Mild Hyperparathyroidism
Dec 18, 2015
I would just like to ask anyone's opinion of my latest blood tests, as I have no idea if they're good or bad.
Dec 18, 2015
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Gallbladder Surgery :: Persistent Mild Dyspepsia, Mild Nausea And Appetite Loss
RECENT HISTORY
First, I am diabetic and have had a fairly normal healthy life except in the last two years where I gained 40 pounds, did not control my blood sugars well, and went off the rails. I have had a lot of issues this year, but to focus on my most recent issues, I had a A1c of 10.5 two month ago and went to 9.1 a month ago finally to 7.6 right before my single incision laparoscopic with robotic-assisted single-incision surgery to remove my infected gallbladder (Hida Scan 11% no gallstones). 6 month ago i started experiencing a lot of bloating, indigestion and took charcocaps that helped a lot after meals.
Two weeks ago I went out for a cup of iced coffee (huge coffee drinker 3-4 cups a day for a long time no problems for years), and something hit me, it felt like a sharp pain and instant feeling of bleh no appetite and sick feeling the rest of the day. This continued for a week before I knew something was wrong, I could not have anything acidic or felt like I could eat anything. I had just seen my doctor for a bike accident a month prior to get a referral to a PT and osteopathic doctor. I had a l3/l4 compressed nerve with a twisted sacral (this is much better now with some minor spasms in my right leg from time to time). With all of that pain (took hydrocodone and muscle relaxants to sleep, sleep was poor) and school, I figured I must have given myself an Ulcer. My doctor game me a ppi-omeprazole (i've never had reflux and didn't then) since I had symptoms of some burning sensations and this chronic dyspepsia so this would treat the possible Ulcer for two weeks while I was sent for an ultrasound to check out my gallbladder (family history - Mom, aunt, and uncle had their's out with gallstones). The ppi sort of helped but I just was fatigued, could not eat anything but a bland diet, I had chronic dyspepsia and general nausea that I could never shake. My daily caloric intake decreased with each new day and food just made me generally feel sick, however if I skipped meals it would still be bad, worse with food.
TEST RESULTS
After the Hida scan came back positive with an ejection rate of 11%, I scheduled my new a1c test, ekg (family history of heart disease), I was cleared and scheduled for surgery. I stopped taking the ppi as I believed this to be the cause of all my problems. btw, I was 254 the end of june and lost 25 pounds by the time of surgery (average daily caloric intake ~900-1200 prior to surgery
POST SURGERY
After the surgery 7/21-one week ago, I had my two days of pain and adjustment, and recovered decently with a soft food and liquid diet. I noticed the general sickness was gone! Hazzah!, except on Saturday I was feeling bloated, cramping, and I could not eat a solid one bite without feeling sick. I knew I was constipated. I stopped the pain meds the day before and I knew I had not eaten too much but it was over a week since i went. I took magnesium citrate and nothing after 7 hours, I drank another 1/2--then BOOM it was insane. I was sooo wiped out and tried to replace lost liquids but I believe I was dehydrated. I was sick that night and stomach was not happy.
Sunday was much better but I was wiped out still and felt generally just depleted of all my energy. I ate, walked a bit and then came back home. That night I started feeling very uncomfortable and the symptoms were somewhat similar to prior to surgery of the general dyspepsia and nausea chronically. I could not sleep because of my back problems (had to sleep upright on my back all week). I woke up in the middle of the night turned to my side and then all of a sudden I felt a warm rush of something just above my stomach and the constant burn in my stomach no reflux. I could not sleep until the morning.
NOW,
I have had really bad gas (low fat diet) for the past few days. I was getting and feeling better on day four but now this!
I felt extreme discomfort all day, felt like a low grade fever 98.6 (no fever) incision site is also slightly red, but the doctor said to call if I had a fever. I was worried about an SSI. The pain was like I threw up (I never have even starting out back in at the coffee shop) and that ache afterwards. The burning sensation let up later in the day after I took some antacids and saltines (I must have some acid issues, but I have read a lot of people suspecting many people may actually have low acid).
The thing is a lot of people have episodes after food, but mine is chronic with mild discomfort, burning sensations, upper abdomen and stomach discomfort (with some nausea), and food helps it initially and then it comes back. I feel week, slight low grade fever even though I don't have one. I keep thinking I have an infection of H. Pylori or something. Food takes a while to do much, I walk after I eat everything. I feel like I could eat but I get so much bloating and indigestion that it is uncomfortable. I drink plenty of water, but I wonder if I am low on essential things for the long ongoing low calorie daily diet. I can't eat more then 800 calories even with smaller meals-since Thursday.
Why was my gall bladder inflamed in the first place? I had no stones, and the surgeon said I had a very long a big gallbladder (ready to rupture!) that was really inflamed including a little on the liver. Pathology reports came back negative. I theorize my rapid change in weight and blood sugar levels inflamed the organ or an infection.
Possibilities:
diabetic Gastroparesis
H. Pylori
Peptic Ulcer (was never officially tested)
Gastritis
Anxiety
Low/High Stomach Acid
Low bile leak?
Sphincter of oddi dysfunction
What I feel could help:
HCL Betaine
Digestive Enzyme (Garden of life chewable vegetarian)
ppi (I would hate to take them unless I had to)
something to coat my stomach if I do have an ulcer to heal
ability to eat more so I can have more assimilated minerals, ect.
Anxiety med (first year i've had a lot of anxiety-mainly school related and upcoming wedding planning for next year
more tests!
My burning anxiety questions:
When will I get my appetite back?
(i really suspected my odds were decently good that I would get better after surgery, I had a great surgeon)
Did anyone have any of these chronic symptoms? Is it due to an infection or some issue with surgery?
Have some people eventually been able to eat what they wanted after a period of time?
How many had these excessive bloating, indigestion, nausea and general malaise through the day, worse a little while after food or between meals?
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Also his BUN and Creatinine levels have gone up rather rapidly and a little too much for comfort as far as i am concerned.
His creatinine in his blood has doubled from 1.1mg/dl to 2.4mg/dl
His BUN has gone from 25mg/dl in june to 41mg/dl when the test was taken the day he had the 2.4 creatinine .
He passed the stone and it showed on CT not to have been really large, but after about 2 weeks, his urine dipstick test for blood still says he has a large amount. I found site where there are doctors in Tampa, Fla that only do hyperparathyroid cases and surgeries.
The problem is that our family doctor knows little about this disease and the Tampa Docs say a lot of Endocrinologist don't really know a lot about it. So now an endocrinologist that has not seen my husband yet is telling us to see a nephrologist.
I think that he needs at least 3 PTH results to at least see where he is falling in the range. Naturally nobody moves very fast on this kind of thing, Doctors just don't want to talk to you, as if you can't understand the tests...well i can and can carry on a conversation about it, but i think because of their lack of really knowing a lot about this disease, its easier to avoid me and to send to this doctor and that. I don't want a bunch of different viewpoints i want the doctors to come together and at least discuss what the other has to say about his case. I am trying to save him as much "wild goose chase" as possible. Any advice on what I should do, ask or insist on from the doctors, while my husband is probably getting worse.
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