Myalgic Encephalomyelitis With Frozen Shoulder
Mar 3, 2015
I am suffering from both M.E. and a frozen shoulder. I am finding these two disabilities very difficult to live with. with no support from family and friends. I thought that M.E. would be the only one that no one understands, but now I get the feeling that they think I am exaggerating the pain of the frozen shoulder, so maybe they have always thought I was making up M.E. how bad makes me feel .if anything I play it down. It is getting me down so much. I am doing my best to keep going. I have to spend so much time resting. I am so exhausted. Too tired to carry on writing.
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For a number of years I was on various antidepressants and had counselling, which really helped. It has been over 15 years since I last had any prescribed. Since then I have been diagnosed with M.E which I can manage to a degree but lately the symptoms have worsened and I'm in pain quite a lot. This amongst other problems has triggered my depression and the doctor has prescribed me Sertraline.
I'm feeling hopeless at the moment and very teary and feel like I need to take something to get me back on track.
I am really worried about taking them due to the side effects mentioned, as on a day to day basis my M.E symptoms are lack of energy, aching muscles especially in legs, muscle weakness, backache, severe headaches and eye pain which last for days, blurred vision, poor body temperature control,chills and fevers, excessive sweating episodes, nausea, vomiting, stomach cramps especially after food, dizziness, insomnia even though I always feel tired, inability to stay asleep (I wake up numerous times each night) constant trips to the loo throughout the night, breathing difficulties, heart palpitations.
I struggle enough with the above symptoms and when I read the side effects of Sertraline it seems like they could exaggerate my illness.
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I see most people lump CFS and ME together and they are not the same disease. They should be referred to separately as many of the symptoms of ME are not the symptoms of CFS. You can't die from CFS but ME can be a debilitating disease that can get progressively worse and CAN lead to death. So whichever one you are suffering from, what helps you feel better with CFS most likely will not help you feel better with ME. I am definitely on the upswing with my CFS. I walked almost 2 miles this morning and am feeling better every day. I think I am on the road to a total remission again. ME patients really have to monitor their activity levels so as not to cause themselves to go backwards and aggravate their condition. Don't lump these conditions together because they are totally different. Think of them separately and they need to be treated separately.
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I was diagnosed with M.E. in August 2012. I now consider myself to be practically recovered from it. I still have the issue of fighting infections off, but other than that, I feel I can do anything that I want to do!
I was sleeping for 16 hours a day, not able to move without becoming too tired, headaches, muscle tiredness, unable to work, and many other common symptoms! My M.E. became apparent when I had tonsillitis, but that was obviously the final straw for my body as I had been having symptoms for months previous to that but hadn't thought much of it!
I followed a number of different ideas and techniques which I believe had a major impact on my recovery. I know that this won't be for everyone, as there are symptoms I didn't experience, and I didn't have other linked conditions such as Fibromyalgia etc.
If you would like some PERSONAL advice, and I have to stress that these techniques are only my opinion of what I have found to have worked, please feel free to message me on here as I now have time to give something back to others who are suffering. I personally think individual messages on here would be more beneficial than an overall tip!
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About 9 months ago I suffered severe bilateral frozen shoulders. With Physio and various medicaments, 7 months on, it finally came back to 95% FRM and hardly any pain to speak of. Since then, the hips have gradually become very stiff and painful with similar symptoms as the shoulders...especially the muscles supporting the legs becoming painful as did the muscles of the mid-lower arms. Also the back muscles seem more affected than before. Has anyone any idea if the frozen shoulders affect the hips? I understand thyroid problems can be a predisposition...I have an underactive thyroid.
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I have a 'Frozen Shoulder'.
This was caused by an inoperative Humerus shoulder fracture because the orthopedic surgeon found an infection in my bone during surgery. ( I fell back on 10/6/14) Doctors were baffled how I ended up with an infection since I had no cuts and was in perfect health before I fell.
Surgeon put a drain in and closed me up. I was in a sling for 2 1/2 months and on IV antibiotics for over a month.
Dec 14 I started Physical Therapy, 3xs a week. Along with exercises at home. I have little ROM. Very stiff. Extreme tightness.
I have constant pain from the back of my shoulder to my elbow, bicep. muscles. The little knots are quite painful. I push, squeeze to ease the pain. Massaging the shoulder / arm eases it just for a bit.
Due to the infection that was found in my bone during surgery, three ortho surgeons said they will not operate on my shoulder.
Intensive therapy is all they said I need.
Ortho surgeon will not prescribe pain medication.
My primary care physician prescribed 10mg oxycodone which I cut in half. I only take a full pill when I have physical therapy. Scared what will happen when I run out of pills. Doubt my Dr will refill the prescription. (sad face)
I have tried Aleve, Excedrin, Advil, which doesn't help the pain. I even mixed them with benadryl to sleep. But that didn't help either.
Do to Medicare amount allotted for physical therapy, I can only go a certain amount of times. Which now, I only have a few more visits to go.
Been going to PT for about 3 months and haven't seen any improvement. This is really horrible!
PT said he will teach me what I can do at home and that I could pay $30 a visit if I wanted to.
But personally, I feel it would be wasting my money since I would be paying him just to rub my arm for 10 minutes since I do the same exercises at home. I bought a door pulley and therabands.
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I have got the most horrific pain in my right shoulder and currently waiting to go for an ultrasound scan. I have been in pain for around 3 months now and have been prescribed various opioid pain relief from my GP: codeine phosphate, tramadol SR but sadly to no avail, I am still in agony but in a zombified state. Long story short, I went back to GP today and he has prescribed 300mg Gabapentin....I am a little apprehensive about taking it (1 today, 2 tomorrow, 3 the day after etc). I am desperate to be free of pain and to sleep so OF course I will take it, I was just wondering if anyone else has taking it for FS pain and how it has worked for you?
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Ok, has anyone developed migraines with FS? After my cortisone shot fiasco a few weeks ago, I have been having awful headaches. I have never had migraines before, and had one yesterday. Called the doc and she wanted me to go to ER, but I frankly could not drive and no one was home. Finally just fell asleep (somehow). I feel so off today. Will call doc in a bit, but wow, really do we need to add more to FS? At least it took the focus off the pain in my shoulder and arm! LOL
I have never had a headache that bad in my life. Maybe it was something from the Kelalog 40 they injected in my joint, I did have an allergic reaction to the iodine or something and ended up in ER same day as the injection a few weeks ago. Is this a normal thing the, the nasty headaches.. that rest of you have experienced?
Mind you, I have no curve in my neck right now (doc said due to the severe pain I am in) and the headache yesterday was from my shoulder, up my neck to the back of my head.
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I just recently join this forum and would like to hear everybody's experience with their frozen shoulder. I just turned 47 years old. My right shoulder started to "freeze" last November. I had tried steroid shots, acupuncture, cupping and regular PT since Feb. Now I only can pick up my arm without bending my elbow about 90 degrees from my body. I feel the stubborn pain from my shoulder daily and very sad that I can't dance any more. Now I am also considering Manipulation Under Anesthesia (MUA). Advice please? Worked? Recovery time?
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I have been treating my frozen shoulder with traditional physical therapy. About three weeks ago I started acupuncture. After the first session my calves started to ache. They do not put needles in the back of my legs. I was doing exercise in the doorway that would put stress on my calves for 2 months prior to acupuncture. At that time my calves did not hurt. I find it strange that the calves began aching with acupuncture.
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I've been dealing with FS since Fall. That's when I noticed the dull achy pain that I thought was from a new bra strap digging in. In December I started having the zinger pain that would shoot down my arm with sudden movements. I saw a Ortho doctor in February who gave me a Cortisone shot and sent me to 6 weeks of physical therapy. Very painful, still can't raise my arm all the way, but I haven't had that zinger pain in a while so I believe I might be starting to see the light at the end of this long tunnel.
What I'm experiencing now is an almost constant dull aching pain in my upper arm, like where you would get an injection. I also have a lot of tenderness in the area around my upper back behind my armpit.
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I have bilateral frozen shoulder - idiopathic. Several professionals have stated my left is "severely affected". Right is manageable and seems to be on recovery but full ROM is not there yet. Ortho is considering MUA with a scope to clip any scar tissue on the left. I'm wondering what is the true pain level of this surgery? How soon after were you to "functioning"? I have 3 kids (9, 6 and 3).
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I had this debilitating condition for fours years first in my left shoulder than in my right. the first 6 months in both shoulders is absolute hell. the pain unbearable, sleepless nights and the incapability of doing anything ´normal´. It feels like it might never pass but it does the process of healing was for both shoulders the same and took just as long but now it´s like it never happened and I can use my arms freely.
As for work yes your employees should take this very serious and realize that it will pass. During the worst period, depending on the work you do, they need to make adjustments to accommodate your injury and specifically jobs that require arm strength or raising your elbow any higher than shoulder height will not be possible for at least 4 - 6 months. but after that slowly your capabilities do come back and most of the pain is gone.
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I was diagnosed with Frozen shoulder last week after having pain for 3 weeks. The pain seems to be subsiding, which is great considering it's only been 3 weeks. My concern is that is short lived and that the pain will return as Frozen shoulder symptoms last for up to 12 months.
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I had a capsular release and an extensive debridement for a frozen shoulder about a month ago under GA. My ROM is much better but I am still in PT for internal and external rotation. Does anyone know how long the pain will last? I thought 4 weeks post op I would start to feel some relief. I am still waking up every 2 hours in pain and taking pain medication and a muscle relaxant.
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I didn't chicken out and had it done. They said it was one of the worst they have seen. I got though my first aggressive therapy this morning with nerve block still working. He was able to get it to 180 woohoo,! The block is wearing off now and I feel sore but not like ti thought at all. They also gave me some heavy meds. It was so nice having a great night's sleep that I haven't had in 3 months. Now to push through the next 2 weeks of therapy and staying positive . Again, Ty so much for your replies.
4 days after MUA sore but nothing like before. Therapy everyday is rough but pushing through. Range of motion is almost back to normal. Bending the elbow and forearm out is the hardest one. I am so happy I went through with it. The only other problem is insurance not wanting to extend more therapy. If you are only doing therapy and thinking about MUA keep this in mind as therapy here is $80 half hour.
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I've just got home after Having MUA with NHS. I noticed I can raise my arm higher but been advised not to also to keep it rested.
I'm just worried that if i don't exercise my shoulder it will freeze up again. How long before i should start exercising my shoulder again and any good websites with descriptive diagrams on any exercises i should be doing at this stage as i wasn't shown any to do and if i were to book an appointment with my physiotherapist at my gp's centre i would have to wait anything up to a month. I'd Like to be going to swimming weekly with my children again and getting my normal life back, washing my hair properly day to day housework and gardening too before winter sets in will i have to wait long to do this
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Just noticed swollen breast with frozen shoulder ....
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Just been diagnosed. It hurts so bad. How doyou deal?
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I have seen several people who have posted that they have had this in both shoulders. I have had it in both and now on the second time for my right shoulder. This time is much more painful than the first two. I have done my best to wait it out and I just cant take it any long and am considering surgery this time. The three cortisone shots have done nothing for me.
My doctors have said this is an unusual case. They have never mentioned hormone levels. They have been checked twice this year and come back fine. Do I need to ask for a specific test or should I try hormones first to see if they work before I try surgery?
I am a person that just tends to do what the doctor recommends but I don't want surgery if I have another possible option.
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I had a fall a year ago and ended up with a frozen shoulder. Can anyone tell me how long the pain stays for. It is still severe with limited movement and keeps me awake most nights. I would also like some ideas in relieving the pain.
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