn and an MRI. The most frightening thing to me was that he is getting me in to an opthamologist asap because it appears that I have optic neuritis in both eyes. I'm not afraid of MS, but I am afraid of going blind. Someone tell me something to make me feel better, please.
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