Nerve Disorders :: Involuntary Muscle Tensing & Contorting -dystonia?
Aug 30, 2013
I often involuntarily tense up and sometimes contort my muscles into painful positions—for example, arching my back deeply or sharply pointing my foot/toes. This occurs randomly, and many times every day. It happens in 1-3 areas of my body at a time, in varying combinations—including my jaws (clenching), tongue, back, hands, arms, buttocks, legs and feet. I don't realize I'm doing it until it starts to hurt! Once I'm aware, I can force the muscles to relax, but it just happens again after 10-30 secs, or if not that soon, a few minutes later (in the same part(s) of my body, or different one(s). It makes my muscles (and sometimes the joints) very fatigued and painful. I thought maybe it was anxiety, but it happens when I have little-to-no anxiety at all, and I've tried relaxation methods, stretching, anti-anxiety meds, all with no success. Someone I know told me that my symptoms seem very similar to the early symptoms of her dystonia. I don’t really know anything about dystonia, so if someone could tell me if this problem sounds like dystonia or not.
P.S. I’ve been diagnosed with: Asthma; ADHD; Constant Headache; Fibromyalgia; GERD; Irritable Bowel Syndrome; Idiopathic Tachycardia; Migraine—without aura; Depression; several musculoskeletal conditions (right shoulder, right knee, left foot); Keratosis Pilaris; Eczema; Upper Airway Resistance Syndrome; and Hypothyroidism. I also have the following symptoms that doctors haven’t yet diagnosed or attributed to any of my already diagnosed conditions: Ear Problems: pain (right ear, spreads to the neck just below ear, and to the surrounding facial area), stinging and itching sensations deep in the right ear, and bilateral paroxysmal tinnitus; Eye Pain/Visual Problems: left eye pain (accompanied by a gnawing numbness around that eye), bilateral eye pain (separate from aforementioned left eye pain), poor night vision, “trailing” (after lying down), and “ghosting” (upon exertion); Numbness/Tingling—entire left side of my body; Altered Taste—constant odd tastes—metallic, bitter, sour/citrus; Dizziness and Poor Balance/Coordination; Fainting/Falling; and Hair Loss.
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I've been having involuntary painless muscle twitches all over my body but mainly my right thumb. My neck twitches as well, like a quick pull of my chin to my shoulder. I also get strong jerks (my whole body) while trying to fall asleep. I also feel lightheaded. What is could be causing this?
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I'm a 48 yr old female and would like to know..why ..on my finger next to my thumb pulsates and involuntary movements and wheels
t that's happening..my nerve twitches next to my thumb..on my left hand..im right handed.
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Just wanted to know if anyone had ever come across this before. Our older son has had constant movement back and forth toward the other toe for over 4 months. Have gone to doctors and no one knows what it is. Also, has had muscle spasms in chest and back and sometimes down to the abdomen on both sides.
Going for MRI next week, but was wondering if anyone had had this before. One doctor thought it was from seizures, but the movement never stops. Is there a type of seizure that never stops? Also, have done some research on dystonia. Does dystonia have movements like this. Also, there is no pain from movement on toe. But, does have pain in chest and back. X-ray came back normal.
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When in bed at night I struggle to turn over or move as I feel so stiff and sore. Once out of bed and moving I am much better. I initially find it hard to become upright after sitting for any length of time. About 2 years ago my daughter noticed my right calf was much smaller than my left one. I cannot raise my self onto my toes on my right leg due to loss of muscle/strength in the affected leg.
I have had blood tests, nerve stimulation tests and a muscle biopsy. My CK level from my blood tests was slightly raised, my nerve study tests were abnormal and my biopsy only showed minimal change.
I now cannot raise my arms above shoulder level to the front and if I walk at a quicker pace my lower back feels like I have no support and I get pain around my lumbar region.
I go spinning 4/5 times a week and cope with this very well. It's as though once I'm warmed up my stiffness diminishes. I am 51 and have only one period every 3/4 months , I have been to the dr's re the menopause but have been told all my blood tests are normal.
i have been referred to a neurosurgeon and neurologist with ? A form of muscular dystrophy but now my muscle biopsy result has not shown the expected result.
i struggle going up and down stairs often. I feel so fed up with my inability to do what I want to do as I have always been an active person. I have put weight on and cannot motivate myself to control my diet.
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Does anyone that suffers from Benign Essential Tremor suffer from muscle twitching involuntary jumps and cramp in hands and fingers?
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Should I consult a Doctor about involuntary stretching? I am 67 year old woman in fairly good health- very sctive. This has been going on for several months and supplements have not helped.
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Although I try to be as active as possible my muscles are making life for me difficult, as for years they have been wasting, causing pain and tiredness. All other symptoms point to Fibromyalgia, which I believe doesn't cause muscle wasting.....also have Osteoarthritis. My muscle problems started in my mid. 30s.....am now 63 and is much worse. Recent blood tests show normal muscles values....but something must be wrong as my energy level is very low. Has anyone been /going through the same??
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My 30 year old daughter has been doing this for the last several years. She can resist doing it for a while, but typically snorts every 45 seconds or so when she doesn't feel a need to limit it. It's loud and unpleasant. She says it feels like she can't breathe so she is actually snorting in her throat more than her nose. She feels like her throat is tight and not letting in enough air. I know it's bothersome for her, but it is maddening for those she lives with.
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I'm struggling to cope with having tardive dyskinesia and can't stop lip smacking/tongue movements every day.
It's so embarrassing, not to mention socially weird. I feel a real freak and don't know if I can cope with having this for the next however many years.
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This is driving me crazy for the last year! Most nights I don't get a lot of sleep so I am often overtired. When I am about to fall asleep I will have lots of sudden episodes of rapid nonsensical utterances. My husband calls them AbbaDabbaDoo episodes, lol. The sounds are always different and often very loud. Sometimes I will even yell out. This all happens before I start to fall asleep or even feel I am drifting off. Often I am awake reading, on the computer or watching TV. Even when absorbed in a fast hockey game I can emit these sounds. There is no denying I am awake but, I am still tired. I was tested for Myoclonic Epilepsy but, it was negative. I do have Sleep Apnea and use C-Pap. I also have Myoclonus mostly with leg jerking but sometimes worse. The sudden blurting out episodes often co-inside with the leg jerks. Has anyone ever had this or even heard of it. I can get no answers from my ENT or Neurologist. I don't know where to go next in trying to get an answer. Is this just merely another version of sleep starts?
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I'm seeing a neurologist next week because of the above symptoms. I'm a 68 year old woman and my GP said it's the way my body is aging! I'm not so much worried (about for example Parkinson's) as intrigued. I know lots of people suffer hand and finger tremors but I am a bit unnerved by my hands and fingers moving very, very slowly on their own. As I stop typing for a moment my right little finger has raised itself from the keyboard as if it were being pulled but very very slowly. My whole hand will slowly curl and even my arms will move on their own if I am "at rest". It's probably something with no explanation but I wonder if anybody else who has been diagnosed with a neurological/muscular condition has experienced this symptom. I do feel as if I am trembling right through my body and my feet will also move independently if I keep still long enough. I don't seem to have any other Parkinson's symptoms.
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My arm has been tingling off and on when i use the mouse and lay my arm on the desk for about between June and Sept. By Mid September it happens every time.
It is not carpal tunnel. I am wondering if I injured it by nursing my 2 year old. I had dull pain the moves around from my upper arm to forearm and sometimes my knuckles. I stopped nursing 3 weeks ago and no more dull ache. But I have constant tingling when I use my arm. I am afraid my arm is permanently damaged. I noticed pain and tingling back in June but took it easy and changed my nursing position.
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I am a 29 year old female and I was diagnosed with Hashimoto's Thyroiditis at the start of the year. I have been having problems with my right eyelid in that over the course of the day it progressively becomes droopy and the only thing that relieves it is when I close it. When it becomes droopy it makes my eye feel like there's something in it and I end up rubbing it. It's only when I look in the mirror that it's droopy.
In January my endocrinologist ran an autoimmune profile (but not for every single antibody) and rheumatoid factor and these are the results of it:
Rheumatoid Factor - 9IU/mL (<20 negative)
HEP2 - Positive
Type - Speckled
Anti-DSDNA - 7IU/mL (<30 negative)
(Positive antinuclear antibodies but no significant disease association found)
ENA screen - Negative
Autoimmune profile
Antinuclear Abs - Positive
Anti-Smooth muscle Abs - Negative
Anti-Parietal Abs - Negative
Anti-Mitochondrial Abs - Negative
Anti-LKM Abs - Negative
Anti-Thyroid Peroxidase Abs (Anti-TPO) - 141 kIU/L (<34 negative)
I am posting here because I have a suspicion that I have Myasthenia Gravis. Not only have I got the problem with my eyelid but I tried to follow some physical tests for muscle weakness such as holding my arms out straight in front of me and deep knee bends.The results of these home tests I did:
Holding out arms stretched in front for 60 seconds - pain in both arms when it came up to the 60 seconds and left arm dropped slightly
10 deep knee bends - did all 10 knee bends but the last 3 made my legs feel weak and shaky
5 sit-ups (sitting from lying down) - could only manage 4 sit-ups
I have an appointment with my GP on Friday and since this has now appeared I'd like to mention my concerns to them.
My main concerns are :
Wouldn't my endocrinologist have tested me for Myasthenia Gravis if it's an autoimmune condition? If so what antibodies would she have tested and would any of the ones I had tested have shown I have Myasthenia Gravis?
Who do I need to request to see to get a confirmed diagnosis?
If it is indeed Myasthenia Gravis would it be because my current autoimmune condition made it worse? I have read that this is possible and I became very hypothyroid yesterday as I had very bad Reynaud's flares when out and about.
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My left eye has weak nerve in retina and the retina also dry and I see in it only 10% (can not distinguish things, I can know there is something here or something maybe is moving ... like this).
Is there any solution specially after stem cells science has been developed?
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About two years ago on Christmas due to high blood pressure I lost little pieces of my right eye it hasn't come back Since then the doctor said it's ocular nerve damage does anybody think surgery or anything will make it come back
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3 years ago i developed muscle weakness in my legs that meant i could not take a normal step or raise my leg off the bed,after about 2 weeks this started affecting my arms as well meaning i could not lift my arms above my head, the weakness is periodic and last for anything from 5 mins to 6 days. it varies in strength, when its at its worst i cannot walk at all. the longest i have been symptom free is 5 months. there is no pain involved at all. i have seen various neurologists and had MRIs and EMGs, my reflexes remain intact, i have also seen a psychiatrist who said i need to see a neurologist.
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I'm a 34yr old healthy male. I do not have Diabetes. I don't smoke and very rarely drink alcohol. I'm a vegetarian. I feel pinching sensation and pricking sensation (just like when we sit for long time in same position & get that sensation) in my foot when i travel in a cab/car & also rarely at home/office. My blood sugar levels are in normal range ( got tested recently). May i know why this might be happening. I'm worried.
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For the past couple of months whenever i get tired or stressed my left fingers & hand shakes uncontrollably and i have a bit of weakness and cant grip my hand properly. I've been to the chiropractor a couple of times in case it was my neck causing it but they say my neck is fine.
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Deviated uvula; Is it cranial nerve palsy?
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I have a lump on the outside of my lower right leg towards the front. It doesn't bother me at all until I accidentally bump it. Then it sends a pain like an electrical shock down through my foot that brings me to my knees. Any ideas what it could be?
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